Just been diagnosed

[Shell1975]

Hi Kate. Appointment went ok but they didn't have Ct results, got to wait till tomorrow, having my portacath put in tomorrow too. Had a bit of a wobble earlier thing it all just hit me. My friend called just as I was stressing which made me feel a bit better , she us the most amazing friend, gonna come with me on Monday. Do they usually let people sit with you when your having chemo. Hope so she will make me laugh even when I'm a bit scared. Hope you are all ok x

[Guest user]

Hi shell, how did you get on with you appointment today?xxxxx

[Shell1975]

Hi guys had my scan. Got app to see consultant Tomorrow and start chemo Monday things moved fast today

[Guest user]

Good luck with ur ct scan today shell thinking of u darlin xxxxxx

[Guest user]

Hi shell- Thinking of you today with your ct scan! Xxxxxx

[Shell1975]

Hi Kate and Di. Thankyou for your messages I've got my ct scan tomorrow, hopefully I will find out what I'm dealing with asap, it's definitely the waiting for definite diagnosis that's the worst. It's funny how all I want now is it to have stayed in my breast and under my arm and hasnt gone anywhere else. Last week I was hoping I didn't have BC at all. Perspective changes so quickly doesn't it. Think I will be starting chemo in march so I will join that thread. again thanks for your support. Shell x

[Guest user]

Hi Shell1975

Sorry to hear your news but welcome to this site. There are two threads: Chemo in Feb and Chemo in March: The Fab Febs and the Marvellous Marches
http://share.breastcancercare.org.uk/forum/chemotherapy-march-2012-t35938.html
http://share.breastcancercare.org.uk/forum/starting-chemo-in-february-2012-t35544.html
You will find lots of support from the ladies here, Personally I started on the January 2012 Surgery Buddies, now on the Feb and March chemo as I start mine on Wednesday. I was dx on 12th December, mx on 12th January.

Jeppy: you must be so annoyed with being ignored. I’m sure if you rang the helpline on here they would give you advice if you wanted to take it further.
You WILL get used to looking at your self, it gets easier but I don’t think you ever come to terms with it, I haven’t yet. But just think of it as beating a disease, as my daughter said to me, you are still you, Mum, just a little less of you. You ARE still you. I had an excellent nurse on the ward who helped me to look at myself, I had feelings exactly like you, I feel ugly and mutilated, but I will beat breast cancer. I’m lucky enough to be part of a drug trial (with chemo) that is looking to prevent primary bc. Anything that will help ladies in the future to beat this horrible, horrible disease. Talk to the ladies on the Feb or March chemo threads, we are a canny bunch, and there are always ladies posting who are “through the tunnel and out the other end”.

I felt terrific support when I was going through surgery, we all hold 'virtual hands' at various stages through our treatment. It's just so difficult to understand how there are 48,000 women diagnosed every year with breast cancer! (and 300 men).

Let us know how you are getting on
Hugs and xxxx
Di

[Guest user]

Hi shell1975- my mum has just had been diagnosed with breast cancer and that it has spread to the lymph nodes, she has her ct scan on Sunday to determine whether it has spread and what grade it is! Have you had your ct scan date through? Will be thinking of you! Lots of love and prayers coming your way xxxx

[Shell1975]

Hi angie thanks for your kind words they made me feel a bit better, today has been a particularily stressful one, but I shall remember that they are ninjas I think, hope mine are as tough as yours x

[Guest user]

Hi Shell1975 - Sorry to hear you've joined us but take heart that it is actually very rare for the cancer to spread past your lymph nodes.

Think of you lymphs as your "Bouncers" who are there to make sure the little "yobs" don't escape until the police (your surgeon) gets there. I used to visualise my bouncers giving the yobs a good beating every time I had a twinge in my breast or armpit and after my CT Scan I "promoted" my bouncers to highly trained martial art NINJAS (in my head - obviously not in reality).

For me it worked because it hadn't spread but 8 out of the 19 nodes were infected and have been removed.

I will keep my fingers crossed for you.. Angie

[Shell1975]

Hi I've just been diagnosed with breast cancer, not sure what grade it is but it has spread to my lymph nodes under my armpit. I'm waiting for a CT scan and to start my chemo sometime in the next week or two. Cant stop worrying that it has spread, just want to get on with it now, the waiting is driving me crazy! Comforting to know that im not alone.

[Guest user]

Oh Jeppy my heart goes out to you ! Sending you a virtual hug ((()))

I completely understand your anger towards your doctor and I've personally had to stop my family going into my surgery and getting nasty with my doctor. I have gone in and asked what their complaints procedure is and I will be writing to the practise manager but I wonder whether it's worth it ;-(

I was very lucky as my Surgeon decided to do breast saving surgery and hopefully I will find out tomorrow that she has taken enough and I will get to keep my breast, but I was very prepared to have it taken at the beginning.

I think now you've had the surgery the shock and enormity of it all will hit you and you need to just give in to these emotions. Don't think too far ahead yet.

I met a lovely lady in the hospital that has had reconstructive surgery now and she had a FAB pair of boobies - so don't despair. You could end up with nice Jordan fake boobs and an amazingly cleavage without the huge credit card bill 😉

Some ladies have found their fake boobie some comfortable and discreet under clothes that they've decided not to bother with reconstructive surgery. It's just too soon to be thinking about that now.

Ok - I know I am being very light hearted but what I am trying to say is that it's right to grieve and feel such a loss and although your friends can't truly put themselves in your shoes, they will be able to empathise and will be there for you when you are ready to look at yourself.

There are many ladies on here that have had the MX and you should try and reach out to some of them. They are a fantastic bunch on here. You won't look ugly and mutalated, you will look beautiful and strong and your friends and family will be overwhelmingly proud of you for coping with this incredibly tough journey.

Take care and give everything time xxx

[Guest user]

Thanks angel just back from seein the chemo nurse, I start chemo this thursday wish me luck ladies xxxxxxxx

[Guest user]

Hi Angelherts
Reading your blog has touched me so much.Similary l was ignored when l felt a lump,they thought it was a cist and sent me home. The lobula cancer wasn't detected as early as it should have been l had to go back and keep telling them it was,nt right before they eventually did a biopsy on the lump. I'm feeling quite alone with feelings of anger that maybe if the doc's had done the biopsy earlier the breast may have been saved like you. I have just had surgery, a mx last week but finding it impossible to look at myself and still grieving my loss. Sounds like you have good friends, like l have but how does anyone know what its like to lose such an important part of a womans body? I feel ugly and mutalated, l can't face any mirrors, just cry like a baby every time. How do l get through this..... any sugestions please.

[Guest user]

Hi Purple, Hope you are OK. I haven't had any tests on my thyroid / throat so can't advise. Didn't they explain why they were doing that test ?

I am also really sorry for disappearing for a while since I posted all my panic comments about waiting for my CT / Bone Scan / Inflammatory Breast Cancer Biopsy results but I still find it weird coming on here as it's admitting I have the "C" word. I find it much easier telling people I am just ill or having "treatment" but the minute I say Cancer I want to cry my eyes out. Sorry.

I am very pleased to say that ALL my many test results came back clear and my blood tests were 100% perfect. My surgeon had been convinced I had secondaries and Inflammatory Breast Cancer and from day one was telling me that it might not be curable - talk about doom and gloom !!

My wonderful Breast Care Nurse actually rang me about an hour before I was leaving the house to get the results and told me the good news because she knew I would of had a melt down in the waiting room otherwise ;-( and when my mum and I entered the room the surgeon lady was actually smiling !! We didn't know she could do that lol

It would appear that I had "Inflammation" due to an Infection in the breast (which someone has said could well of been my body's way of reacting to the cancer there) - and basically this infection is what alerted me to a problem. Doesn't change the fact that my doctor ignored it all - and that I was sent home for 2 months with BOTH a breast Infection AND Grade 3 IDC Cancer with Lymph Nodes Involved - but thank god I am now on the road to treatment and recovery.

So Weds 1st Feb I got the all clear from any nasty secondaries etc and then she also changed her mind about doing a mastectomy. No idea why as I had never been given a choice about saving the breast before but have decided to trust her completely.

So last Tuesday 7th Feb I had a WLE and full node clearance - it was a 5.5 hr surgery - which seemed an incredibly long time - especially as my boob looks FAB and once the multi colored bruising and swelling goes down then you'd never know it's been touched.

I was awake at 10pm at night and by 10am next day I had eaten breakfast, got up and walked to the loo and was looking far too well to be in a hospital. 24hrs later I was sobbing my heart out and didn't know why. The breast care nurse came round and smiled and said that it's normal for it to "hit you" after surgery and said to expect several more days of tears - and she wasn't wrong. But crying is good - and it's not because of any pain - just emotions.

I know that I couldn't wait for some treatment when I was first diagnosed and you will all hear people say that it's easier once you have those test results - and truly it is - but be kind to yourselves ladies. The stress alone is a huge shock to the system, so let people spoil you. Forget work or housework, and give in to any tiredness.

I went in on Tuesday at 8am and left on Friday at 6pm and have pretty much laid on my settee ever since. Friends have been amazing - even washing my hair for me (as can't put arm above head), and washing my smelly armpit (that I can't reach yet), and taking my son out bowling today (as single mum), and bringing round meals (in fact casserole is due to be delivered any minute), and taking photos of my brightly coloured boob ready for when I feel up to doing an online blog.

Take each and every offer of help - no matter how small - and you will be surprised by who comes out of the woodwork and wants to help ! Even had contact from someone I fell out with years ago because Breast Cancer took her mother when she was a little girl and she's mortified that I've been affected.

For all those that have just been diagnosed - Keep Positive - Be Strong if you feel like it but don't be afraid to cry your eyes out either as you are perfectly entitled to.

I'm not sure doctors would approve of the treatment plan but the day after I came home I had wine and chocolates as well ! Worked for me as slept like a log (but I wasn't taking ANY drugs then as hate taking drugs - however have now learnt that it was a mistake to stop them and taking Paracetomol 2 or 3 times a day and an anti inflammatory just twice a day - makes a HUGE difference).

I now have to wait (again) to see if they got a clear margin before finding out my next step in this rollercoaster ride but surgery was pretty painless and hospital food was surprisingly good !

Keep us informed Purple on your tests and when you start treatment. xxx

[Guest user]

Hi Shirl
Thank you . I Hope all goes well with you on wednesday I know it isn't easy, waiting is the pits
please keep us updated .
Please may i be your friend

[Janet_BCC]

Dear Shirl

I'd like to just echo what Sam said in the post above yours about the helpline. Do give them a call- they are there for information and support.

Take care

Very best wishes

Janet
BCC Facilitator

[Guest user]

hi just found out i have lobular breast cancer had lump removed 2 weeks ago it was a size of a walnut waiting to go to jr on wednesday for results hope all goes well with u . shirl

[Sam_BCC]

Firstly, welcome to the forums, I am sure you will find it a great source of information and support.

I'm sorry to read of your diagnosis, the first few days and weeks are always difficult when coming to terms with things and getting to grips with your treatment plans, etc.

You might find it helpful to order the BCC resources pack. It has been specifically designed for those newly diagnosed and contains information to help you better understand your diagnosis, test results and the various treatments available. If you would like to order a copy just follow the link bellow:-

http://www2.breastcancercare.org.uk/pub ... cer-bcc145

Also, do give the helpline a ring if you need any further support or information. They're on 0808 800 6000. Open 9-5 Monday to Friday and 9-2 Saturday.

Best wishes Sam, BCC Facilitator

[Guest user]

Hi all am new to this sight and have been reading all posts regarding breast cancer,
It was confirmed on 2nd of this month that i have breast cancer,test from the lymph node confirmed cancer cells,but fortunately breast only showed a grade1 invasive ductal carcinoma so am more fortunate than some of you .
I go for my pre-op this friday and having a mastectomy and axillary node clearance on 22nd this month.
Thank You for reading

[Guest user]

Thought I would post as the sleep fairy is keeping me awake lol

Had a ultrasound on my throat( thyroid) yesterday and a biopsy that was unpleasant as no local was used anyone else had this done?

[Guest user]

Thank you sweetie that makes me feel alot better 🙂 also had the implant removed today doctors orders xxxxx

[Guest user]

Hi Purple

My Tumour is triple negative too. I am also having chemo before surgery to shrink it. I am due my second "juicing" on monday. I think they check if your tumour is receptive to three different hormones. Our tumours are not receptive to any of them ( think this means that the hormones are not helping them to grow). Hence the triple negative. Dont think it has anything to do with contraceptive implant.

Does that help?

Nicola xx

[Guest user]

I now know what type my bc is it's tnbc grade 3 with locally advanced ,I've got to have neo- adjuvant chemo with fect for 4 cycles followed by taxotere every 3 weeks for 4 cycles then surgery as they have to shrink the tumour first all so confused wonder if it's because I have the con implant inthats why I have no hormones? Advise needed pls xxxxx

[Guest user]

Hi Chascat
like you l go from the deepest low to picking myself up and saying 'you can do this' a million times, life is a roller coaster and bc is the scarest of them all.I don't think they have all the answers for treatment of bc, until they have the results from everything. Hopefully they are right in your case Chas and you are a straightforward case, good luck for the 8th. Keep busy and keep saying i'm an easy case to yourself to keep positive.
Sometimes with cancer l think it's trial and error, (hopefully not so many error's though) as l have been told things that at another apt 'oh sorry, can't do that'. What l find frustrating is the varying ways they deal with you, one minute you will probably have a treatment then oh sorry no you can't. Why say it in the first place if they dont have all the facts. Doctors, l'm afraid l still find it hard to trust what they tell me, But that's because they missed my cancer for nearly a year. My fathers cancer was also miss diagnosed, but that was 20 years ago and l know things have changed since then. Take care, good luck on your journey Jeppy x

[June_BCC]

Hello chascat

Welcome to the forums. I'm sorry to hear of your diagnosis, the first few weeks are always difficult when coming to terms with your diagnosis and treatment.

As well as the support you will receive on the forums you might find it helpful to order the BCC resources pack. It has been specifically designed for those newly diagnosed and contains information to help you understand your diagnosis, test results and the various treatments available. If you would like to order a copy just follow the link bellow:-

http://www2.breastcancercare.org.uk/pub ... cer-bcc145

You may also like to talk things through with one of the helpline staff, they are there to offer emotional support as well as provide information. The free phone number is 0808 800 6000 and lines are open 9-5 Monday to Friday and 9-2 Saturday.

Best wishes
June, moderator

[chascat]

Hi all, this is my first post, I was diagnosed with BC on the 13th January but wasn't really told much else apart from the size 22mm x 14mm and that the lymph nodes were clear on the scan. I had a WLE and SNB on the 24th January, all happenned very quickly (we are in BUPA so don't know if we got it quicker than the NHS), I get my results on the 6th February. Like everyone else on here the waiting is just torture, I alternate between wild optimism to the worst possible outcome imaginable, most of the time i'm a ball of snot and tears. When I went in for the diagnosis, the nurse phoned me that morning to ask if I could go in earlier than the agreed time, later when we were all the talking, the nurse told me that they asked me to go in earlier as my case my "straightforward and treatable". I'm taking a lot of positives from this, but in light of the fact they haven't really told me anything how can they say that? Do they generally have an idea of what they're dealing with but wont commit until they have all the facts?

[Lucy_BCC]

Hi Jeppy and welcome to the BCC forums

It sounds as though you have had a difficult time and in addition to the support and shared experiences you will have here our helpliners are here to offer you further support and information. You may find it helpful to call to talk through the concerns you have about your treatment, the lines are open Mon-Fri 9-5 and Sat 9-2 on 0808 800 6000

BCC can offer you further support and you can read about our services here:

http://www.breastcancercare.org.uk/breast-cancer-services

Best wishes
Lucy

[Guest user]

I was offered a scan cause they though it had spread I've got to have chemo before surgery to shrink it , trust me the waiting is the worst time!! I go about my daily routine now I've still got to have more tests I just think well it's got to be done n I know there looking after me they deal with it everyday and they know what there doin 🙂 stay strong and try to keep positive ashard as it seems good luck to all the ladies havin there ops this week loads if love n hugs bring sent ur way 🙂 xxxxx

[Historygirl]

The waiting goes on and on doesn't it!

Karen: Thanks so much for your positive post - it really does help to hear of people who've been through something similar.

Jane: All the very best for Friday. Will be thinking of you. Please let us know how you get on.

Knoxybabes: My head is mashed too (what a brilliant description). Although I am having a CT scan before the op I've had conflicting info about when I'll get results (possibly one or two weeks after surgery or maybe on the day of surgery itself) - this is just one more factor driving me bonkers with worry. All I can say is to try to keep strong (I'm a fine one to talk!) and hugs to all!

[Guest user]

Purple42, thankyou so much for your luvly message - my head is utterly mashed but I have to get through this - I am 40 in August so have that to look forward to but its hard not thinking the worst. I just think I'm going to die and I can't handle that but other times I try and be positive - I presume we all think the same in this situation? I can cope with my op on Monday it's just waiting for results 10 days after the op I am struggling with - what it its spread? So many people on here appear to be having scans before there op, I haven't been offered that? I'm going to have a glass of wine I think to try and put myself at ease!!! Will probably end up drinking the bottle!! Lol.
Many thanks once again. Jo. X (I know I'm not the only one going through this, I know you are to and I really, really dont' mean to sound selfish, just so many q's that are unanswered)!

[Guest user]

Knoxybabes I felt the same couldn't stop cryin had pains got it into my head it had spread everywhere !! Had ct scan results last week phew came bk all clear once u get your results trust me u do feel better and have treatment plan , I call my little gremlin and an inconvience that's got to come out, we are all hear for u sweetie keep ur chin up darlin 🙂 xxxxxxxx

[Guest user]

Knoxybabes I felt the same couldn't stop cryin had pains got it into my head it had spread everywhere !! Had ct scan results last week phew came bk all clear once u get your results trust me u do feel better and have treatment plan , I call my little gremlin and an inconvience that's got to come out, we are all hear for u sweetie keep ur chin up darlin 🙂 xxxxxxxx

[Guest user]

Hi, l've been too scared to find help before as that's accepting that you have cancer and need support and l am a proud, strong independant person who has a business and family that needs me. But here l am, in pieces because just before christmas i was diagnosed with bc, my journey started a year ago after saying l had a lump, the tests they did only revealed a cist, including a mamagram which was clear. No one made me aware that a mamagram doesn't show all cancers! Why don't they tell you these things.It was only after months of worry that l went back and they did a biopsy just before christmas which showed lobular cancer. I Still find the whole thing very scary, and l am angry is that normal? l have to go in for a mastescomy on 8th Feb, 2 months after being diagnosed, l've had a lympth node biopsy aswell which proved flawed, so won't be able to have a reconstruction straight away but l've had no other treatment since.The waiting is reducing me to what others described as 'a quivering wreck' I really feel let down and so worried they will find the cancer has spread. Reading some of the comments l feel confused about whether l've questioned enough about my treatment, or lack of it, and perhaps l should ask if l should be having chemo? How do you know what is right and wrong in terms of treatment, every person and their cancer is different apparently? Help....feeling lonely and scared. would rather run away than have my breast removed, People say be positive and normally l can but l don't seem to have the answers for this... cancer is so mysterious... the doc's don't have the answers either it seems to me.

[Guest user]

Jane / Karen, thank you so very much for your kind messages and Jane really hope all goes ok on Friday, I will definately be thinking of you. I'm a mess again today, crying all the time and I'm sure these pains are getting worse and spreading around my body? Why do I think the worse, I suppose we all do but I just keep imagining the worst and its horrendous. My breast cancer nurse is coming tomorrow for the first time and I'm even dreading that - why? I think its realisation that I have cancer maybe? its really nice to hear everyone else's story and WE WILL beat this ladies! Many thanks once again, you really are keeping me going with your positive responses. X

[Guest user]

Big hugs to u Janey ((((( xxxxx )))))) and all the other lovely ladies goin through wot we are all goon through we will get through this we have each other to support us!!!! Loads of love n positve thoughts comin your way xxxxxxxx xxxxxxx

[Guest user]

Hello ladies, I was dx in sept, I'm on tamoxifen and going through radiotherapy just now. Everything you have written was exactly how I felt. It does get easier and you ladies will get through this. The most powerful part of our body is the mind, I had pain everywhere, and imagined the worst, but that wasn't the case. I wish all of you luck for your results and ops. Try and stay strong the worst part is the waiting. As for smoking jane, don't beat yourself up, you will stop when your ready, I stopped when I found out, then had a meltdown and started again! Its so hard, but you will get there. Love and hugs to you all, karen xx

[Guest user]

hi knoxibabes and history girl i was diagnosed on the 11th jan and its been a terrible time. everything happens so fast. i saw changes in my breast as hardened tissue and dimpling. i talked to my sister and asked her to take a look and although she didnt say so at the time she said she was so worried. i made an appointment with gp and on his examination he said he thought it was just breast tissue. two days later i recieved a letter for a mammagram which was only days away.i couldnt believe how fast everything was happening. i had mammogram and us when i went back into the room to see my con i asked do you think it is and she said yes. i literally ran out of that room. she said she wanted to do a biopsy and it took me half an hour to go back in.she said i should collect the results in two days so on the friday morning i literally couldnt go, my family were all saying you have to..... you have to i was terrified and i guess felt bullied although there intentions were there best for me but i felt this is not happening to you. i didnt go and wrote a letter of authorisation for my oh to collect them and fortunatly they agreed. when he came home he said it is.i had an mri last thursday to determine the size and position as lobular tends to hide within the tissue.
i was dx with lobular grade 2 and on friday are due to have mx and node removal and of course are terrified.i do smoke and more heavily since dx but con said not to worry at this time we will deal with it later.
your feelings are so normal your lives have been turned upside down and i think every emotion going you experience at some time or another. i couldnt eat sleep and like you too have experienced pains in my breast shoulders etc since.its hard to keep busy and hard to focus at times but we are on this path now and we have to like so many others have to deal with it the best way we know how.im terrified of being put to sleep and dont know how i,ll cope on friday but we cant run away, when i went on monday and my con told me the plan i did feel much better because they are going to get us better and we will become much stonger than we were before. so girls grab hold of the inner strentgh you have. the women here i have met are more than wonderful and they know onlt to well the best advice to give as they are part way or fully recovered now. i send my love to all i have met and to you both. you will be get through it you will. lots of hugs and love jane

[Historygirl]

Hi Knoxybabes

I completely understand where you're coming from! I've had problems eating, sleeping and have even got a pain in my back too. In fact I'm developing more symptoms that you can shake a stick at - a sign or something dreadful or just plain bonkersness? I don't know.

Being this scared is a bit exhausting. I went to my GP and got some diazepam (v low dosage) to help me through the very bad patches. I find that when I wake up in the early hours a couple will put me back to sleep for two hours or so. I've only taken them in the day time once or twice but it does take the edge of things a bit.

Some days are better than others. Sometimes I think I'm getting a grip on things and then a few hours later I'm a wobbly jelly again. I have found replies on this forum and also the helpline very useful (and kind and generally lovely). Trying to keep busy and not dwell too much on the unknown is good, if very difficult to follow, advice that I've had.

The general opinion from people much further down the treatment track than us seems to be (judging by replies I've had) that this waiting period of finding out exactly what we are dealing with is the one of the hardest parts.

All the very best for Monday, do keep us posted, and feel free to send me a message if you want.

XX

[Guest user]

Hi historygirl, so sorry to hear of your diagnosis - I'm really not bothered about the surgery at all.....its the results I can't face, I can't eat, sleep and just feel constantly sick and to top it all off I now have a pain under my right breast and in my back and I'm worrying myself sick thinking its the cancer that has spread? I can't stop crying. I've been for my pre-op this aft so all set now for Monday. I'm seeing my cancer nurse for the 1st time this Thursday and even that scares me....it all sounds so scary having a 'cancer nurse' not sure how I am going to get through these next two weeks as I have to wait 10 days after my surgery for the results. Are you feeling exactly the same? My life has been turned upside down. Take care hun.

[Historygirl]

Hello Knoxybabes

I'm in a very similar position to you. I was diagnosed last Friday with grade 3 breast cancer. I'm having a mastectomy and lymph node clearance on 13 Feb. Having a CT scan this Friday (to look for possible spread) but won't get the results until the day of my surgey. Ugh. Anyway all the best to you. I've had some fantastic replies to my posts here - really encouraging and supportive, so I think you've definitely come to the right place! I've also found the helpline to be invaluable.

Angelherts: All the very best for your results tomorrow. Please keep us posted.

[June_BCC]

Hello knoxybabes

Welcome to the forums, this must be a very worrying time for you but you have come to the right place for support from our experienced users who I’m sure will be along to support you soon.

In the meantime maybe you would like to talk things through with a member of our helpline staff who are there to offer emotional support as well as practical information.
The free phone number is 0808 800 6000 and the lines are open Monday to Friday 9.00 to 5.00 and Saturday 9.00 to 2.00.

Best wishes
June, moderator

[Guest user]

Hi all, I just found out last Friday that I have grade 3 breast cancer and am going in on Monday 6th Feb for my op and to remove surrounding tissue and lymph node/s - I'm really, really worried about the results and how I will cope if its spread?

[Guest user]

Hiya angel a muga is to check my heart is ok for chemo, I've got to have chemo first to shrink the tumour as it's 7.5cm let us know how u get on at the hospital we are all here for u darlin xxxxx

[Guest user]

Hi Purple - what's a Muga test ? Have they also said why you are having Chemo first if the CT scan showed that it hasn't spread anywhere ?

I was told that if not spread then I will get a Mastectomy first to remove it all and then chemo and rads. Wonder why different hospitals etc do it in different orders ?

I get my results of CT scan etc tomorrow and am going from being incredibly positive - almost convincing myself that the entire thing is one big mistake and they will say - "Oh really sorry, we were looking at someone else's notes - you don't have cancer at all !" and then late at night I switch to doom and gloom.

Think by tomorrow night I will be numb from it all. Just what SOME treatment - anything - now !

[Guest user]

Hi all now got to have a muga test this Thursday obj the joys it never ends lol
Xxxxxx

[Guest user]

Aww bless ya angell sweetie i tell ya these ladies are right the waiting is the worst part !! But once u get all ur results back and have a treatment plan u know it's onwards and upwards from
Here On:-) I'm always about if unwanna chat or send me a pm
Keep ur chin up darlin we are all here for you, lots of hugs n love To you 🙂 take care
A xxxxxx

[Guest user]

Hi Purple, Just wanted to say what fantastic news that is. I've posted for the first time today - quite hysterical - and it was your posts that I was originally following as also a single mum of a teenage boy (mine's 15yrs old). I am praying I will be able to post a similar upbeat comment next Weds 1st Feb when I get my CT scan and IBC (Inflammatory Cancer) Biopsy results.

I am surprised at how many people start Chemo before surgery ? I have been told that if my CT is clear then they are doing mastectomy and node clearance first and Chemo would start approx 6 weeks later.

I guess any treatment is better than this waiting ;-(

[Guest user]

Hi purple,
Great news that the scans were clear! So pleased for you just got
To start the chemo I'm not sure when I'm starting mine yet. Got another
Onc appt in 3 weeks but got to heal from this surgery 1st.
Lots of love Fran

[Guest user]

Great news purple, i hoping i get my scan before my chemo, hate this waiting game, and to have to wait till after chemo would make me insane.