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Just diagnosed with Liver and Lung Mets

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Re: Just diagnosed with Liver and Lung Mets

All the best to you I was very depressed when my mets got worse liver in lungs and bones but when I started on sertraline I felt much much better and in the last few months have come to terms with things well. Hugs xx

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Re: Just diagnosed with Liver and Lung Mets

Big hugs Clarence xxxx
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Re: Just diagnosed with Liver and Lung Mets

Im 70 also and had been suffering for 2 years prior with major. Depression. So was double whammy when diagnosed with lung mets. Finding it very difficult to cope. Have to get another
Scan to confirm it’s mets. Life is not good
.
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Re: Just diagnosed with Liver and Lung Mets

 
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Re: Just diagnosed with Liver and Lung Mets

Hi Anniej, I just found your news and wanted to give you a big hug. I thought we hadn't been hearing from you lately. Don't feel you have to hide away, we are all in this together. Stay strong brave lady and take inspiration from others who are still enjoying life in spite of it all.  I agree, we are living with BC not dying from it. I came to that conclusion the other day after getting my post chemo, primary BC surgery results the other day (9/12 lymph nodes affected, 5cm of tissue showing evidence of cancer within 9cm of abnormal tissue but clear margins, 6.8 score for recurrence risk) so the consultant seemed uncertain rather than positive and agreed that another CT scan after rads is finished would be a good idea.  After feeling a bit gloomy for a day or two I decided to choose to act like someone that is alive because I am. Everyone lives with uncertainty whether they know it or not. Thinking of you and sending hugs. Xxx

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Re: Just diagnosed with Liver and Lung Mets

Glad to hear your doctor is looking after you Annie not quite finished chemo had an bad time with it and on 5th infusion had a severe reaction meaning no more of that drug so had to be started on Abraxane for last two infusions on Wed so far so good just keeping everything crossed no hospital admissions as out of 4 treatments had 3! One more to go after this then onto rads x pleased you are feeling more positive now x Take care x
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Re: Just diagnosed with Liver and Lung Mets

Hi Mishy, thank you. Stayed off the May site as it's just another worry for people. I'm in good hands with Nick, and he has me on a trial. Fingers and toes crossed . Hoping you are out the other end and fit and well. 🍀 X

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Re: Just diagnosed with Liver and Lung Mets

Oh Annie I'm so sorry to hear that you have met I just stumbled on this post today, I thought I hadn't heard from you for a while, I'm pleased to read your onc is looking after you well at the Freeman they are fantastic, I suspect you and me have same doc although we can't name him on here if it is he is just the best will do everything he can to treat us in the best possible way x so pleased you are getting support from Maggies they have been invaluable to me when I needed them too again we are lucky to have them, please take care of yourself Annie sending big hugs and positive vibes x
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Re: Just diagnosed with Liver and Lung Mets

Hi Annie j

i am so very sorry to hear about your diagnosis. Am thinking of you and sending big hugsx

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Re: Just diagnosed with Liver and Lung Mets

Had clinic today. Mets haven't grown, but doc is disappointed they are there after my chemo. Starting me on Ibrance, when and if, he gets permission . Already on Letrozole and I haven't started anything else, so I fit the criteria.  Feeling very positive . Having a little rest to let me get over the rads then onwards and upwards. 👍🍀

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Re: Just diagnosed with Liver and Lung Mets

AnnieJ, Back when I found out I had mets it was the day before Thanksgiving here in the states. We traditionally Decorate for Christmas the day after. My family went nuts! They were dragging decorations out that we hadn't used in years. They went to the store and bought more!! Believe me we didn't need more. Christmas my husband goes nuts any ways! We had to have an electrician out to give us a bigger electric box. Well, the more they decorated the more I cried. They were definitely decorating for what they thought was my last Christmas!! It was so obvious! I felt like Scrooge. I felt like I was being led around to see Christmas, past, present and future. I felt like they weren't my family any more. I thought I was only allowed to look through the glass and watch. I didn't go them decorate, I didn't shop or wrap. The only thing I did was bake cookies. I was a disaster!! Then, I had to give myself a good talking to. I told myself I could be m I miserable for whatever time I had, which also wouldn't help my family or I could pull myself together and not let cancer ruin my time! I washed my face and rejoined life. I admit I have some rough patches, but mostly other stress helps and over tired triggers them. Keep living!! Don't waste what time you have! FF

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Re: Just diagnosed with Liver and Lung Mets

Hi Clarence, Ive been given inspiration by all the young women at the group I went to. Of course I have my weepy moments, like this morning when a good friend rang to check in with me. Completely lost it. 😢 For me it's the memories of the chemo that's still so fresh in my mind. I don't know that I could do it again. It's been a long hard eight months, and I was looking forward to it all finishing. I think I'm going to repeat every day what those girlies said to me - we're living with cancer, not dying from it. Sending good wishes. X

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Re: Just diagnosed with Liver and Lung Mets

I've just been diagnosed with lung. I'm 70. I'm being treated for depression so I'm finding it hard. I admire you being so positive. I am positive in my outlook but it's the depression that worries me.
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Re: Just diagnosed with Liver and Lung Mets

Thanks, Sue, all hugs welcome. I have attended a support group at my local Maggies this morning, and it was a very humbling experience. I was the oldest by far, and with the smallest ( so far) and localised  (so far) mets. The heartening thing for me is that most of the ladies I met have been living with secondary breast cancer for years. I'm 70, look 55 and act 21 ( maybe 30), so I'm really not ready to check out. By the looks of my new companions, who are doing great,  I'll probably die of old age rather than cancer. Yay me!! X

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Re: Just diagnosed with Liver and Lung Mets

Just read your post Annie......sending you a massive hug xxx

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Re: Just diagnosed with Liver and Lung Mets

Very inspiring, funny face. Thank you, and all the other ladies who have sent such heart warming messages of support. I've had a counselling session at Maggies this morning. Very straight talk and sensible suggestions.

 SO...I'm on medication for the rest of my life, just like any other chronic illness, and I'm going to learn to LIVE with this bl**dy disease now. Going to finish my rads for the primary cancer,  which I felt too depressed to do, and I'll even ring the bell in triumph for making it through. It looks as though I'll be given Paxilacitol (?) along with the Letrozole. X

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Re: Just diagnosed with Liver and Lung Mets

Hi AnnieJ, Sorry I haven't been on here for a few days. Carolyn was close! It will be 12 years in Nov for me with lung mets. I've had a few rough patches but have managed to get through them. Have your cry, wipe your eyes, get your treatment plan, and get moving. You can do it! FF

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Re: Just diagnosed with Liver and Lung Mets

SorryDear Anniej, bless you, I am thinking of you. There are always more meds coming through and I'm pleased your onc is being positive. I just wanted to say that I understand the crying and not being able to stop, I am having this recently and the doc gave me a pack of 1 mg Iorazepam put one under my tongue when I get so bad I can't stop the tears and don't know which way to turn. I have only used 1 so far as I believe they can be addictive but it did help me by making me feel caim for a good few hours. This pack stays in my handbag at all times!

lots of hugs to you

ramade xx

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Re: Just diagnosed with Liver and Lung Mets

Angiej I should have said lorazepam. Sorry I'm getting mixed up with all the meds I am on

ramade x

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Re: Just diagnosed with Liver and Lung Mets

Annie

 

I have just seen your post.  I am so sory to hear your further diagnosis, there really is not much that I can say but I just wanted to let you know I am thinking of you and sending you lots of hugs

 

Helena xxx

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Re: Just diagnosed with Liver and Lung Mets

Thank you, lovelies. Bit better today. Sun is shining and we have been out for a walk. Hope you all have a nice weekend . X

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Re: Just diagnosed with Liver and Lung Mets

Sorry to hear your news Annie. It's all such another shock after what you've been through & despite it all, you have been such a brilliant support to others here. 

Although I had a primary diagnosis, what I do realise now from being on here, is that treatment can manage these issues well into the long term now. 

Sending hugs

ann x

 

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Re: Just diagnosed with Liver and Lung Mets

Hello Annie
I'm sooo sorry to hear this ...it's bad enough to get primary bc but to get this huge kick in the butt is horrible But there are ladies here living well with lung mets .lovely Funny face is ten years I think with them and still like a duracell bunny with life.

After a few days ..once you know the treatment plan you will be able to focus more .....in the meantime. .finish the rads and ring the bell still.
Sending a very special hug xxxx
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Re: Just diagnosed with Liver and Lung Mets

I'm so sorry to hear this Anniej. It must be such a kick in the teeth after what you have already been through, and despite your own problems you have been such a help to others on this Forum. Don't really know what to say other than to believe your oncologist when he says there are treamtent options. It's so unfair. Thinking of you. xxxxx

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Re: Just diagnosed with Liver and Lung Mets

Hi Anniej, I'm so sorry to hear your news, it is incredibly tough, particularly when you were ready for 'the bell' and the positive feelings that go with that. It is still so fresh & will no doubt take some more time to come to terms with. Please don't give up. Once you have given yourself time to come to terms with the news you will hopefully find a way to move forward, to find a way to live with your illness and still enjoy life. Be kind to yourself. All over these forums and online there are stories of people who are living fulfilling lives despite the most unlikely circumstances. From my own personal experience (two years after a metastatic diagnosis -liver, bone, lung mets) I lead a very active life, I do get down sometimes and the treatment is tough sometimes but overall I still enjoy life. When the tough news comes I give myself a week or two to hibernate whilst I adjust. Love Jo xxx
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Re: Just diagnosed with Liver and Lung Mets

Hi ladies, so sad to be joining this group. I was diagnosed grade 3 stage 2 ductal carcinoma Er+ in January, and have had a WLE, half my LN showed signs of cancer and I went on to have chemo ,which I struggled with so had to be cut short. I was hospitalised after every session. I currently have 5 lots of radiotherapy to finish. On Thursday I met with my Onco for the results of a second CT scan. This shows mets in both lungs, and I am beyond shocked. I really feel it is pointless to continue as I have fought so hard over the last eight months just to get to this far and was looking forward to ringing the bell on Friday. My Onco seems very pragmatic about it saying there are treatment options . The mets all look tiny at the moment, but I am really struggling to come to terms with more treatment. Done nothing but cry since Thursday , which is so very unlike me. X

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Re: Just diagnosed with Liver and Lung Mets

Missy1, I'm not good with pain meds. It takes a lot of pain meds for it to help me. I was taking oxycodone and 3 advil for knee pain. It was like I took nothing. To get any relief we had to add another oxycodone. Since changing treatments most of the knee pain is gone. I only have to take advil before I go to work. That's great you were able to enjoy a ride on your horse, bc this cancer ride sucks!! FF

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Re: Just diagnosed with Liver and Lung Mets

Hi Nikki,
I initially had very bad nerve/sciatica pain due to bone mets. My onc recommended Gabapentin which I resisted as I was scared of side effects. Anyway I did start taking it and found it was a great help. I'm on pregabalin now as I eventually got tolerant of the gabapentin but the pregabalin is a huge help for me now as well.
Best wishes
Waffles xxx
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Re: Just diagnosed with Liver and Lung Mets

Hi Missy1,
Glad to hear you got back in your horse, those moments of pleasure make such a difference. The only thing I can think to recommend is Milk Thistle for the liver pain. I started taking it straight after my scan which showed my liver tumour growth and I am sure that it eased the pain in my ribs on the right side. It is a herbal remedy I get from my local health food shop, you can take it in a number of forms - I chose a tincture which I add to herbal tea. I can't remember who recommended it to me but I checked with my pharmacist at the oncology unit and he said it was fine to use it, though I am on Eribulin & I think you may be on Paclitaxol??
Anyway, I hope your treatment is going OK and you're still out on you horse as much as possible.
Hugs, Jo
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Re: Just diagnosed with Liver and Lung Mets

Thanks for the replies - yep is **bleep** to be posting on here but am not giving up just yet!  Have been back on the horse but the pain in my back and legs is stopping me being able to trot well which is a bugger.  However the steroids have already made a difference as I couldnt have got on the horse coz of the leg pain before starting them on thursday.  Just being on the horse made me smile 🙂 Guess is fingers crossed for some response to chemo now - roll on tuesday.  If anyone in the meantime has any tips on drugs/pain relief that may be able to help with the back/leg/liver pain further would appreciate any words of advice.  Am taking oramorph at the mo but doesn't help with the nerve pain.  Who knew that the size of your liver could cause so many issues?! 

Nikki xx

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Re: Just diagnosed with Liver and Lung Mets

Hi Missy1,
I'm in a similar position, large liver tumour, widespread FDG uptake in the lung area (though no descreet tumours on PET CT) & bone mets in pelvis & spine. I'm on my first round of Eribulin + denusomab + filagristam. My initial diagnosis was March 2014, with MBC diagnosis Sept 2015.
I'm not sure I can offer wisdom but I'm very willing to share ideas and thoughts and feelings if it helps.
Jo xxx
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Re: Just diagnosed with Liver and Lung Mets

Welcome Missy 1, I'm sorry you had to join this group! We are a lovely lot of ladies! Yes, we all have been given a rotten journey, but we still find ways to LIVE!! It is a scary journey and we all have our tears, fears, and beers to get us through. What, I've found through this rough road is that you have to find happiness to continue. If you can't find some happy times you might not as well be here. I don't know my level of estrogen positive, but my said it was low and that hormonal wouldn't work for me. After 10 years of chemo, I argued and got him to let me try it! He wanted to rebiopsy to see what level it was. I said no! I said when you try a new chemo in me it is hit or miss if it will work, so we are going to play hit or miss with a hormonal. I had letrozole/pablociclib. It worked for 21 months. Now on another hormonal combo. Scans next week. So, don't give up on hormonal, but I would blast it with chemo and get it knocked back. Good luck! You can do this! 

 

Hugs, FF

 

PS... You will find me posting at weird times and my English a little different.I'm from the state's.

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Re: Just diagnosed with Liver and Lung Mets

Hi Missy1,

I just wanted to say hi and welcome you to the group nobody wanted to join xx

So sorry to hear about your recent diagnosis. I am on this group on behalf of my mum. She is currently on paclitaxel too.

Please stay strong-your oncologist sounds on the ball which is good. Always here if you want to chat xxx let us know how you get on Tuesday xxx

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Re: Just diagnosed with Liver and Lung Mets

Hello missy
Welcome to the forum and where real people are here for advice, support and most of all kindness.
I can't really help but I'm thinking as you are triple negative you might be younger.
Phew ..you haven't had any rest bite between primary and secondary which is an awful lot to deal with but hey hoo ..your oncologist is on the ball with a positive treatment plan .
Sending hugs xxxx
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Just diagnosed with Liver and Lung Mets

Hi

I was orginally diagnosed with grade 3 invasive ductal April 2016 with lymoh node involvement.  Had 4 FEC, 4 taxol, then bilateral mastectomy and lymoh node removal followed by 15 round radiotherapy. ER mildlly positive so effectively triple negative.   My active treatment finished in Jan 2017.  In May I started havng a dry annoying cough - was back at work and everyone had something so wasn't initially worried.  After 4 weeks and it was still hanging around I had a chest xray which was clear but still had the cough.  Oncologist advised a CT scan and I was due to see her for my 6 month check too.  Felt fairly ok until started having pain in my legs that felt like sciatica about 2 weeks ago - also started feeling more tired.  Anyhow - this has got progressively worse and then started having pain my ribs - this is due to the size of my liver......

Anyhow - got CT results today - large tumour on liver. one in lungs too.  Started steroids todayand starting paciltaxol on tuesday - need to see how respond to chemo...... Would appreciate any words of wisdom.....xx