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Just diagnosed with breast cancer, female, age 32!

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Re: Just diagnosed with breast cancer, female, age 32!

Hi All,

Sorry it's taken me so long to reply, I had my first chemo on Friday 25th Sept and was generally just feeling sick and vomiting quite alot but then by the following Tuesday I was having the shivers and sweats, my temp was up to 38 and I ended up being hospitalised for 8 days, the worst 8 days of my life to date, I was in agony, the docs say I picked up a viral infection a bit like flu!

Anyway, I was finally released on Wednesday 7th Oct so it's good to be back home in my own bed, my hair is also starting to come out now, I had my first little clump on my pillow today which made me cry, I just can't bear to shave it yet, I have pretty thick hair so it still looks okay but I know it won't last long!

I still feel a little sick but all the anti sickness tablets seem to make me throw up, i tried about 4 different brands whilst I was in hospital and none of them worked! Now I seem to be experiencing heartburn/ mouth watering all the time, did this ever happen to you guys???

Sam x

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Re: Just diagnosed with breast cancer, female, age 32!

Hi Samantha

I've been reading through this post and just wanted to comment.

I'm so sorry you've had to join us, I was 34 when diagnosed on 22/09/08 and have now been diagnosed again on other breast 3/09/09.

I too asked about saving eggs before started treatment, I was sent to the fertility clinic. I saw a lovely Professor who was willing to freeze my eggs but Oncologist said I had to start chemo straight away as cancer was so aggressive. Prof said that unfertilised eggs don't survive. So it's better to have a partner.
Ask to be put on Zolidex (shuts off ovaries to protect eggs you still have), it's an injection you get every 4 weeks, I started that at start and it worked for me, I took my first period last thurs but will have to go on Zolidex again.

I am having treatment with a girl who had same diagnoses as yourself and she is doing great.

Hang on in there girl, chemo for me wasn't as bad as I thought it would be, hardly had any side effects at all. Lets see how I get on this time, should start chemo again in the next couple of weeks.

Big hugs
Sharon xxx

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Re: Just diagnosed with breast cancer, female, age 32!

Hi Samantha, just wondering how it went today?

By the way, don't take it personally that they will only freeze your eggs if you have a partner, it is only that eggs freeeze much better if they are fertilised first - hence the need for a partner!!!

Catflapx

ps I did a thread a couple of years ago which was my light-hearted view of chemo, not sure if you can still find it but it was called something like Positive Mental Attitude for chemo.

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Re: Just diagnosed with breast cancer, female, age 32!

Hi there, I know how you feel. I am 25 and was diagnosed last week. I am still waiting for further tests to discover the extent of the cancer and will not be able to have surgery until after I get the results sometime next month. All I can say is that you are not alone, though that does not seem to offer much help as I feel so alone! I never expected in a million years to be in the position I am in now. One day at a time though we can get through this.

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Re: Just diagnosed with breast cancer, female, age 32!

hi sam,
have a look on the thread on here for tips on chemo. I've had 4 epirubicin (the E of your EC) and personally not suffered too many side effects - but it is different for everyone. I recommend a trip to your gp to stock up on lactulose for constipation though and start taking it the day before, they can also prescribe you antiseptic mouthwash. I was never a boy scout but definitely stand by the motto 'be prepared'. When you have the chemo - make sure you ask for a heat pack on the veins all the way through- i wasnt offered it the first time and it can be sooooo cold, my arm started to spasm. And drink plenty of fizzy water - chemo dehydrates you and i also read somewhere the fizz helps if you have crappy viens, it may not be true but it seems to have done the trick for me so far. Also get some of those travel sickness bands - again, it may be mind over matter but i hardley needed any nausea tablets as i wore these for a couple of days after.
Good luck - hope it goes as well as can be expected.
xx

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Re: Just diagnosed with breast cancer, female, age 32!

Oh well you will be fine darl. The chemo is not a treat LOL, but it is our friend. It is bearable and it will come to a end.
It will come and it will go as all thing must eh? Dont be scared when you get to the chemo unit you will meet lots of others in the same boat, all at various stages of treatment. You do get to know them and feel like a little select club hehe!!! take care darl xxx Rita

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Re: Just diagnosed with breast cancer, female, age 32!

Thanks Rita,

I went to the dentist last week, had 2 fillings done and also saw the hygenist so hopefully I'll be ok! Thanks for the warning though!

Sam x

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Re: Just diagnosed with breast cancer, female, age 32!

Hi Sam, One word of advice I would give is to go to the dentist and get your teeth and gum's checked before you start the chemo. I am on E.C. had my 5th treatment today. I have had teeth problems and cant get a dentist to take me on because i am on chemo. My Oncologist said i don't want to be having dental treatment while on it.So I have worried the tooth that broke would turn abscess and halt my treatments. Thank God only one left to go. So I would highly recommend you do this. Its one worry less eh?
My love and Prayers are with you darl. (((HUGS))) xxx Rita

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Re: Just diagnosed with breast cancer, female, age 32!

So I met with the onc today and they are fairly sure my BC has spread to my lungs and the lung tumor is not another primary, although they are not 100% sure - still waiting for the staining to be done on my lung biopsy to confirm (has this ever happened to anyone else?), regardless they have told me I will be starting EC chemo this Friday!!!!

I have lots of people praying for me and I started reading the bible story of "job" this morning and I feel inspired already, for those of you who are not religious, it's bascially about a man who seemed to have the worst luck in the world, death in his family, disease, lost all his wealth etc but he never lost his faith in God!

I have to admit I am scared about starting chemo as I don't know how it will make me feel but I am also glad something will finally start tackling this cancer!

Does anyone have any advice before chemo? I will be having EC chemo - lung tumor is 7 cm and breast tumor is 4.5cm!

Don't ever lose your faith ladies (and gents)!

Sam xxx

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Re: Just diagnosed with breast cancer, female, age 32!

Hi Sam, I read your posts a few days ago. I've kept this article from BBC news, the lady also had breast cancer and a tumour in her lung and had a healthy baby several years after chemo and her diagnosis. I thought it was a hopeful read. Good Luck with your treatment and operation..xxx http://news.bbc.co.uk/1/hi/uk/5389426.stm

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Re: Just diagnosed with breast cancer, female, age 32!

Hi Samantha Sweetpea

WLE is short for Wide Local Excision which is another name for a lumpectomy.

regards
June, moderator

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Re: Just diagnosed with breast cancer, female, age 32!

Thanks All,

I spoke to my BC nurse and she said if I saved eggs etc it would delay my treatment and I'm not willing to take that risk! She also said because I am single it's not something they genereally do, has anyone else been told this?

Anyway, I will leave it in God's hands, if I am meant to have children, I'm sure he will make sure that I'm able! I've also been single for so long anyway that I'd almost given up hope of ever being a Mum, this disease has made me think about children alot more though!

Can someone also tell me the short codes you all use, I have no ideal what half of them mean, what is WLE???

I meet with my onc this Wednesday again so I will keep you all updated!

Sam x

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Re: Just diagnosed with breast cancer, female, age 32!

hi sam,
so sorry to hear about your results from your scans. Its awful how long this has taken for you, but now it seems you are heading at break-neck speed into treatment before you have had a moment to get your head around the diagnosis and implications on fertility. As others have said the chemo may not mean you will definitely lose your fertility as you are still so young and you should discuss with your onc what the chances are it may return. It may be useful to wrie down all your questions and have a friend or relative there to write down the answers for you so you can look over it again after you leave as there is going to be so much to take in at once.
fingers crossed for you.
xx

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Re: Just diagnosed with breast cancer, female, age 32!

I'm a few years older, 36 at diagnosis, but my problems started Jan 08 and was diagnosed Sept 08 and secs to my liver in Oct 08. I am now NED. I suppose it might come back, it might not, for a while - who knows? Odds are? I may be lucky? Lets get on with things.

You must be so scared right now. For me, it did get easier to deal with even if there is always a sense of surreality and shock. I think the key advice I wish to share, is to not concentrate on the things that you don't know, but the things that you do. To concentrate on the things you can do, not the things you have no control over. Arm yourself with just enought information to make informed decisions about YOU.

I have just celebrated my first 12 months post 'I have cancer, my life is over' and I look back on my roller coaster year with a sense of achievement. Not because I did great thing or anything special. But because I was me and I did it my way. My way did and does include major panics which are v stressfull and I really have to fight to get a grip of. I also barely skipped a beat.

With regards to work, well you have rights and they HAVE to make reasonable adjustments for you. Seek advise on this matter.

With regards to fertility, please request to see a fertility expert if you are set on having kids - don't delay by a couple of years if you are hormon +. No panic but get advice now - not when it matters. Some may think that is bad advice as you have enough going on but you don't know what the impact of your treatment is for you and you have to believe in your future.

I wish you well. Thinking of you sincerely
L x

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Re: Just diagnosed with breast cancer, female, age 32!

Hi sam,
Just wanted to add my support here for you, I also had a delay in diagnosis about the same length of time as yourself.Im nearing the end of my chemo with surgery to follow,I havent had any ct scans at all only a chest one some time ago so im also in a scarey place.If you need anyone to talk to find me on f/bk.West mids
Ive always looked at this as a hurdle i must cross positively.Keep ur chin up.Sorry I cant help with the fertility thing.
sharon fox xxxxxxxx

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Re: Just diagnosed with breast cancer, female, age 32!

Just to reiterate everyone elses comments really. I am 32 and have had 4 cycles of FEC chemo now following a WLE for a grade 3 BC 20mm in size.

I was told RE fertility that i could have eggs removed but seeing as my cancer was E positive that process could "feed" my cancer and delay my treatment which they strongly adviced not to do. I was told the younger you go through this the more likely you will still be fertile at the end of it all. My periods are to the day still and i feel i am still fertile. I have been informed that i would be unwise for me to ever have another baby by one consultant and the other said to wait till my 5yrs tamoxifen was over so differing opinions.

At the moment tho you need to concentrate on you and getting a plan in place so you know what you need to do and whats ahead of you. Trust the fact that nature wants us to have babies if at all possible and at 32 the treatment will hopfully not prevent that.

good luck

S

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Re: Just diagnosed with breast cancer, female, age 32!

Hi

Have you considered joining in our Live Chat for ladies with a primary diagnosis of bc? Please follow the link below for more information.

http://www.breastcancercare.org.uk/server/show/nav.745

Best wishes
Annabel (Moderator)

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Re: Just diagnosed with breast cancer, female, age 32!

Thanks Ann and Annabel, I have called my breast cancer nurse and left her a message to call me back.
I also called the helpline number on this site as suggested and I spoke to a lovely lady who gave me some good awnsers but still said I need to speak to my nurse re fertility ASAP!

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Re: Just diagnosed with breast cancer, female, age 32!

Sam

You really are going through hell. Can you ask your Breast Care Nurse to find out the answers to your questions for you? All our thoughts are with you.

Ann xx

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Re: Just diagnosed with breast cancer, female, age 32!

Hi Sam

I am so sorry you are having such a bad time. You might find our qualified nurses on the helpline will be able to answer a lot of your questions. It is a free number to call, 0808 800 6000 and open 9-5 Monday to Friday and 9-2 Saturday.

I know you will get lots of support from our other forum users very quickly.

Best wishes
Annabel

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Re: Just diagnosed with breast cancer, female, age 32!

Ok, so I got my CT results yesterday and they have found another 7cm tumor in my lung, so I now have breast cancer and lung cancer!!!!! My other concern is my CT scan was only of my neck down to the pelvis area??? Why didn't they scan me head to toe??? What if I have another tumor somewhere else???

I'm also concerned that my oncologyst is not just telling me straight, I have to keep asking questions to find out how bad things are, she didn't even tell me the size of the tumor until I asked, 7cm is not exactly small!
I have to have a ultra sound on the lung tomorrow but they have provisinally booked me in to start chemo next Friday but they still have to discuss what type of chemo that will be and will let me know next Wednesday!
I haven't had any children and nobody has mentioned fertility yet, shouldn't this be done before chemo??? If I'm due to start chemo next week then surely there is not time to save eggs etc!

I'm so confused, please can someone try and help with my questions?

Sam (apologies for all my spelling mistakes in advance)

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Re: Just diagnosed with breast cancer, female, age 32!

my heart goes out to you,please try not to worry till u get all your results,this is by far the worse bit waitin for your resultsxxxxx

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Re: Just diagnosed with breast cancer, female, age 32!

hi samantha,
just wanted to add to the support you have already been given on here. I'm 35 and a bit further down the line, diagnosed IDC apil 09 had WLE and halfway through chemo - no nodes involved but my hospital (christies) is one of the ones that likes to throw the whole lot at you when you are young. There are a lot of us 'young'uns' on here - so you are not alone.
I visited the macmillan centre in christies (check if you have one at your hospital) and a lovely nurse gave me tonnes of leaflets to trawl through - you should be able to get them online at cancer backup. "work and cancer" and "help with the cost of cancer" might be useful. If you live in england go to your docs and pick up a medical exemption form to get free prescritions - i didn't know about it and forked out over £20 for my first ones. It may be helful to talk to your gp too if you havent already done so - mine has been great filling out insurance forms and sick notes for me.
Best of luck on monday.
xx

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Re: Just diagnosed with breast cancer, female, age 32!

Hi Samantha, I am a bit further down the line as I was dx in June 07 at the age of 33.
I hope you don't mind "justmarried" but I just wanted to say that Samantha may not have the lump removed first as they don't need to do this to get full results. I had a core biopsy done (like a staple thingy!) on both lump and lymph nodes and they found that I had cancer cells in both, I then had 8 courses of chemo which reduced the lump to nearly nothing and then I had a lumpectomy afterwards to remove as much margin as possible without the need for mastectomy.
I am only saying this as I panicked when I was told that I was having chemo first as thought that it was best to remove the lump first and I could not find anyone else who seemed to have it done, (it is actually very common!)
So good luck with whatever course of action they recommend, I just had my 18month check up and everything tickety boo ok, so there is light at the end of the tunnel

Keep smiling (I know hard but it does help)

M

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Re: Just diagnosed with breast cancer, female, age 32!

Hi Fairyem, Just to say I hope all goes well for you tomorrow when you have your lumpectomy. What a star you are giving support to Samantha Sweetpea when you have this to deal with yourself. I am glad you find the site helpful too, love from Val ( Scottishlass) X

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Re: Just diagnosed with breast cancer, female, age 32!

Hi Samantha Sweetpea,

I'm 29 and got diagnosed a few weeks ago. Having a lumpectomy tomorrow morning. The best advise I can give is keep busy and don't be afraid to ask your nurse anything. I made sure in the time between being diagnosed and my op I've done things I love doing. I'm lucky though that I have been on school hols the whole time as I'm a teacher.

I've found this site such a support so far, just knowing there are others in a similar boat. My consultant has said I am more than likely going to have Chemo as I'm young fit and healthy, to make sure we blast this thing and minimize the risk of it returning.

I also recommend getting a referral to a fertility specialist (if you're thinking of having kids that is). We had an appointment this morning and it was good to find out our options.

I wish you the best of luck with things.
Fairyem

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Re: Just diagnosed with breast cancer, female, age 32!

Samantha

you will get lots of support and help on here, it very early days and your head must be spinning. its normal and ok to think about funerals i think we all have, but there are some positive stories out there. You need to speak to your HR, cancer is now seen as a disablilty so they have to treat you fairly. Do you have citical illness insurance. If you have been paying Nat ins for a few years you will be entitled to sat sick pay, its not much, yes contact CAB or the help line here or at macmillan they are good with finacial advice.

love rhian xxx

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Re: Just diagnosed with breast cancer, female, age 32!

Hello Samantha
just want to reiterate what others have said, really. This is a tough time and you need to get advice (CAB are great) about where you stand, and be able to take some time to think through all the issues that are coming up. You won't lack support on this website, from young women like yourself, who are facing this far too young in life, and from old birds like myself, who were diagnosed as younger women, but are still around 10, 12, 20 years later.
Please keep in touch and fire away questions at us - there is an amazing amount of expertise and experience on this site that you couldn't get from anywhere else.
You need to take care of yourself, ut you have lots of cyber friends!
lots of love
Monica xx

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Re: Just diagnosed with breast cancer, female, age 32!

Hello Samantha
just want to reiterate what others have said, really. This is a tough time and you need to get advice (CAB are great) about where you stand, and be able to take some time to think through all the issues that are coming up. You won't lack support on this website, from young women like yourself, who are facing this far too young in life, and from old birds like myself, who were diagnosed as younger women, but are still around 10, 12, 20 years later.
Please keep in touch and fire away questions at us - there is an amazing amount of expertise and experience on this site that you couldn't get from anywhere else.
You need to take care of yourself, ut you have lots of cyber friends!
lots of love
Monica xx

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Re: Just diagnosed with breast cancer, female, age 32!

Hi Samantha Sweetpea, You are in a scary place just now. How do we know? We have been there. Believe us when we say the waiting is the worst bit. Perhaps you need to have some sick time off work and use that time to visit the Citizens Advice Bureau. They also sometimes have experts at Maggie Centres and at the hospital. Your Breast Care Nurse could advise you where you could get help from experts. I was young when I was diagnosed and twenty years on and I am still here. Yes I am having treatment just now but I had a 10 years break when I was well. We are here for you. Come on to the site whenever you need someone to talk to, to sream at, to cry with, or to give you support through this difficult time. Lots of love and huge hugs, love Val ( Scottishlass) XX

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Re: Just diagnosed with breast cancer, female, age 32!

Wow, thank you all for your comments,so many of you have responded in such a short space of time,I really appreciate it, I wish I got responses this fast on dating websites in the past!!! LOL!!! I've been single for 6 years but obviously dating is now the last thing on my mind now.

I will also speak to CAB about work and what I am entitled to, work is driving me nuts, I know it sounds bad I just can't focus at work, my mind keeps drifting and I start thinkging about crazy stuff like who would come to my funeral if I died!!!! I'd much rather be at home co-ordinating my wardrobe, cleaning, anyhting but work to take my mind off things! 😞

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Re: Just diagnosed with breast cancer, female, age 32!

Howdy Sam!

Sorry you had to join the club, but welcome! I joined on 7/15/09 and I can tell you that, so far, the waiting is the absolute worst! You hear the words breast cancer and it's like your brain freezes time. Well, the good news is you found this forum, which is awesome, and that there are plenty of members who offer love and support.

As I live on the other side of the pond in the U.S. I can tell you that the whole waiting thing seems to be universal. I had a surgical biopsy on 7/0/09, got the result back on 7/15/09, had lumpectomy on 7/24/09 and then still had to wait for more results from another test that didn't get back until 8/26/09.

I know it is hard, but if you can focus on something else that will make the waiting more bearable. I created little projects for myself. Things like putting my shoes back in the closet the way I wanted them or finally going thru the stack of mail that has been collecting dust. Nothing to strenous, but something small to focus on for just a little while. It helped me not only pass the time, but my house got cleaned too.

Peace & Blessings,
1sexymomma

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Re: Just diagnosed with breast cancer, female, age 32!

Hi Sam - sorry to hear your news but this is a really good place to chat and get advice and help from others in similar situations. I was 33 when I was diagnosed in May (on my mum's birthday) - I've had 4 chemo and just had the WLE and SNB and anxiously waiting for my results on monday - I know how slowly time goes when you're waiting for results, but you get through it somehow.
Sending big hugs to you and fingers crossed for your results 🐵
Bev
x

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Re: Just diagnosed with breast cancer, female, age 32!

Sam

If you find your company can't, or won't, pay you, contact the Citizens' Advice Bureau. I am certain they will be able to help you claim some state benefits and put you in touch with charities that can help with finances. The last thing you should have to worry about is money. You need to be looking after yourself.

I do so hope the bone results are good.

Ann xx

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Re: Just diagnosed with breast cancer, female, age 32!

Hi

I was 34 when dx and was told I would probably get chemo. However after my op, my results showed I was 100% positive for both hormones, grade 3, 2.1cm, with no nodes involved.

As I walked in the room for my results I was told by my bcn that it was good news and I didnt need chemo. They gave me zoladex and tamoxifen which for me they said would do the same as chemo.

Therefore, everyones results are different, and you dont always need chemo just because you are under 40.

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Re: Just diagnosed with breast cancer, female, age 32!

Sam - sorry to hear that you have just been diagnosed...:( to be honest given your age it is almost 100% certain that you will have chemo... as they seem to give it to almost everyone under 40... i hope the results next week give you a better picture of what happens next - i think it would be a good idea for you to give the helpline on here a call...

Theresa

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Re: Just diagnosed with breast cancer, female, age 32!

im sorry u have to join us,i remember how hard it was to deal with waitin for results.im 44 and was diagnosed in march,havin chemo fec hard but doable,it will get easier when you get your results and you know what your dealing with big hugs take care xxxx

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Re: Just diagnosed with breast cancer, female, age 32!

Hi Sam
I'm new to this site. So sorry to hear your crappy news. You must feel like you are in hell! I know I did when it happened to me in late January this year. (i'm 34)
I remember feeling like I'd never sleep again (but I did). You are in shock and the tests the doctors are talking about are necessary to make a full diagnosis and unfortunately they take time. It is a nightmare waiting, something that consumes you and unless you've experienced it nobody can ever fully relate to what you're going through.
I remember thinking 'i don't belong on one of these sites' but it does help for as little or as much time as you need.
I don't want to bombard you with information cos i suspect you're head will be swimming.
The most pressing thing is for the doctors to determine specifically what type of cancer you're dealing with. There are lots of types, size, grade. stage and whether yours is hormone receptor positive or negative. The only way to find out is to have the lump removed and examined in detail. Things will drag on for a few weeks more but somehow you'll get through a day at a time even though it seems impossible just now.
I'll stop typing for now to give you a break!
Ask me any questions you like, anything at all. I'll tell you more of my story if at some point you want to hear it, the jist of it would be that 'what i thought i could never go through ended up being do-able:-)'
Good luck in the meantime.Have you got good friends/family/partner etc? to support you to?
X

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Re: Just diagnosed with breast cancer, female, age 32!

hi Sam, sorry to had to join this club, what a horrible time you have been having.

I was diagnosed on 1st June and starting rads next week.

What I found was the worst part was waiting for results, everything else has been doable and somehow you get through it.

you will get loads of help and advice on the forum.

take care

Carol xx

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Re: Just diagnosed with breast cancer, female, age 32!

Hi Sam

Welcome to the BCC discussion forums, you've come to the right place for support as the many informed users of this site have a wealth of information between them.

In the meantime you may find it useful to contact our free helpline on 0808 800 6000, opening hours are Monday to Friday 9.00 – 5.00 and Saturday 9.00 – 2.00.

I have also attached a link to the Breast Cancer Care information for yonger women
http://www.breastcancercare.org.uk/server/show/nav.349

Best Wishes
June, moderator

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Just diagnosed with breast cancer, female, age 32!

Morning All,

I was diagnosed with breast cancer 3 weeks ago - Invasive ductal carcinoma!
I know we are all in the same boat but I really don't think it's sunk in that this has happened to me, I'm only 32 years old!!!

It all started about the Jan/Feb 2009 when I started having aching pains in my left shoulder and arm, I thought it was down to a pulled muscle or poor posture - maybe I had the wrong type of chair at work or something, anyway, when I pain didn't go after a few months I started going to the doctors, he sent me for a shoulder ex-ray and said it's prob just nothing!
About 1 month later I started feeling pains in my chest so I went to the doctor again, then he sent me for a chest x-ray and ECG, the ECG was fine but the x-ray showed a shadow on the left lung, whilst I was waiting for the x-ray to come back, I went back to the docs to get a breast examination as I was feeling pains in my left breast now, I was referred to St,Georges Hospital one week or so later and after a biopsy of the breast, scans and a mannogram they told me I have breast cancer!

The doctors say it hasn't spread to the lymph nodes but they are running lots of test before deciding if I should have chemo, I met with my oncologist for the first time yesterday and she said my bone scan is back with shows concerns around my second rib on the left???? I have a CT scan booked for next Monday so she will be able to give me a better picture next Wednesday when I see her again.......I know it's only been 3 weeks but I still don't know where I stand and the million and tests with no clear idea of what is gonna happen to me is driving me crazy!

I work in an office job and it's the last place I want to be right now but I still have bills and a mortgage to pay, I've also only been in my jobs for 5 months so I'm only entitled to 1 weeks sick pay!!!! My company have said to me, "they will support me as much as possible during this difficult time but they still have a business to run"!!!

Can anyone give me me any advise on when the docs may be able to give me a clear picture? Why can't they run all the tests on 1 day instead of dragging it out week by week?

All comments welcome!

Sam