Hi all, just an update really. I've been on Letrozole for around 6 months but the lymph node in my neck has now started gowing again. I saw the onc. and I'm to have a CT scan and go back for results on 15th October. The thing that's worrying me is that he also found a 1cm node on my collar bone on the opposite side. He said that as it's so small it could mean nothing but I'm worried. I really thought that as the Letrozole shrunk the one on my neck that it would carry on working for longer. I'd only just started coming to terms with having mets and now this. I'm usually quite positive but I'm floundering now.
Thank you so much Dawn, I'm so pleased it's all going well for you, you sound so positive, I'm having a bit of trouble thinking like that at the moment but I'll get there in the end !!! Love Laraine xxx
Thanks Steph, reading about you has helped. I won't know the results of the mammogram or bone scan till wednesday, then my treatment plan the following tuesday. I think I'll feel a bit better then but at the moment I just can't think straight. Many thanks for your help, and sending you lots of love too. I hope your treatment carries on going so well for you. xxxxxxxxxxxxxxxxxx
Hi Laraine, sorry to read your news. You must feel gutted that after 7 years it has reappeared 😞 I think there could be quite a few of us who have had 2ndaries show up this way. I had quite a number of lymph nodes pop up around my collarbone, neck and up into my jawline round to my ears on both sides but they just couldnt get a biopsy from them, either too close to major arteries or too slippery to get a hold on! This was all back in 2002. I was originally dx in 1990 and had a lot of recurrences between then and 2002. Problem was her2 and herceptin wasnt around in the early days, nor I suppose was her2 heard of. After all the scans (bone, ct & MRI) I was found to have extensive bone mets. It was only when 2 lots of chemo didnt work for me after discovering the swollen lymph nodes that my onc thought to check the last lot of tissue from a mastectomy and found I was her2+++ . Jan 2004 I went on herceptin and that & bisphonates have kept me stable for the past 10 years.
It is hard for you now waiting for the scans and results but hang in there - there are so many more treatments around now and a lot of us making the most of these bonus years as I like to think of them. You will get a lot of support on the secondary forums here and between us all we have a lot of experience and will be very happy to share that with you whenever we can.
Thank you so much Smartie and Helen, it does help a lot to know that I can get support on here. Returning those hugs as I'm sure you need them too. xxx
After 7 years, I've now been diagnosed with secondary. It started with a lump in my neck, I've had ultra sound and core biopsy on it and a ct scan, and a mammogram. I have to go for a bone scan today, then clinic for the results of the ct scan and mammogram on wednesday. I have not seen on this website where it has come back in anyone's neck so I don't really understand. I have an appointment with the oncologist and have been told I will have chemo and probably radiotherapy. I don't feel in a very good place at the moment, though I'm sure I'll feel better when I can get my head round everything.