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Just diagnosed

12 REPLIES 12
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Re: Just diagnosed

Hi All,

Just an update really as I haven't posted since.

My nodes were clear and all of the lump was successfully removed with good margins. I'm oesterogen 8/8 progesteron 6/8 HER2 positive, and my lump ended up being 17mm so it was definitely a grower!

Was feeling okay about it all until I met with the oncologist yesterday - a miserable man to put it mildly, made it sound like BC really is the end of the world and I will drop dead tomorrow. Didn't like him and for the first time since I was diagnosed I had a little cry.

The only useful bit of information I got out of my 3.5 hour round trip yesterday was that i'm 84% likley to be okay in 10 years.

I am stil being positive and there is no question that I will be alright but he's brought me down!

mummysmith - at this stage do not let any negative thoughts in at all! have faith that it will be okay...you'll make yourself feel bad worrying about something that probably won't happen.

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Re: Just diagnosed

Hi,i`m 39 and have just been diagnised grade 3 invasive ductal ca,having a lumpectompy next week then rx and ? chemo.my docter is very confident but i just cant shake the feeling that things are just not going to be ok.i`ve just started to get sciatica in left leg and now i`m worried there is spread!iam a nurse and therefore a hypochondriac,does this feeling ever go away?

Re: Just diagnosed

Hi There

was 34 when 1st dx with invasive grade 3
and ext DCIS, I had mastectomy/recon/chemo/ tamoxifen/zoladex........
I went on to marry and have 2 beautiful children, despite the fact that most experts said it was unliokely!!!! There's still a whole life ahead of you yet.... keep us posted!!! xxxxxxxxxxxxx love J

edited to say p.s that was 14 years ago and my 'babies' are noe 9 & 7 xx

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Re: Just diagnosed

hi swift and frootloop, know exactly what u both mean! im 41,two boys, 5 and 14 and too had wle,snb on 4th april. clear margins, nodes clear (hurrah) grade 2 invasive ductal. have had 12 of 20 radiotherapy sessions and as im er+ started tamoxifan 2 mnths ago. was so thankful to not have 2 have chemo (my onc said totally not necessary) i so know the horrid feelings of gloom and doom but like u both intend to be around for a very long time to come!! i really did need to keep busy to keep me sane and i went back to work part time the week before rads. didnt have 2 , i wanted 2. tired but determined this c****y disease will not get the better of me! love and luck to u both and keep reading and posting, helped me no end.family and friends brill but they havnt experienced it(if that makes sense?) alex xxx

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Re: Just diagnosed

Hello Swift. I'm new here too.
I was diagnosed with grade 1 DCIS in April. Had WLE and SNB, lymph nodes were clear but then needed re excision 5 weeks later because they weren't happy with margin. Get results next Tuesday - am praying that's it now.
I know what you mean with the up and down. I'm trying to take that in my stride, because of course we're going to feel a bit battered. We never asked for this stupid disease - I was quite happy pootling along with my life until it made it's very unwelcome appearance and spoilt things.
Maybe today is just a 'positive day', and ask me' again in a week and I'll be down there in the dumps - but today I refuse to be defined bythis unwanted interfering blinkin disease! I want my life back now please!

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Re: Just diagnosed

Hi all

I have just signed up today to this forum and there seems to be a wonderful amount of support.
I was diagnosed with Grade 1 BC at end of March and had image assisted wide local excision (lumpectomy) and sentinel node excision on 4th April. Results showed that lumph nodes were clear thankfully but needed to have a further op 5 weeks later to get a clearer margin. Had results of this last week and all OK. Feeling upset about change in breast and nipple size and shape. Also dreading going back to work.
I am 58, divorced and live alone. Have had fantastic support from friends. Family have also been great but they all live min. of 3 hours drive away. Also am up one minute and feeling fairly flat and shattered the next.

Is there anyone else in similar position? Do you think my feelings are normal?

Thanks for reading this.

L X

Re: Just diagnosed

Hi Locket,
I think feeling totally terrified is absolutely normal for nearly all of us at various points. Certainly at the start when it's all unknown.
I've had plenty of surgery over the years and for me it's been ok (main bc surgery still ahead of me), and I know that modern treatments mean that most people are going to have a good outcome at the end of all of this. But goodness me there's so much to think about, especially with children to consider as well. Lots of lovely people here to talk to, so hoping you get tons of support.
Ann x

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Re: Just diagnosed

Hi ladies, Im just needing some positive thoughts and wandered if anyone has any please!! Im having a mx and lymph node samples on Thurs 12th May and Im totally terrified.Not sure what to expect (never had surgery before) and dreading seeing myself afterwards, not sure how im going to feel and Im just sending myself into a panic.Also Im worring about my girls,had a little chat with my eldest shes 6 explaining whats happening dont know how I held the tears back,but I did some how.Im so scared!!!
xxxx

Re: Just diagnosed

Hi my name is Emma, I was diagnosed last year when I was 30, a big shock to say the least. At first I was scared because I felt out of control of my life not knowing what was going to happen to me. But once my oncologist went through my treatment plan with me and I knew that I was being given the best treatment and the best chance of recovery, it got easier. I knew it wasn't going to be easy but, when I thought of other women with BC who may not have access to the treatment or the specialist doctors I have it made me feel blessed, hopeful and positive. It will get easier when you know what the plan is then you can focus on getting through and staying positive so you can come out the other side a stronger more determined person.

I wish you well and hope reading about other experiences will help you, I know it helped me.

Emma x

Re: Just diagnosed

Hi ToffeeLumpyBumpy

Firstly, welcome to the forums, I'm sorry to read of your diagnosis, the first few days and weeks are always difficult when coming to terms with things and getting to grips with your treatment plans, etc.

As well as the support you are receiving from the others users you may find it useful to order the BCC Resource Pack, it has been specifically designed for those newly diagnosed and has information to help you better understand your diagnosis, test results and the various treatments available. To order a pack click on the link below:-

http://www.breastcancercare.org.uk/heal ... tionId/82/

Also, do give the helpline a ring if you need any further support or information. They're on 0808 800 6000. Open 9-5 Monday to Friday and 9-2 Saturday.

I hope this is helpful.

Best wishes Sam, BCC Facilitator

Re: Just diagnosed

Hi TLB!

What bloomin' awful news for you. Although modern treatments lead to very good outcomes for an awful lot of people, the shock to us at the start is a heck of a thing.

There's no right way to be feeling. Might vary from disbelief to anger to sadness to shock or anything else, or any combination of them. It's all normal. (Er, whatever 'normal' is when we're in the middle of this lot!).

Me, I have a grade 3 HER2+ sort with a lump of 2.3 cm but nothing in the nodes, which means it also needs a lot of treatment etc. They started me with a sentinel node biopsy and then 8 lots of chemo (four lots of "FEC" and four lots of "TAX"). Then I've got to have surgery. Then it'll be a year of wonder-drug Herceptin. There might be radiotherapy as well, depending on how well things go, I guess. The exact order they do things in and what they offer will be tailored to what they find with you. You should be given a breast care nurse to talk with who is normally excellent at handling all sorts of random questions and panics etc. Mine is.

Lots and lots of lovely people here. Ask anything. We know what it's like.

Ann x

Re: Just diagnosed

Hi ToffeeLumpyBumpy,

Welcome to the forums, I am sorry you have a reason to post on here, but rest assured you will get some great support and advice.
I am 34 and was diagnosed in Dec 2010 with a Grade 3 invasive Ductal, I had a Lumpectomy and a SNB I then also required a full node clearance as they found a micro trace of cancer in one of my Lymph nodes therefore had them all removed. I am a bit further down the line to you I am having my 5th Chemo of 6 next week.I am also having Radiotherapy? I remember very clearly how I felt at the stage you are at now and believe me it does get easier to deal with, especially once you have a treatment plan in place.
Usually Chemo is 6 cycles every 3 weeks and the type of Chemo will depend on node involvement or not? But im sure your medical team will give you this information. Try to take one step at a time, The Lumpectomy and SNB is okay. Try not to google as alot of information on the internet is out of date just look at sites like BCC and CRUK.

Ask any questions and keep posting, this site is great and has really helped me.

Sending ((hugs)) to you

Donna xxx

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Just diagnosed

Hi All,

I am 30 years old and I was diagnosed last Thursday with Grade 3 invasive ductal.

I'm having a lumpectomy and sentinal node biopsy on the 25th and have been told that there will be radio and chemo therapy.

Other than that I have no idea what to expect, how i'm supposed to be feeling, how long the treatments lasts on average, anything really.

Any thoughts, comments or suggestions would be great - i'm a bit in the dark!