Sorry to read that you had a reaction to the Radiotherapy, but pleased to hear that "hubby" is stepping into the breach. Sort of nice to read about your "genetics lady", brought back a memory of an overbusy lady, who without lifting her head from her notes, started to ask me about prostheses and breast reconstruction - thought she was asking if my wife wanted a boob job !!
Happy birthday for next week, from the bits I have read on this site - wine is a wonderful way of smoothing out the whole experience, so enjoy. Toodle pip XXX Papa M
Hi there, just thought I would give an update. It is 4+ weeks since I got to ring the bell, and I am just back from Inverness. The wound is fine and the reddened area from the Radiotherapy is starting to look less angry, although it does feel a wee bit 'tight' on occasion. The toe and fingernails have started to grow back, I can almost get the little finger, on the right, to give a scratch to an itch, almost ! Have seen the Oncologist and she seems quite pleased with the response to treatment.
I know that I used to work for the NHS, and have been a touch critical over the years, but I cannot praise all concerned enough for their care and sensitivity, things have come a long, long way since the early 70's.
Well, providing there are no surprises crop up, I can have the summer off, and return for a check-up in September
All the best, XXX Papa M
Good for you, it is a nice feeling getting to ring the bell. Things are slowly returning to normal, whatever that was, food is tasting better and Coke tastes like it should. Have got the celebratory meal with SWMBO next week, followed by a family get together (meal of course), then we are away to my sister's place up by Inverness.
Can I thank you for your company during these fraught times, it helped that there was someone else out there - we are survivors. A' the best XXX Papa Michael
Best wishes for tomorrow, may the Gods smile kindly on you. After 5/7 from completion of Radiotherapy, all I have to show is a reddening of the chest skin and a slight tightness in the suture line - nowhere near as bad as the most gentlest of the Chemo side effects. Toodle pip XXX Papa M
Surgery - done. Chemotherapy - done. Radiotherapy - done.
Only have 4 years and 11 months and 7 days of Tamoxifen to go ( Oncology reviews included ). Passage through the segments is noted by the odd highlight, such as a ginormous scar and no left nipple from Surgery - my mankini wearing days are over before I get to wear one. The weight loss of Chemotherapy - to be fair it is not a dietary plan I would recommend, and the bright pink colouration of the left chest/neck from Radiotherapy - to be honest, I am not a lover of the colour. However I will soon be able to try and sort out the much neglected weed patch formerly known as the garden.
Seriously I am pleased to have reached this stage, I know that some of the Chemo is still wending its way through the system, and that I could still have a reaction to the Radiotherapy, but I have made it so far, and I intend to go on to see my 6 yearold grand-daughter become some-one's significant other.
To all who are still working their way through, may your sails be full and your God go with you, remember - it is all about the target at the end of our treatments.
Toodle pip. XXX. Papa M (Michael)
Two thirds of the way there, 10 down and 5 to go, still getting the weekends off for good behaviour, so I am due to complete next Wednesday. No green dots, circles or lines here - they only get issued with black marker pens, but it seems that 50% of staff have to have hands that are freezing, got two of them yesterday.
The grandkids are going to be disappointed, I am not glowing in the dark, but like CatherineJ the skin is a wee bitty red, so I get to slap on extra E45. One toenail is decidedly loose, so that will probably go, the other nails seem to be holding fire at present, but that could change - the Chemo effect is reducing though.
May your glass always be full and your plate never empty. Toodle pip. XXX Papa M
Happy to put your mind at rest, but don't forget that for each of us it is an individual experience, and that experiences may vary.
One downside to the Radiotherapy sessions is the waiting around time, but there again I have to travel to our local big city, which is time consuming, as is the hanging around to get back home. But as long as it works - what the H3LL.
Oh yes, got a new one this morning - sore throat, I was warned about it, I have a habit of not turning my head far enough when they zap the upper chest nodes - I guess that I am too nosy and want to check out what else is happening in the room!
Happy Daze, toodle pip, Papa M
Good to hear some positive rad tales.....for those of us who have it due shortly. X
5 down and 10 to go. Don't know about you but Radiotherapy does not seem to be the mental drag that Chemo was, I am not experiencing any side effects yet either.
Not getting any young man, cute or otherwise, to draw on me, but am having to make do with a couple, or trio, of young ladies, one of which has extremely cold hands - she must keep them in the freezer.
Have discovered one drawback to having this treatment in our nearby big city, they must be getting charged exorbitant prices for tea, milk and electricity, given what they charged me for a cup of tea.
Toodle pip XXX Papa M
Hi, well I have been zapped, only 14 more adventures with the microwave to go and I hope to be fully cooked. The grand-kids are going to be disappointed - I will not be glowing in the dark.
Am glad the Chemo bit is over, the taste buds are generally returning to whatever can be viewed as normal, but the finger and toenails are not, I am convinced that I will be losing all the fingernails and some of the toenails.
Have to go to the "big city" for the treatment, but fortunately we have a dedicated charity service from my town, so it saves looking for a parking spot when we get there. (Saves SWMBO driving too).
This phase is starting out OK, may it continue thus. Bon chance (French accent) XXX Papa M
Hi there, well I have been to the big city and have had the pre-Radiotherapy assessment. Got drawn on in felt tip and then had 3 "dot" tattoos, apparently they are used as alignment markers for when I get zapped.
I have been given a schedule of appointments, I am to have fifteen starting on April 7 at the rate of 5 per week, I get the weekends off.
The tastebuds are still feeling the effects of the Chemo, but the appetite is starting to return, so the much beloved weight loss may start to go in reverse. The nails are becoming painful as they are now detaching from the nail beds, both hands and 3 toes are affected, thankfully the Antibiotics seem to have done their job and the infection is reducing. Toodle pip XXX Papa M
Hi Debs, I am up to your 90% and things are starting to seem more like normal. The taste buds have not yet returned fully, but for the first time since last November, I have had PIZZA. Not a big one or even a whole little one, but I had PIZZA !!!
Off to the big city next Tuesday for the pre-Radiotherapy assessment, so I am still a few days behind you. Also like you, I have had enough now, I keep looking at my garden, and all the jobs I have left to do from last year's list - this is not going to be productive year except for weeds and the like.
I am envying you being able to drink, but am extremely envious of any jelly intake, I made one a few weeks ago, traffic light colours, neatly layered, had to let the grandson take it home - with taste buds shot it just tasted like badly flavoured water. I nearly cried - I like jelly. Toodle pip. XXX. Papa M
Strange how these Chemo cycles affect us in different ways, you cannot sleep - I keep nodding off, you are drinking - I am in a drought. My taste buds are fried though, there is little I can eat - bread and cheese are no go areas. I am finding I can do most activities, albeit more slowly, and with many rest periods - took me 90 minutes to buy 11 items in the supermarket, anyone can do that though, all you need is a trolley to rest on and lots of labels to read.
The son moved house yesterday, I was not much help, but could make tea, shop for their take-away and knew of a really good, helpful plumber.
Looks definately that I will be losing some finger and toenails, the doc has put me on Antibiotics - have smelly discharge under the nails.
All the best. Toodle pip. XXX Papa M.
The tears are forming in my eyes.
Having a strange reaction to BTT6, not what I expected at all. Yes the taste buds are fried again, but I am able to eat, albeit food tastes weird, I am able to take fluids this cycle, unlike after previous BTT's. I am resigned to losing some toe and finger nails, but the hair is growing back. Had a potter about the garden a couple of days ago, just a short, wee job, about 30 minutes worth, but it took several hours - but what the heck, the sun shone, and I now have a bit of colour rather than being pasty-faced.
SWMBO is holding up well, why she is still putting up with me is a mystery, but I am not arguing with the 'cup of tea' maker.
Toodle pip. XXX. Papa M
Well that is BTT6 over and done with, just have to survive the recovery period and then comes the Radiotherapy. But it is the potential side effects of the 5 years of Tamoxifen that has me worried, Weight Gain, Endometriosis and a 'dry' Vagina !!! Weird eh!
Hope all is well with you as we head into the next part of this unwanted adventure.
Best wishes XXX Papa M
Best wishes for Tuesday, BTT6 comes on Friday for me, have a BIG 6 badge ready to wear. But I am also fed up with this part of the treatment, hopefully the Radiotherapy will start on April 4. Have managed to eat a meal this evening - sausage casserole, so may get to put some weight back by Friday, this diet plan sucks - may need to try choc. eclairs. Toodle pip XXX Papa M
After what seems to have been an horrific past week, things are starting to look up. The taste buds are still iffy, but the sawdust feeling of eating is fading. The one defining feature of an almost fluid diet is what goes in, comes out - but that is what Imodium is for. Got appointment on 29th for marking up for Radiotherapy, so guess that will start the following week - have disappointed older grandson - told him I will not be glowing in the dark. 10 years of tablets .. mm, I am feeling short changed, my oncologist has only threatened me with 5. Lost another 7 lbs - have had to get some new trousers. Toodle pip XXX Papa M
It is BT5 + 3 and the side effects are starting to cut in - the taste buds are failing and a lethargy is creeping up on me. On the positive side - in about 2 weeks or so it will be number 6, and this phase of the torture will end - barring the three week recovery period. Hope you are doing ok, we are nearly there. Toodle pip XXX Papa M.
Well that is BT5 done and dusted, just have to wait for the side effects to cut in. Veins still viable but lost a few hairs from the wrist area - epilation by tape. Managed to make and eat a stir-fry this evening, was a bit heavy on the Plum Sauce though. End of tunnel is in sight, but rumour has it there is a Radiotherapy tunnel under construction! Hope all is going well with you, we are on the final section of this part of the course, I have been told that Chemo is the worst part of what is planned for me, so far they are right - my mother's lack of culinary skills have faded into insignificance. Onwards to the end of the track.
Toodle pip XXX Papa M
Postscript : just read back to your entry at start of month - the Oncologist says I will have 'hot flushes' when I start the 5 year anti-Oestrogen course, mind you, as my Australian cousin observes - I should not get pregnant. Toodle pip XXX Papa M
Was a little optomistic with the last entry, things stayed static, improvement did not continue as usual. I was warned about BT 4 being not so good, they were right, thankfully BT 5 starts in 3 days time. Off to see GP this lunchtime, need BP meds adjusting to counter affects of reduced diet in the 2 weeks following Chemo. Have had a stabbing pain in lower abdomen over the weekend too. Good luck with the line, hopefully it will make things easier. Hope you get used to the wig, I am making do with the 'Fuzz', it is off putting though when the 1 yearold grandson has more hair on his head than me, and that includes my beard. Happy daze XXX Papa M
Me again, it is now BT4 + 13, and things are becoming well with the world again, but last week was not good. Fluid and dietary intake went through the basement, my Lethargic low was at an all time high, and according to SWMBO, I was like a T Rex with attitude. At one time all I was able to swallow was clear soup, and with that and the Antibiotics, I could clear buildings, never mind rooms. But as I said, things are starting to improve as the taste buds start to work again, so I should be back to whatever passes for normal, by the time BT 5 comes round. Have a good weekend, good fortune on Monday. XXX Toodle pip, Papa M.
Just a bit of an update, it is BT4 + 7. Not been such a good week. Each trial is becoming just that, a trial. Still have the runny nose, but have added another Chest infection, so I am back on the Antibiotics. Not doing too well with either dietary intake or fluids, SWMBO is not happy with me. Have developed what looks like little bleeds under the fingernails - painful and unsightly, and have developed flu like joint pain. Put 7lbs back on before BT4, but have lost that again and a few more lbs too, only a couple more stone and I may qualify as one of the late Sir Terry's racing snakes. XXX toodle pip, Papa M
Well that is 4 Bush Tucker trials over and 2 to go. Woke this morning to a sore throat and a runny nose, some evil swine has stolen most of the nose hairs so there is nothing to impede the flow. The recovering taste buds have already started to go in reverse, makes me fear for the breakfast on Sunday. I am now getting bored with the treatment, time is passing slowly, yes I know that it is a drawn out process, but I rather liked the idea of a Whisky / Chemo exchange - forgot to check with the Oncologist how many days of Radiotherapy I am getting, was too busy concentrating on No. 4 B T going ahead. You are now T4+ 6 - how are you faring? hopefully the slide down the back 3 will be easier than the climb up the first 3. Toodle pip - XXX Papa M.
Been a strange week, taste buds are still a bit confused, have felt dizzy a couple of times with a bit of visual haziness, appetite and fluid intakes are variable - according to the bathroom scales I have lost 7lbs, reduced intake can do that for you apparently. I have hospital in the morning, bloods and pre-treatment checks, then hopefully, it is the 4th Bush Tucker trial on Friday. Sorry to hear of your difficult start to the week, but we are ( well I am almost ) getting there, only two to go, I have had it described as having an extended hangover - do you think I could get intravenous whisky instead of the Chemo ? XXX Papa M
Hello, been a few days but that is the Chemo side effects for you, but at least it has not been the 12 days of the last cycle, that really was a bummer. I know it grates to be told "you are brave and strong" as often as we seem to be, but we are, we are contributing to this site, we are not playing Ostrich. We may expect the worst, whilst hoping for the best, but we are standing up and fighting - when the Chemo allows, otherwise I lie down and fight. Food and Fluid intakes have been reduced lately, but the loss of hair has stabilized - No.2 grandson is still rubbing the fuzz. 3 more Chemo cycles and then a month of Radiotherapy, hopefully then the taste buds will start to match the memory banks. Have selected the restaurant to celebrate with SWMBO, once the oncologist says OK. XXX PapaM
Hi all, had my lumpectomy and SNB on 22nd Dec and went for my follow up appointment today. The nasty lodger has gone and everything is clear but the results show her2+. Was expecting (hoping) to be scheduled for some radiotherapy and hormone drugs but now looks like there will be chemo and herceptin. Got my Oncology appointment on 26th Jan. have been pretty strong so far but now I'm feeling sick just thinking about what's next
Hope your trip to the Haven is helpful. I sympathise with your side effects. FEC3 was bad then se's change slightly with Tax. I was diagnosed in 2012 so all a distant memory.
We don't have Haven or Maggies where i live but we do have a small Cancer Charity offering Counselling, Reiki Reflexology etc. I am now back at work and can reflect a little. I am so grateful for all the treament from NHS (I know it is not perfect but it is unique ), however bad it felt at the time. But it is only with hindsight that i can see what a difference the Complementary stuff made for me and the other ladies i met there.....
I have had lots of Complementary therapies and continue to have Reiki which helps with the sleep and am a great fan of Mindfulness, downloaded lots of mindful meditations, do mindful walking and lots of colouring...
Hope you get some good night's sleep....Good Luck with the rest of your treatment. X