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Just how aggressive is Grade 3?

11 REPLIES 11
ljmostlyautumn
Member

Re: Just how aggressive is Grade 3?

oops I put my name on my post. The book is called: "The Big C in my bra - Dealing with brCa". I really hope it helps. xx

ljmostlyautumn
Member

Re: Just how aggressive is Grade 3?

Hi ladies and gents,

 

I was diagnosed with aggressive (G3, triple neg, Node positive) Breast Cancer at 37, with 3 young daughters. I went through mastectomy, chemo, radio, gene testing, and then prophylactic (keyhole) salpingo oophorectomy, (which brought on a surgical menopause), another mastectomy and bi-lat recon with a DIEP flap and a TRAM flap.  The tram suffered partial necrosis so I had a crater and vacuum for weeks, before having a Lat Dorsi flap. Finally I had a nipple reconstruction and last year finished with nipple tattoos.

 

If you would like to read my story, it's on amazon - just search for me name edited by moderator in books. I wrote it to help people going through it all, and it has already raised some funds for BCCare, but I want you all to know there is light at the end of this particular tunnel and to offer you any support, or info I can. It is wonderful to have someone who's been there to share their experiences and chat to. I found writing about it all very therapeutic - it might help you too. xx

 

Guest user
Not applicable

Re: Just how aggressive is Grade 3?

Hi Honeybee, I'm sorry i've not been online for a week or so. everything changed very fast because although my surgeon could not operate sooner than the 3rd Oct, his colleague could and I'm now less a lump and node! I was so sorry to hear about your situation - and that you lost your father - it must be so hard to cope with both issues together - and hard for all your family members too. I do feel that perhaps its those nearest and dearest suffer more than ourselves - I'm lucky I now have a very positive attitude - if only the hospital hadn't run out of the BCC's 'Treating breast Cancer' booklet I don't think I'd have been half as scared as I was as it was explained in the booklet that whatI had was just 'normal everyday' breast cancer! but like I said, when they said 'aggressive' and 'invasive' and the lump seemed to double in size, I thought I wouldn't be around long enough to get to the surgery!! lol
I guess you've seen the consultant by now - I hope that went ok and you feel more in control of the future - you know what you're doing and when - I get my results next Friday, and then have to see an Oncologist about my treatment. I'm the sole carer for my mother who has Alzhiemer's - and she's in a home at the mo - and I cant wait to find out what and when my treatment is so can let her know whats going on - she's still very with it in the moment - but forgets most things instantly!!
My thoughts are with you, and your loved ones - I hope all goes well for you.
Cindy
Lucy_BCC
Member

Re: Just how aggressive is Grade 3?

Hi Honeybee12  and welcome to the BCC forums

I am sure you will gets lots of support and shared experiences from your fellow users and in addition our helpliners are here with practical and emotional support for you on 0808 800 6000, weekdays 9-5 and Saturday 10-2 

 

The following links will take you to the 'Just diagnosed' and 'Treatments' sections of the website where you will find lots of information when you are ready to read up on your diagnosis and treatment options and also more support ideas from BCC which I hope you will find helpful:

http://www.breastcancercare.org.uk/diagnosis

 

http://www.breastcancercare.org.uk/breast-cancer-information/treating-breast-cancer

 

Take care

Lucy BCC

 

honeybee12
Member

Re: Just how aggressive is Grade 3?

Hi - I too was diagnosed recently on 20/8 with stage 3 invasive ductal breast cancer.  It was such a shock as I had convinced myself it was harmless cyst like I had about 10 years ago.  Mammogram last August was clear & didn't feel lump until few days prior to rpt mammo, USS & biopsy this August.  I  went to Gp in July as breast felt dense, swollen & painful.  Gp gave me course of abx initially as thought unlikely to be the big C!!  but referred me to Consultant via rapid access referral few weeks later.  I had masectomy with snb on 5/9 & have been avoiding looking online too much.  I've been doing Ok since surgery, lots of support from family & friends but worried as have some swelling & discomfort today just below the surgery scar.  Due to see Consultant next week when I will get the full picture, also had CT & Bone scans prior to surgery.  I know I'm due for chemo & radiotherapy but when & for how long I've no idea.  Two days after my diagnosis my Dad died, so the time leading up to my surgery I was kept busy helping my Mum arrange the funeral etc. It seemed quite unreal at times & I've not been at work since the diagnosis so life has changed completely.  We didn't sleep well for days but you do in the end as you just get so exhausted & you have to try & have some normal days.  It difficult seeing how it affects your loved ones, my husband found the waiting for me going for surgery the worst as just wanted me to be rid of the tumour.  It's good to read about others  experiences & to know you're not alone.

 

 

 

 

poemsgalore
Member

Re: Just how aggressive is Grade 3?

Hi Cindy

 

In case you are interested, there is a thread for those with Inflammatory Breast Cancer here: 

 

http://forum.breastcancercare.org.uk/t5/Inflammatory-breast-cancer/bd-p/4454

 

Take care 

 

Poemsgalore xx

stressy_messy
Member

Re: Just how aggressive is Grade 3?

Hi akelahbc, glad your feeling a bit calmer today. Just to say after my biopeis I was sure my lump had doubled over night but it was just swelling from the biopsie.  Glad you have kept your sense of humour  (brian lol) . Good luck with all your treatment .

Melx

Guest user
Not applicable

Re: Just how aggressive is Grade 3?

Thanks for your replies everyone .

After reading Lydia's post i realise I have given you the wrong info!  whoops sorry.  I used ibc thinking of Invasive breast cancer - not Inflammatory!  This is all a massive learning curve, and I think i was also in a bit of shock!

I have spoken to the breast cancer nurse and has assured me things can't go any more quickly, but I  can put my concerns to the surgeon (who dx me) next Monday as he's on call this week.  I'm sure I'll have many questons for him then - and I'll get him to check the growth!  The nurse was quite patronising when trying to explain WLE - as I had already explained I knew all that as mum had a melenoma years ago - and when asked, the nurse said others had bigger lumps and others smaller - mine was middling - I felt she was fobbing me off!!  she also said after each session of biopsies the area would swell as a result of the needles anyway so its not as bad as I probably reckon.

I do feel a lot calmer today - and have decided I'm calling the lump Brian so I'm not using the big scary C word!!

Thanks girls, I bet I'll be back shortly x

 

 

chascat
Member

Re: Just how aggressive is Grade 3?

Hi Cindy

 

I know very little about Inflammatory Breast Cancer but understand that it is very aggressive and is normally treated with chemo prior to surgery, if you do have IBC i'd ask for a second opinion, hopefully somebody with more knowledge will be along shortly.

 

Take care

 

Lydia

poemsgalore
Member

Re: Just how aggressive is Grade 3?

Hi Cindy

 

So sorry to hear you are going through this worrying time.

 

My cancer was also invasive (ductal, the commonest one) grade 3. I was diagnosed at the beginning of October, but didn't have my mastectomy until 12th December. I had arrangements to have our bathroom modified for a disabled person and couldn't put it off so the surgeon said that would be ok.  So I waited 9 - 10 weeks.  2 - 5 weeks is about average I think. The feelings of discomfort and that it has grown, is quite common. Our minds work overtime when we are worrying about the outcome, but even a grade 3 invasive doesn't grow as quickly as we think it will. If it has grown in size, the grade will not change.

 

Here is a  link to a page on the Macmillan site that explains grading and staging breast cancer:

 

http://www.macmillan.org.uk/Cancerinformation/Cancertypes/Breast/Symptomsdiagnosis/Stagingandgrading...

 

I know it is difficult, but please do try not to worry. They probably wouldn't be able to bring the surgery closer anyway. Surgeons have lists for operations and they don't usually change that.

 

Sending you hugs and best wishes

 

Poemsgalore xx

June_BCC
Member

Re: Just how aggressive is Grade 3?

Hello Akelahbc Welcome to the forums, I’m so pleased that you are finding them useful. Whilst waiting for replies to your post maybe you could call our free helpline where the staff can offer practical information as well as emotional support. The free phone number is 0808 800 6000 and the lines are open Monday to Friday 9.00 to 5.00 and Saturday 10.00 to 2.00. Best wishes June, moderator

Guest user
Not applicable

Just how aggressive is Grade 3?

I was dx with grade 3 IBC today - well yesterday but I've not slept yet!  I've been studying this site which seems to answer a lot of questions, but I do have one burning question cos I read one post and need clarification.  How quickly does a grade 3 cancer grow.  In about three weeks I reckon mine has at least doubled in size - and the powers that be haven't re-felt the lump - but told me I'd be operated on on 3rd Oct - (2.5 weeks).   If it continues growing at this rate I'll need a new bra - and its getting uncomfortable already - is this normal?  Is it super agressive and should I push for the op to be brought forward.

 

Thanks guys and gals

Cindy