Presumably this is because your current treatment is no longer working? Or does your onc know more about Kadcyla and has decided to put you on it before it is withdrawn? I'm interested to know for obvious reasons!
Good luck with it anyway, hope it's the wonder drug the results say it is.
It was a big shock when I read in the newspaper that Kadcyla had been withdrawn from the CDF. As Sue has said it was the next one in the line if our current HER2 therapy fails whereas now there doesn't seem to be anything! I just hope something can be worked out between the drug company and NICE regarding pricing as I'm sure that is the only issue here as the results have been so brilliant. Fingers crossed ladies.
Hi GeorgieX, I am sorry it is me again. Have you or anyone else spoken with your oncologists about what treatments you could go onto if the current one fails??? The last conversation I had,which is a while ago mentioned tykerb and xeloda. That obviously isn't on the cards now as this was removed from the Cancer drugs fund list a while ago. At that stage we still had Kadcyla which we won't have in the future. These are the only her2 drugs I know of. It just seems that our choices are almost zero now. When I was first diagnosed and went to see the doctors at the Royal Marsden they were so optimistic that new treatments were in the pipeline and how good they were. There are treatments out there we just aren't considered worth saving. Perhaps I should feel guilty for wanting access to such an expensive drug with the refugee crisis going on!! I think we should help as much as we can but that should also go for helping sick people. In some respects we are all fighting for our lives. They are fleaing danger and we are engaged in an internal battle. This is all so worrying and stressful don't you think?
I can't believe that I have just spent a good 20 minutes trying to respond to your post GeorgieX and lo and behold the page got lost. As well as being completely devastated by the above news. I must confess that I am finding this forum harder to use. The whole layout seems so jumbled, I have had trouble resetting my password plus the loss of a post that I spent so long on. It just seems that the options we have for treatment just keep diminishing literally day by day. I suppose it won't be long before the ones we are on are too expensive too!!! Sue Xx
