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LCIS

4 REPLIES 4

Re: LCIS

Thanks Helena. That's all good to know. I need to try and not let my thoughts get out of control! x

Re: LCIS

Karen

 

First of all congratulations on your wedding 🙂

 

Just to give you an insight to my bc it was 17mm, grade 1 er positive.  I had a lumpectomy and snb in Oct last year, I was off for 6 weeks, but that was because my boss insisted I stay off until I got my results, the hospital gave me a note for 2 weeks and my GP signed me off for a further 2 weeks, and with hindsight it was absolutely the right time, I was so sure I would be back at work after 2 but did need the 4 weeks.

 

We all understand the feeling you have, it is "is this really happening to me!", but rest assured your wonderful bc team will be refining your treatment plan to your particular situation.  It will be fine honestly and you will come out of this the other side.  I had 20 sessions of radiotherapy which ended in Jan this year and am on tamoxifen for the next 5 years, back doing my normal job, started bowling again a few weeks ago at the start of the season and generally just getting on with living life again.

 

We are all here for you whenever you need us, never worry about asking questions, you are not silly and do not ever think that you are, it is totally ok for your head to be turned to mush at the moment, just take each day at a time and set yourself small milestones and that will, along with your wonderful family and us, get your through this.

 

Helena xxxx

 

Re: LCIS

Thanks so much. It's just all new. I like things to be clear cut, not fuzzy and unknown!
I don't even know what to expect time-wise. I thought I'd just need a few days off work but my doctor was saying at least 2 weeks. Is that reasonable?
I was married 2 weeks ago, and got my diagnosis 10 days beforehand. It's been a tough month head-wise!!

Re: LCIS

Oh Karen , it's certainly not daft to be worried - getting a cancer diagnosis is never going to make our day is it? And fear of the unknown is not daft either - it is such a steep learning curve, learning all the new words and the nature of our own particular lump, and I definitely had  reduced cognitive function, not so much initially but strangely after my lumpectomy and node removal and radiotherapy - there is just so much information to take in. I had no idea of what was involved re breast cancer before my diagnosis. Thankfully my treatment plan was similar to yours - 1.4 cm lump removed and a sentinel lymph node - but your lump sounds tiny at 1.5 mm. Don't fear the surgery - most of us lumpectomy folk will tell you that it was not as bad as we'd feared - it's the unknown again.

I had surgery in December and radiotherapy Feb/March and am back to doing all the thiings I used to do. (I've just come in from some serious gardening.)   Take it one day at a time, make a list of questions in advance of meetings and write down the answers, otherwise the brain takes a holiday the minute you set foot in the consultant's room. Resist the urge to Google unless you are on this site or Macmillan as a lot of stuff out there is scary, out of date and inaccurate. They can't tell you "it will all be fine", as you say,  but what they should be telling you is what we on here all know, that breast cancer is very treatable - diagnostics and treatment have come on in leaps and bounds in recent years and they are finding new treatments all the time. Good luck for the op and keep posting as and when you need to - this is a good supportive site. xxxxx

LCIS

I recently had a lump investigated, first being told that biopsy results showed it was LCIS. I had an MRI to see if there was anything else going on, and when I returned for the results of that I was told that some further tests on the biopsy samples had found a small area of cancer within the lump. I'm now awaiting a lumpectomy and lymph node removal in 10 days time.
I feel like I've entered a parallel universe. The area of cancer they have found so far is 1.5 mm. So is it daft to be on here worried? I suppose it is the fear of the unknown and where it will end. I keep expecting the specialist or my GP to tell me it's all going to be fine but they don't do that do they, as they don't know!
I read of others on here far worse off than me and feel a bit silly. I assume it's ok for my head to have turned to mush at the moment?!