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Letrozole - A positive post

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Re: Letrozole - A positive post

Thank you Cassie, I think I will start to take mine early and as you say along with other meds. I can cope better with aches and pains during the day rather than in bed. Will let you know the result. I have just started on Calceos and will soon start on a weekly drug called an Alendronic Acid Tablet

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Re: Letrozole - A positive post

I take anastrozole with my first cup of tea in the morning (along with other meds) - around 6:30 am.

 

I get a few aches (but then, I got them before cancer as I am now 70); I do get a bit hot in bed but not real hot-flushes. Other than that, no identifiable side effects.

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Re: Letrozole - A positive post

Letrozole has turned into a negative post for me. The longer I took it the more side effects I got, especially swollen ankles, so much so, I couldn't even get my shoes on and also the hot flushes for some reason increased during the night. 

 

I was getting up at least 2 or 3 times during the night to go to the loo. Each time it was accompanied by a hot flush, I started to put 2 and 2 together that there is/was a connection between the hot flushes and wanting to urinate, but discussing it with friends I brushed it aside as being silly [they thought I was]. So using Google to research it, I found lots of people asking questions about it. Nothing definitive was suggested other than it probably was hormonal. I was taken aback that there were so many asking about it as a connection http://bit.ly/1Q2Ix60 

 

I stopped taking Letrozole last Friday and after a few days felt a lot better, but I have gone back on to Exemestane, took the first one last night but I hardly got any sleep because of pain in my hips, knees calves and shinbones.

 

I took Letrozole and take the Exemestane about 7.15pm each day but was wondering if it would be better to take it with breakfast or maybe half at breakfast and half about 6.30pm to see if that would alleviate the pains during sleeping hours because during the day I can take strong painkillers to help reduce pains.

 

Whoever reads this and takes an aromasin inhibitor, what time do you take your tablet?

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Re: Letrozole - A positive post

Sorry I can't help because I haven't been prescribed for chemo.

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Re: Letrozole - A positive post

I have been on Letrozole since March (It shrank the lump enough to have WLI mid august no clear margins, followed by shave and sentinal node clearance (they had found 3 micromatasteses).  Had my first chemo session on 18th of this month.  There was a problem, as they thought I was still taking hormone treatment (but had been advised by oncologist to stop at appointment two weeks before chemo).  Did go ahead with the chemo in the end (touch and go for a bit)  Anyone else out there who went the hormone - operation - chemo route?  How long  did you stop the hormone treatment before Chemo?  I am now worried in case the chemo was too soon after hormones.  Next oncology appointment is 8th december, and can ask her then, but would like to put my mind at rest before that.  Just confused, and the hospital didn't seem to be on top of my case notes.

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Re: Letrozole - A positive post

Well things are still staying positive. Letrozole for 5 days now and it's getting better. I take the tablet at the same time everyday at 19.30pm.

 

It fits in with the multitude of other meds I have to take. Also I take 2 x Sage Leaf capsules [the better quality ones] around the same time depending what time we eat. and I don't know if it's those that are being a great help regards the hot flushes. I still get a couple a day but they last hardly any time at all... not like the ones I got on Exemestane which could last anything up to 30-45 minutes. These flushes I can deal with. I take the SL twice a day. Just hope this positivity stays or even gets better.

 

Does anybody in the UK get free prescriptions for supplements such as Sage Leaf?

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Re: Letrozole - A positive post

When I had breast cancer in 2007 I wasn't her2positive so didn't need herceptin.

 

 

 

 

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Re: Letrozole - A positive post

Hi spooks that is brilliant news about your mammogram I'm so apprehensive I got a letter yesterday to say my first mammogram is due 24th  I didn't sleep that night it just brings everything flooding back it was exactly a year to the date I'm still having herceptin treatment until January as I was her2positive I just want it over and done with love judi

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Re: Letrozole - A positive post

With this thread being a 'positive' one - I just have to post... that I got a letter from Breast Imaging place where I had a mammogram done last week and it's come through all clear and results are normal.... phew!

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Re: Letrozole - A positive post

Hi Judi It's hard to make a comparison of the two yet, but the hot flushes on Exemestane were like nothing I've had before. They would last a good 30-45 minutes. I am waiting another week to see how I get on with Letrozole. I took another type of supplement when on Exemestane but it might have been different if I had taken Sage Leaf when on it.

 

On both Exemestane and Letrozole I was / am very tired but it's not caused by them, it's from my major operation I had 3½ months ago and can take anything up to 12 months to recover from.

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Re: Letrozole - A positive post

Hi spooks I just wondered what side effects you had with exemestane as I  am maybe changing from letrozole to that I have had bad joint pain helped slightly by ibuprofen and exercise my cholesterol has also been elevated which is a known side effect unfortunately it is so difficult as I want to take an inhibitor due to being hormone positive  I have been on letrozole since march sorry spooks just scrolled down and read your previous post  re exemestane love judi

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Re: Letrozole - A positive post

Maybe early days to form anything but I laid off Exemestane for a week and started Letrozole last Monday. So far I don't seem to be having as many side effects. Joints ache but I get round that by taking morphine. I was advised by a oncologist and also the senior breast care nurse to take Sage Leaf capsules. I took 2 capsules last night and 2 this morning and so far no hot flushes, but that might just be premature. When taking Sage Leaf they advise taking them with a large glass of water at meal times. I suppose that's to counteract the sore throat you can get [which I did] that's really the only complaint I have with taking SL and Letrozole.

 

So like newey47...I am hoping this is now how it stays, totally bearable and doable.

 

I  will keep this thread updated....

 

 

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Re: Letrozole - A positive post

Hi I was put on Tamoxifen and couldn't tolerate it the side effects were awful so switched to Letrozole and I have been taking it for three months. I get a few hot flushes and some joint pain but other than that feeling ok on it. It may be a case of trying different brands as it's the ingredients in the coatings that can disagree with you. Good luck x

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Re: Letrozole - A positive post

I hope I get such a positive result from it. I was on Exemestane for 5 weeks and had numerous side effects. Swollen ankles, aching muscles & joints, hair loss, massive hot flushes, tiredness, itchiness and a few others.

 

I had Stage 1 breast cancer in 2007 and had a lumpectomy. I took Armidex for a few months and I felt awful on it, so stopped it. In December last year I had a small TIA and a a very small pulmonary embolism in my right lung. I had a CT scan and a small 10mm nodule was noticed in the middle section of my right lung.

 

I had an operation in July to remove the nodule and in fact the whole middle section of my lung was removed. After several tests and a biopsy, it was diagnosed as stemming from the breast cancer. I have had a CT scan for chest, abdomen and pelvis areas and it is all clear, 100% clear. My oncologist insists I take an Aromatase Inhibitor, so desperately hope I get a postive result as you have 

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Letrozole - A positive post

Hi all

Read so much bad stuff about Letrozole......was dreading taking it.  Just wanted to post something a bit more positive to give hope to those about to start taking it.  I have been on it for a full month now, for the first three weeks I did have a lot of back, hip and leg pain.  This now seems to have settled down and I feel ok, a few hot flushes but I had them anyway.  I am hoping this is now how it stays, totally bearable and doable.  Good luck to all those starting, hope you find it as easy as I have.