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Letrozole No problems

18 REPLIES 18
Fuffs123
Member

Re: Letrozole No problems

Hi Tweeks
I'm on Anastrazole, same as Letrazole in action. It stops your body producing any oestrogen at all which makes your nether regions dry out! Thus, you do become a bit more susceptible to urine infections. Oh joy! Make sure you drink plenty and be gentle when you use toilet paper down there! Tamoxifen acts differently on your body. It doesn't stop oestrogen production altogether but blocks the receptors in your breast from taking this up. Thus they normally prescribe Tamoxifen to pre menopausal and Anastrazole to post menopausal women. You should be having DEXA bone scans at intervals if you are on Letrazole, to check your bone density, as oestrogen plays an important part in maintaining this. If it's low they will prescribe some calcium tabs for you to take with it. Sorry if I've banged on about things you already know. I didn't know any of this until I did some research. The good news is that apparently a recent trial showed that Anastrazole/Letrazole is highly effective in preventing a recurrence of ER+ BC. There is some advice now that women on Tamoxifen should switch to these after 3 yrs but not sure if all oncs are in agreement on this. X Francine
Butterfly318
Member

Re: Letrozole No problems

Hello Tweeks

 

I have changed 3 weeks ago from Tamoxifen to Letrozole and i know they are similar in their role but the side effects are very different for me.  This includes the frequent passing of urine....and i am experiencing really bad tiredness which i didn't with Tamoxifen.  I know i'm on the internet at midnight but thats quite unusual,  i could just sleep the clock ...

 

Flushes are much reduced for me....... Plus Point

 

Take Care  Gilly x

tweeks123
Member

Re: Letrozole No problems

Hi Judi
ive deffo got a water infection had it tested today and ive got antibiotics for 3days so should clear by then ..but I do think ive been going to the loo more often since been on Letrozole..x

christine x
ollisj6
Member

Re: Letrozole No problems

Hi I started on letrozole in March and apart from joint pains I was relatively ok but I have noticed  when I need to go to the loo I need to go pretty quickly so like you not sure if it's a water infection or letrozole love Judi 

tweeks123
Member

Re: Letrozole No problems

Hi has anyone had problems with water works keep going to the loo all the time im wondering havr I got water infection or is it the Letrozole tabs ??
June_BCC
Member

Re: Letrozole No problems

Hello  Koshlake

 

Welcome to the forums. 
Just to let you know we have a helpline should you want any support or practical information, the free phone number is 0808 800 6000 and lines are open 9-5 Monday to Friday and 10-2 Saturday.

 

Best wishes

June, moderator

ollisj6
Member

Re: Letrozole No problems

Hi ladies I just wondered if anyone have had eye problems especially dry whilst on letrozole love judi

koshlake57
Member

Re: Letrozole No problems

Oh yes I forgot - I am taking calcium and vitamin supplements, but have been taking these for 20 years anyway.

koshlake57
Member

Re: Letrozole No problems

I read that many women are having SEs with Letrozole, but that is not the case for everyone.  I am 58 and was diagnosed 28/3/15 with breast cancer, stopped my HRT straight away and put on Letrozole 28/4/15 while I wait for my surgery on 4/6/15.  Despite a return of menopausal symptoms which started about 3 weeks after stopping the HRT, I have been just fine on the Letrozole.  Sometimes I think my legs are aching but it really isn't bad at all

Cress
Member

Re: Letrozole No problems

Hello All, I've been on Letrozole (and Adcal/vit D) for nearly 6 weeks and have had no SEs. I do agree that it makes me wonder if it's doing the job! It is the only drug I've been given since diagnosis, except weekly Biophosphonate for bones. I'd love hear a bit about shrinkage rates from long term users. I had an Allred score of 6/8 and have liver mets as well. Any info. is always useful and gratefully received. Best, Julia  

ZipIt
Member

Re: Letrozole No problems

Hi Susie.  I have been on Anastrozole for 8 weeks, which I believe is the same. About 3 weeks ago, my hair started to thin but this has settled down now. I was feeling nausea at first, however after trying a couple of things found that if I waited for an hour after eating breakfast and then taking it, I am fine.  Hope this helps.

Nenya
Member

Re: Letrozole No problems

Hi, I found I had a terrible headache for more than a week. I started drinking a lot more water and it disappeared over two days. I am on my 8th week of Letrazole, I have also been taking vit d for two years from the docs so I don't know if that is a factor. I also hate the way I smell now. It's coming out of my skin and wee. No-one else have said they smell differently, so I am starting to think I am imagining it! Perhaps the yoghurt isn't helping if your body doesn't like too much xxx
tweeks123
Member

Re: Letrozole No problems

Hi Im taking Latrozole and feeling sick headaches and horrid..I havnt been given any calcium tablets yet I start my radio therapy today for 3wks..but Im thinking if getting some vitamin D for my bones and Ive also started having lots of natural yogart with fresh fruit Im trying to make sure Im getting my calcium this way as I dont really have much milk hope this helps your so lucky not having any SE from Latrozole but Im gonna carry on taking them and see if the sickness fizzles out . Xx
Suziex
Member

Re: Letrozole No problems

Thank you ladies I hope that I get on ok with it. I think I will start to take the cod liver oil didn't realise it was a good source of vit D.

Matty2
Member

Re: Letrozole No problems

I take a cod liver oil capsule once a day, I did before BC took hold and was advised by BCN to keep it up as was good for bones - rich source of Vit D.

Katielou2
Member

Re: Letrozole No problems

Hi, just wanted to let you know that I have been taking letrozole (and Zoladex as not quite post-menopausal) for the past month and have had no side-effects other than a bit of nausea initially. I was very concerned before taking it after reading of others experiences and then also worried that it wasn't working as I had no side effects! However today I have had results of repeat biopsy and there has been a really good response (measure of cell division dropped from 36% to 6%). I will continue to take it for another few months then have surgery. I haven't been advised to take any supplements but trying to have a healthy diet, bone scan will be arranged soon. I hope this reassures you.
eileen728
Member

Re: Letrozole No problems

I have been on Letrozole for a month and so far no problems - in fact I worry that it is not working as I haven't noticed any difference! Some hot flushes but very mild and no worse than i have had since menopause anyway.

CassieB
Member

Re: Letrozole No problems

I think Letrozole is the same as Anastrozole, if that is the case then I am taking the latter with very few side-effects which I can confidently attribute to it. I do have a few arthritic aches and pains but I had them before I started taking the tablet; ditto thinning hair and failing memory. I am nearly 70 and have been taking anastrozole for 12 months straight after a lumpectomy and 15 days of radio-therapy.

Suziex
Member

Letrozole No problems

Hi
I am just about to be moved from tamoxifen to letrozole I have been taking tamoxifen for three years with out any side effects a part for slightly thinking of my uterus this has now gone back to normal with a three month break from tamoxifen. I would like to hear from people who are taking letrozole with out any problems I know most people comment on here who have problems but I think it would be good to hear some positive experiences while on letrozole. Also does anyone take any supplements whilst taking letrozole.i have heard that vitamin D is good for the bones?

Thanks