Hi there.
I’m new to all this. Im one week post op. I had a grade 3 3cm ductal tumour removed. Recovery seems to be going well, except for a ‘sloshing boob’! Chemo and rad have been recommended. Sitting down to tell my children this week, so I it feels very real now. I seemed to cope better when nobody knew. Has anybody else felt like this?
Hello Huneebee
Welcome to the forums, this must be very difficult time for you. I’m sure other users will be along to support you soon.
In the meantime, maybe you would like to talk things through with a member of our helpline staff who are there to offer practical information as well as emotional support. The free phone number is 0808 800 6000 and the lines are open Monday to Friday 9.00 to 5.00 and Saturday 10.00 to 2.00.
With best wishes
June, moderator
I hear you! The thought of telling my daughter my diagnosis was the hardest thing I have ever faced. She is 12 years old. Telling her was in fact easier than telling family or friends, she is just 12 she has a set of things she needs to know and much of it was driven by her own questions. The most important thing for her seemed to be understanding that I was due to have surgery and treatment, how that may affect us as a family, and how I am affected at the moment. My former stroppy hormonal daughter suddenly understands that I am not on top form. She is still stroppy and hormonal (!) but with just a hint of consideration haha. On the whole she has taken it well and I am sure we will get through it together. However the breast clinic where I was investigated and diagnosed were the first to offer support her in the event that I needed help with this. Don’t be afraid to ask for support for you and the family.
Good luck and take care x
Hi, thank you. Amazingly, out of my three boys, my youngest, 12, has taken it in his stride. Which I feel so relieved about. Even his school are saying he’s amazing. He’s busy raising money for the breast care unit now. I feel quite proud of him.
It’s nice to hear your daughter is coping equally as well.
Take care & hugs. Xxx
Ps. Thank you for making me feel not so alone.
Newly diagnosed, I’ve told people at work (had to, with three medical appointments within ten days and another next week), but dreading telling my parents - any suggestions anyone?
There is no easy way to tell your family. The worry if it, is actually worse than the telling of it. I found give them the basics first, then let them come back with questions as it sinks in. Once my family got their heads round it, they’ve all been fantastic. Sending you hugs, it’s not the easiest thing to do. X
Hi this is my first time on the forum.
I kept putting it off thinking I didn’t need something like this…
Here I am!
I had a wide local excision and 3 lymph nodes removed on the 9th April, my cancer was small stage1 and slow growing and was only found because of my 50th mammogram (in feb). Since then my feet haven’t touched the ground! On Friday I had my results and all is clear so relieved I cannot tell you!!! It was a surreal moment that felt like it wasnt happening to me. I meet with the oncologist on the 11th May to arrange radiotherapy and hormone treatment (cancer was hormone driven).
So why why do I feel so low, emotional, fed up, angry, frustrated, restless, scared…
I have a wonderful family and friends and should be so happy, I thought I would be more mobile and back to normalish by now but my arm is uncomfortable and have cording. I am still taking painkillers as it still hurts and my boob feels so heavy and tender. I have ok times too doing my exercises three times a day and getting out for walks but everything makes me feel exhausted.
Few kind of feels better having written this. xx
I’m glad it wasn’t really bad telling your family. They will all find their way with it. I found after everybody had a week to process it, it became our new kind of normal.
Hi Pinkanemone, welcome to the group. I never pictured myself on the forum but here I am.
It does help. As everybody here knows how you feel. Even the things you done say.
Emotionally, it’s a bit of s roller coaster getting your head around cancer. You will recover from the surgery. Keep up the exercises, I have full mobility of my arm, so it’s worth preserving.
Use us as a sounding board when you feel low. But don’t forget, your family will be great support for you too. Xx
Hiya.
It is easier to talk to someone here. I know I’m saying more on the forum as I feel guilty for talking about it so much at home. I try to focus on normal daily stuff, but ultimately my mind does drift back to the cancer stuff.
The only advice that I can give you, was given to me by a friend, a seven year survivor- take it one day at a time.
I think it’s baby steps for us. I don’t know if that helps, but it’s what I’m doing and it seems to be the thing that works. Dealing with things a little at a time.
Wishing you a steady day. X
Thank you both for replying and your kind words. I have been given the all clear and have an appointment with the oncologist on the 11th May to sort radiotherapy and tablets. Have cording in my armpit down to my elbow which is making me miserable and still get very tired.
It seems I have one good day and then not so good I thought getting my results would make everything better but I found myself getting quite down. I am trying to take it one day at a time but get so frustrated.
I am going to have some physio and am having counselling too so hey ho…so good to come on here and have support thank youxx
Hiya. That must be difficult for you not being able to talk on line so much. I’m lucky, my OH gets that I need to chat with people going through it.
It’s the first surgery I looked forward to! I just wanted the cancer out of my body. So I completely understand you.
I hope the surgery goes well for you. Stay strong x
Hi All. I agree the waiting the hard part.
I was lucky, Mr surgical results were given a week later. Chemo started 4 weeks later, to give you time to recover.
I’ve had just had my 2nd round. The first was supposed to last three weeks but my white cells were too low so I had to wait another week & a half. There is no normal, we’re all individual.
Read the tips for coping with chemo. And be careful of constipation. Don’t keep quiet or be embarrassed about it! It happens to us all.
I’m nearly three months post op and just developed cording, bug gutted as I thought I got away with it and recovered well. Hey ho.
Stay strong all! Hugs xx
Hi Canx.
Good to hear from you. I’ve got the cording under control, spoke to the BC nurse. There’s a Pilates specialist who deals with it when chemo is finished. For now it’s exercise and massage.
2nd round of chemo not nearly as bad as the first! Phew. Xxx
A weekend away sounds blissful! What a treat.
I found the surgery was a relief, I was glad to get it out of my body! Xxx
You’ve inspired me to nudge OH for a weekend away, thank you! Xxx
Well, we went mad yesterday and bought a little Eriba Troll caravan! Picking it up next Friday, just in time to squeeze a weekend away before round 3. Looking forward to it!
Hi Canx
Good luck for Wednesday. Fingers crossed for some good outcomes. Xxx
Canx, how did it go? Xxx
Thankful that your third mass was benign. That really is the best news.
I’ve had round 3, I’m on day 5 so very tired and a bit chesty. Rosie checks going down at last!
My new Picc line lasted just a week and failed yesterday. Won’t flush - not with all the hospital tricks. So I’m in hospital tomorrow for them to work out what to to next. I have spent the last three weeks in and out because of the Picc line! So feeling a bit blue about it not working.
Apart from that, the chemo stuff I seem to have adapted too.
Have you got a date for your surgery yet? Xxx