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Liver and bone mets

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Re: Liver and bone mets

Hi Elaine,

my breast cancer returned in July 2016 in the liver, lungs and extensively in my bones. Today I am living a normal life. I went through chemo and my liver and lungs are now clear. My bones are damaged but getting stronger. Yes I believe we have a chance of living a long life because we can buck the trend. Any question please ask as it’s a very scary place to be. X

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Re: Liver and bone mets

Hi Elaine

I'm so sorry to hear you have been diagnosed with secondary cancer in bones and liver. I know how devastating and terrifying the news is. There are many effective treatments for secondaries and new ones are coming along all the time. None of them will cure your cancer but some will keep you stable for a period of time. You can read about women's stories and their ups and downs here. 

Once you have met you oncologist and decided on a treatment plan you'll have something to focus on and can begin to accept what your new normal life is going to be.

It looks like this thread, the one you have posted on, hasn't been active for 2 years or so. The 'Bone mets - please join in' thread is where many of us chat - have a look there.

Meanwhile sending you lots of hugs while you wait for you appointment. Let us know what your onc says and keep in touch

Bon xx

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Re: Liver and bone mets

Hi. I can't understands the dates here? Is it current ?
Was just diagnosed with secondary cancer bone Mets in front and back ribs, shoulder and hips and liver. Had BC last year and on Tamoxifen. I don't see oncologist until next week. Feeling very scaredx
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Re: Liver and bone mets

Hi, I had BC last year 2016-2017. I had chemo and lumpectomy and radiation. I was on Tamoxifen since may 2017. Yesterday I was diagnosed with bone Mets in ribs, front and back, lower spine,shoulders and hip . It has now gone to my liver. Can people survive with bone and liver Mets? I only see the onco next week. I'm petrified.
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Re: Liver and bone mets

I was put on tamoxifen and less than 12 months it had spread to my lungs and liver now back on chemo
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Re: Liver and bone mets

How do you get your head around it as my mum is getting worse mentally where as we thought with time she would start accepting the whole situation but she is just getting worse, she is usually and always been the rock in our family but she is just crumbling day by day x
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Re: Liver and bone mets

I know what you mean as I found it disappointing that I was only stable, but now I've got my head round it I hope we all stay stable for a very long time.
LD x
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Re: Liver and bone mets

Well done, stable is good but know what you mean, reduction would of been better. Now that you are on tamoxifen how will they monitor you ? Xx
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Re: Liver and bone mets

Hi, my scan results showed stable. I was hoping for some more reduction as docetaxel is such a hard hitting chemo. But happy with stable? Now on tamoxifen and the night sweats are killing me!
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Re: Liver and bone mets

Hi gillg78 just wondering how your scan results were as we are now mid feb and I read your results were due early feb ? Hope everything went ok xx
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Re: Liver and bone mets

Gillg, i had a marked response with letrozole and I've seen people on letrozole for 5 years before progression. We are all so different. Not sure how old you are, but if you are past the menopause you could try letrozole if tamoxifen doesn't work. If you are pre menopausal they will stop your ovaries first.
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Re: Liver and bone mets

Thank you ladies, it's good for me to read what treatments other ladies have tried. My onc has indicated that I will move onto tamoxifen early feb if all my mets stay stable. Slightly worried about this as I have not read many positive stories with secondary ladies and tamoxifen. They will not give me more docetaxel my hospital only give you 6. Worried about coming off chemo! Strange but hormones don't seem to work for many people even though I am strongly er+.
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Re: Liver and bone mets

Hi Gillg78
I'm the same as you unfortunately - double whammy last March. I only tolerated 3 sessions of Docetaxel and have remained on Pertuzumab and Herceptin with Zometa for my bones since then. It is a scary place to be with mets in 3 places from the start and I still take one day at a time. I've started to plan some things in 3 monthly intervals to fit in with onc appts and scans which is a big step forward for me. My biggest shrinkages were with the Docetaxell but since then they've remained stable and I will stay on these drugs until they stop working. I'll find out how successful they are being at the end of Feb so I'm starting to get nervous already. Just wondering what treatment are you having now the chemo has finished. Looking at Sheila's post there's hope for all of us - thank you Sheila.
LD x
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Re: Liver and bone mets

Hi Gillg78,

I was diagnosed in October 2011 with lung mets. Six months later I had bone mets to my spine then in Dec 2013 the liver mets were found. I had Taxotere starting in Jan until April but this didn't work for me although it can work well for others. I was then on hormone treatment for a few months but liver got worse and I started with very high calcium. My liver was a mess and they didn't know what to give me as I was so Ill from the calcium. They started me with vinorelbine but said that if this didn't work they would not know what to do. The calcium wouldn't come down and sometimes I wasn't well enough to have my chemo. Then started on Danusanab inj and this alongalong with chemo seems to have sorted the calcium. Chemo now working on liver mets and liver in much better state. Will stay on this chemo indefinitely.

Lungs have stayed stable since 2011 and I have no symptoms  from these.

I know I have rambled on a bit but I have tried to explain that you can have problems which make you feel terrible but can come out the other side so stay positive Gill.

Hope all goes well for you.

Love Sheila xx

 

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Re: Liver and bone mets

Just noticed this thread being bumped up slightly and thought I would post here.
I'm gill, I have liver, lung and multiple bone mets. I have just finished 6 docetaxel and get my scan results early feb. Extremely worried about the outcome but interested to hear from other liver mets ladies, treatment history and how you are all doing? Live gx
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Re: Liver and bone mets

 
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Re: Liver and bone mets

Hi everyone
I have been reading this thread and can only thank you all for the comfort it has given me.I think I would like to start by giving you my background. I was dx with bc and node involvement in Feb 2013. Had mx and node clearance 4/18 effected. I have had all the scans finishing with MRI which where they found the liver mets albeit small at the moment. I have no symptoms and apart from all the emotions I feel well. My second dx only came yesterday so all is still quite fresh. They plan to start me on chemo hopefully nxt week and a drug they have to get funding for of which I have forgotten its name and finally Herceptin so as long as it works. My emotions range from giving in to wanting to fight this horrible cancer. I have two boys (9 and14) and find it difficult to watch them at the moment in fear I wont be hear to watch them grow into adults. As I have read the posts on this thread I can see that ladies do continue to live and most long term. I love the way everyone just gets on with life, work,holidays and everyday rountines. I have been so tempted to just crawl up in bed and never get up again but I know I cant do that. My husband and two close friends have been told the latest dx but im not sure I can deal with other peoples emotions when I am still dealing with my own. I know there are treatments out there which helps me to believe that this fight can be fought. I suppose I am just still a little bitter that I have gone from someone that is never ill living a healthy life to someone who will now be living at the hospital as I am sure many of you have also felt. I would appreiciate any advice you could give me and as time goes I hope I can do the same.
Angela xxx
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Re: Liver and bone mets

Thanks Sue,
I've already got problems walking, just any distance. The biggest problems are getting out of a chair and picking things up off the ground - why is gravity so severe - shouldn't it really hold things at arms length rather than foot length? The oncologist has already asked me to keep them abreast of these potential problems, but there's so much going on it doesn't hurt to be reminded! I had a similar leg pain down the front of my legs after a brain haemorrage many years ago - it was the femoral nerve, so I called it femorala! Acupuncture helped me then, don't know if you may find it useful
Treatment delayed by a week because the port area was so bruised and swollen (hard to find the port!). Never mind, I'll soon be feeling much better and it's nice to have a week without medics messing with me!
Purple hair with pink highlights is seriously cool though! lololol

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Re: Liver and bone mets

Sue, sorry to hear you are having to join us. I hope the bone-strengtheners help with your pain. Do keep an eye out for any numbness, tingling, nerve pains in your arms and legs (and any problems with walking). It can be a sign of spinal cord compression. If caught quickly enough, the drs can do something to prevent permanent damage.
I had surgery in November that basically replaced one vertebra with 2 titanium rods and stopped my compression. It has saved me from becoming paralysed and took away my nerve pain (like sciatica but down the fronts of both legs).
I hope the painkillers continue to work, the bone strengtheners take away even more of the pain and that the other drugs aren't too harsh.
Sue

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Re: Liver and bone mets

Hi again,
Got results of various tests. I have secondaries in bones - in a nutshell, everywhere from skull down, apart from lower arms and hands and lower legs and feet. I have secondaries in liver. One tumour 4.2x4cm and another 5x3.1cm and multiple other ones. Today I had a liver biopsy. Tomorrow I am having a power port fitted and I get my first bone strengthening drugs via that next Tuesday. I have LOADS of drugs - a carrier bag full, from morphine tablets to laxatives! I have been in a great deal of pain for the last month or so, and actually feel better now I am using painkillers properly (use them even when NOT in pain), although I am very tired. Next Wednesday I am having my hair cut short and spiky and dyed bright purple (like the bcc purple!). As I'm going to lose it again, I'm going to have some fun first!
Nicky, hope you enjoyed your time away from medical scrutiny and I hope it lasts a long long time for you xx

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Re: Liver and bone mets

Hi Furryboots, and welcome to the place none of us want to be! I was dx with bone mets 5 years ago and initially had chemo, FEC, and then hormone treatment along with bone strengthers. Since Feb this year I have been dx with further bone spread and now liver mets 😞 and am currently on Capecitabine, oral, chemo and the new bone strengthening drug Denosumab. This thread can be a bit quiet, so I've found, but the Bone Mers thread is a bit more active and there are ladies in there with liver mets as well so the advice and support is very useful. You'll find some threads more active than others and you can keep an eye on where's best to post by looking at the Latest Posts page. Good luck with your ongoing treatment and getting the bone strengtheners. Although I initially had mets in the spine and hip I had no pain whatsoever, other than a twinge in my hip prior to dx, however my spine is now more badly affected and the bone strengtheners have definitely helped.
Nicky x

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Re: Liver and bone mets

Hi all, I thought I'd add myself to the liver and bone mets club too. I was dx with BC in Dec and liver and bone mets a couple of months later. I'm on EC chemo and due to start bone strenghtener drugs next week - God only know why my onc has waited so long to give me the drugs, I've got a broken rib and 6 discs in my spine affected. I'm not in much pain suprisingly and coping really well emotionally. Work help a lot, plus my wonderful OH, family and frineds. Love to all xx
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Re: Liver and bone mets

Hi Sue
Hope all the tests go smoothly so you get a treatment plan in place ASAP. I have my first week off in months from hospital visits for tests, scans, appointments so enjoying the freedom LOL. All this since liver mets found and Ive barely being there over the last 5 years since original secondary dx so all a bit too medical for my liking! Enjoy Amsterdam, OH and I went a few weeks back and really enjoyed ourselves but it was still bloomin' cold, hopefully when you go all the flowers will be out and it will be much warmer. Something to look forward to.
Nicky x

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Re: Liver and bone mets

Hi Nicky,
My CT scan was looking for something else and just happened to catch the liver, so I am to have another scan targetting that area and a bone scan too. Once we have that information I may have a liver biopsy (if accessible) and then we will be discussing treatment plans. Nothing apart from tests happening in a hurry so I can go off to Amsterdam with Curtainqueen, Whitedragon and AJ as planned at the beginning of May (our 5 year all clear celebration!) - good friends I have made through this website. Every cloud has a silver lining - if I hadn't had cancer I wouldn't have had these wonderful people in my life!
Will keep you in the loop
Sue x

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Re: Liver and bone mets

Hi Sue
My CT scan showed it was liver mets, presumably as there had been nothing there before on previous scans and that they must have showed as mets rather than cysts. Can't help whether an ultrasound will be more accurate. Good luck for tomorrow, let us know how you get on.
Nicky x

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Re: Liver and bone mets

Hi Ladies.
I'm reeling. I got the 5 year all clear on 2nd April, even though my body felt old, achy and stiff. The consultant said on tamoxifen I am bound to feel 10 years older - I didn't mention I felt older than my MOTHER! He also looked at my records and said "oh yes, you had a bone scan last year, all clear". That was it in relation to my symptoms.
On Friday I had a CT scan for another reason, and whilst I didn't have a blood clot, they found multiple bone mets in my ribs and spine and "possible liver metastases" - as well as a suspicious area of soft tissue in my left breast (obviously missed by the mammographer earlier this month!).
It sounds as though I have both bone and liver mets. I have been reading the posts here, and they have helped me put together my list of questions for the oncologist on Monday. Stupid question for the day though - how do they establish if you do have liver mets? Will an ultrasound scan be enough?
It's great to see that I can probably rely on being around after the Independence referendum in September 2014 - which was as far as I was allowing myself to be determined to be around! Of course, in that time I will also see my son graduate from uni this June and my daughter graduate June 2014.
All the best to all of you, Sue x

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Re: Liver and bone mets

Thanks Pam I will certainly try flexitol. Its great to hear you've had a year of stability long may it last! I have had lots of melt downs this weekend my poor husband gets it all 'cos i don't want to worry the 'kids'. But onwards and upwards drinking my 3rd JD's ( my measures) maybe double that haha. take care x
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Re: Liver and bone mets

Lanii ive also suffered with my feet first and laterly hands on capecitabine. at the moment I have one healing broken area on right ring finger in one of the joints but also most of te other skin creases are sore. I am using flexitol heel balm on hands and feet. This doesnt feel anything as nice as udderley cream but I do think it is more effective. At night I wrap my feet in clingfilm to keep the moisterizer in and wear disposible plastic gloves on my hands. Although I still have some probs I think they would be worse without the above actions.
Im really sorry to hear your other news....hopefully the capecitabine and latabinab will keep things under control. .....Ive had some sucess. ...celebrating a year of stability on cap next week. Pamx

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Re: Liver and bone mets

Hi everyone I havejus finished my first dose of cap and lapatinib and went to see onc on Friday had terrible SE but all l;ivable with except the pain in my fingers. They bleed and blister have used my udderley I often confuse it with utterley, but to no avail. So I have had a few days break before they start it again with 10% reduction. However I Asked doc. what were the results of a bone scan and ct scan I had at xmas as I was supposed to start trial drug but was refused at last minute because of heart function. I was told I had 29% heart function, two mets in my liver five bone mets lung and stomach mets were slightly worse. All in all he conceeded it wasn't very good. I sat there shell shocked by the L. word grinning like an idiot and saying oh but you can survive with liver mets nowadays. I have had an awful weekend but now reading some of your posts I think I'm back on the planet and there is still hope. thank you ladies Keep well. And thanks Nina for telling me to read this thread x
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Re: Liver and bone mets

Hi Liz
Yes, what a bummer! I will be sorting out my cream ASAP and I start next Friday. Fingers crossed for us both, and anyone else dealing with new treatment regimes. Lets hope we don't have too many SEs!
nicky x

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Re: Liver and bone mets

Hi Nicky
Know just how you are feeling as I received the same rubbish news Nov 2011. Had 6 docetaxol which really blasted the little blighters but, for some reason, one has grown back again even though the others have all remained stable. So I am starting cape next Tuesday. We'll be able to compare notes and side effects! Have read the cape forum and prepared myself with gloves and cream already. OH has even offered to do the foot massage!
Wishing you all the best and , fingers crossed, let's hope that this treatment becomes a stable' medicine For both of us. Good luck.
Liz x

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Re: Liver and bone mets

Thank you Lucinda and Mrs Blue. I had seen that you had recently received the same cr@p news that I have L, and that Mrs B has been doing well for the past few years, so there's hope yet! My onc mentioned the hormone treatment, I'm assuming with the non funded drug, but he's decided to go the Xeloda route first as well as the non funded new bone drug. Sorry, I'm not up to scratch on the new names, I soon will be though! So it all kicks off next Friday, fingers crossed I tolerate the dose of Xeloda well, and it starts kicking those little uggers back to where they should be! Good luck to all secondary ladies.
Nicky xx

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Re: Liver and bone mets

Sorry to hear your news Nicky.... I know how I felt when my liver mets were found on a CT scan, in 2009 - devastated, having previously hoped that I was in the 15% who "only" get bone mets (statistic is probably out of date)
Hoping you and Lucinda do really well on your treatments. With me it took several attempts to find a good treatment, but now I'm doing well more than 3 years later, mainly thanks to capecitabine and good monitoring.
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Re: Liver and bone mets

Nicky so sorry about your results, the same happened to me a few days before Christmas.I had been on letrozole for 2 years and then my scan results showed progression to mets in spine and hips and now mets in liver.It felt like I had been hit by sledge hammer.Pleased you have your treatment plan organised, I had to wait 4 weeks for funding and that made it even worse.Have been on exestamane/everolimus for 4 weeks and so hoping it is working.
hope everthing goes well with treatment.I have to go to hospital Monday to collect my next script ,hopefully,providing bloods ok.
L xx

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Re: Liver and bone mets

Hi ladies
I know some of you from the Bone mets thread but, after yesterday's scan results, I now have to join you on the Liver and bone mets thread 😞
I will read back over the thread to get some idea of your experiences but I am to start Xeloda (Cap) next week after the A I's I have been on since 2008 stopped working. I will also be reading up on that and probably asking a few other questions along the way.
Nicky x

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Re: Liver and bone mets

bumping up for andier,newly dx.

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Re: Liver and bone mets

Hi AbidAhmed,

Welcome to the BCC discussion forums where I am sure you will get lots of good, honest support from the many informed users of this site.

I have put for you below links to some of BCC's publications you might find helpful to read.

http://www2.breastcancercare.org.uk/publications/secondary-breast-cancer/secondary-breast-cancer-bcc...

http://www2.breastcancercare.org.uk/publications/secondary-breast-cancer/secondary-breast-cancer-bon...

http://www2.breastcancercare.org.uk/publications/secondary-breast-cancer/secondary-breast-cancer-liv...

Also, I don't know if this will help you or not, but we do have some of our publications in other languages including: Urdu, Punjabi, Hindi and Gujarati. If you follow the links from the 'Information' tab at the top of this page to 'publications' this will bring you to the library of all BCC's publications.

I hope this helps. Take care,

Jo, Facilitator

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Re: Liver and bone mets

Dear Forum Member,
I am here for my mom, she was diagonized with metassis in bone and liver 2 years after her breast cancer treatment. She is 70 and I am in India. The doctor who had treated her gave up ( You can understand life is less important in India - specially when they see a old person). I did not give up and went to other care center. I have since had radiation and 3 Chemo for her. Stopped 4th one as she was too weak. Asking doctor to restart after she recover. So doctor put her on 3 week meds My problem is she is too weak and she is not able to digest food. And has been vomitting a lot. So got her endoscopy of stomach and changed her meds. She is bit reliefed for now for 2 days.

Any advice from you all will be welcome. i want to do whatever I can for my mom.
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Re: Liver and bone mets

Hi Lucinda
I think that Letrozole (and Tamoxifen for that matter) never worked for me. The previous CT scan was before I started Letrozole and my liver has progressed from then. I am not too sure about my bones, as my onc seems to only tell me about them one vertebra at a time.
My onc did say he could apply for funding for me for the everolimus, but I don't qualify for the study into who it works best on, where the drugs are paid for by the drug company (I think to help them get wider NICE funding). But, he reckoned the application would take upto 3 weeks to be processed and he didn't want to wait that long to start more treatment. I guess we can keep that up our sleeves for when/if the Cap stops working for me.
Mind you, if the Everolimus has pretty much the same side effects as Cap (give or take hand and foot syndrome), maybe it isn't quite the wonder-drug I was hoping for and I will be just as well off on Cap.
My BCN was going off on Friday to fill in some DLA forms for me (with the fast-track, 6-months form too), so I should get that through soon. I think I have some insurance covering long-term sickness, but I need to look out the paper-work, which involves my husband dragging a large box of filing out of the conservatory (rather than just talking about it). It is almost as much not wanting to sit around doing very little. My mind can still work well, so working from home isn't too tricky - I just keep turning up late.
I hope the sort out what your hip problem is soon. I have crutches to help me on longer walks (half-way roudn Asda and other marathons), but haven't had to use them int he house recently. Do you have any? If not, they can make things easier. Are you on Oramorph or a slow-release version. I find oramorph sends me to sleep for a couple of hours but the slow-release stuff doesn't have so much of an effect (on my sleep).
Sue

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Re: Liver and bone mets

Dear Sue
I know what a shock it is to get an unexpected dx.I went for my ct scan results a few days before Christmas.I knew something was wrong when registrar asked me who my pct was.Turned out I had quite a lot of progression in the bones and like you spread to liver.Letrozole had stopped working and so changed to exestaane and funding applied for everolimus.I got my funding through and started the combo 3 weeks ago.Usual se's with a chemo drug..nausea,fatigue,mouth ulcers,spots and rashes.I am sure I read on the bone thread you did nor qualify for this tratment,really sorry about that and I am sure the criteria may change when Nice approves it.It does seem that lots of people have good results on Cap so i am sure you will too.
My main problem is I cannot put any weight on my right leg.Had an x-ray and fracture has been ruled out.Will be phoning hospital Monday morning to report no change and see where we go from here.Was happy to have a couple of duvet days but now really fed up as it has been a week and even getting to the loo is a struggle.Gp gave me morphine but all that does is make me sleepy.He suggested increasing the dose to help with the pain but I want to walk not sleep.

Hope the cap does it's job and you can make a decision about working which suits you.Have you applied for DLA as that at least helps with finances.

L xx

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Re: Liver and bone mets

Hello ladies
Can I join you? I was dx with bone mets back in late October and, unbeknownst to me, my CT scan in November picked up a shadow on my liver. I didn't get to hear of it at the time, as there was a bit of a panic going on as I had a vertebra compressing my spinal cord. Last week I had another CT and at my follow-up (suddenly arranged for this week), I was told that the shadow on my liver seems to have grown (although my bones are pretty much stable).tinue The news about my lover was a blow, as I was half-expecting progression in my bones, but had no clue that my liver had anything wrong with it. I start on capecitabine tomorrow, so hopefully that will work where the Letrozole didn't.
It is good to read that there are some long-standing members of this board. Having another secondary dx is quite a blow, but knowing that ladies do continue to enjoy life. I just need to decide whether to stop work completely or just convince my boss that the only way I can continue working at all is to reduce my hours further. I guess I'll see how the Cap goes.
Sue

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Re: Liver and bone mets

Hi to you all on this thread. Just popping in to say that I've now lived with liver mets for longer than my "bone mets only" time - I didn't expect to be as well as I am after 3-and-a-half years with them.
For me, tumour markers have been a good indication of what is going on, though apparently my CT scans are difficult to interpret because the mets are "diffuse" ... still it is amazing how, with an effective treatment (mine has been capecitabine) the liver can recover. And, of course, scary when the blood results show a blip or when it's scan time.
Best wishes to all, and hoping you can get good treatment / monitoring / support in the coming year.
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Re: Liver and bone mets

That's wonderful news WeePixie. The DLA award certainly does help to ease us financially at a time when money should be the least our our worries. Well done on achieving the 's' word as well - you certainly are swimming well.
Unfortunately, I am stuck doing doggy paddle as my scan has shown progression. Liver met has grown, 2 mets in neck and 2 mets in chest, one of which is pressing on my windpipe, apparently. So I am now joining the capecitabine crowd but not until 12 Feb as we have a holiday booked from Sunday and I want to keep well for that. Bit apprehensive about SE's but if it gets rid of the little blighters then all well and good.
At least the sun is shining today. Love to other liver ladies.
Liz x

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Re: Liver and bone mets

I said I'd report back, sorry it's taken me a while. We've been away on holiday where I caught flu then came home to a chest infection which caused a flare up of my asthma, messed with my blood counts and landed me in hospital but . . . . . . . .
I got the DLA award high rate for 3 years. The letter was waiting for me when I got home.
Thanks to all for help and encouragement with this. It will make a huge difference to us and take some of the pressure off financially when we need it most.
Even better my oncologist used the 's' word today I'm joining the stable people and continuing on Herceptin and Zometa every 3 weeks hopefully for a good long time. 2013 is looking better than 2012 already.
Much love to those with less good news, just keep swimming x
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Re: Liver and bone mets

Hi DG541xw

Welcome to the BCC discussion forums where I am sure you will get lots of good, honest support from the many informed users of this site.

While you are waiting for replies and to help you along I have put for you below links to some of our publications you might find helpful, also you might find our secondary live chat which runs each Tuesday evening between 8.30 and 9.30pm good support, just follow the links for 'live chat'.

http://www2.breastcancercare.org.uk/publications/about-breast-cancer-care/support-people-living-seco...

http://www2.breastcancercare.org.uk/publications/secondary-breast-cancer/secondary-resource-pack-bcc...

I hope this helps. Take care,

Jo, Facilitator

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Re: Liver and bone mets

Hi. I was diagnosed with mets in bones, liver, lung and various lymph nodes in July 2012. We tried hormone therapy (zoladex and letrozole) until Sept 2012 but a CT scan showed further growth and just hot add a bit more a blood clot in the internal jugular vein. In October 2012 I commenced weekly taxol (12 week course) and was scanned after 7. This scan showed that some of the tumours were shrinking and that the bone mets were less obvious so I carried on. Monday just gone was number 12 but my onc has advised that he would like to give me 6 more taxol but fortnightly instead to give my blood a chance to recover. I have found taxol very bearable, I also have 4 weekly zolodronic acid infusions, daily ad-cal d3 and daily heparin.
My worst bone pain is in my right arm and shoulder, this lessened with radiotherapy in September but has returned again, grrrrr. I am still working 2 days per week (reduced hrs) whilst having chemo to keep my brain active but as a secondary school teacher is not easy!!!!
Does any body else have mets in all of these places? I am 34 years old and my son is only 4 - again a big struggle but I fight for his sake. I was told I can't ride my horses any more and from July to November I didn't. I now ride again but only gently as it helps me feel like me and let's me do what I love.
sorry for the essay!!!!
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Re: Liver and bone mets

Lucinda- Hope you get the funding for afinitor as it's supposed to work really well alongside exemestane. Fingers crossed for you.
Well,I am now booked in for ct scan 15 Jan as I chickened out of having my liver biopsy. I am still visiting the nurse for an open wound on my chest from my portacath infection and its removal which was extremely painful, due to the local not being effective, even though I kept telling them I was in pain. Needless to say, the whole experience has made me very apprehensive of having another procedure with a local. Fortunately, my onc understands my worries and has decided on a scan instead to check progression, then it will be decision time as to what chemo I will try this time. Hopefully, it will be Xeloda as that seems to be a 'nicer' chemo than the others from reading the forums.
Hope everyone else is coping ok with their treatments and hope that 2013 becomes the year of stability for us all (wouldn't that be great?)
Liz x

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Re: Liver and bone mets

Dear Lucinda, I am so sorry to read this news about your liver mets. Just to say I am thinking about you and am sure they will be able to help you with treatment that kilss the uggers. Hugs Val
Hi Lolly, I have been on Xeloda lots of times and it is a marvellous drug. It has kept me going for years and I hope that it works just as effectivly for you. Val

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Re: Liver and bone mets

ladies please can I (very reluctantly) join you.I was dx with bone mets may 2009 and have been going along quite nicely since then on letrozole.Originally had chemo and rads because I had a lymphatic mass but no primary and earlier this year managed to persuade them to remove my lymph nodes.Recent scans had shown everything stable and went for my latest ct results 18 th Dec.Onc tells me bone mets are stable BUT slight problems as it seems letrozole not working any more and signs of mets in the liver.I was totally floored, I did feel there was progression in the bone mets as I have been having more pain but other than that feeling well generally.So new treatment plan,chemo being held in reserve and switched to exemestane and hopefully afinitor(they have had to apply for funding for that).Just could not tell the family so just hoping for funding for the afinitor and will then explain it all to them.have a bone scan monday so they have a baseline to refer to when starting the new treatment.My DIL expecting first grandchild so will be gutted if it arrives Monday/Tuesday as I will not be able to go near her or the baby!
Happy new year to you all and praying for successful treatments for you all.

L xx

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Re: Liver and bone mets

Thanks Ladies it's been confirmed that the tumours in my liver have become active again, and also some new ones (all in 8 weeks).. So, starting more chemo (Xeloda) next week! Have read posts from some of you who are also having this treatment. Feeling positive now after a few hours of it sinking in.. I'll fight this again for the sake of my two babies. Love to you all xxx