I'm in a v similar position (no surgery), as I went for screening on 11-2-15, then called for further investigation on 12-3-15 and had biopsy and armpit cells taken. On 18-3-15, I was diagnosed with invasive lobular ER positive 6/8. I was told that I would need CT, MRI and Bone Scan. Whilst awaiting the results, I went for my first oncology appt. and was told that I would receive EC chemotheraoy and Letrazole, as my kind of ILC is a rare and agressive form (Pleomorphic). I returned a week later on 15-4-15, to be informed that I had a few lesions on my liver (I think the biggest is 2cm). I was told that I would not be receiving chemotherapy but started on Letrozole the same day. On Wednesday, I will be having a Bone Density test. I have blood taken and after my last test, I was given tumor marker figures and no real indication of what they meant. I had my face all set for chemotherapy and almost feel cheated, as I wanted the opportunity to shrink the bastards fast and I understand that AIs like Letrozole work well but very slowly. I do feel better since I started 'taking the tablets' - the period when I was left waiting for treatment was the worst! I detested the thought that nothing was happening and things must be getting worse!
I know exactly how you feel, as I have a wonderful 15 yr old daughter just coming up to her GCSEs. She needs her Mum and I'm not intending on going anywhere soon! Good luck with your treatment and let us know how you get on. Best, Julia
Also with regards to work you should be eligible for PIP and ESA. There is definitely a PIP thread on here somewhere which I found really useful xxx
Hi, bit late to the party but thought I'd welcome you and add my experience. Diagnosed with primary in May 2014. Opted for MX rather than chemo first Day after surgery was sent for liver biopsy as 'something' had shown up on a scan. Week after MX was told I had secondary on my liver. Had to wait at least 6 weeks before starting chemo while everything recovered with constant worry that my liver would be getting worse. Really wish it had been confirmed before surgery. I know its really hard to get your head around a double whammy diagnosis but I know I felt so much better once chemo started. Hopefully you have a clear treatment plan underway now. Ellie xxx
Hi, so sorry to hear your news, you've had some good replies already. May I add another...... bc dx 2006 after routine mammo, multiple liver mets found 2009. Never had surgery, I still have breast primary. Am ER+PR+ but herceptin negative. Herceptin is an amazing drug but I just wanted to say to anyone reading this who is HER negative, it is possible to survive for more than 5 years with liver mets. I've had 4 chemos and various hormonals, good quality of life until about a year ago.
Can I ask you SmartiePants, have you been working while having chemo? I am pretty sure I will lose my (second) job, as I'm on 6 month contract and it's physical (post women). My other job is driving tuition, but I'm struggling to hang on to my handful of students who can't wait for my good days.....understandable. more worry 😞
hi, I too am bc with liver mets and was diagnosed in Dec 2014. What a shocker.....but slowly I'm dealing with it. Remain positive and live each day to the full. I'm 43 and have no intention of giving up! I'm on my 13th session of chemo tomorrow and my last breast scan on Tuesday showed my tumour had gone from 2cm to begin with to less than 2mm now. And the last liver scan showed my 3 lesions had reduced to just 1 small one. For me it's the fact it will always be there that I'm struggling with. I want to finish my chemo and be able to say, yes! That's it. I'm free of it. But I know that wont happen and I struggle with that. But I draw inspiration from these ladies on here. X
OMG, you women are amazing!!! Thank you ALL so much for you kind wishes and very relevant info. I really didn't get any confidence from the surgical consultant, but the posts on here helped me talk confidently to my son. I shall be back on here often and hope I can be as generous to someone else xxx
You are Her2 positive so will be able to take advantage of the current treatments which are very successful. Herceptin is your first point of call and if in England Perjeta. Not sure of clinical name of this. I have met suffers who are ten plus years down the line with liver mets at diagnosis. Take care and keep your spirits up. Yes it is serious it obvously is you have breast cancer but treatable at this stage. Anne
Hello everyone, this Forum is such a huge help, and fills in loads of gaps. I was told today by the surgical consultant, 5 weeks after finding lump at mammogram, and assorted scans, that I have secondary breast cancer in my liver. The consultant stated that there was no point in surgery to remove the lump (and nodes) due to this diagnosis, as I need to start chemo instead to treat the liver. As per usual (after 3 visits with him), I came away feeling very calm, but unsure whether I will be around for 6 months, a year, 5 years....and when I asked for a prognosis he refused to comment, other than to say it was serious. Thank god for the BCN, who was much more accommodating with information. And again, bless everyone on here for posting such positive messages and information...I just need to explain it all to my 19yr old son now.
Has anyone else gone straight to jail without collecting £200? BCN did confirm (after I mentioned seeing something written on this site) that surgery may occur further down the line, depending on how I get on with chemo/herceptin (I am HER+ as well).