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Liver mets - new thread

Gillg78
Member

Re: Liver mets - new thread

Hilsy, Just a note to say I'm thinking of you always. I hope you are pain free and enjoying some time with your family. Big hugs xx
Brave-beatch
Member

Re: Liver mets - new thread

Hi Liz, my dose was quite weak as they felt my liver wouldn't cope with a strong one. Don't really think I have any tips unless advise you to rest as much as possible and to keep up a positive attitude. Am amazed at the positivity of all the people on here. I also have a twisted sense of humour which I think helps me x x
Gillg78
Member

Re: Liver mets - new thread

I am on dose 4 of 6 of docetaxel. I was wondering what my next treatment option would be. I hadn't considered that they would continue with more rounds if my tumours were responding. Sorry I can't be of help but thank you for your Info I will ask my onc about options for continuing on docetaxel for a couple more rounds if it working....
lizH
Member

Re: Liver mets - new thread

Hi brave,

I am just starting out on taxol, 3rd on Friday . I am way behind you. Had really low bloods on 2nd so going down 20% on dose. Feeling really tired on it. Well done for getting through it, any tips greatly welcome!

All the best for consultant

Liz x

Brave-beatch
Member

Re: Liver mets - new thread

I was diagnosed with secondary Breast cancer in liver, lungs, lymph nodes and Breast in April. I was put right onto Paclitaxel chemo for 18 weeks, because the tumours responded this was extended to 27 weeks of chemo. Has anyone else had this amount of this drug! Going for scan next week and visit to the consultant on 23rd to discuss next plan. Just wondering if there is any one who has had similar amount of chemo and what their treatment was after it x x
Brave-beatch
Member

Re: Liver mets - new thread

Sending prayers and my thoughts to Hilsy.
Desi-2
Member

Re: Liver mets - new thread

Hilsy just want to add more love and peace to you hope you can have a memorable Christmas with your son.xxxxxx
Bevlaar
Member

Re: Liver mets - new thread

Hilsy...i cant think.of any words to make things better for you except i am thinking of you and praying for you and hope that you have a lovely peaceful time with your son at xmas. I just want to cry....none of us want to be here and i really feel for you. I wish i had a magic wand my lovely. Stay strong and cherish this time with your little one. Lots of love to you...bev xxxx
bertie1
Member

Re: Liver mets - new thread

Hilsy I wish you a peaceful xmas with all your family around you,and hope they're giving you pain relief to keep you comfortable.
Huge hugs to you and your family
Kaye xxx
Porkie
Member

Re: Liver mets - new thread

Hilsy I wish you a peaceful Christmas with all those who love you so much around you. Much love xx

helen44
Member

Re: Liver mets - new thread

Sending you big hugs and lots of strength Hilsy. I hope you have a peaceful Christmas with your family, love Helen xx
2catlady
Member

Re: Liver mets - new thread

Hilsy,sending you and your family all my love. Massive hugs,Helen xxxxxx
LemonDrizzle
Member

Re: Liver mets - new thread

Hilsy, sending love to you and your family at this emotional time.
LD x
Macie40
Member

Re: Liver mets - new thread

Dear Hilsy Sending lots of love and praying that you and your son can be together for Christmas x x x x

EJ81
Member

Re: Liver mets - new thread

Sending you lots of love Hilsy. I hope they can make you comfortable for Christmas xxx
lizH
Member

Re: Liver mets - new thread

Sending love and peace x

belinda
Member

Re: Liver mets - new thread

That's so true Gill. X
Gillg78
Member

Re: Liver mets - new thread

And please if you need to continue to post. We are all here for you through the good news and not so good news. Xxxx
Gillg78
Member

Re: Liver mets - new thread

Hilsy, thank you for replying. I wish you a beautiful Xmas with your son and family. I am sorry so sorry to hear of your news, I know your liver mets have been causing you felling of unwell for some time. I hope you are comfortable and have pain relief under control. Lots of love and cyber hugs. Gillxxx
Tinkerbelle
Member

Re: Liver mets - new thread

Hilsy - love to you and your family x

geordiex
Member

Re: Liver mets - new thread

has kadcyla not been mentioned for your lungs and Liver ? xx

belinda
Member

Re: Liver mets - new thread

Dear Hilsy, I wish you a comfortable, peaceful Christmas with those you love and hold so dear. Much Love. X
pam01
Member

Re: Liver mets - new thread

thinking of yoy hilsy and sending much love to you and your familyxx

Hilsy
Member

Re: Liver mets - new thread

Hi all im still here just not too well sorry. Basically im being left with no treatment now ciz my brain runour returned just weeks after surgery and radiotherapy so im not eligible for anything there firstly because of that AND coz I have nets on my lungs and liver. The two brain barrier crossing chemos aren't working on my liver Mets which are growing quick so basically I'm riddled and things are just growing out of control and there's nothing more they can do. I've developed cushings as I've been on steroids for 6 months and brain tunour is causing me to be off balance clumsy and extremenly tired and I do have now only months or weeks to live but I'm determined to make it through Xmas and longer even if I feel like **bleep** I want to be here for my family and seven year old son especially. I wish you all lots of love and luck and thank you so much for your thoughts xxx
2catlady
Member

Re: Liver mets - new thread

Hilsy,we are all thinking about you.
Huge hugs,Helen xxxxx
Bevlaar
Member

Re: Liver mets - new thread

Yes hilsy..been worried about you too. Hope youre ok. Any new developments? Please post if you can love. Lots of hugs and cyber love for you xxxxxx (((( ))))
lizH
Member

Re: Liver mets - new thread

I am also thinking about you

Xx

Gillg78
Member

Re: Liver mets - new thread

Hilsy? I hope you are ok. Just a note to say I am thinking about you and if you are still reading the forum please don't stop posting. Everyone is here for you. Xxxx
fergal_jay
Member

Re: Liver mets - new thread

Thanks lemon, I hope it works for years and years and years
LemonDrizzle
Member

Re: Liver mets - new thread

Fergal, I am and had Docetaxel (chemo), Herceptin and pertuzumab (targeted therapies) and continue with the last 2 until they stop working. There are treatments for HER positive people which are effective even though it is a scary dx.
LD x
EJ81
Member

Re: Liver mets - new thread

Mowser you're definitely not alone. I find lying awake at night the worst as its hard to stop your mind going to dark places. If I can't sleep I tend to give in and read or wastch telly with a cuppa so I have a distraction.
LD I'm finding this time of year hard too - can't help wondering how many more - and how on earth my husband I'll get all the Christmas shopping done without me!!! I have a scan on Monday to see if the new chemo is working, which probably isn't helping my mood right now. I'm keeping my fingers crossed for some good news as an early Christmas present!
Love to you all xxx
fergal_jay
Member

Re: Liver mets - new thread

Anyone her2+
LemonDrizzle
Member

Re: Liver mets - new thread

Mowser, hope you don't read this for a few hours if it means you've managed to get some much needed sleep. I agree that the nights can be a challenge when your mind goes into overdrive and there doesn't seem much we can do to stop it. It's horrible lying in bed sobbing thinking about what the future might bring whilst trying not to wake hubby because he'll be upset too. Hopefully we'll not have too many of them but I'm finding this time of year is unsettling me more than I thought it would.
Glad you enjoyed the concert and hope you find today's conference useful- you'll have to let us know if there's anything worth sharing.
LD x
Mowser
Member

Re: Liver mets - new thread

Thanks Liz, just back from the concert -he was amazing. Really lifted my spirits. Taking a sleeping tablet tonight (not taking any chances!) so hopefully will now get a good nights sleep!

 

Night night , Mowser xxx

lizH
Member

Re: Liver mets - new thread

Hi mower,

I have those 'nights and know how you feel. Your mind really feels like it is against you and your fighting with your self. At night it feels all consuming . My hubby is brill too but sometimes I can see the fear in his fave when I am poorly and that just breaks my heart.
Hope Archie is ok, I have an Alfie , 4 year old poodle cross. He is our life and he keeps us sane !
You enjoy the concert, wish I was going , love his music.
Take care and I hope you get a better nights sleep.
Big hug
Liz xx

Mowser
Member

Re: Liver mets - new thread

Hi everyone,

 

Had one of those nights last night. Couldnt sleep, my mind started going to dark places (the hallucinations from the Amitriptiline dont help) and I felt very upset and alone.

 

ust finishing my 11th round of Cape and I am exhausted, I have two infected big toes, (side effects of Cape) plus too many long dog walks and long hot baths-but these are the things that make me feel better!!

 

I have pain in my lower abdomen today and my back, and last night started thinking I could hear a crackle in my lungs. Not seeing my oncologist for another two and a half weeks. MRI spine scan next Friday.  Sometimes I find I cope really well, and then other others I take a dip.  Please reassure me you all have nights or days like these!!

 

Feeling much better now its daytime, and have managed to re-group!!

 

This is so hard for our partners, who have to tread so carefully between offering support and advice, or just staying silent and being there. I didnt envy mine last night! Bless him.

 

Archie boy (my dog) is much better now so Pete will be taking him for a nice long walk today- I am resting my feet, maybe do a bit of online Xmas shopping! We out to see Peter Gabriel tonight at Wembley-am really looking forward to it-what a treat!

 

Is anyone else going to the living with Secondary Breast Cancer conference in Oxford on Thursday? If so, I hope to see you there!

 

Lots of love and virtual hugs to you all, have a great weekend, onwards and upwards!

 

Mowser xxx

kittycat40
Member

Re: Liver mets - new thread

Hi Hilsy I was dx in July this year with liver mets (bone mets 2012, pleural effusion April 2014). Really sorry to read that you are not well. Have you heard about SIRT treatment for liver mets? I think it's becoming available on NHS acc to NHS England website. You would need to be referred to a hospital that does it. Your Onc might not be forthcoming about this treatment (mine wasn't!) I think anything is worth a try. Keep fighting and I wish you all the very best xx

fergal_jay
Member

Re: Liver mets - new thread

Thanks gill, fingers crossed for effective chemo then. Scary time.
Gillg78
Member

Re: Liver mets - new threadt

It sounds like your mum is on the standard treatment. I have had 4 out of 6 docetaxel chemo. I get it every 21 days. The side effects to date have been okay but def getting a build up now. They will prob scan after 3 cycles of chemo to see what the effect is. I have liver, lung and bone. After 3 cycles my liver tumours have shrunk and everything else seems Stable. They will continue your mums chemo unless it spreads then I would imagine they will try another chemo drug. The first part is the hardest but once you have a treatment plan in place things will settle down. Xx take care
Daisy1975
Member

Re: Liver mets - new thread

Sounds similar to what oncologist told me when I asked what happened if they discover it's spread on CT.
fergal_jay
Member

Re: Liver mets - new thread

My mum has only been told she will have chemo once every 3 weeks and after the 3rd one another ct scan to see how everything is responding and then if working another 3
Daisy1975
Member

Re: Liver mets - new thread

Sorry - it's the chemo they often give if chemo is given before surgery. The FEC stands for three drugs and the T for another one. They give the FEC cocktail every 3 weeks for 3 sessions and then 3 sessions of the T every 3 weeks - so 18 in total. I believe my mum starts with that regardless of CT results. You may not have been told yet with you not seeing oncologist.
fergal_jay
Member

Re: Liver mets - new thread

I don't understand what is FEC -T please
Daisy1975
Member

Re: Liver mets - new thread

Is your mum having FEC-T Fergal? Or do they changed it based on mets? My mum doesn't have her CT results scan yet but chemo begins tomorrow. Her oncologist appt was on 17th November so that's 14 days. However this is because the BCN told me that they have to deliver chemo within 25 days of giving her diagnosis to meet their turn around times. She'll be receiving it a week earlier than the last day they could give her it to meet that. Hope that helps.
2catlady
Member

Re: Liver mets - new thread

Hi,fergal,I was told it can take up to six weeks to get chemo appointment when I changed hospitals.
It will be soon so try to reassure you mum it's normal.
Huge hugs ,Helen xxxx
Desi-2
Member

Re: Liver mets - new thread

Don't think this is that unusual to be honest it can depend on waiting around for other info or sometimes just clinic timetable. Hope it's soon for her tho it's an anxious time xxx
fergal_jay
Member

Re: Liver mets - new thread

Morning all, mums first oncologist appointmemtbafter diagnosis is Tuesday, she's hoping she will be on chemo asap after that appointment. Anyone remember how long it took to get their chemo.appointment after oncologist one. She's feeling like it's taking forever to get started with chemo although all testing and results have 4 weeks so far
Daisy1975
Member

Re: Liver mets - new thread

 
nicky08
Community Champion

Re: Liver mets - new thread

Hi geordie, that's good to know and other chemos can get past the blood brain barrier if rads have been given so that makes sense. Just hope hilsy is able to get some support and further treatment from her team or another team. Love to all.
Nicky x

geordiex
Member

Re: Liver mets - new thread

and also for liver lungs etc because good control in body helps in the treatment of brain mets xx