Just wanted to give you this link to our web page on Travel and Insurance http://www.breastcancercare.org.uk/breast-cancer-information/impact-breast-cancer/finances-practical...
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Thank you for your reply.
Nice to know ladies her "get it" as you say. I always feel ever so deeply connected to each story I read.
Sigh, well, coming back to my issue, Im waiting to hear back from the hospital what their thoughts are for treatment options, meanwhile the wait serves nothing but agony for my mind that runs away with the slighest of thoughts. Honestly, if I did do my morning and night meditations, I would even more neurotic than I am now! haha
Mrs_Merc- sorry to hear your news. Lots of questions there and all sounds rather confusing, when you are told one thing and then it all changed.
HER2 positive breast cancer is a breast cancer that tests positive for a protein called human epidermal growth factor receptor 2 (HER2), which promotes the growth of cancer cells. Just so you know. I believe Herceptin is the choice drug for that. Double check that. Not sure if it is consider chemo, let us know when you find out.
It sound like they gave you two prognosis's based on the two types of cells they are predicting to find. Which ever one tey find they will treat you according to that protocol. Im sure it is alot to take in, when they tell you what they are thinking.
Get them to write stuff down next time. xx
Mrs_Merc back on the forums now with secondary’s following my first diagnosis of breast cancer back 2012 when I had a right Mastectomy and ANC, FEC-T, Radiotherapy and Tamoxifen for grade 3 IDC ER+, HER 2-, LN+.
I was taken poorly and into hospital for a couple of weeks at the end of Feb with some kind of infection. Originally they thought it was biliary / gall bladder, but the US showed that it wasn’t. Then they found a heart murmur and suspected endocarditis (heart). The US did identify and alert them to a significant number of lesions on my liver and some ‘suspicious’ lymph nodes in my stomach (now confirmed as involved).
The biopsy shows that hormone sensitivity has increased from 5/8 in 2012 to 8/8 now. As a result they have sent the samples off to confirm HER status for consideration of Herceptin? Is that considered as chemo? They said in the discharge report that ER+ gives 12 months prognosis, whereas ER- would mean they consider chemo. In my last appointment they have poo-hoo’ed chemo and changed me onto Anastrazole and Zoledex with 4 – 6 weekly CT scans.
I guess there is no point in making me poorly if they don’t need to, or if it wouldn’t particularly help, but am I reading this wrong? Have they given up on me, or am I ok to keep doodling on and may well do so for many years to come if I’m a good girl?
Sorry for all the questions, but I am being really positive and sorting things out at home, but still have doubts I really understand the full situation. Can anyone else relate to that?
Ex- Darling Buds of May 2012 Chemo thread,
“A positive attitude may not solve all your problems, but it will annoy enough people to make it worth the effort.”
Welcome to the BCC discussion forums where I am sure you will get lots of good, honest support from the many informed users of this site.
While you are waiting for replies I have put for you below links to some of BCC's publications you might find helpful.
Grade 3 IDC, ER+, HER2-
Just joined this community. Wanted to share my experince, as I find it hard to talk to loved ones. Brief, history, but 2012 diagnosed with grade 3, Left, breast cancer; went through 6 chemo's, then radio, then a skin saving masectomy with temporary implant. All in one year. Enough to beat the life out you.
So fast forward 2014, (been on tamoxifen since end of 2012) in early 2014 I Had a DEIP, and then a PET/CT scan revealed 3 liver metastases. Im back on the zolerdx and letrozole- which is hell. IM BRICKING IT. In a state of dispear and scared.
Thinking seriously to have chemo again. Has anyone been through so much treatment and cant see the end of the tunnel?