yes i have the braca 1 gene so had my ovaries removed as a precaution. they found aa small stage 1 cancer there so had to have a hysterectomy as well. was out of prison, sorry hospital ,after the hysterectomy after 2 days!! keyhole surgery. this was 2 years ago. all good now no reocurrence. SS
A quick update. Just had a call from my onc with my results and all is stable in the liver and bones are healing so I am mighty relieved! They don't usually give them over the phone but he us due to move to another hospital in the Trust so this is his last week at the one I go to and I'd have a bit of a wait until my next appointment with a different onc. Nice to have good news and also not have had the time to stress over the time in between the scan and the results. Will find out the actual details when I next go in for treatment but stable is fine by me.
gillg78, hope you get the treatment you need and the bone scans show them as being stable, sounds like your onc is on the ball.
Ive had my scan a week or so ago but as we were in the middle of moving house I haven't really been thinking about the results, which weren't available when I went in for treatment last Friday. I am waiting for an appointment with my onc to discuss them as they don't give them over the phone and will chase them up if I need to. To be honest the house move, and the stress associated with that, took my mind off things so I'm trying not to think too much about the results which is unusual for me as I normally want them ASAP. Happy to wait this time!
Hi to all liver mets ladies, hope you are doing well on your treatments.
Hey ladies, just thought I would give a wee update. Results show one rogue liver tumour double in size and rest of liver tumour (I have many) and lung stable. Onc is going to do a bone scan, if there is no progression in bones I get to stay on tamoxifen and monitor growth if bones have progressed I change treatment. Mixed bad, but happy to not just go right back onto chemo. Hope you are all well in your treatments. Nicky how fix your results go? X
My sugar free diet is where I have taken sugar out of my foods, ie, sugar in tea, alcohol, chocolate etc but I can eat any fruit at all including their natural sugar. Its the extra's we are putting into our bodies that I have eliminated. Thank you very much for your message. I started my chemo yesterday and early days I know but I feel ok. My neck is painful from the Portacath. Sleepless night but I have all day to rest now. I wish you ladies all came into my appointments! I am going to request a liver biospy and a closer inspection of my spine as I fear that when they scan me after 3 chemo sessions, there will not bre any change if the spine for example is scarred from the car accident. Then I dont want them to write me off when I have a chance of getting my lymoh nodes removed. I am also talking to my old surgeon at Leicester as I moved six months ago and he has been a great support. Dont you feel sometimes like you are doing all the work and research yourself!
Hi Chick, you are braver than me. I have never asked about life expectancy. Partly as I don't think it is helpful and partly because I don't dare! I agree with Nicky though, I don't think your onc should be giving such specific timings. No one can say how well you will react to chemo and other treatments. Some ladies on here have been living with secondaries for over a decade!
I don't plan too far ahead but that is simply because I have to fit things in around chemo and scans NOT because I think I won't be here!
What chemo will you be on? I hope you find it manageable. Being younger should work in your favour. Lots of love, Elly xxx
If you look in the complementary therapies thread there are posts from Hazelr and La-La re having Iscador during chemo although this is not strictly a homeopathic treatment. Also think there are some older posts about milk thistle. Good luck with your treatment
Hey Liver ladies,
I am on weekly Paclitaxel and Herceptin currently, but wondered if anyone had any experience of homeopathic rememdies whilst on treatment? I was thinking Milk thistle type?
I recieved my copy of my latest meeting with my lovely onc today.Although I was obviously there when we discussed all this it is still good to see it written down on paper, It was good to see him describe my scan as excellent and that my liver remains normal. He also said that me going for re-construction would be good for me and there certainly no oncological contra-indication. For the moment he wants to scan me annually and to continue on my present treatment.But most of all I took the following from the letter "there is every chance she will remain in remission for years." He has always been positive but careful with his wording and always made me aware of how serious the situation is.To hear him say these words and then put it in writing really does does make me feel that I definately will be here for some years to come yet.
Thank you for all the support guys, and I hope I can offer the same to you
Please dont misunderstand me - I am well aware of how a prognosis works. I was theatre sister in both the NHS and in private practice for many years - It's just a bit of shock when these words and phrases are said to you - they appear to take on another meaning.
Since my last post, the jaundice has set in and they started me on weekly Taxol yesterday - and as my HER2 status has changed they are also giving me the Herceptin. I am also having a Portacath fitted on Monday as I have litte to none decent vascular access. It was ok when treating and looking after other people- I just cant get my head around needing some help myself.
Anyway, I have been trying to catch up with everyone's timelines here, and I am in awe of how all of you cope with just day to day living. I just hope I can live upto your amazing fights and stand tall with you all in this battle.
Lets nuke these darned nasties
Love to all,
Pen x x