Sorry to hear of your problem, I'm sure the staff on the helpline will be only too happy to talk to you about this if you would like to give them a call. Lines are open weekdays 9-5 and Saturdays 10-2. Calls are free 0808 800 6000
I hope you have a very happy wedding day.
Best wishes and take care,
Hello Suzanne, I'm sorry to read your news. I've always been told, by one of my Onc's lovely team, the liver is very treatable and very adaptable. Wishing you all the best with your treatment.
Hello Nicky, I don't like these new forums, hope Cap's not causing too many troublesome side effects. Good to hear of your CT results! I expect you may know this already but just in case Vinorelbine is available in tablet form.
Hi everyone. Had my scan to see if the chemo has done its job but apparently the results can take up to 3 weeks (although I know the onc can pull it up on the computer instantly, even without the scan report). On the up side I went for my review before my herceptin and Pertuzuamab infusion and was told by my lovely trials nurse (who had spoken to my onc) that I wasnt to worry to much about the scan (small less than 1cm met found in liver). Plus she only wants to see me every 3 months in her herceptin clinic and they will do my bloods every 3 months on the same day as the clinic and will scan me every 6 months. So that means after I finish my rads I wont feel like im living at the hospital just have to go every 3 weeks for my infusion. So far so good on just the P/H no horrible side effects, hair growing lovely and apart from catching a cold and cough from my eldest son I am feeling nearly normal (although have pulled a muscle in the rib area from to much coughing but that should ease now the coughing has eased). First time since dx in Feb this year that I feel like I have a future and have some normality. Just hope I am lucky enough to stay long term on P/H. Its good to feel well!x
I have posted on the "Pseudocirrhosis" thread.
cirrhosis is a scarring of the liver ,basically damage caused by chemo ,I meant to ask onc if it would stop now chemo has stopped ,I know it won't get better but so long as it doesn't get worse x
Sorry I didn't see the question about Gail until today as not been on the site much as had bus time since last week. I did attend Gail's funeral last Friday and it was done by a Humanist and truly the best funeral I have attended as she talked so well and told us so much about Gail's life, that I never knew. She had died peacefully the week before in her local hospice. I spoke to her Mum and family at the end of the funeral and explained I was representing lost of ladies who had received and given support to Gail. I called her Mum on Tuesday as I found out she lived on the west coast and I lived there for a while and in the course of conversation found out that her Mum knew and worked with my brother-in-law and sister-in-law. She is retired now. Such a small world and have said I will pop in to see her next time I am over. I had met Gail a few times as we had treatment in the ward but often spoke to her late at night on chat on fb. To be honest she deteriorated very quickly and her Mum agreed. Such a shame that yet another lady has been taken from us. Keep as well as you can girls. Thinking about you. Val
Angela (elliedog), good luck with scans on Sat. You're doing really well to feel fairly normal, make the most of it and enjoy your sons' birthdays. Remember side effects are no indicator of treatment effectiveness!
See the other thread in 'living with secondary' I started recently on facebook groups. I got good responses from a couple of others.
Hi everyone. Just posting for a little rant. Was due to have scan after finishing chemo on Monday but it was cancelled because machine has broken. So now being scanned this Saturday. Got appointment with onc on the Monday so i hope the results get to him quickly in time for my appointment. On the up side feeling nearly normal even after 6 rounds of chemo, Herceptin and Pertuzumab although think I caught my sons cold yesterday but today I feel like it has almost gone (weird). Sometimes I wonder if I should be feeling worse in order for the drugs to be working on my liver but I know thats me just being silly and I should be grateful I feel well (and long may it continue for us all). Anyway today I am putting healthy eating on hold as it is my youngests sons birthday today (he hits double figures 10) but then tommorrow its my eldest sons birthday ( I could of planned that better).So lots of cake for the next 2 days. Hope your all keeping well. Angela xx P.S Does anyone know anything about this Facebook site for us mets girls.
I never asked the details of my liver function tests, got the general message from onc that it was all working ok. To echo an earlier point on this thread, the liver is amazing at continuing to work efficiently, even after a large chunk has been cut away. Mine was working normally even with multiple mets, the largest of which was tangerine sized...