I have to say just how honoured I am to meet you all. A fine inspiration to keep on going, whilst making what we have truly worthwhile. Having announced that the liver biopsy didn't go too well, I can now confirm, that it didn't go to plan. - caused the liver the bleed q a bit, and I have a bit of a clot - which I am trying to manage. The pain is considerable.
Sadly this means that the results, well they got just liver, so no idea on the cancer, and they are reticent to operate on it again.
But hey, scans are good, and the chemo will shrink things.
i went to work yesterday, and for six hours - I wasn't a cancer patient - felt great!
Good Morning Tomboy81. Hope you are resting up after your Liver Resection. This is something I am very interested in. A scan in June showed my tumour in the liver to be 14mm. With my recent scan results it has reduced in size to 11mm due to the chemotherapy with three further to be applied to this. They can see what they believe to be two cysts that have not changed also and are of no concern. I was wondering what your diganosis was as my secondary is to the lymph nodes which have also reduced in size, base of the spine which is now only showing scarring from cancerous cells and the liver which is of more concern but showing reduction. As your tumour sounds like it was isolated was this something you had to push and request for or was your keyhole surgery suggested by your Oncologist please? Chick x
Hi Tomboy81, good to hear from you, glad your doing ok and and your op went well, hope you have a speedy recovery.
Take care hugs Janette xxxx
Hello Ladies. I hope we are all doing well. Cannot believe it has been a month since I was last on but I have some good news. I received my first scan results last week. The tumours in the lymph nodes have reduced, the active cells on the base of my spine only show as scarring now where it is healing and the Liver, being the major concern, shows a reduction of the tumour from 11mm to 8mm after three Docetaxel treatments. Fingers crossed it reduces more as chemo no 4 on Friday so I am waiting for the side effects to hit tomorrow. They have located another two shadows on the liver but they are saying these are not of a cancerous concern and could be cysts so I am hoping the next few rounds attack this too.
Hope you all enjoy your Sunday and keep strong xxx
Hi Samantha, Julia is right, those words be "be kind to yourself" are very true and important!! I use to be such a stress head and would worry about anything and everything but since my mets dx last year my outlook on life has totally changed. You and your family are what matters now you have to learn to put yourself first and try not to worry about things so much. We have enough worry and stress living with this horrible disease!!
Do you know about PIP and ESA that you can apply for??
Take care hugs Janette xxxx
The liver biopsy sounds fairly hideous. I've not had one, as I was told that they could tell from the CT that it was bc lesions. Try not to stress too much about work. I just went back on Tuesday after 6 months off and I know that I'm lucky that I've racked up 14 years with my employer, so they didn't give me any trouble. My workplace was still there and nothing had emploded! When you're hit with SBC, you need to put things in perspective and put yourself first - it's not selfishness. Your colleagues and even your family don't know what you're going through - they can't.
Many women on the forum use the phrase 'be kind to yourself'... I now know exactly what they mean.
A very quick reply as I don't have constant wifi at the moment having moved house last week. Hope to have it soon!
i did request a liver biopsy, it wasn't offered and I would say isn't offered routinely. At the time I still 'showed' as being ER, PR positive and HER negative so my onc wasn't expecting any real changes. He was quite surprised that I was now. HER positive as well. My BC hasn't changed its nature as such so although I now have the more aggressive form it still seems to be slow growing as it was from my primary. However it does mean I now have two HER treatments thrown into the mix, Herceptin and Pertuzamab. As to RFA I haven't been offered that although I asked at the beginning but I think with3-4 small mets it wasn't so easy to treat with RFA. So far the chemo I have been on Capecitabine and two years later docetaxel have kept things at bay and shrunk the mets considerably since my liver mets dx. I have in the past felt liver pain where my liver feels very uncomfortable and this hs got worse at times with some of the heart meds I had to take a few years back as they can be liver toxic, or so I found out! Post on the liver mets thread/s for more answers about other treatments, some ladies may have had them as well.
samantha, so sorry the biopsy was so bad. I must admit it wasn't the nicest thing to have had done and if the local anaesthetic doesn't quite numb the right part of the liver it is soooo painful, but I don't like to say that too much on here as everyone is different and may not have that happen.
Had the liver biopsy yesterday and my goodness the pain. Really felt ashamed as I howled like a banshee, and just to add to it all, I now appear to be intolerant to the opiate pain killers - so vomited my way through most of the bed rest. Good grief.
PET tomorrow and port fitted next week ready to find the full extent of the cancer.
Quite frankly terrified.
ghastly too is that my partner's business is now going down the pan. And my own workload isn't exactly lovely.
holding on to the comfort blanket that this group can offer.
Just wondering... were you offered a liver biopsy, or did you have to request one? I'm always mystified that some people have RFA and some surgery for smaller mets but others aren't offered anything other than the systemic drugs. I'm having a CT tomorrow and will be interested to find out if there's been any liver spread. The last scan showed my original 2cm met plus a new small 10mm one.
Glad to hear that you are feeling better than you did over two years ago. I keep wondering what liver met symptoms are supposed to feel like, as I don't think that I've had any real problems from them yet.
I would be grateful for any advice on how to steer the treatment discussion towards someting other than drugs.
sorry you have to join us on the secondaries section of the forum. You will get lots of support and advice based on our own experiences. There are a few liver mets threads you may want to check out but you may have to search a few pages down as it's all getting very messy at the moment!
just to say that I had a liver biopsy 2 years ago and glad I did as it showed that my receptor status had changed and therefore so was my treatment plan. The biopsy can be uncomfortable rather than psinful but you will need to rest as there is a risk of a bleed which can happen due to the high level of blood vessels in the liver, I would suggest you don't go to your meeting but rest afterwards as I'm sure your team will say. You could also be in some pain but paracetamol or ibuprofen should be enough to help. If you are feeling out of sorts it is possible it's the liver mets are causing it depending how many you have. I must admit I feel sooooo much better now than I did 2 and a half years ago when I found out my bone mets had now spread to my liver.
Good luck and I will look out for any reply or questions you may have but I nay be out of wifi area fir a while as I'm moving house!
Hello every body, just been diagnosed and joining this useful lovely helpful thread.
Can someone please point me to the guidance on liver biopsies? I have mine on Monday, and a I think I just read I have to lie flat afterŵards.
Can I ask a stupid question? Could I go to work afterwards, just I have booked a meeting and really can't stand postponing it.
I've spent the last few days freakinqg out and I kinda want to pretend I that things are back to 'normal' or rather like - pretend it's not happening.
Also I am feeling pretty unwell at the moment, tired and exhausted? Could this be a result of the lesion?
Morning Ladies. Well, I am finally back on air after starting Docetaxel on 24th July. After a four day stay in hospital with Neuropenic Sepsis, then a second dose of chemo, which put me on my back again, we have realised that within two days of treatment my white blood cells just disappear. Antiobiotics sorted me out. Hair went within two weeks but this time round I was eager to get it gone. So I did and I donated it to the Little Princess Trust for a child with cancer. Just dealing now with the side effects but generally on a good week. Sept 4th is my third chemo and I will be scanned to see how my body is responding. Fingers crossed as I am praying the one in the liver disappears but Oncologist has suggested RFA if the chemo is not working. So, hope you are all doing well and keeping chins up. Just wish I would stop craving Apple Pie! xx
Hi Tomboy81, glad things are moving for you, I didn't realise they could cut mets out?? Good luck with it all and let us know how you get on.
Hugs Janette xxxxxxx
Yey Marirose, that's great news bet you feel sooo relieved now, you enjoy a nice cheeky glass of wine or two!!
Guna pop a sleeping tab tonight to help me sleep got that dreaded knotted feeling in my stomach.
Hugs Janette xxxx
Sorry Janette meant to wish you lots and lots of luck with your results tomorrow I will be thinking of you hugs and love xxxxx
Thankyou Janette and LD I am so relieved I fully expected the treatment had stopped working what I thought was a lump could have been thickening of the tissue it seems to have gone now no extra lump could be found everything was quite stable what a big relieve. So I have had 14 cycles of everolimus so the e/e seems to be working for me.
Best Wishes to all who are waiting for results xxx
Best wishes for Thursday Janette hope it's good news and you get to book your holiday.xx
My results are on Wednesday had 3 stables hope this one will be 4 x
Cheers Marie, I'm hoping for good news because my next port of call will be the traval agents, we have been holding of booking a holiday back to Gran Canaria for September xxxxxxx
Hi Tomboy81, well it looks like your onc is on the ball, don't really know much about the treatment you are going to be having but best of luck with it 😉 keep us updated.
I get my 3 monthly CT and TM results on Thursday so getting the twitchy scanxiety feeling!! My mets were also dx last March, so far tamoxifen has kept me stable so fingers crossed it continues.
Hugs Janette xxxxxxx
Hi tomboy81. Although this must have been incredibly frustrating for you it as you still dont have an answers or a treament plan in place it does mean that if you do have liver met/s it/they must be very small if they cant be found! If it does turn out to be liver mets then the smaller they are the quicker they should respond to treatment and possible theres more options for treatment such as the surgery that you mentioned before or even radiotherapy if its an isolated case? Just hope you gets some proper answers though tomorrow when you have the MRI - push for the results to be given to you as soon as possible,
Oh no Tomboy81 what a nightmare! I bet you got yourself all prepared for it as well, I bet your head is up your backside now wondering what the hell is going on. Well hopefully the MRI tomorrow will clear things up for you.
Hugs Janette xxxx
hve just read your thread. I am so sorry. BUT this is no way the end for you. I was diaganosed 4 years ago with SBC (her- E+) and am still working full time in a very demanding job - commuting 1hour and 15 minutes each way and live a full life. I have been through bad times - but feel completely normal at the moment. I was on Tamoxifen for 3 years - no problem, then cap when it stopped working but cap did not work for me and now they have put me on a trial PARP inhibitor drug which -touch wood is great - not chemo, very few side effects - just a bit thinning of hair and a slight twitch in my left eye. This drug is really good with BRACA patients - those who have the BRACA gene, which you may have as you are so young. Maybe a good idea to check it out as there are lots more treatments availavlel to you . There is also a new hormone drug that has just finished vbeing trialed that everyone seems very ewxcited about. Anyway tomboy, take care and remember althoug this is sh**t it is doable for a very long time. SS
Hi Tomboy81, thank you for the update, your hospital/onc are really on the ball arn't they!!
Take care and good luck.
Hugs Janette xxxxxxx
Hi tomboy sorry you are so down at the moment I agree with Lemon Drizzle infact with all the other ladies. It is hard when treatments don't work especially when they have worked for someone else but they will find one to keep you stable don't loose heart. I loved the one about smashing plates it can be very therapeutic when I was first told I had cancer back in 1996 I wanted to smash milk bottles but we didn't have them anymore so I took it out on some bricks that had concrete on them hence we got some lovely clean bricks. Remember you are never on your own lots of love xxx