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Lobular Breast Cancer

81 REPLIES 81
Lynni
Member

Re: Lobular Breast Cancer

Thanks for the post Lynn. What a worry for you. Will keep everything crossed for you too, lets us know what happens. Times like this are s**t, things just seem to setttle down and some normality (as such) returns to life then Wham everythings up in the air again, all the horrible feelings and worries come flooding back. Thinking of you.
Lynne x

aroma
Member

Re: Lobular Breast Cancer

oh lynni ,sorry to hear your going through this s...t again .its so hard to keep upbeat when everything is showing up as bad ,but you know youve ben through a lot and come through so joping you will be atrong enough to get through this again . im going for an urgent appointment with my oncologist tomorrow,as have bad left boob now ,its achey and hurts to lie on . so hence appointment ,i had lobular in left had mastectomy and chemo rads etc, i have liver secondaries as well so this is really a worry for me ,but hoping with everything crossed its not . hope you continue to get through your treatment ,speak soon . lynn x

Lynni
Member

Re: Lobular Breast Cancer

Thanks for the post Anne
They nearly did get shot of it in one go, nurse wanted to give me a syringe and a half instead of 3/4 of syringe (miscalculation!)
Onc rang me today keeping me on tinzaparin for 4 weeks then wants to see me. Has checked bone scan (done last week) which shows a "change", shes sure its not a spread but the cancer is calcifiying. Fingers xd.

You take care Anne

Lynne

AnneTh
Member

Re: Lobular Breast Cancer

Lynni
I'm really pleased to hear the cancer hasn't spread!
Now,let's get shot of that clot!
Take care
Anne x

Lynni
Member

Re: Lobular Breast Cancer

Got results of CT scan today which show no further spread of cancer but did show a blood clot. Cant remember name of vein but it wasn't in calf or leg like normal. Now injecting tinzaparin for 2 weeks then onto warfarin. Have a lovely coloured bruise on tummy now (wonder if Dulux could match the colour). Feel like a weight off my shoulders at the moment, I was convinced cancer had spread.

lyndu
Member

Re: Lobular Breast Cancer

Lynni, glad you got a cancellation so you won't have to wait so long, keep us posted.
This bloody disease.... it makes me want to kick things.

Lyn

Lynni
Member

Re: Lobular Breast Cancer

Thanks for the replies and fingers crossed for you Anne. CT scan tommorrow (thursday) It was the 13th Oct but rang them and got cancellation. I'm seeing onc on Wed 8th for results. Everything crossed, well not the legs coz swelling makes it uncomfortable!

skimum
Member

Re: Lobular Breast Cancer

Sorry to hear this Lynn, hopefully the CT won't show any further progression.
Thinking of you and keeping my fingers crossed.
Claire x

AnneTh
Member

Re: Lobular Breast Cancer

Dear Lynn,
I'll cross my fingers for you, I really hope the swelling can be resolved and that the CT isn't too bad.
I too am a tad worried, as I have an enlarging lymph node in my armpit despite being on Tamoxifen and Zoladex; I was diagnosed with metastatic disease in lots of places so I still have breast and lymph nodes). Anyway, the onc is keeping an eye on it.
You're right, this disease is a nightmare. Even when you're being positive and happy, it is still there, threatening to throw you another surprise.
Hang on in there, it's probably a case of getting on to the next therapy, we have several options lined up.
Take care
Anne xx

moonshine
Member

Re: Lobular Breast Cancer

Oh Lynn, wish I had something sensible and reassuring to say to make you feel better. When will you be having CT scan? hopefully they can soon sort you out and get treatment plan in place. I hope you don't have to wait too long, it's enough to send you doo lally. Everyone is here for you, let us know how you get on.

Hugs
Tracey xx

Lynni
Member

Re: Lobular Breast Cancer

I have had not so good news today. It started last week, had swelling in leg, sent to hospital with suspected blood clot, blood test and ultra sound ruled this out. Xray done got results today, secondaries in hip bone have spread now having CT scan to see what else happening. Hate this waiting game, hate this disease.

Khyrah
Member

Re: Lobular Breast Cancer

Thanks for the reply Skimum, it is most appriciated.

However I must have had chemo brain the day I posted DOH!!! I have invasive ductal carcanomia,lol I am a twit at times.

skimum
Member

Re: Lobular Breast Cancer

Hi Lisa,
When I was diagnosed the treatment initially recommended for me was chemo to shrink the large tumour then WLE, unfortunately due to the position of the tumour I ended up with a mastectomy.
I think, where possible, surgeons will try to conserve the breast and lumpectomy plus radiotherapy is reported to give as good an outcome as mastectomy. In the days after diagnosis when you're being asked to make important decisions and when most of us don't really know much about bc all we feel we can do is follow the advice of our doctors, but if this is really bothering you why not get a second opinion?
Claire x

Khyrah
Member

Re: Lobular Breast Cancer

Hi Ladies 🙂 I was dx last month with invasive lobular carcanoma it was 3.2cm ER8 PR4 Hre2 neg and node neg. I had WLE and SNB and started FEC 8 days ago.
I am confused as I did find a lump and it showed on the mamogramme and ultrasound.
I have not been offered Mx or any kind of scan? I am worried now as when I was told it was BC I was hustleing for a Mx and they told me they would not recomend it as my treatment. I wanted the Mx to put my mind to rest, I am 44 and only got married last year and have just fostered a 4yr old. So I felt Mx was the way to go and when they said no I was devistated. I am now wondering if I should have kept on about it?

/hugz to all LisaJ

AnneTh
Member

Re: Lobular Breast Cancer

Hi,
Just wanted to say thanks to you all, for letting me join the 'gang'! Like you, Lynne, I hope I can keep taking the little pills for ages yet!
Claire, I'll keep my fingers crossed for you- I hope your concerns about finding a secondary will prove to be unfounded. Waiting for scan results never good, so hope you're managing to do some nice things and give yourself some treats!!
All the best to you all
Anne x

skimum
Member

Re: Lobular Breast Cancer

Hi Anne, no you didn't scare or offend me either. Really glad to hear you're having a good response from the hormonal therapies and have not needed chemo so far......I think it's good to have as many treatments in the bank as possible!

I know this might sound daft but I'm not so worried about another primary bc, I know I could do that again.......my surgeon has always said I'm far more at risk of developing secondaries than I am of another primary, I think that's why I didn't push for another mastectomy.

I'm currently waiting for the results of a bone scan (done friday) as I've been having bad hip pain, especially at night. Apparently the x-ray was ok......hopefully all will be well but a part of me seems to think that it's only a matter of time.
I hope this doesn't sound melodramatic, I certainly don't mean it to be, but I'm very realistic and know that secondaries are a very real possibility.

Sally - hope you had a lovely day.

Lynne - hope you enjoyed the wine.

Claire x

lyndu
Member

Re: Lobular Breast Cancer

Anne, no, not offended nor scared - in fact it's good to hear of someone whose treatment is working well for them should I ever end up with secondaries. (Sorry if that sounds completely self-centred - I AM pleased for your sake too!)

I couldn't agree more that the profile of lobular needs to be raised. I found a thickening at the beginning of last year and had a routing mammo in March. I was completely reassured when it came back clear - fortunately as I'd had bc before (in 1991) I got a bit twitchy when the thickening wasn't going away so finally managed to see the breast clinic in November. Another clear mammogram, and a clear ultrasound, and they tried to tell me the thickening was just left over scarring from the previous surgery. Fortunately the surgeon agreed with me that it wouldn't have just started in that case, so I had a biopsy.
Finally I understood how easy it is to get to a 4cm tumour without noticing it! Fortunately I seem to do lazy cancers so it hadn't gone anywhere.
I'm currently pondering whether to have a mastectomy on the other side or whether I'm just too completely hospitalled out to have more surgery.

Enjoy the wine, Lynni - cheers

Lyn

rosieposie
Member

Re: Lobular Breast Cancer

Hello again girls!

I had my healthy breast removed almost a year after my Mastectomy. I had given it LOTS of thought and decided to take control. I have absolutely NO regrets but obviously its personal choice and possibly isn't for everyone, I went armed with a long list to persuade my oncologist and he just said ' very sensible'. Its good to read this thread and make contact with other Lobular Ladies.

Lynni {{{HUGS}}} a good cry helps sometimes and congratulations to SallyLou on your Wedding day.
AnneTh ~ Hello and no you didn't!

Lynni
Member

Re: Lobular Breast Cancer

Hi Everyone

Anne, so pleased to here you are doing so well. Once I found out my cancer was also in soft tissue areas it really frightened me and initially thought chemo would start, but thankfully this little pill is doing its job and chemo is hopefully still along way off.

Sally, hope you have had a wonderful day and have a long, long, happy life together let us know how the op goes.

I only work 4 days now find thats enough, really tired at end of day. Though my dx was 20 months ago still have odd bad day when feel can't cope. Had one yesterday at work, just burst into tears for no reason. Sometimes I think things build up, but smile now back on my face, well until Liverpool failed to beat Stoke today. Never mind Saturday night is bottle of wine night, cheers everyone.

SallyLou
Member

Re: Lobular Breast Cancer

Hi,

I'm in the middle of sorting out removal of my "good" side and hope to have surgery this autumn. I have discussed it with my new consultant at the Marsden (having been in Norwich, but now living in London) and she fully supports my decision - based on my cancer being lobular with extensive pleomorphic LCIS which is practically impossible to detect with mammograms or MRIs. Another reason is my partner (husband from tomorrow!|) lost his first wife to secondary BC and I don't want to have to put him and his children through that again - it was bad enough for him when I was diagnosed last year. Also, of course, I'm doing for myself and my children too.

I am being referred to Elaine Sassoon as she did my first mast and recon so think it makes sense to have her do the next one.

Regards,

Sally xx

ForumMember
Member

Re: Lobular Breast Cancer

Has anyone had the other breast removed as a precaution as well. Given a 10% recurrence in other breast with lobular. I am lobular and currently receiving treatment. Had 4 FEC & 1 TAX & another 3 TAX to go. Then Herceptin and Arimidex. But the thought of going through all this again should it come back in the other breast is scaring me silly. I also had a clear mammo 15 months before I saw inverted nipple. Was told things can progress quickly!

AnneTh
Member

Re: Lobular Breast Cancer

Hi
Hope I haven't offended or scared anyone. Everything was so advanced when I was diagnosed that I've lost a lot of my tact and common sense! Things had just been left to develop very very far with me before I was diagnosed- I realise how lucky I am to be responding to the therapy I'm on. I suppose I'm an example of someone getting on the treatment that suits me and that's what I wish for anyone with this disease. If any of you know of anyone who has had a similar experience to me that I could contact, can you let me know. I have a strange mind-set these days and probably shouldn't terrorise everyone with my tale! Anne x

AnneTh
Member

Re: Lobular Breast Cancer

Hi everyone,
On here at last. Like you Lynne, I had mets in my bones and peritoneum, plus retroperitoneum, around my bowels and above one eye- I was a mess. 14 years ago, I had a benign breast lump removed and was told my cysts and thickening was due to fibrocystic disease, so I kept putting the thickening I felt down to this, taking comfort in the fact that the previously tested lump was not cancerous- silly me!
Anyway, three years, I was opened up for a dodgy looking ovarian cyst and biopsies came back as benign. Then last year I had double vision and really bad anaemia. After three months of tests for some strange feeling things in my tum, I was opened up again to try and work out what was happening. They closed me up and told me that things were really bad. I was referred to an oncologist and to the hospice and told to apply for the DLA as I was unlikely to live more than 6 months. Thankfully, pathology showed that my biopsies showed strong hormone receptor staining and on that basis, I was told I had breast cancer. Although I wasn't told that it was lobular, the spread is consistent with that.
So, here I am a year later, on hormonal therapy and doing very well. My second lot of scans have shown further improvement, my double vision is almost gone, I'm working full-time and have a very busy life, catching up with friends and doing my bit! I think it's about time science came of age and there are so many things being discovered, particularly in breast cancer, that I hope to be around for a very long time yet!
I'd like to see the profile of lobular BC raised- everyone just looks for a lump!!
Anne xx

skimum
Member

Re: Lobular Breast Cancer

Hi Tracey,
I went once to a support group run by Southend Breast Unit, it was very friendly but it felt more like a WI meeting than a cancer support group, no-one actually seemed to talk about it. Anyway I felt that particular group wasn't for me and I haven't looked for another.
Before I had reconstruction I went to a recon support group at Broomfield Hospital where my plastic surgeon is based, I found this very good but it's about a 45 minute drive so since all my surgery ended I haven't been back.
I'm in regular contact with several women I met through bc forums, I've found this to be invaluable support and even 2 1/2 years later I visit this site and bcpals most days. Can't seem to wean myself off!
Take care.
Claire x

moonshine
Member

Re: Lobular Breast Cancer

Hi All,

Lynne, glad to hear you are avoiding chemo and treatment is keeping everything stable. I will ask when I go for my re-exision results next week about any genetic testing. Claire, thank you for asking about my girls, they have coped amazingly well over the last year with everything that has happened. I also have a 16yr old Son, who is so kind and caring, so I think they're a pretty great bunch!! Hope results of your x-ray will be all good, what a worry it all is. I remember coming across something about lobular mets sometimes going to different places to ductal. From what I can remember, it's more likely to go to the ovaries and digestive tract. I don't know if any of you Essex girls have been to the monthly support group meeting at Rochelle House in Chelmsford. I went last night for the first time, it was very casual and friendly and there were two ladies from BCC demonstrating how to tie scarves and fit hair pieces. I never knew you can get a fake fringe!!

Take care everyone, stay in touch
Tracey x

skimum
Member

Re: Lobular Breast Cancer

Hi Tracey,
I remember replying to you on another thread., very very sad about your husband. How are your girls coping with it all?

Yes my mum was very lucky, it was caught early as something 'unusual' was found when she had her gallbladder out. She was then monitored regularly by ERCP. I got her referred to the Middlesex hospital and she had a Whipples operation performed by a wonderful surgeon! Whenever she asks him if how she is is 'normal' he says that he doesn't know as most patients don't survive that long!

Good luck for your results next week and for your future treatment. Let us know how you get on.
Take care.
Claire x

Lynni
Member

Re: Lobular Breast Cancer

Hi Claire

I know I recently had xray of hip coz of some pain there, but it was okay. Bone scan didn't show up the cancer it was the ct scan showing these hotspots as they call them. How is your friend doing with her secondaries (i knew i'd spelt peretoneun wrong).

Hope you're xray is clear let us know.

Lynne

Lynni
Member

Re: Lobular Breast Cancer

Hi Tracey

Really sorry to hear about your husband. We lost a friend to the same cancer this year it was heartbreaking. I am currently on Bondrant for the bone and Femera and everything seems to be under control - 20 months now and haven't had chemo yet which is good. Thanks for asking. Not sure how the process of genetic testing goes but my sister was referred because of her age and I got involved that way. Have you looked onthe family history thread yet? There is also a BRCA1 which I think I'm right in saying carries an even higher risk of BC and I've noticed on other threads a rarer gene called TP53 I think. My cousin had dx of BC last year aged 38 but its not linked (mothers side of family) she may have been unlucky as well.

Its good to hear about about Claires mum as pancreatic cancer is often found too late so nice too hear of someone surviving it.

I also have a son aged 11 if he is found to have this gene he could be at risk of pancreatic abd prostate cancer. As if you didn't have enough things to worry about your kids as they grow up.

skimum
Member

Re: Lobular Breast Cancer

Hi Lynne,
Sorry to hear about your secondaries. How are you coping?
That's the other thing I've read about lobular bc (though can't remember where), it seems to favour slightly different sites to metastasize to. I know of someone else who's had peretoneum and ovarian secondaries.
When I was diagnosed I had a hotspot on my hip, I had an MRI and they decided it could be a bone cyst but weren't really sure. I'm currently experiencing quite severe pain in that hip and leg (mostly at night/rest) and am waiting for the results of an x-ray. The Onc I saw recently wasn't keen on doing any investigations other than an x-ray, she said it could be wear and tear, which I accept, but unless you've got x-ray vision how do you know! Hopefully she'll be right!
Take care.
Claire x

moonshine
Member

Re: Lobular Breast Cancer

Lynne, I was wondering if I should ask for the BRAC2 test as I have had melanoma and breast cancer, but there is no family history of either. I have two daughters aged 10 and 14. My husband died last year of oeasphegul cancer, and there is no history on his side either. Guess we've just been unlucky (to say the least!). So sorry to learn you have secondaries, are you currently having treatment?

Claire, glad to hear your mum has done so well, pancreatic cancer is one of the more difficult ones to treat, good for her.

My lump had over lying dimpling of skin, which is what drew my attention to it. My GP said she would lay money on it being a cyst, think she should pay up now!!

Take care,
Tracey xx

Lynni
Member

Re: Lobular Breast Cancer

Hi skimum

Starting to feel outnumbered, I'm from Northumberland.

I know what you mean re lobular cancer my lumps (ihad two just to make sure) appeared 1 month after my mammo and I had received the all clear, just goes to show. I had 19/19 lymph nodes involved. Secondaries in bone and peretinium wall (amazing how you find out about bits of the body you didn't know you had!) it was also found in ovaries and tubes when they were removed.

Lynne

skimum
Member

Re: Lobular Breast Cancer

Pheebster, Mandy and Tracey I'm also an Essex girl!

I think that one of the most worrying features of lobular cancer is not only that it doesn't really show up well on mammogram but that it often grows quite big before you get any signs or symptoms at all. Mine seemed to appear overnight, a 5cm thickened area with orange peel skin, pain and a distorted nipple...... at the time I was being ultra careful in checking my breasts as 2 friends had been diagnosed within the previous 8 months. I had a mastectomy and ANC but unfortunately I had 10 lymph nodes involved, so it must have been there for quite a while!

Both my grandmothers died from bc, they were diagnosed in their 60's, which apparently isn't significant genetically. My grandad died in his 60's from liver cancer and my mum had pancreatic cancer diagnosed at 62, fortunately 10 years later she's fit and well! There is so much cancer in my family, either that or heart disease but no-one (except me) has ever thought my family history to be significant!

Claire x

Lynni
Member

Re: Lobular Breast Cancer

I know its a worry.I was told they would normally start bc screening when your children reaches the age five years younger than when you were dx. I actually started mammograms at 35 coz of my sisters dx. My daughter is 16 in January but we haven't told her about this gene yet. exams this year don't want to give her anymore worries at the moment and theres nothing she can do, apparently it has to be her choice to go for genetic testing. so were advised to maybe wait until shes over 18. Have you not been offered genetic testing?

Pheebster
Member

Re: Lobular Breast Cancer

I am worried for my daughter....my nan died of liver cancer (age 90) my mum had bc (age 47) she is still well, nearly 30 years later thank goodness, and now it is my turn.

I'm so worried for my little girl, but I am also hopeful that every day diagnosis and cures are getting better and better. I will fund whatever screening is available for her as soon as she is old enough; it doesn't seem much but what else can we do?

Lynni
Member

Re: Lobular Breast Cancer

BRCA2 is one of the known hereditary breast cancer genes. Ins ome families this mutates and can increase risk of breast cancer, ovarian cancer and in my case pancreatic and some skin cancers. There is a 50/50 chance of this being passed on to children. My father died of pancreatic cancer 19 years ago aged 45. His brother, myself and both my sisters have all been tested and carry the faulty gene. You think one of us would have avoided it! One of my sisters had breast cancer 13 years ago aged 29 and coz my dad had cancer at an early age we were referred to genetics.

moonshine
Member

Re: Lobular Breast Cancer

Hi All,

have posted on here before but just wanted to update. Had WLE for my 2cm lobular 4 weeks ago. Not clear margins, so had re-exision last week. Will find out results next week! Next step chemo, then rads plus hormone thingy.
Pheebster and Mandy, so glad your results were clear, I am also in Essex!!

Take care
Tracey xxxx

Pheebster
Member

Re: Lobular Breast Cancer

I am also in Essex Mandy. I was offered chemo first to shrink the lump but I decided against it and went straight for the mast without recon. I was also treated for an inflection with anti-biotics as the nipple was so inflamed, but in my case I believe there was an infection there at the time and the tumour was actually present behind the infection. I had to have mast because of where my lump was(directly behind nipple) and it would have been pointless doing a lumpectomy. My surgeon has left the skin though, ready for a recon when (and if) I am ready.

Can I ask, did you have the double mast?

I am awaiting results now as I only had my op ths month

Lynni - what is BRCA2?

Lynni
Member

Re: Lobular Breast Cancer

Hi Mandy

I think you're right I cannot fault the care I have. My lump, well I had two (just to be sure) 39mm and 8mm were removed ny mastectomy. Later I found I'm a BRCA2 "mutant" so maybe I should have gone for double mast. They mentioned doing chemo first but opted for op. Good luck for the bone scan let us know what happens.

mandy65
Member

Re: Lobular Breast Cancer

Hi all,
just come across this discussion and thought I would have my say lol.I was dx in april this year after being sent for a mamagram and ultrasound ( i had previously been on antibotics for a supposlely blocked milk duct,the doctor assured me it was nothing sinster but i knew, we had just lost my dad to kidney cancer and two of my aunts and one cousin had had breast cancer) .Any way so far I have recieved very good care like most lobular ladies my lump was big 5 cm but I have just finished 6 months of chemo and the docs are happy with how the lump responded to the chemo.so far I have had 2 breast mris,2 liver ultrasounds and I have a bone scan tomorrow ,Im awaiting the date for my op ,I asked my consulant could have a double mas as Im 43 and the odds of reoccurence are higher and he said he did not think this was unreasonable request.I live in essex and talking to ladies at my chemo ward they all agree its not just where you live but the doctors and nurses play a big part as well some of the ladies i spoke to have had mixed reviews with regards to the care and info they have received.

Pheebster
Member

Re: Lobular Breast Cancer

chenin blanc....I like that!

Lynni
Member

Re: Lobular Breast Cancer

Hi Pheebster

Pleased to hear all scans clear, my liver had some cysts (not uncommon), they were probably full of merlot, chenin blanc and vodka.

Lynni

Pheebster
Member

Re: Lobular Breast Cancer

Hi....I was diagnosed with lob/c in August. I had biopsies last year that came back benign but I was given yearly check-ups just to be on the safe side. Had cores done this July following mam which showed a shadow. I was told my tumour showed to be around 5cm (although due to inflammation it would probably turn out to be smaller) and I had a mastectomy last Wednesday. Two days after my diagnoses I was given a total bone scan, liver and abdominal scans, chest x-rays and every blood test you could imagine. Thank goodness they all came back clear. Apparently my liver was in top condition which is surprising the amount of pinot grigio it has had to deal with lately!!!!!

I also had pain for the last 18 months...on and off...but in the last 6 months it was quite painful at times. My breast changed shape - the lump was behind the nipple which made the top of my breast protrude.

This thread has been fascinating...we certainly are a hard lot to detect aren't we?

I am currently awaiting my results following my surgery, and trying not to spend too much time thinking about what might be.

Lynni
Member

Re: Lobular Breast Cancer

Hi everyone, seems there are a few Geordies on this thread, I'm from Ashington. I was dx with lobular cancer Jan 07. For the last 8 years i had a mammogram as my sister had bc 13 years ago aged 29. My last mammo was in Oct 06, but 4 weeks later found a lump. Thought it cannot be anything serious as mamo was clear. Then noticed it was getting bigger and puckering of skin just before Christmas. Went to doctors who like me thought it couldn't be anything sinister but coz of family history referred to Hospital. At diagnosis explained how difficult this cancer was to detect on mamo. But at time my sister and I were not aware some cancers were difficult to detect by mamo, if I'd known I may have gone sooner to doctor. My cancer has also unfortunately spread to bone and wondered if I'd gone sooner would they have stopped it. They say probably not. But I still wonder. Also been to Centre of Life, we are BRCA2 "mutants", and they are brilliant.

Geordielass
Member

Re: Lobular Breast Cancer

hi everyone

seems a while since i wrote had my third chemo, went ok felt more tired this time around and the sickly feeling is lasting a lot longer but just drinking plently of ginger and lemon tea with a dash of honey and lots of ginger biscuits and it does take the feeling away. i have been very lucky with the after effects mind the migraines are a little annoying. Its lovely to be pampered by the family. Everyone has commented on my wig saying how much younger it has made me look, but i much prefer to wear scarves or go naked!! Had a family wedding on saturday past in all that rain, the bride ended up breaking her foot in five places, bless what a day!!

Hope everyone is keeping well. how are you Tuesday hope the op has gone well. Take care everyone

Doreen x

Geordielass
Member

Re: Lobular Breast Cancer

Hi Tuesday
Please talk to your consultant about your fears, discuss every option, ask him why a mastecomy, it might be the best option, he can advise which is best ask him what are the alternatives. My lobular cancer was 24mm with the main sentinal node spread i just had a lumpectomy, now having chemo then radio, but was prepared for a mastecomy. My sister had two lumpectomys before having a mastecomy, she wishes she had just gone straight for the mastecomy, but it is a personal thing, I believe. So ask the questions, dont be shy, its your body.
Good luck you will get through it, be thinking of you.

Doreen x

Tuesday
Member

Re: Lobular Breast Cancer

Hi Girls

hope yu do not mind me butting in - i have just had WLEon 7th August and just had some resuts ack. in short i have mixed invasive cancer, they removed a 1.7mm lump (although I only had a stretchmarkand no palpable lump) and apparently they left a number of little satelitte cancers. I am up for re-excision this week but the surgeon was talking mastecomy, i can hardly bear the thought of losing a breast. Have any of you got away wth only a WLE?

Good uck to all

Tuesday x

Geordielass
Member

Re: Lobular Breast Cancer

Hi everyone
Had my second lot of chemo on wednesday, changed my anti sickness tablets, gave me a different injection to combat the migraines seems to be working so far, so keeping my fingers crossed, little more tired this time, but still waking up between 4.30 and 6 every morning, probably why i am so tired, ha ha.Hope everyone is doing great.
My little sis is still waiting to get her op, she is going into Sunderland hospital, said it is likely to be 2nd Sept, not happy she is having to wait so long said it would be done within two weeks told her she should have gone to the Queen Elizabeth in Gateshead. Hopefully it will be ok though.
Take care everyone
Doreen x

Julie22
Member

Re: Lobular Breast Cancer

Don't mention the Metro Centre, if I lived local to it, I'd have no money. Off work this week and went on Tuesday, came back with a bag load ha ha. Glad you enjoyed your trip to Whitley Bay. I would have bought you an ice cream if I'd known you were coming lol. All my best to your sister. Hope everything goes okay.

I'm supposed to be getting investigated through the Centre of Life for bowel cancer, because believe it or not forget the BC, it's actually bowel that runs in our family, and that added to the BC, they want my Mam's Death Certificate and my Nan's, but I don't know if I want all that side of things investigating. To be honest got enough to worry about without any more ha ha. I think one lot is enough for anyone.

Actually on the shopping front saw some beautiful scarves in the metro centre the other day.

Julie x

Geordielass
Member

Re: Lobular Breast Cancer

Hi all
Sorry not be back sooner, everybody been taking me here there and everywhere, still feeling good, apart from hair loss, started coming out in handfuls on monday night so took the drastic measure this morning and my friend next door, shaved it all off this morning, so I am sitting here like Kojak without the lollipop!. Will look in Matalan thanks Lynn, got a couple of sarongs will try them, got some scarfs from the hospital too.
Having my chemo at Q.E in Gateshead then Radio at General Julie. Was down at Whitley bay about 4 weeks ago Julie having a ice cream down by St Marys Lighthouse, very nice it was too. I spend far too much down that Metro Centre believe me, never come away empty handed. You have been through the wars the last few years.

My younger sister is now having a small lump removed, they dont think its cancerous, but because of family history me and my other sister both having it want to be on the safe side. Looks like the Centre of Life will take up our case and test our Genes, so keep all your fingers crossed everyone and hopefully we dont fave any faulty ones, but its looking likely we will. but miracles do happen, and angels watch over us, well I believe in them anyway. God bless everyone.

Doreen x Keep Smiling

Julie22
Member

Re: Lobular Breast Cancer

Hi Doreen

I live in Whitley Bay, not a million miles away from you. Where are you having your treatment.

I hope you get through your chemo okay. It's still fairly early days for you. It was 3 years ago for me, I had bilateral mastectomies. It had permeated right through the right breast and they said 30% chance of it going into other, so I had bilaterals followed by immediate reconstruction. However, had massive infection 3 days after coming out of hospital, and had to have implants removed, eventually had inflaters put in to fill out the skin, over a few months, then had permanent implants 6 months later.

This site is a godsend isn't it. Wish I had known about it when I was first diagnosed. Didn't actually come on to it until Jan of this year, as had a liver scare, when they found a couple of patches on my liver. Eventually MRI said it was cyst and hemangioma. Still having twinges, but going up to see Liver Specialist end of August. Don't think it is anything to really worry about, but GP thinks it could be something to do with the pancreatic duct.

It's a good job I'm not that close to the Metro Centre, otherwise I'd have a permanently empty bank account !!

Julie xx