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Lobular cancer invasive

Debcully
Member

Re: Lobular cancer invasive

Hi tweetypie
yea definitely feel better every day although am still sore and a have to do everything one handed lol but it's really strange as I feel heaps better now than what I did before surgery. Maybe it's just because I was stressed out because of the thought of what I would look like.
or maybe it's because of the tablets I'm on and they are making me 'mellow' Lol. But whatever it is I am definitely feeling better 🙂 and am enjoying my time off from work.
what have you got planned for the weekend? Anything nice?
deb xxx
Tweetypie
Member

Re: Lobular cancer invasive

Hi Deb, how are you? Are you getting better each day?
My surgery is next Tuesday...I am a little anxious but hopefully time will pass quickly and it will be over before I know it! xx
Debcully
Member

Re: Lobular cancer invasive

Hi jane
how did it go with the breast nurse? Xxx
janemod
Member

Re: Lobular cancer invasive

Hi Deb, How are you feeling, you sound like you are getting on really well. Don't DO too much because you will pay for it, in the end. The drugs you were given in hospital are really strong and will take a few days to wear off, then you are by yourself with the pain. Keep resting and don't go far although you will want too. You sound really positive, glad the surgery went to plan, so keep it up, you have been through the worst. I had a fantastic time in Brighton, we had such a laugh, I have been best friends with these girls since I was twenty, we have married, had kids, I am the only one that is a grandma so far, but I love these guys. We arrived Friday night, walked into Brighton and had something to eat, shopped all day Saturday, we managed afternoon tea, before going out properly on Saturday night, we ended up in a cocktail bar, that was so posh, I was loving it. My friend Lynne made us laugh, as we were leaving to go back to the apartment, she said' I love Brighton, everyone is so friendly, even the tramps', she is totally mad, didn't even notice that she spoke to one. Keep me posted how you are getting on. I am going to see a breast nurse tomorrow as I am sore, but it might not be any thing. My Radiotherapy start on the 20th for 20 sessions, so I just want to check it out. Take care Deb, you are doing really well. Lots of love Jane XXXXX
Debcully
Member

Re: Lobular cancer invasive

Hello
Jane.....did you have a fab weekend?
julie.....how did it go today?
tweety.....how are you feeling?

i went out this morning for the first time since getting home. Only to grab my mum some flowers and milk as she is back of her jollys tomorrow. Was nice to have a change although I am sore now so back on my back on the settee now
speak soon hopefully
deb xxx
LadyJulie
Member

Re: Lobular cancer invasive

Hi Deb it was great to read your upbeat post following surgery . My heart went out to you when I read your previous one and now you're back home and it's all behind you. Early days I know but a massive step forward. The drain sounds a bit brutal, well done for coping with that, and lovely to hear you're being well looked after by your BF. This is really important, my hubby is my rock, has been by my side at every appointment and procedure and we're working through all this together one step at a time.
I'm 6 days ahead of you and my swelling, bruising and soreness has subsided considerably. I am having my dressings removed on Monday and I'm not really looking forward to seeing my scars but it's all part of the healing process and I'm sure I'll cope with it!
Not sure whether you're doing the same but I wore a bra 24/7 for the first few days after my op and found it very comforting and supportive - Bravado from John Lewis, recommended on this forum.
Anyway Deb, best wishes on your recovery and future treatments, whatever they may be.

Love Julie xx
Debcully
Member

Re: Lobular cancer invasive

Tweety pie
relief is not the word. I was dreading it but woke up on the day (at 4) feeling remarkably calm for some weird reason And by the time my op came I was ready for it.
re the drains I think it all depends on how much fluid u have as to how long it stays in. don't know if it hurt whilst in cos the whole area hurt when it did hurt which was not all the time but just when u have to move really.
I was absolutely papping myself when they came to take it out and nearly crushed my partners hand lol but it really didn't hurt.
when the pain comes I can only describe it as like a red hot poker being stuck in but then if I'm resting its hardly any pain at all
like Jane says its important to keep topped up on pain killers
I managed to have a shallow bath this morning and my partner washed my hair so felt better freshened up but then that was it. I was starting to hurt so have been propped on settee since.
keep in touch 🙂 debbie xxxxxx
Debcully
Member

Re: Lobular cancer invasive

Jane I fully intend to sit and rest. I can't normally do this but as you know if u don't that's when it is really painful. Even just going to the loo. I really don't do pain lol. Can't believe what a good nights sleep had last night tho haven't slept like that for years.
When do you start ur rads again?
And hope u have a fantastic time in Brighton I'm sure hubby thinks u deserve it after all you (both) have been through
take care lv from debbie xxxxxxx
janemod
Member

Re: Lobular cancer invasive

Morning Deb, Just read your post, So so glad it is over for you, I am in tears, we have to go through so much, you have been really brave Deb. Your partner sounds great, tell him from me, and he must be really proud of you. Keep on those pain killers even when you feel better because the pain can creep back. I am going to Brighton for the weekend, travelling up from Suffolk. I am going with 4 of my best friends, I am looking forward to it, although I am feeling a little guilty leaving my husband, should have gone some where with him first, but they planned this for me, so he does not mind. Take care Deb, sit and rest, and I mean it, you will recover quicker if you do, I should take my own advice, but honestly you must. Lots of love Jane XXXXX
Tweetypie
Member

Re: Lobular cancer invasive

Hi Deb, it is good to see your post so quickly after your surgery and I am glad to hear that all went smoothly and well! You must be SO relieved now...!!! That is great that your drain came out so quickly (I was under the impression they stay in for a week or so) and you got to go home soon. You said it hardly hurt to take the drain out but did it hurt whilst you had it in? Does your boob still hurt and are you taking lots of painkillers??
As I am about 2 weeks behind you, I would be very interested to know your progress...please keep us posted! Have a super relaxing time - you deserve it and take very good care. xx
Debcully
Member

Re: Lobular cancer invasive

Pheeeeeeeeeeewwwwwwwwwwwwwww!!!!!!
Well thank god that's over and done with. Knew I was stressed but how relieved am i now 🙂
aw thanks Jane that was lovely to read yesterday
well got to hospital at half 7ish and basically mirrored lady Julie. Guide wire, mammogram, blue dye. Had been told was number 4 on list so was quite happy with that. Then told had moved to number 3 .... More than happy was getting more nervous as time got nearer and every time footsteps were coming to the ward was like 'aaaargh' but then they came and took another lady down before me. I was not a happy bunny lol as I knew 2 patients had been in already so was definitely expecting it to be me. Anyway another 2 hours later it was my turn ( was approx half 2 by this time)..and like lady Julie I just wanted it over and done.
woke up from anaesthetic in quite a lot of pain felt my boob and burst into tears..... the pain subsided with each dose of morphine they gave me. I'm quite lucky in the fact that I don't suffer from GA and didn't feel sickly or owt and came round very quickly.
was told in the recovery room that I had had a drain put in
so back on ward was then told had to now stay in as had the drain in. I was gutted. Turned out ok tho and had a good old chat with the other ladies.
the pain was quite bad, felt like a red hot poker was being stuck in my boob so made sure the painkillers were taken as soon as I was allowed. Didn't sleep one wink that night.
so then yesturday morning was told would get the drain out and could then go home yey. I was dreading having the drain out as had been told/read it was quite painful and I don't do pain very well but after nearly breaking the bones in my partners hands when the time came it didn't hurt hardly at all lol
home now and had the best nights sleep...my gorgeous boyfriend has done everything he poss can to make me feel comfy, has got my medication times and meals all planned out and I am feeling thoroughly spoilt 🙂
cant really see because of the dressing and the swelling how my boob will look and how much smaller it is now but it looks like a good job so far thank god. Time will tell just glad it's over with. At least for now.
speak soon and thank you for all your kind words.....any questions tweety pie just ask xxxx
Tweetypie
Member

Re: Lobular cancer invasive

Thanks Jane, my surgery is scheduled for 19th March - fingers acrossed! As everyone says hopefully the waiting room is the worst place to be and things will get better once my tumour is removed and I have the treatment plan in place after the pathology results. xx
janemod
Member

Re: Lobular cancer invasive

Hi Tweetypie, just read your post. That was disappointing to wait for MRI results to be told they were unclear. As to the size, I was told mine was 6mm when they look straight on, it is difficult to know although it looks 6mm wide, it can be much deeper going back, mine was, this is why they give you an MRI to help with the size of the tumour, also to see if they can locate any others. I know you don't want to hear them tell you its bigger, but we have to deal with the facts, unfortunately they just won't go away, and the surgeon will know what they are dealing with, so you have the best results from your operation. What day is your surgery. We are always waiting for something to start or something to finish. Take care Tweetypie, chat soon. Jane XXXX
Tweetypie
Member

Re: Lobular cancer invasive

Hi Deb, sorry for the late reply but somehow I missed some reent posts. MRI turned out to be unclear so not much help but the ultrasound few days later showed my tumour to be as big as 2.5cm when initially I had been told it was only 8mm - which upset me. But I guess it is better to find out now than later...

I believe your surgery is tomorrow. Really hope it goes well - best of luck. I have mine in two weeks...

Jane, really sorry to hear about your brother - how awful it must have been for you, having to find out about your cancer only two days after...
janemod
Member

Re: Lobular cancer invasive

Hi Deb, Just read your post today. It brings it all back to me how I felt on my day of surgery. I hope you don't have to wait to long before you go down for surgery. I couldn't sleep the night before, up early because they want you in, so the surgeon can chat to you all before they begin. Then of course the procedure to put the wire in, that was not as bad as I thought, its just like a extra fine wire that is taped to your body so it does not get in the way. The time does go quite quickly, so just keep hold of your emotions and be strong. My husband stayed with me while I had the wire, then left when I went back up to the ward. That was the hardest time. Deb I will be thinking of you all day, I know exactly how you feel, tearful, scared and terrified, but I promise you, you will get through this. Be Strong. Take care and lots of love from Jane XXXXX
LadyJulie
Member

Re: Lobular cancer invasive

Hi Deb, I read your post this morning and know how you must be feeling about your imminent surgery tomorrow. This cancer thing just invades us when it feels like it, no warning, no preparation on how we'll cope. My diagnosis is slightly different to yours in that I have invasive ductal carcinoma. But I just wanted to let you know that I had a lumpectomy and SNB (3 nodes) last Thursday 28 Feb and it went a lot better than I expected.
I had to be in hospital at 7.30am as a day patient and was the last to go to theatre at 3.45pm! In between I had the radioactive injection and guide wire inserted followed by a mammogram. I had been dreading going to theatre but by the time I was in my gown at 1.30pm I just couldn't wait to go and get it over with. I recovered well with very little discomfort, just a blue boob from the dye and bruising, and a lack of feeling under my armpit which took some getting used to. I stayed in overnight and chatted to a lovely lady across the corridor from me who had had the same procedure that day, from 9.00pm till midnight! How we must have rambled after all that anaesthetic, putting the world to rights as we did.
I still have to wait for the prognosis of course, but 6 days on I feel ok physically. I hope you have a similar experience and are pleased with the results of your surgery after all.
Anyway best wishes and lots of hugs for tomorrow, I'll be thinking of you and looking out for your next post to let us know how it all went.
Julie xxx
Debcully
Member

Re: Lobular cancer invasive

Thanks Jane.....don't think have ever felt this stressed in my life before :(( Just feel totally sick thinking about it and feel like I want to screamb. my head hurts, my boob hurts ...it's like it's just reminding me all the time.
i have to have a fish line put in before surgery and another 2 mammograms to make sure it's in correctly. There are 7 ladies plus me on the operating list for that day and guess what number I will probably be!!!!! if I'm sat around for ages waiting that will be crap.
Yes I work full time so my last day in today....dont know how long i will be off
you sound like you're doing really well and super organised :)))
one of my friends is a radiologist and told me that there is a hotel room that belongs to them which is complimentary for people who are having treatment...isn't there anything like that at yours?
I won't need it as I'm only 20 mins tops to the hospital unless its rush hour. 2 and a half hour round trip poor you. Hope that you have someone to go with you.
did u say u start rads on the 20th?

Thanks Jane xxxxx
janemod
Member

Re: Lobular cancer invasive

Hi Deb, Its great to hear from you. I know you must be feeling really scared, I did on my last day, although I kept myself really busy, also my granddaughter was born, so that kept me from going mad. The pain killers are just paracetamol and ibuprofen round the clock. I think I could have had stronger some times, but did managed the pain in the end. I would suggest you buy some wipes for under your arms as my dressing would not allow a shower, I sat in the bath and washed round what I could. Do you work Deb, and if so, are you having much time off work? I can't believe I am almost over the surgery, now double cooking dinners getting ready for the radiotherapy. Its going to take two and half hours round trip every day for 20 days, I am sure I am going to be knacked by the end. Good luck Deb for Wednesday, you are in good hands, I will be thinking about you all day, hope every thing goes well. Take care and lots of love, from Jane XXXXXXX
Debcully
Member

Re: Lobular cancer invasive

Hi jjanemod hope you are feeling less sore now and hope that you had a 'good' night in remembrance of your brother. I've not been On here much lately cos it just scares me sometimes. What painkillers would you recommend to take? I'm having the op this wed and am now scared to death.
tweety pie how did the MRI go?
deb x
janemod
Member

Re: Lobular cancer invasive

Hi Deb, thank you for that message. I lost my lovely brother two days before I found out I had cancer, he knew that it was a possibility before he died. Christmas was the hardest time ever, then on top of every thing else, we could only arrange his funeral on one day, which turned to be my birthday, December 21st, a day I shall never forget. I am going out tomorrow night for the first time since surgery, At our new local football club, a evening has been arranged in memory for him. Going to be strange, mixed feelings, very very proud and also very very sad, but got to smile through because he was always like that. 🙂 xx
How are you Deb, last weekend before every thing kicks off for you. Have you managed to keep well, with so much flu going around. Today I met the oncologist to start my Radiotherapy, I start 20th March for 20 sessions, more than I thought. Boob is still sore, when I mention it every one keeps saying it just takes time, so another week of pain killers.
Speak soon Deb, have a really good weekend, take care. Jane XXX
Debcully
Member

Re: Lobular cancer invasive

Hope you're feeling a bit better Jane that sounds painful. And my heart went out to you about your brother :(( xx
and yea it's still crap xx
janemod
Member

Re: Lobular cancer invasive

Hi Girls, just when I was getting on, I have got the worse cough ever, ever, my throat, ears and chest really hurt, if only I could stop coughing, I could get some sleep. I came home from work early, because I have not had any sleep much for two nights, just can't stop coughing, so tied, feeling really sorry for myself. My boob wobble every time I cough and it really hurts after surgery. Who gave me this awful germ errrrrrrrrrrrr
Nextstep
Member

Re: Lobular cancer invasive

Hi Debcully - I don't think it's selfish to feel how you feel; it's your body and your mind, and you feel how you feel about it. Having read a number of posts now I can see that people feel very differently about things. I feel very srongly that I would rather lose my whole breast than half and would rather not have anyone messing about with my back to do a reconstruction. But that's me - my back is more important to me than my boob! We are all different and if you need to rant and rave then you should rant and rave. I'm at early stages but maybe others will confirm that you go through different thought processes as you progress and I don't think it's good to bottle up what you feel. Even if you present a calm front to some people it seems you can just let it all out on here!
janemod
Member

Re: Lobular cancer invasive

Hi Tweetypie, Sometimes I feel this is happening to someone else, but then I realise it is happening to me, and just have to get on with the dread of it all. I lost my little brother recently and while he laid in hospital, he had been through so much, he just looked at me and smiled, and said to me, Jane just deal with it. and he is right, it has given me so much strength. I do feel sorry for myself, then I snap out of it and just get on. Take care Jane XXX
Tweetypie
Member

Re: Lobular cancer invasive

Thanks DJ007 for directing me to the correct link!
Janemod, thank you for your kind message. Sounds like you had a good MRI and post-surgery results. Apparently my lesion is only 1cm so they caught it early but I am worried that they might find more in MRI - I cannot wait to have the MRI done tomorrow and find out (hopefully nothing more showing)! Good luck with the radiotherapy and Tamoxifen.
Debcully, glad to hear your MRI result was a good one, too. I know what you mean - I get up and down as well, thinking about how my breasts will look after the surgery, and possibly radiotherapy and chemotherapy...and how the hormone/chemotherapy will affect my fertility etc. I think in our situation we cannot help feeling this way from time to time. But at least you had a good MRI result and your surgery is now booked. I am envious as I wish to get it done and over with asap!!! Good luck! x
Debcully
Member

Re: Lobular cancer invasive

On a funny side tho I was looking at some of the complimentary therapies on offer for us cancer sufferers. One of them was reiki....it's all about the energies. The therapist either places their hands on the body or just above and can help to rebalance the body. Apparently this can also be done when your not even in the same room!!!!
Extract.....
Some Reiki practitioners are second degree practitioners. They send healing over a distance. So you can be in your own home having Reiki from a person elsewhere.
how on earth???
x
Debcully
Member

Re: Lobular cancer invasive

Hello
mri results came back showing no other sites which is good. Surgery booked for 6th march which is not good 😞 . Still sort of think its not me I'm talking about but every night I wake up and feel sick thinking about being actually wheeled down to theatre and then when I come round seeing something which I will hate. It's crap. people say to me that it's better to get it out/be alive blah blah blah and yes if it was my daughter/ mum/anyone else I would probably say the same to them and I know they mean well but it really doesn't help!!! I just think yea well it's not you being disfigured is it. i looked at some tattooed nipples as well and was not impressed....the bn asked me why...I said we'll one is red and one is brown for a start off...it's just all crap.
my partner keeps saying to me well at least you will still be here to see your kids get married/have families etc and yea I will all being well. still doesn't help how I will feel about myself tho! Maybe I'm selfish......so what....it's just how I feel.
but anyway as the day gets closer and the dread gets bigger me ( like many others ) just have to deal with it I suppose.
doesnt make it any better...just how it is
deb x 😞
Jo_BCC
Member

Re: Lobular cancer invasive

Hi DJ007

Whoops! Can't have been wide awake this morning! Have edited my post accordingly. Thanks for pointing that out.

Jo, Facilitator

DJ007
Member

Re: Lobular cancer invasive

Hi Jo BCC

Think you've given Tweetypie a link to the wrong publication. She says she has ILC - you've posted a link to a benign breast condition publication!

Tweetypie - think you'll find this more useful! http://www2.breastcancercare.org.uk/publications/diagnosed-breast-cancer/invasive-lobular-breast-cancer-bcc45

Good luck
Dx

janemod
Member

Re: Lobular cancer invasive

Hi Tweetypie, I too had been diagnosed with invasive lobular cancer, I was told by my doctor that lobular cancer is a sneaky one and can hide, and that is why I had a MRI. It came back with nothing abnormal showing, I since have had a lumpectomy and 4 Lymph nodes removed, which thankfully had no involvement. So I am now getting over the surgery and waiting for radiotherapy and have Tamoxifen for 5 years.
Good Luck
From janemod
Jo_BCC
Member

Re: Lobular cancer invasive

Hi Tweetypie,

Welcome to the BCC discussion forums, you've come to the right place for some good, honest support from the many informed users of this site.

If there's anything you need to ask as well as these forums our helpline team are just a free phone call away to help you along. 0808 800 6000 lines open Mon-Fri 9-5 and Sat 10-2.

Take care,

Jo, Facilitator

Tweetypie
Member

Re: Lobular cancer invasive

Hi Debcully,
I, too, have been diagnosed with invasive lobular breast cancer recently and now waiting for MRI. Like yourself, I did lots of research on it but still not clear why lobular is said to be trickey. Is it because it is harder to detect or does it spread more quickly than ductal breast cancer, does anyone know?
I wish I could have the surgery asap and know what kind of treatements I will have to go through after that...
Hope your MRI went ok.
T
janemod
Member

Re: Lobular cancer invasive

Hi Deb, How are you getting on? Hope you are alright. Time is flying by, I am back to work next week after being off for a month, can't believe how quick the time has gone. The girls are so lovely telling me they miss me, Its probably because I make great tea. Let me know how you are doing, thinking about you all the time 🙂 xx
janemod
Member

Re: Lobular cancer invasive

Hi Deb, Just wanted you to know that I am thinking of you, is it tomorrow you get your MRI results? hope they will be good ones. I did get lot of comfort from mine, have you been given the details of your next part of treatment yet? Thinking of you, JaneXX
janemod
Member

Re: Lobular cancer invasive

Hi Deb, How are you feeling. Hope the MRI went well on Monday, and you get some positive results on Thursday. Also I hope you have had some answers to the questions you have been asking for, difficult time. Three weeks ago I became a grandmother again, this time to a beautiful little girl called Matilda, I already have a grandson called Noah who is a absolutely gorgeous, even though I say it myself. My daughter-in-law brought them over today, I spent the afternoon cooking with Noah and cuddling little one. Such perfect moments. Take care Deb let me know how you are getting on. Jane XX
Debcully
Member

Re: Lobular cancer invasive

Hi Si
what's happening with you? How big is your lump, where is it etc?
deb
Sam_BCC
Member

Re: Lobular cancer invasive

I am posting this on behalf of new user Si

Hi Deb, yr story is mirroring mine i go for MRI scan Tuesday very scary time good look for Monday hate having to wait just want it out of me and feel numb hope all goes well for u. x

millymolly_m
Member

Re: Lobular cancer invasive

Deb, have sent you an email.
M
millymolly_m
Member

Re: Lobular cancer invasive

Hi Deb,
Have been desparately trying to send you a PM with pics but can't. Think mods might remove this but will try all the same.
First pic is before I had any surgery. Second is after WLE removing nipple and 2nd op for Left tubular and SNB (hence blue). Sorry 2 pics not at same distance some stress involved in getting them done but best I can do. x
millymolly_m
Member

Re: Lobular cancer invasive

Blast - pics have not come out please see PM for more details.
M
Debcully
Member

Re: Lobular cancer invasive

Millymolly ive not had it done yet but that is what has been spoken about to date. It does depend on the MRI scan results tho. And I will be saying yes to photos definitely as long as they don't get my face in. So what was ur boob like? You said ur surgeon did a good job. Was it better than you expected. And how much about did they take off? do u need ur other boob seeing to to make it similar size for instance as that is what they have said to me but not for 12 months or so 😞 x
Debcully
Member

Re: Lobular cancer invasive

Janemod thought you would sleep better and it must be a huge relief even tho ur not at the end of ur treatment yet x
Finleysnana
Member

Re: Lobular cancer invasive

Afternoon Deb

I was diagnosed with invasive lobular grade 1 cancer on 30 October 2012 . My cancer was 9 mm. I had a MRI scan before I had my operation to see if it had spread but folrtunately it hadnt. I had WLE (lumpectomy and SNB) in November. My Surgeon did a great job the scar is not noticeable around my nipple. I went back to see my Consultant after Christmas and was told that they had got everything out and it had not spread to my lymph nodes . I have to take Anastrozole and Calcichew tablets for the next 5 years. My Consultant sent me for a bone scan as one of the side effects of Anastrozole is that it can thin your bones. My bones are normal and I started my radiotherapy last Wednesday. So only another 12 to go.
I have also used E45 together with E45 shower cream since I my wound healed.


Good luck with your treatment.


Margaret

millymolly_m
Member

Re: Lobular cancer invasive

Just popped in from Feb valentines.
Am waiting for chemo but I have to say to Deb I have the same feeling regarding photo's. WHAT am I going to look like? was the first question I asked. Neither the BC nurse nor the consultant had any pics. I too lost nipple and areola. Now that I've had time to consider, discuss and take it all in, it seems that ladies in our situation don't get asked if they'd be willing to have pics taken. I agree it is a sensitive issue and many would say get lost BUT..... I would have said yes, to help those who come after me.
To this end my lovely OH agreed to take pictures of my boob before and after WLE (and the stages of blue following SNB) Like you I had nipple and areola removal and was terrified. My surgeron did a fab job and all is well now. I could have nipple tatoo to complete if I wanted but dont think I'll bother.
Do you think it'd be worth starting a thread about photo willingness to help national BC nurses or is it too sensitive?
Any Ideas from mods would be of help too.......
Mandy
janemod
Member

Re: Lobular cancer invasive

Morning Deb, You were right, I have had the best night sleep in ages. I also feel so much better, now the main worry has gone. I know you will feel the same once you get through this process of treatment. Stay strong, because it is a wonderful feeling when you get out the other end. I know it will always be in the back of my mind, but its not as bad as the last 2 months of been. Let me know how you get on in the week, speak soon, take care. jane XX
Debcully
Member

Re: Lobular cancer invasive

Hey that's brill 🙂 I'd pm'd you before I saw this sorry. Bet your glad all that part of it is over and you don't need chemo 🙂 sure you will sleep better tonight. Am really pleased for you. Take care and keep in touch x
janemod
Member

Re: Lobular cancer invasive

Hi Deb, OMG, I have just come back from the hospital and had the best news I could ever have now, all the cancer is clear in my breast and no lymph nodes involved. They took 16mm of cancer and tissue out in the end, and moved some tissue around to fill in the space, but I rather they did that, then second lumpectomy We are over the moon, I am still so sore, my arm pit is on fire, but my doctor said, early days, every thing is to be expected, rub E45 into the wound when it is not so sore, and resume to normal life when I feel up to it. Just waiting now for the hospital to contact me about the radiotherapy. My family are crying with the good news, for me I am going to bed, because I didn't get much sleep last night. Please let me know how you get on with your results and wishing you all the best too. Take care Deb, speak soon 🙂 ZZZZZZZZZZZ
janemod
Member

Re: Lobular cancer invasive

Hi Deb, just read your post, it sounds a little bit like mine, apart from the size and where it is located. The MRI results will help to see if its the only cancer you have, then it will be clearer for the next course of treatment. I know several friends that have had breast cancer, but not in the way you have it, so photo's might be scarce. I know the team that will be looking after you will give you the best treatment needed, we are all different. I took Olly Murs new CD with me, when I had my MRI scan, but couldn't hear a word, but the nurses enjoyed him. Sorry you are going through this, I hope you have family and friends that will support you. from a very scared one to another.
Debcully
Member

Re: Lobular cancer invasive

Hope everything goes well for you tomorrow janemod. My fingers will be well and truly crossed that its all out and you don't need chemo 🙂 let me know how you get on wont you x
Debcully
Member

Re: Lobular cancer invasive

My story is...went to the docs re a change in my nipple. I was told I would need to go for a mammogram which I did on the 24 jan 2013 and whilst I was there I also had an ultrasound and a biopsy. A Week later went for my results on the 31st jan 2013 I was told I had invasive lobular breast cancer. I was told i had a lump behind my nipple approx 17mm in size, that I would need a WLE but because of where the lump was this would mean I would lose my nipple and areola as well as a chunk of my boob. Before surgery I would need an MRI (this coming Monday) then a meeting with consultant to discuss MRI results etc (next Thursday). After surgery poss chemo 3 weeks of rads and 5 years of tablets.
Think am still in shock a bit but me being me started reading up about it etc and am still finding it frustrating that I can't find any photos of what I may look like. As I said earlier the photos seem to be of a MX or a boob which has had a lumpectomy but no removal of the nipple.
i asked my breast nurse if she could show me any piccys on my next visit and even she hasn't got any. Surely to god I am not the only person to have this type of WLE.
deb 😞