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Lost for words

24 REPLIES 24
Sarahkears73
Member

Re: Lost for words

Thank you I will contact them x

Kiki2
Member

Re: Lost for words

Try covered 2go, they offer a policy with pre existing medical conditions and I got an annual policy worldwide for just me (not family too) for about £100 last summer , I'm 51 and had finished my treatment . X

Julia1
Member

Re: Lost for words

Hi Sarah

 

This site has been a real help during the those dark moments. I too have overwhelming moments of panic when it really hits you what has happened. It is good that we ll have regular check ups though. 

 

I had already taken out insurance prior to the diagnosis and so am covered. I just have to have a statement from consultant stating fit and well. 

 

Please se keep in touch xx

Sarahkears73
Member

Re: Lost for words

Have you found a travel insurance site that will cover this? I've not looked yet, hadn't arranged pre diagnosis. We are staying in a villa, can't wait, something to look forward to, I'm told they will work radiotherapy round it xx
Sarahkears73
Member

Re: Lost for words

Hi Julia, it's nice to know isn't it that others understand how we feel, much as I wish this wasn't happening to any of us. Mine is stage 1, have also been told it won't shorten my life and I believe them, the panic is what if it comes back, next time worse. We just have to hope that because of all the checks we will have, we will be safe. I will be keeping everything crossed that your op goes smoothly. I'm sure it will, I felt a huge relief that the lump had gone. Do keep in touch X 

Julia1
Member

Re: Lost for words

Sarah

Forgot to mention that we too are going to Florida on 26th March xx
Julia1
Member

Re: Lost for words

Hi Sarah

I know exactly how you are feeling. I m having a mastectomy on Wednesday after a diagnosis of DCIS. Even though DCIS is non life threatening and the earliest form of breast cancer, i have to have this done as in different areas of breast and they cannot tell if or when it will ever turn invasive. I feel as if I have been in a nightmare for the last 6 weeks. I too have a 13 year old daughter and also a 8 year old and all I have said to them is that I have cyst that keeps getting infected. Big hugs to you and I m here if you need to talk x
Sarahkears73
Member

Re: Lost for words

Thank you, a little calmer yes, at times it does just take over and you can't get back in control. I like the idea that 99.9% of my cells are healthy, I will try to remember that xx
Scareym
Member

Re: Lost for words

Hi Sarah

 

Hope you are feeling a little calmer today, its awful when the fear takes over. Its terrible when you feel like you cant control the negative feelings. I keep reminding myself that 99.9% of the cells in my body are all working together to get me and keep me well its only 0.1% of the cells that have started the rebellion and those little buggers are going to be removed and any that are around them are going to be zapped to make sure they dont get any ideas about causing trouble.  

 

We all have to find what ever way of thinking about it that gets us back to the positive because in my mind its the only way we can get through this. I dont think that until you diagnosed you actully realise why people always say that you have to fight cancer its a mental battle as much as a physical one.

 

I am sure that there will be many of the lovely ladies on here who will also offer thier wise words and hopefully it will help. Xxx

Sarahkears73
Member

Re: Lost for words

Thank you I know I'm not alone, just feel utterly terrified right now. It will pass, I hope xx

em32
Member

Re: Lost for words

It's a normal reaction. There's plenty of people on here who have felt / are feeling exactly the same way! Be strong xx
Sarahkears73
Member

Re: Lost for words

Feeling really wobbly tonight, panicky feelings just won't go away. No matter how positive things seem I'm terrified that they've got it wrong and I don't want to leave my family, my husband and daughter need me and I planned a long and happy life. Trying to get a grip on myself but finding it hard tonight 😔

Sarahkears73
Member

Re: Lost for words

I'm wobbling too, I think it's totally normal
Sarahkears73
Member

Re: Lost for words

Hi, I'm same, lymph nodes clear on biopsy but they took 3 for testing. Keeping everything crossed they are clear x

Sarahkears73
Member

Re: Lost for words

Hi, my diagnosis followed mastitis that wouldn't quite clear. I've avoided Google like the plague, panicking enough without adding more fuel to the fire! Having a 13 year old means I have to put a brave face on as I don't want her to panic. That works well most of the time but I do have the odd moment where I can't keep my emotions in check. Hope you are recovering well x 

em32
Member

Re: Lost for words

I'm Definitely going to have radiotherapy. My needle lymph node test was negative and they think they've taken enough healthy tissue away in the wide local excision but it's all about the microscopic tests to whether chemos needed this is the worrying part x
Scareym
Member

Re: Lost for words

Kim 

 

Its so true that Google is  not a good idea, hearing from others actually going through the same is the best support.  X

Scareym
Member

Re: Lost for words

 I have been told radiotherapy will be six to seven weeks after surgery assuming all healed and that results  are all ok. Cant get my head round going from its all ok to all the obstacles that could be there had no concept of how long the process was going to take. I feel really positive ( most of the time) occassion wobbles but have been told by my nurse that is normal. 

em32
Member

Re: Lost for words

Very surreal. I'm propped up in bed only comfy lying down with the swelling. We didn't see it coming either! Everyone I saw wasn't worried but went back for results on 11th Jan and bam! Everyone's struggling to get their heads around it. It helps when you know what's happening next. It's the waiting for results that's the problem not knowing what's to come next. You'll slowly come to terms with it all! X
Kim555pink
Member

Re: Lost for words

Everything you are feeling is totally understandable and natural. It's a scary thing to have to deal with. I'm 52 and was diagnosed in November following routine mammogram screening. Mine is/was grade 2 invasive (as 2/9 nodes were affected)
Being told it's totally curable is great, but it is still a shock and your mind does like to go into overdrive I found! My advice would be to stay away from Google!! This forum is the best place to be as a sounding board to get stuff off your chest, to get support and advice.
Take care x
Sarahkears73
Member

Re: Lost for words

Hi, I'm same, all caught early, yes I will need radiotherapy too, it's all very surreal. Hope your op goes very well I'm sure it will x 

Sarahkears73
Member

Re: Lost for words

Hi yes to radiotherapy. We are going to Florida on 25 March for 10 days so hopefully just after that. I'm exhausted too, sleeping propped up with my arm on a pillow, seems to be the only comfortable position. Feels surreal don't you think? I didn't see it coming so an awful shock. Hope you ok. Sarah x

em32
Member

Re: Lost for words

I had my wide local excision and sentinel node biopsy last Friday also. I'm healing well just absolutely knackered! I don't have my results yet have an appt on the 8th to discuss results and further treatment. Your news is great, but understandably your scared it's a lot to get your head around! Have you to have radiotherapy?
Scareym
Member

Re: Lost for words

Hi Sarah

I was diagnosed 13th jan after recall for routine mammogram.  Pre op on monday and surgery on 8th. Seems like its about some one else because I dont look or feel any different. I have been told I will need radiotherapy but all should be fine as caught early. Still scary though, only time in hospital has been to have kids so hate the fact that I am going to worse before I feel better.

 

X

Sarahkears73
Member

Lost for words

hi, I am Sarah, age 42, diagnosed 14/1. I had a wide local excision last Friday and a week on am sore but coping physically. Struggling with anxiety and emotions up and down. Biopsy results indicate no lymph node involvement, small tumour, surgeon tells me totally curable but I'm still scared.