It showed up on routine mammogram . I was called back to be told I had calcifications which needed further tests . I was told in majority of cases no further treatment required. The outcome was widespread DCIS hence the mastectomy , because had it of been contained to one area as it sounds yours is Id prob be in similiar shoes to you .
Iv had quite a bit of fatique this summer but apart from that absolutely no symptoms at all . To say it was a shock is an understatement , and even now it seems surreal . But the prognosis is good and I have a lot to be thankful for . How Im going to feel after the mastectomy who knows ? Its radical but I could not have participated in the trial with it being widespread .... the psychological aspect I feel would have been too difficult . There are some other suspicious cells too , so what exactly did that mean ?? Suspicious of DCIS I was told and when I asked radiographer how common was it to have mixed cells she replied very common . I actually anticipated that she was going to say " oh quite rare " ...at that point I knew my only option was mastectomy and yes immediate recon .
I understand your concern about how you will look and theres nothing I can say to make you feel better . I hope that you will find comfort in the fact that the DCIS has gone . Anyway Im off to sleep now its been a long day and hopefully these bloody night sweats arent going to terrorise me tonight . Thanks for chatting to me ...keep in touch . Steph xx
Ps . Coralie is such a pretty name ..dont think Iv heard it before . ( and Im not a weirdo ha )
My DCIS is 59mm x 25mm . To remove it would leave my breast half mutilated . I was offered the trial to leave it and monitor but that didnt seem an option to me because without taking the breast tissue to histology noone can guarantee me that there is nothing else there . Yes Im aware I may be faced with the fact Iv been overtreated but for me I can live with that far better than finding out in a year or so its become invasive because there was other undetected cells .
Your 7mm will be far less invasive to remove I would imagine . I think I can imagine how you must feel ..its just the knowing that something is in there and you want it out ... I do feel humble coming on this site when my diagnosis is what it is though but I guess many of the concerns and worry about of it are the same for all of us . Iv got to go now Im off for the dye today . Big hugs Steph xxx
I am at the hospital for less than 30 minutes broken down to say a 5 to 10 minute wait to be called, then 3 minutes to change into a gown perhaps another minute or so wait. Having the treatment takes about 5 to 8 minutes and most of that is them drawing on you and positioning you so you are just right. The actual zapping takes seconds, then you get dressed and can leave. You don't feel a thing while it is happening.
So far I am OK driving but it might get sore at the end I don't know.
I had Paget's disease and lost a nipple, I had it in June and now you can hardly see the scar (I have a starfish scar ask if that is suitable for you). They will tattoo me if I want to give me a nipple, I say if I want because after the op, the chemo, the rads and Herceptin for a year I might want to be left alone!
Sorry I cant answer your question but it would be nice to follow your progress. I have low grade DCIS and Im having a mastectomy 5th Dec . Im having lymph node removal this Thurs to see if there is any spread , obviously that will determine if my treatment plan remains the same . I was diagnosed back in Aug but because it was low grade I have had to wait but that was ok with me as many other ladies needed immediate treatment . Iv felt I should not have anything to complain about in the grand scheme of things .
I can understand some of your concerns about body image and I guess its scary and you wont know until after op .. Big hugs and lots of best wishes , hope all goes well . xxx
I am having rads now and if you have a genuine reason they will try their best to fit it with your plans. I prefer the early morning but it is not vital and my latest one is 10.15 so they try to suit you if they can.
I am sure any users who have had experience of low grade DCIS will be along soon to share their experiences. In the meantime you can always call our helpline on 0808 800 6000 who will be able to chat through your questions and offer a friendly ear. The opening hours are below.
Late opening Wednesday 9am-7pm