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Lump removed but wide spread DCIS found what would you do?

11 REPLIES 11
Guest user
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Re: Lump removed but wide spread DCIS found what would you do?

Thanks for your post allybally - I did suggest to my friend that if she decided to have a mastectomy that she could have a tissue expander put in at the same time so it was good to hear that you did and you are happy with the result so far - I have sent her your post to read. And well done for having the courage to have a bi-lateral.
Clarabelle xx

Guest user
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Re: Lump removed but wide spread DCIS found what would you do?

I had a double mastectomy on the 14th of Jan and yes i dreaded wakening up to see what it was going to be like!!!I have had tissue expanders put in at the same time and i have to say that i am so pleased with what the surgeon has done and words can't really express what i feel now,I have had the courage to show all my friends that have come to visit me as the scars and shape are just marvellous. I only had cancer in one breast but because i have the braca 1 gene was recommended to have both off,i have to say i am glad as it reduces the worry.Good luck in decision making xxx

Guest user
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Re: Lump removed but wide spread DCIS found what would you do?

Thanks for your comments so far - please keep them coming.

Jo_BCC
Member

Re: Lump removed but wide spread DCIS found what would you do?

Hi Magel,

I have put for you below the link to BCC's publication about DCIS, hope this explains things for you.

Publication link: http://www.breastcancercare.org.uk/content.php?page_id=689

Hope this helps,
Jo, Facilitator

rachy7
Member

Re: Lump removed but wide spread DCIS found what would you do?

DCIS mean Ductal carcinoma in situ which is precancerous cells but can become cancerous. Hope this helps Magel.#

Rach

ForumMember
Member

Re: Lump removed but wide spread DCIS found what would you do?

I agree with the others who say be guided by the doctors. No breast specialist is going to recommend a mastectomy unless absolutely necessary. As for DCIS not progessing to "proper" cancer, this is a very contentious area of research and no-one really knows how it may go. The fact that your friend already has invasive cancer would suggest that her form of DCIS is more likely to progress to cancer than someone with a small area of low grade DCIS and no history of invasive cancer. If it was me, I wouldn't hesitate to have a mastectomy despite it being drastic.

Merlyn
Member

Re: Lump removed but wide spread DCIS found what would you do?

I had high grade DCIS and a grade 3 lump. I made the decision to have a mastectomy before the dr had the chance to recommend it. But I was determined to have a reconstruction. I don't think I could ever have been happy otherwise. I found six months with a prosthesis very difficult to deal with.

The decisions you have to make are very difficult, and sadly nobody can make them for you.

Guest user
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Re: Lump removed but wide spread DCIS found what would you do?

What is dcis? I am waiting to have my lump removed & want to be ready for what ever.

carolec
Member

Re: Lump removed but wide spread DCIS found what would you do?

Hi
I had high grade dcis in three small areas with no invasive cancer and I was told that the recommended treatment was a mastectomy. I was also told that whilst it could have lay dormant, the cells could also turn invasive at any given time. I felt I had no choice as I wanted to see my children grow up (my youngest daughter was 2 yrs at the time). I didn't hesitate and had the mastectomy 7 years ago. Its a tough decision, but I would go for the mastectomy. You have no control over if or when pre-cancerous cells turn invasive.

Guest user
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Re: Lump removed but wide spread DCIS found what would you do?

Hi,
I have just had mastectomy for high grade dcis in two small areas, I also struggled with the decision as I felt it was rather drastic measures but the way I see it was "How will I feel if the cells turn invasive and I could have hopefully prevented that happening ," though of course nothing is gauranted.
Having a lump plus dcis I would not have given it a second thought.

Hope this makes sense

Guest user
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Re: Lump removed but wide spread DCIS found what would you do?

I would be guided by the advice my doctors gave me which in your friends's case is to have a matsectomy. I know women who have declined a mastectomy in similar cases who went on to get secondary breast cancer...unusual but it happens. Whatever she goes for she could be OK or she could get a recurrence, but doctors don't recommend matsectomy these days without good clinical reason.

Jane

Guest user
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Lump removed but wide spread DCIS found what would you do?

Hi,
my friend has just got the results of her lumpectomy - the lump was a grade 2 but they found wide spread DCIS and have recommended a mastectomy.
Now I guess most people would have the mastectomy but she is not at all sure if she should and I wondered what most people would do/have done in this situation and the reasons why for and against? I think she is of the opinion that as DCIS doesnt always go on to be full blown cancer that having a mastectomy is all a bit drastic - I had a grade 3 lump and DCIS and didn't hesitate having a mastectomy but that was what I felt was best for me.