So sorry your worst fears were realized but you are in the right place, we all understand what your going through, you will get through this like Laura has said chemo's really do work on lung mets and there are plenty of secondary ladies living with this, remember this is breast cancer that has spread and therefore its not the same as small cell lung cancer. I'm sure once you start your treatment plan you will feel better, unfortunately it takes time to come to terms with the dx, I'm still adjusting to my dx and that was over a year ago, this forum and the wonderful ladies on here will support you through this. If you want to chat just send me a PM (private message).
Thinking of you
Love and light
Definite diagnosis of lung mets to commence Gem/Carb chemo on Monday. Any advice would be very grateful. Hard getting my head round this at the moment.
I’m sorry to read of your recent diagnosis, its sounds like you are having a pretty tough time at the moment.
As well as the support you receive here maybe you would like to talk to a member of our helpline staff who are there to offer emotional support as well as practical information. The free phone number is 0808 800 600 and the lines are open Monday to Friday 9.00 to 5.00 and Saturday 9.00 to 2.00.
Best wishes Sam, BCC Facilitator
Hi snookie sorry your back here again but welcome it can be very hard at first dx but then u become positive and then want to fight this I'm tn with lung mets been on 2 lots of chemo in yr and both have shrunk mets they can't cure it no but can stable them and u can live a normal it's very I know I hate it why me bla bla but try to look on treatment and all the sec ladies on here that still going strong for many yrs gd luck pm me if u wanna chat tc Laura
Could really do with some support please - have been told today that I have shadowing on my lungs - have to have a biopsy from lymph node on Tuesday and see Onc again next Friday. I am in shock - diagnosed last May with Trip Neg BC and only just finished treatment for BC in Jan 2012.. My Onc tells me he can stabilise my condition - please can someone give me some positive thoughts here. Have had to start on Valium. My daughter graduates July I am in bits here - I am desperate to see her graduate. Didn't see this coming and went to the hospital on my own today - only prob had been a chest infection after a holiday abroad. I felt so well, how wrong can you be.Should've been returning to work in the next couple of weeks
Sorry for such a long rant - I just needed to put something down.
Just want to join the others in saying that things will get better. I was diagnosed with lung mets 6 months ago and was devastated! Didn't eat properly, couldnt get my head round anything but thanks to this forum I am now coping well. Have gone back to work and doing everything I did before the mets were dx. Like you I was 3 years since the primary and confident that it wasnt going to come back but I am now on Tamoxifen and my last scan showed that the mets are stable.
I'm eating healthier meals than I used to.Trying to eat lots of fruit and veg and drinking juice etc. Also green tea which is very good. Not stopped the chocolate though or the wine!!
Hope everything goes well for you. I'm sure you will feel as I do in a couple of months or so.
Take care. Sheila x
Hi Nuttytart, Ladies,
Like everyone else has said so so sorry you've got to join our club but you are on the right thread, we all understand completely what your going through, initially its hard.. trying to come to terms with the dx, it takes the passing of some time and a treatment plan too get your head around this once this has happened you will feel better and instead of it being right in your face it kind of sits somewhere on your shoulders and then behind you, what I'm trying to say is at the moment its all about the lung mets and its very raw/fresh, with time it will not be such a constant thought, you can live with this and treatment really does work on these mets, also remember this is secondary breast cancer not lung cancer, so basically all the treatments for breast cancer work on these mets that includes herceptin if your Her2+ and tamoxifen if your ER+. If you ever want to talk just pm me, sending you lots of luck for your results next wednesday and thinking of you.
Love and light
Hi Nuttytart. sorry you have had to join us but your in the right place for advise and support, we all know how your feeling, we have been there too !!
if you need anything just Pm me or any of the other girls we are only to happy to help.
A big Hug xx
Hi Nuttytart, I am about 3 weeks in front of you and know how you must be feeling. I was 3 years down the line and it was devastating to get the news, ended up not eating and on sleeping tablets and anti depressants. I feel like I`ve never stopped since with tests for this and tests for that, it was also found I had mets on my spine. Anyway the good news is I have started having an infusion every 4 weeks for my bones, yesterday I had a one off blast of radiotherapy onn my spine and today my first chemo of tax. I must admit although I feel a bit bashed about as I have been told of the SE`s from both radio and chemo I didn`t expect them less than a day apart. Still I will hopefully get it all over with quickly. I am having tax 3 weeks on and one week off.
Keep your chin up and if you need to talk I`m here to share the little I know.
Hi, I was disagnosed with Lung mets last tuesday, 99% sure secondary breast cancer would have been my 4th year clear. Still waiting for some results which I get new wednesday.
Would be grateful for advise, as I can get my head round it. I am positive with people around, but so annoyed with them when they say we pray for you and keep positive. I am polite and say thank you.
But what can you say to them.???
Sorry for a rant, but thats how I feel at the moment, in nomansland till I get the results.
Hi Jean, Oh yeah thats right your mets have too be minimal ie: 1 or 2 and they have too be larger than tiny, basically large enough so they have something to aim at I suppose. I feel the same way as you do I want to know what's going on with my lungs, the last scan was directly after surgery mx with lymph clearance and it showed no change since June so I thought it was going to be scan every 3 months but it would appear every 6 months now, so worrying since my last scan I have done 3 weeks of rads, been taking tamoxifen for 6 months and continuing with the herceptin and want to know if all of this has had any impact on the lung mets, I told my GP twice about this concern and he agreed with me he has written to my onc twice and asked when my next scan is so far nobody has replied, tried ringing my oncs secretary still no reply its exasperating to say the least and short of becoming an absolute nuisance which I really don't want to do like you said what else can we do!
Wow £22,000 per met is astonishing how much all these treatments cost, I know one lady on here who has had cyberknife and she got it paid for through a charity.
Sending you lots of love
Hi Sarahlousie, I am fairly well at moment, I have a frozen shoulder as a gift from rads but other than still being tired I am ok. My Onc won't let me have a scan as she said it's not needed yet, My next one will be in July a whole year since my last one !
I am not happy with that but what can we do ?
She says my one met is as good as gone so why am I worried, but of course I want to know what's going on.I am on Herceptin and Letrozole.
As for Cyberknife I am willing to try anything to clear my lung but if it's too small they can't treat it apparently, I am willing to go private if necessary.I had a quote from Harley st clinic it costs £22,000 per met !!
Hope your doing well and long may it continue.
Love and light back at you xx
So sorry to hear your worst fears were realized, you are on the right thread for support and understanding, like tillybob jean has said initially the shock and everything its just dreadful but as time goes by and your treatment plan starts you will feel a lot better.
As far as treatment goes I had x1FEC then they found the lung mets and changed it to x5 taxotere, the FEC I was really really ill, the tax not so bad didn't feel sick throughout made sure I got plenty of blood building foods down my neck so my blood count was up for the next round, I remember eating whatever I liked and that included red meat good quality, also after having mx when I was aneamic I ate liver and onions my bloods shot up the very next day!! If your vege try making some watercress/nettle soup I wrote the recipe for this out another thread see below* this is great for building bloods loads of natural iron, obviously where possible stay away from anyone who has any bugs cause your immune system will become depleted. I also was taking optibac probiotics for immunity all the way through as well as evening primrose, fish oil omega 3, selenium tabs, vit d and c. The tax worked shrank all my lung mets to tiny and since last scan in Oct they are classed as stable, due for another soon. It worked for me and tillybob it will work for you as well.xxx
Here's a recipe for Nettle and Watercress Soup you can buy the watercress from the local supermarket and collect the nettles from the countryside (make sure where ever you collect from is free from roads people and pollution) using rubber gloves pick only the new fresh tops and fill a carrier bag about half way, make sure to wash thoroughly.
Nettle & Watercress Soup
Peel x4 medium sized potatoes and boil until soft whilst they are boiling
Sweat some chopped onions and garlic in a pan with olive oil or coconut oil
add about a pint of some organic vege stock cube
then add the washed watercress and nettles
simmer them for about 10 - 20 mins
then add the cooked potatoes
and blend the lot until smooth and soup like consistency
delicious served with some warmed garlic bread
Tillybob - Hi jean hope your doing well, wanted to ask how often do you have scans? only mine was nearly 6months ago and I'm a little anxious to get the next scan done and dusted, I've been on tamoxifen and herceptin ever since, so not sure if the tami is doing its stuff or if its the herceptin.
Great news about you only having one met left thats just fantastic, your probably eligible for cyberknife now, as I think they only treat mets on the lungs if there isn't that many.
Sending you all
love and light