Great news Sarahlouise. I am blowed away about your news. I have checked out your blogg and really gained alot of information so thankyou for that. Keep going. XX
I dont come on here very often anymore but wanted to share my fabulous news with you all and pass on a much needed boost to anyone whose affected by lung mets. Saw my onc today he told me that " the lung mets have disappeared" and after 3 years of living with this knowledge that my lungs are now clear. I sat there in total shock and can't believe how lucky I am, it appears that something is working at getting rid of the bad cells. All the drugs ie: hereceptin/tamoxifen, jucing, hemp oil (early days), the supplements and the weekly spiritual healing are all worth while, obviously we can't say exactly what it was that obliterated them but the important thing to remember is that something did work. If you want to know what supplements I take or what diet changes I've made I've listed it all on my blog http://livingwithsbc.blogspot.co.uk/
There was only one grey area and thats on my liver there is a mass there but they still cannot define exactly what it is it could be cancer that is stable or it could be fatty tissue, my onc is writing to the radiologist to ascertain what tests we can do to find out exactly what it is that shows up on the scans whatever it is has been static and non moving now for quite a long time and he wasn't overly worried about it although he did say we are going to keep an eye on it with 3 monthly scans.
I hope this has inspired you all that there is hope, we can beat this thing. I sincerely hope and pray you all have an outcome like mine.
Sending you lots of love and light xxx
My Mum was diagnosed with triple negative breast cancer and had a mastectomy/chemo/radiotherapy 4 years ago. She has just been diagnosed with lung mets and is very breathless - even putting on clothes is a challenge. What I wanted to ask is whether there is a possibility that chemotherapy will help reduce the breathlessness.
Hi ladies, haven't been on here for ages as I now use the secondaries for younger women page on facebook. Thought I'd check in with you all have been living with lung mets for nearly 3 years! can't believe it's been that long since dx! I'm being kept stable on herceptin and tamoxifen, today I should be receiving the subcut herceptin which is fantastic as my hand wont be able to take anymore needles and I would of had to of had a port, thankfully the subcut goes straight into fatty tissue, so far I only suffer with minimal side effects from the herceptin, not so for the Tamoxifen I struggle with severe side effects but have continued to take it, although I am considering taking a short tamoxifen holiday. I've started to get out of breath quite a bit but I don't believe its the mets I think its got more to do with the 5 stone I've put on taking tamxoifen I've gone from a size 8 to 18 in the 2 years since starting the tamoxifen I'm not used to this weight and struggle a great deal. I exercise daily and eat sensibly its definately the tamoxifen that has caused this in me and I can't wait to stop taking it. I get slight lymphodema on my affected side and also some pain in the shoulders and back I tend to take co codamol if it gets out of hand and so far that is working for me. Hope you are all doing ok and wishing you all a Happy New Year love and light to you xxx
Hi there i am new to this thread.
Diagnosed with lung and bone mets about 18months ago. Bone mets stable on denosumab and tamoxifen but lung mets progressed to point of making breathing very tricky so now on Capecitabine - this seems to be working as I can now hold a conversation with out huffing and coughing. The great thing is being able to sleep with 2 pillows rather sitting up right, it is so nice being able to snuggle under the duvet again.
Chris - interested to hear that you have pain. I have had a lot in my left shoulder an upper back. It is hard to get anyone to take it seriously. what painkillers do you use? I feel I am taking such a mix that they are making me sick and dosy especially onto of the Cap. Wondering about asking to try transdermal patches. I have lost 7lbs over Christmas despite my best efforts to do otherwise..
Sorry to hear that things are so rough for you HITS hope things are looking up for the New Year.
Cheers - Jacqui.
Hi Chris. Just replied to your message but it didn't go for some reason. Here goes again. I'm glad you had a good Christmas. I did too. Since coming off the e/e combo my appetite has increased so have been at the mince pies etc. This will probably change soon as am starting chemo on 8th of Jan. Will make the most of it though until then. Hope your lungs remain stable and your pain is resolved and wishing you all the very best for 2014. Sheila. Xx
Just wondering how everyone is doing? I had radiotherapy and it was amazing for two weeks but I've had quite a lot of pain and upped my pain meds which is helping so fingers crossed for that. Lungs mets seem to be OK at the moment.
I hope you all have a lovely Christmas with great memories. I have a hard Christmas as m husband is just out of plaster and lots to do. Girls helped which was great,
It'd be lovely to hear from you all.
I took ill health retirement from the NHS last year. If you have a terminal prognosis and the NHS pensions agency agree you can take all of your pension as a lump sum. The pension you get is enhanced by 2/3rds of the amount you could expect to receive by the age 60. ie if you are 51 say you would have 9 years to your 60th birthday so pension would be enhanced by 6 years. Alternatively you can apply for tier 2 ill health retirementwhere the pension is payed partly as a lump sum and partly as a monthly amount. You cannot receive survivor benefit or "lifeinsurance" yourself. Sounds like you need to talk through options with your trusts pensions officer! Also may be worth consulting a financial advisor.
Best wishes. Pamx
INteresting as i work in the NHS and have recently received a forecast for early retirement due to ill health for Lung mets and i was wondering if i coiuld get all the lump sum including the survivor pension as i have no one to leave it to also the life insurance. does anyone know if i can claim all this now ?