Beautiful day here in Solihull!
Yoga done, pineapple and B17 eaten and now off to visit my uncle who's recovering from hernia operation,
Good news, saw my Onc on Monday and blood test shows cancer markers dramatically reduced! Cape is working then. Feeling amazing and looking forward to healthy happy days!
Also my partner has booked road trip to Italy which i'm more than excstatic about! Flying to Venice, hiring car and drivin to Lake Garda, Florence, Rome then Amalfi Coast finishing in Rome again where we fly back to UK. I have family in Rome so will be staying with them in the Pizzeria Ristorante! Yum!
Hope everyone is feeling well and happy!
Love and light always around you,
Chris, so pleased for you! Seems eribulin is the way forward eh? I started on Capecetabine today. hope it will work for me. My Onc said he doesnt think hormone therapy will fo much for me being weakly positive so looks like it'll just be chemo,
He showed me my ct scan and explained that I have only 2 mets but they're not exactly in the lung but mainly round the windpipe. He also said that they arent the typical breast mets presentation but in fact they are imitating lung cancer although he knows they are definitely breast mets because of the biopsy results.
He also said that they will still treat them the same regardless of presentation. I wondered if anyone else has anything similar to this?
I felt a bit worried in case the chemo isnt effective and they keep growing, what will eventualky happen if I cant breathe?? He did say that if that did happen way down the line, they may have to intervene with surgery but there are lots of options to try first.
Love bev xxxx
Just still a bit concerned that I havent heard anything from lulu for last couple of weeks....has anyone heard how she is since her last hospital admission few weeks ago? Hope all's ok with her. Sending her lots of love and cyber hugs xxx
love bev xxxxx
Sorry to hear you have had progression. It's a shock when you find it has moved to another area isn't it. Hope the eribulin works wonders! I have had enlarged lymph nodes in my lungs for about two years and they haven't got any bigger.
Take care. Love Sheila xx
Message to Chocolates
I logged into my account today and all my recent messages have disappeared but in place of those are messages that relate to 2012!! If you've sent me a message let me know. XXX
BCC please can you reinstate my recent messages? Why has this happened?
I can't say I wheeze but I do clear my throat a lot although I have mets in pleural lining which are just cells and not tumours.
I'm on Cape and have a scan in approx. 2 weeks so will see if it's had any effect as I have new primary in "good" breast which is the same dx Grade 2 estrogen + and with a little added progesterone which wasn't in original dx. Her2- so no Herceptin for me. In fact onc said no hormone therapy whilst on Cape.
It's my 2nd month running where I've had a period which concerned me but doesn't seem to be bothering my onc. I do however have a blood test this coming Friday for full blood count and to see if ovaries are back in action.
I was on Tamoxifen from Sep 2012 until April this year as it had no effect on stopping cancer from returning in other breast.
Has anyone heard from Lulu?
Love and light to all
Hi BC lass,
I have lung Mets and do get a wheeze sometimes. Usually when I wake up in the morning. I listen to it as I lie in bed. It goes as I start moving around. It does seem to be a bit better at the moment. I wonder sometimes if it is due to the Evorilmus I was taking until Dec as it can give you lung problems. I have some non cancerous granulomas on my lungs which i didnt have before and my lung Mets have been fairly stable since they were found in 2011.
I haven't taken anything for it as it isn't that bad.
Hope you get it sorted. Are you due to see your onc in the near future?
Love Sheila xx
Thanks Helen...really appreciate all the uplifting comments posted on here. I have so many worries with being newly diagnosed...like what if I dont respond to the treatments and how many are there exactly?? And I so much want to be one of you lovely ladies that go on for years on treatment but I have known 2 ladies locally who only survived around 2 years after dx....so sad and very worrying.
Why didnt treatments work for them?
Anyway have to stop speculating...it'll drive me round the twist! Looking forward to another hot sunny day by the pool and yes...I did treat myself to a lovely cocktail last night!
love to all♥♥♥
Hi Sally...I was dx with lung mets too 6 wks ago. On holiday in Zakynthos at the moment for 2 weeks but back on 30th and starting chemo 2 days later! I had 2 mets 5cm and 2.5cm in right lung. Will be starting capecetabine orally but also offered taxotere as alternative. Onc said no difference in efficiency but obviously no hair loss with Cape or very minimal.
Hoping my tumors will shrink as starting to feel some rib pain now where the larger one is at base of lung near ribs. Feels like cracked rib when I breathe but 2 paracetamol eases it quite a lot. Glad to hear youre doing well and I love swimming too...looking forward to getting in that pool today!
How long since your dx?
Love Bev xxxx
Hi Bev. When you have a bleed into a space like lung (or stomach etc, etc) the blood starts off red. but then it begins to get broken down and reabsorbed. As it gets broken down by enzymes etc it begins to go brown in colour...if you cough this up it suggests its old blood rather than from an active bleed. However it will eventually be reabsorbed.....Glad you are feeling ok...relax and enjoy the holiday!xx
Thank you...will ask when I get home. Had an unnerving morning while waiting to board our plane. Started coughing just a little but felt it a bit loose and when I spat out the saliva into a tissue it was brownish coloured not the red that it was previously. Up until now ive only coughed a small amount of blood (less than 10p piece size) just 3 times in the last 6 wks but this change of colour today has me worried. I text my bc nurse to tell her and she replied that if I am still feeling well, then I just have to go with it for now. Can anyone help ease my mind please?
Love Bev xxxx
Hi sue...sorry I should have been clearer, If I was still travelling next monday I wouldn't start the chemo till the week I come back. Thats my dilemma really...do I delay treatment 3 wks to have hol first? xxxx
I agree with SueC that I also felt awful (also with same problem!) after my first cycle. However things settled down after a few cycles and I find I can travel etc and get on with life in general whilst on Capecitabine. I hope that you are able to travel after you have finished with it as I read your post as meaning you will only be having 3 cycles? I would also back up the other post (Pam? - sorry, can't read back on this bloomin' forum!) to say take out Eurotunnel insurance. The newest wording of their policy is that if you are fit to travel etc you will be covered for pre existing conditions - and it doesn't cost the earth! Hope you get on well with the Cape and you get your holiday - boy, do we all deserve them.
Bev I have replied re my views on the other thread...........Even though you already have travel insurance it may be worth having additional insurance from eurotunnel to cover breast cancer if you consider travelling next week.xx
Advice needed quickly please from Capecetabine ladies! Due to me starting Capecetabine next wed my holiday next monday to greece has to be postponed.
Having 3 cycles and the last ends on13 august. I can switch dates of flight to fly on 25 Aug.
Will I be sufficiently recovered from any side effects by then and be able to travel?? Ive only got till Saturday to change dates with travel company. My onc has said that I am medically fit to travel next week but was worried that if I became ill while away (and cancer related illness excluded from my insurance) then the cost to get me home would be around £30,000!
Your advice greatly appreciated xxx
Love to you all and hope youre all doing well in fighting the fight!
Hi helen..catlady. just wanted to wish you good luck this week...hope all goes really well. Will be thinking of you xxxxxx