I have just completed five of eight treatments of docetaxel for nodules on my lungs. I had 3 nodules and two have responded to the treatment, but one has grown. I have been told by the Oncologist that it may still respond, but if it does not they will do a biopsy on it. They are waiting to see if it responds. When I asked the Oncologist if it could be another type of cancer, she said yes it could be. I asked so what kind of cancer and she replied that it could be lung cancer. Am feeling very anxious, has anyone else experienced anything like this? I apologise if this is the wrong site to post this request, am new to the Forum.
Hi, thanks for your reply. It's really encouraging to hear you've been on tamoxifen for 3 years.. when you first hear the diagnosis and read things on the internet you fear the worst but the more I read I realise it can be a condition that people live with for years. My mum has had bone scan and there are a couple of spots on her skull but apparently that is expected and apart from a little on her sternum the rest is clear so i think that is good news.
She seems well on the medication up to now so fingers x'd things will carry on going well on the tamoxifen.
I am also encouraged that where we live there is no postcode lottery for treatment and my mum has been told that whatever is available she can have if it's needed.
Does anyone else have experience of not being able to get the treatment they need?
Love to everyone x
Hi everyone, well my mum has finally seen consulatant today for her treatment plan. Doc said it is very slow growing and has put her on tamoxifen for a period of 3 months initially and possibly some injection of bone scan shows anything. They will then re-assess and do scans etc.. is this normal?
My mum is encouraged by this, as we all are.. does anyone else have any experience on this treatment and how did they go on it?
This is all such a roller coaster, good days and bad.
Best wishes to everyone x
Just read your post, Im slightly different in that had initial primary cancer 4 years ago and just been diagnosed secondary lung mets. Like you I have been on Letrozole till it stopped working. Had my first chemo 2 weeks ago. But like you, I have had the throat clearing sensation for quite some time. Not sure if it is the cancer or not, have been ignoring it up until the diagnosis. A question for the onc when I see her next.
Very best wishes
Hi everyone, I was diagnosed with secondary breast cancer 19 months ago breast and bone cancer at initial diagnosis. At first I was on letrozole up to last dec which was great but it stopped working. Since then have been on e/e combo though only 3/4 dose due to se. I had results of scan and onc said I now have mets to my lungs but quite small. She called this stable. I have a sort of tickle in my throat and chest and I wondered if this is the cancer effecting me, has anyone else expierenced this. It makes me clear my throat alot not actual cough. Sorry to ask but worrying alot as not sure I agree with 'stable ' if now in the lungs. Have to have another scan in 3 months, long time to worry!
first chemo not too bad, got some constipation, but Senokot helps, very tired Sunday, but bounced back today. See what tomorrow brings.
Next chemo on 15 May, Im calling them my chemo refill days.
Anyway Dennimac, how are you getting on, hope things are going well.
Thanks for your note. Must have been hard having primary and secomdary diagnosed at the same time. At least I had 4 years respite.
Anyway I now have my first appointment for chemo, starting on Friday.
Love to you
Thank you.. see I may well call one of those help lines in the next few days. Nice to see all the love on here xx
thanks for your reply. I'm sorry for what you're going through too and at such a young age too!!
At the moment she has been told that she has fluid on the lungs and has swollen lymph nodes on her chest so because of her history ( and her other symptoms such as pain in chest and persistent cough) they are very worried that the cancer has returned. She is still awaiting results from biopsys that were taken yesterday.. apparently it could be as long as Monday til she gets the results which seems crazy to me.. all this waiting around is awful!
Maybe if I could get back in touch with you once we have a firm diagnosis and plan.. would that be ok?
What treatment are you on and how are you doing in general?
Many thanks xx
Hope you don;t mind me messaging you but I feel lost and thought you may be able to help me.
My mum has just ( yesterday) been told than in all likelihood her breast cancer has come back and she has swollen lymph nodes in her chest and has had a bad cough for months so it's all pointing to secondary breast cancer in the lungs.
My mum had breast cancer almost 5 years ago, had a mastectomy and one lymph node removed even though there was only the smallest trace.. in fact the doc said at the time that severa years before it would have been classed as clear. Anyway, she had chemo and since then has been clear and thought all was ok.
I know there is always a risk of it returning but it's such a bloody shock!! My mum is taking it very badly and seems to already be thinking her life is finished. I've not a clue what to say to her and I feel so weak and hopeless because I don't think I am going to be styrong enough to support her.
My mum is also my best friend and the feelings are so extreme that I just want to burst into tears every time I see her, which I know would be no help to her at all!!
I'm 41 by the way, not a child, my mum is 67. Any advice you could give or experiences you could relate would be very much appreciated.
Many thanks and much love.
Welcome to the BCC Forum. You have come to the right place for information and support from your fellow members and I'm sure you will soon have some replies.
I've also attached a link to the section of the forum for family and friends where you might find some support for yourself:
Very best wishes
Hi Funnyface, I've been on a continuous combo of Herceptin and hormonal ie: first Tamoxifen then Arimidex Luckily for me this has worked and completely resolved the lung involvement although I still have something suspect on my liver which is getting smaller. I was stable for about 3 years then all of a sudden they just disappeared and I hope have permanently gone. Although I am having to stay on the drugs forever which is ok however I do suffer with extreme side effects which are having to be controlled with other drugs.
Agree always hold onto hope good to talk to you all xxx love and light Sarah xxxx
Sarah, I'm impressed yours disappeared. Mine have never done that!! They have only ever shrunk a little or stayed stable, and grown. Gigli always hang on to hope!
Thanks for your note. Very glad you are doing well.
My secondary was found when I had a routine artery scan for an aneurism on the aortic artery, and they found fluid in the lung. Tests found breast cancer cells in the fluid. It was of course a huge shock as I did'nt feel unwell.
Still, onwards and upwards, I'm just waiting now to start my chemo to start. xx
Next month I will be upto my 2 year mark. The time has flown so quickly but on the other hand it seems a lifetime ago. Feeling happy and postive - the sun is shinning and I've even been in a betting shop for the first time and placed my first bet on the Grand National. Beginners luck I'm hoping. Life is good. Looking forward to the future. X
To all the newbies myself and funnyface are living proof of life after a secondary lung dx. My lung mets have completely disappeared and I was told the scans lit up liike a xmas tree. Keep going with your treatment plans, and look after yoursleves, eat well, and give yourself some treats. When going through chemo I didn't feel much like laughing but found watching some of my favourite comedy films dvd's really helped to lift my mood I find you can see clearer when your mood is lighter add in a pinch of hope thats all anyone can do.
Funnyface, 9 1/2 years is just brilliant, I'm 4 years down the line your an inspiration thanks for checking in.
Sending you all lots of love and light Sarah xxx
Hello Myplace, I haven't checked in for a few days, so just seeing your message. I'm sorry you had to join us and I'm sure you are whirling with diagnosis, tests, and treatment plans. I have lung mets, and have been dealing with them for 9 1/2 years. You will get your head in a better place once you ha v e a treatment plan! Hugs, Funnface
Ive just been diagnosed secondary BC in lungs. Bit of a shock. Im waiting to be called to have pickline and start chemo.
Ive not used a site like this before so excuse me if not doing it right.
Hi Bevlaar..just noticed your posts on the lung thread...have 'spoken' to you on other threads but was interested to see your post about the cough/breathlessness/ throat issue dring cape cycle. I also have this...i was couighing up mucus (sorry..horrid subject). Had loads of cough medicine etc..always felt like there was something to 'get out of my throat'. Fortunately this has cleared although i still get the breathlesness. Often feel like i have a tight band around my chest and that someone is standing on me. I had the same thing first time round and it was always put down to anxiety. In any case please mention it to your onc.
I've also noticed that you often sufer from insomnia, as do many others, including me. At my last session with my psychologist she recomended some apps for relaxation, meditation, sleep etc. Have put some on my phone but havent realy tried them out yet...just thought they may help ....they included Digipill, headspace, relaxation-sleep...but there are loads.
I know most people tend to use the bone mets thread so mayne you could help pass the word on. Much lovexx