Hi! thanks for the answers!
Finally femara stopped only 5 months after taking it.. it was sad because was working awesome.. in the first scan all tumours shrinked and the smallest disappeared (left lung is """"free"""" tumour now thanks to femara)... CEA from l 45 to 15 but anyway, in the last scanner, one node is 2 mm bigger and one tumour 5 mm so my mum was asked for a clinical essay: examestane plus palbociclib vs. capecitabine ["sadly" (who really knows) she was selected to capecitabine]
So she is taking 4 pills in the morning and another 4 in the evening.. isnt it too much? she is 1.61m and 60kg (in the uk i think its 5'3'' and 132 lb), 53 years old.. 2 weeks on treatment and 1 free...
Hugs from Spain !
Thank you Sarahlouise for your info/advice. I have been googlin the side effects of denosumab and that has made me feel a lot better as some of them sound similar to how I have been feeling!!
Take care Janette xxxx
Kittycat, Yes I also wish they had taken my ovaries and the other breast at the same time as Masectomy but my surgeon refused to take a healthy breast regardless of the fact I had secondaries. I recently had an Onc. appt. where I asked about having ovaries out and they flat out refused and said the Zoladex was doing a good job so no need for ovary removal. Personally I would rather they took both ovaries and the left breast as I am now like you said a lot heavier gone from an 8 - 18 and the remaining breast is very heavy and makes me look lopsided. I can't wear a bra with prosthetic as I have lymphedema on my rhs torso rather than the usual arm. So it looks dreadful. Symphathise with you Kittycat xxxxx
Hi Sarah Louise my periods returned about 3 years after initial treatment but nobody seemed concerned. I often wish I had had my ovaries removed back then. As soon as I was diagnosed with secondaries in 2012 they took them out! I also have put 4.5 stone on!! Was size 10 and now 16-18! All the very best xx
Hi janette, Sounds like you have a plan seeing Onc. next week you can discuss the cough with her. I am on Arimidex with Zoladex shots 3 monthly and every three weeks herceptin. The menopausal symptoms have recently become a lot worse since starting on Zoladex. I had to have zoladex because I had a period after nearly 4 and a half years!!!!! Yes it certainly is a nightmare but we are winning all we can do is to carry on doing what we are doing, something is clearly working in both our cases eh!! I'm also trying to lose weight as I put on a whooping 5 stone since being on treatments and the forced early menopause. Been cutting out carbs and lost 6lb in a week!!! So no pastries, bread, white potatoes, sweet treats, chocolate, and diary just been eating organic steak, fish, salad, avocado's, vegetables, fruit, feel better for it and got everything crossed more of that horrible weight will fall off. Anytime you want to chat you can always private message me. Lots of love to you xx
Hi Sarahlouise, thank you for your reply, think I've calmed down a bit now! I usually do try not to get paranoid about every little ache and pain but I think it's because of the weight loss as well....However I have been trying to cut down as we go to Cyprus in 3wks so hopefully it will be that. It's a nightmare living with this horrible disease isn't it!!! I am on tamoxifen and have zoladex and denosumab injections monthly, my onc did say that she may change my tamoxifen to letrozole as my markers have been slowly rising. Can't wait to speak to her next week.
Hugs Janette xxxx
HI Janette, It is hard but try not to worry too much about this, as your previous scan was as recent as July I don't reckon it can be lung mets we all worry when we get any new unexplained symptoms aches and pains but most of the time its the normal bugs and infections that everyone gets. If it is a nasty bug then GP might be able to precribe anti-biotics. I had multiple mets to lungs which have disappeared with ongoing treatments which I am on forever. I've also had scary coughs but its always turned out to be something 'normal' like flu/colds bugs etc. Also Herceptin can cause unexplained coughs which I get on and off an unusual side effect but never the less still a side effect. Hope you get some help with this soon. I would try some cough mixture as a first port of call see if that settles it while you wait to see Onc. next week. You could try phoning onc.s secretary and booking an appt. xxxx
Hi ladies, I usually just hang on the bone mets thread.
Would just like a bit of advice please, dx with bone mets last year and have been stable since but for the last couple of months I have had a bit of a tickly cough also throat and chest feel dry and tight, I weighted myself this morning and have lost 4lbs since last week. My onc is away til Tuesday also my bcn is away til next Thursday so don't know what to do.....totally convincing myself that I have progression to my lungs 😦 had a CT in July which was fine though. My hubby has said to go and see my GP but I don't really see the point as I think he will say to contact my onc???
Thanks Janette xx
Hi everyone I had some breathlessness last year and was admitted into hospital as they were concerned if it was a clot. Anyway all clear and no answer to breathlessness. I think stress and worry does more to our bodies than we realise! Take care & love to everyone xx
That's great news Helen. I have a good oncologist too. Couple of months ago I was admitted to hospital with a suspected clot on my lung. I had scan the following day then was told I could go home and come back next day for results. I was concerned about that as my son in law was away and I would have no way of getting back. My oncologist appeared on the ward at that point. She realised why I was worried and said don't worry I'll sort that. She was back in half an hour with the results no clot so I could go home. Breathlessness was put down to a virus.
Helen that is such a great Onc to do all that so quickly and thankfully for you it was a good clear scan. As for the breathlessness I would assume its the drugs your on, I get breathless and as the lung mets have disappeared I put it down to the Herceptin after speaking to the nurses they have told me other ladies suffer the same side effect, maybe look further into the side effects. So pleased for your good results. x
Hi Helen just wondering how you are feeling now. Hope something positive came out of your meeting with the oncologist
Hi Helen hope you got to speak to your oncologist secretary yesterday and that they were able to reassure you. Pat x
Hi Helen I am sorry to read that you are feeling so worried at the moment, along with the support you have here, you are welcome to call our helpliners to talk your concerns through, lines are open today 9-5 and Sat 10-2 on 0808 800 6000 ( weekdays 9-5)
I was in a similar situation to you. Very close to my daughter who had a rare lung disease. We kept each other going texting and messaging on days when we couldn't get together. Sadly she died in June aged 47 now i am staying positive whilst living with SBC for the sake of her 3 boys. Like you I have many good friends who help out with lifts to hospital for scans etc.
i hope everything goes well for your daughter.
Not sure if this helps, but I am a Mum with SBC. My daughter and I are also close and I have said to her (and everyone else) just treat me as normal. Never tell me I'm brave, I.m not. If I need help give it, i.e. couple of hospital stays recently, but otherwise carry on as normal. I am lucky enought to have lovely friends who accommpany me to Chemo sessiions.
Unfortunately. my daughter has recently been diagnosed with BC and she has said the same, treat me as normal.
Privately of coursed I prey she can be cured, not least because she and her husband have a beautiful 10 month old.
I just wanted to say Hi as I too am someone on her because my mum has secondary breast cancer.. tough isn't it?!
How is your mum doing now?
My mum is on tamoxifen and has secondaries in lungs and bones.. she is doing well but I sometimes find it hard to know what to say and how to react. we are very close and it's horrible watching her going through this.
positive thoughts your way..
I'm new on here. I thought I would introduce myself. I was diagnosed with breast cancer in 2004 and had a radical mastectomy followed by chemotherapy. In 2011 i had a collapsed lung and the CT scan revealed the presence of cancer cells. I had secondaries in my lung. I was put on letrozole in August 2011 and this kept the cancer under control until January 2014 i was then given a course of chemo and after that i went on to Exemastane. In May this year I found a lump in my remaining breast. An ultra sound found 3 lumps in the breast area. I am now on Fulvestrant injections. Hoping this will bring the cancer back under control.
is anyone else on the injections?
Hi!, i tried to reply this topic but i think i did something wrong!
I wanted to ask you how long letrozole worked for you??? My mum has been taking letrozole for 5 months.. it was working for her.. the smallest tumors dissappeared and the others reduced. Tumor markers went from 45 to 15 but 2 days ago the tumor marker has increased from 15.6 to 25.4 so the onco said she wants to check a new scanner because the letrozole could have stopped working or its just for something random...
I am lost with that because if its not working.. letrozole only would have worked like 4 months..
My mum secondaries are er+ pr- her2- she wasnt on homonotherapy when she was diagnosed in 2008
Hi, i wanted to ask you how long letrozole worked for you? my mum has been taking letrozole for 5 months. It was working for her.. tumor markers went from 45 to 15. The smallest tumors dissappeared and the others reduced but 2 days ago de marker went from 15.6 go 25.4.. the onco wants a scaner to know if it stopped working or just tumor marker increased for something random
I've copied my thread here from another section as suggested by a contributor. Still in a haze. Gutted.
My BC diagnosis and treatment started in Oct 2006.
After mths of blood tests then 3 dif scans, I now have a diagnosis of lung cancer, presuming BC mets. No biopsy yet, but scan conclusive. All of these tests were done via my GP, who today refered me to a consultant. I am devastated. Shocked that it took so long to get to this point, and very worried now that it could be too late for affective treatment. I've had severe fatigue, aches and pains, but no cough etc, until this week when I have suddenly got a lot of phlegm, a cough and tight chest.
My mind is racing. I am a teacher, and know if I can hang on for a short while longer, I'll get paid over the summer, and I need this cash, as husband also ill and I'm the only breadwinner and only part time as it is. Its a private school so no protection or long term full pay etc. But I resent my shortened life being taken over by this all consuming crazy job. I so do not want to go in to work next week.
When do I tell my grown up kids? My Dad died from Lung Cancer, it was a horrible death, I am so scared. But also. I was desperate to spend as much time as possible with him, and think they will be upset if I don't tell them sooner rather than later, but I know they will take it really bad, as will my older grandchildren. We are very close.
Its so dam unfair. Just offloading to those who know. Because of my Dad, I've even though about assisted dying. He lost all his dignity, which was so cruel, I can't bare that thought.
Thanks for reading
Hi maricay I have bone and lung secondaries. When I first went on hormone treatment
I had a flare up of my bone secondaries in my ribs a few weeks into it and pain breathing. They checked it out because rarely you can get a blood clot. All was ok an it took more than 6 weeks for the treatment to start to work. Hope this helps x
Thanks Catlady and Pippy, just hope that it is breast cancer, am fed up with the chemo and want a break. Thoughts with you all who are on this **bleep**ty journey, it is such a tough journey and appreciate your input. Hugs to you all.
Thank you Nicky, hope some one can help, am her+ and on herceptin. Am tired of chemo and hope I don't have to stay on it longer than necessary.