Oh...so pleased and relieved to hear she's ok, if you speak to her again please send her my love and a huge cyberhug!
Hi helen & charlotte... feeling much better today and no effects from both doses of cape today! Hosp says it wasn't likely to be from the chemo...probably a lot to do with the heat and fatigue due to the fact I'd done a long day in work, so good news really.
Do you think my Onc said that hormones wouldn't benefit me as he possibly thinks my prognosis isnt very good?? I still cant get my head around why he said that when my positivity was 3/8.
helen...you always make me smile referring to your hosp! Carry on team...haha!
Love & hugs
Hi helen..its strange this ER thing. Ive been looking on the net today and nearly all the oncology sites say 0-2 is negative. 3-8 is pos. I had been hoping for something like the Faslidex injection...or is that for her2 cancer? Ive heard great things about it. Hate to think I'll be stuck on just chemo for the rest of my days 😞
Can I ask by the way what hospital youre under? I know its serious but I cant help smiling at your posts regarding your hosp...it beggars belief doesnt it??
Love bev xxx
Oh thanks chocolates. Im just a bit down because the onc said a positivity score of 3/8 meant hormone therapy wouldn't benefit me, I thought a 3 was positive?
I do feel much more positive talking on here...and yes Helen must be under the hospital from hell...but she still keeps upbeat haha!
have a good day at work. Im in today too although im going in a bit later this morning due to me having awful flu like symptoms after my Cape last night...felt realky rough.
love to all...bev xxxx
Thanks Charlotte, youre certainly on a good mix of drugs there! Thats got to be knovking the little blighters into oblivion!
There does seem to be a wide variety of new drugs available for bone mets all the time and they clearly seem to be very effective. Hope you continue to do well.
my onc has said its prob only going to be chemo for me because of the "weakly positive" thing and thats what worries me.
I read that the longer term survivors of breast mets are those that have bone mets rather than in an organ, show some oestrogen positivity and have not been told to stop previous hormone therapy like tamoxifen as it stopped working.
Well mine are lung, only weakly pos (my original ptimary 9 yrs ago was TNBC) and they took me off tamoxifen 2 mths ago!
So that frightened me a bit.
Sorry for the rant!
Love & hugs
Hi ladies...hoping some of you can help out here!
Saw Onc yesterday after first 3 wks of 3 cycles of Capecetabine. He had said initially before treatment started that I was weakly positive like my second primary in 2009 (primary in 2005 was triple neg), and that my treatment would most likely be chemo and hormone therapy.
Yesterday he said he didnt think hormone therapy would benefit me and when I asked what my ER score was he said it was 4/8 at last primary and now was 3/8.
Well...from what I've read a score of 3 is still weakly positive isnt it?
I just feel a bit let down because it seems that the ladies doing better for longer are on some sort of hormone therapy.
What are your views? Has anyone else had this score?
Love...a confused bev xxxx
Hello..I haven't posted on here in years! I have mets to lungs and chest lymph nodes. My mets were dx in Nov 2005. Today I saw my onc and he said my right lung was stable, this is my worse lung but that my left lung had a new area but he is not sure it is from the cancer. It is ground glass opacity in the left lung upper lobe. He has put me on steroids and will scan again in Oct. If there is no change or worse most likely will be a chemo change for me. I'm bummed because I have been enjoying the last 2 years on xeloda. I felt like a person again not having to go for all the infusions. He did say I have had a charmed ride so far, but there was still a lot of options. That left me with mixed feelings. The charmed ride part left me feeling like he thought the ride was ending..but then he added that I still had options. In this almost 9 year ride I have had abraxane and avastin combo, he stopped it bc it was harsh on me. I can use it again bc it was still working. Then I went to vinorelbine (navelbine) for 5 years. It stopped working and my right lung collapsed. I did radiation and my lung reinflated on its own. Does anyone know if they can radiate ground glass oapacity or if chemo works on it? Thanks Funny Face
Belinda - I'm glad you are doing so well. I am HER- as well. Were you diagnosed it to the lungs 11 years ago or has it spead there over a time? You have really cheered me up. XX
Hi Bev..I recall asking the question regarding throwing different forms of treastment at the cancer at the same time early on in my treatment. He said that the current thinking was that it wasnt helpful because chemotherapy works on dividing cells...and so long as its working....the faster they are dividing (ie the more different they are from ordinary cells ) the more effective the treatment is.....If yyou are taking hormone treatment at the same time it may slow down the rate the cells are dividing and thus make the chemo less effective.....and also reduce treatment options cos the hormone isnt available as a possible future treatment. This is different from EE from example because both these drugs work on different stages in cell division and so (theoretically at least) dont interfere with each other.xx
Not much to report other than happy to say cancer markers have lowered considerably and it will be my week off Cape from Monday.
My onc said I'd be on Cape for the foreseeable unless the cancer disappears? I'm ER+ however no hormone treatment until finished with Cape...
Can someone tell me if cancer in the pleura is dramatically different to actual tumours? Am a little confused and the more I google the more scary it is! I know a couple of ladies have same type ie. having had pleural effusion and malignant cells found. I do know that surgery on other breast isn't even considered as oncologist looking at secondary cancer and how it behaves.
It's cloudy but warm in Solihull and my partner is researching hotels for our road trip to Italy!
Do hope everyone is well and having a fabulous weekend.
Love and light to all
Excelllent news Chocolates,,,hope you are celebrating!....Bev please dont worry as yet as to the effectiveness or otherwise of capecitabine....in each cycle I think the maximal levels are reached at the end of each cycle and for the few days after stopping...so the cape is probably still building up rather than being at a treatment level. xx
Chocolates - sorry I couldn't make the on line chat last night as friend took me out for dinner and missed the deadline to sign in.
Hope you and yours all doing well.
Love and hugs Dani XX
Thank you Sheila, Bev and Helen
We all need some uplifting news and we all definitely deserve it!
Love to all XXX