By the way it is under living with secondary breast cancer (rather than treatments and medical issues)
Hope that makes sense! https://forum.breastcancercare.org.uk/t5/Living-with-secondary-breast/Bone-mets-please-join-in/td-p/...
Hi! This BCC forum has lots of lively threads, in particular the 'bones mets - please join in' thread where lots hang out even if not bone metsers. Or did you mean are we on a different forum altogether?
Hi Tracy, you must be in shock, what a rollercoaster few months. I also have lung mets and bone mets too. I was dx for secondaries Jan16 (primary in 07) and was terrible last year with breathing etc but have improved now significantly - first 2 chemos didn't suit and third is working (finger crossed !). I also have kids, 12 and 15.
Once you are clear on what treatment you will be on, life will become much more bearable. This is the hardest stage but you will get through this and life will be different but in time it becomes normal and children are amazingly resilient. Many lung metzers survive for many many years (ignore any stats you see, they are apparently very out of date) and there are so many new drugs being tested it has to give us all hope.
Whilst being devasted like you, I had a brilliant year last year because I threw everything into living with cancer and not dying of it. I travelled loads, did tons of wonderful things with my kids and got married. I feel much better and am feel in control of what happens to me and over the next few months you will build up knowledge and feel the same, I hope.
Sending love and hugs at a frightening time. Keep visiting the forum - its wealth of information and kindness is priceless
HI Tracy, sorry you have had to join us but welcome. We can all understand what you are feeling like....the devastation of this news is truly awful isnt it. Like the rest of us with children (however old) its them you worry about most. Give yourself a little time, if you are able, before telling your girls. There is no easy way to do it but you will know when the time is right. Be as truthful as you can and answer their questions honestly. I am telling you all this but i am the worlds worst at doing it. I have just found out that my SBC is genetic..i have inherited the gene from my mum and there is a 50% chance that i have passed it to my daughter. I just dont know how to tell her. I keep waiting for the 'right time' but i know there isnt really one.Maybe we can hold each others hand across cyberland while we 'do the deed' . We are all here at any time to lend support...i dont know what i would have done withot the lovely ladies on this forum. Please keep posting and let us know how things go. My thoughts and hugs are with you. xx