Karent, How long have you been on this combo? Like I said in my comment this combo can take longer to kick in. I have never been on a combo before and have wondered what happens when it fails? I did see on another site that when letrozole and ibrance failed they then combined ibrance with another hormonal. I meant to talk to my oncologist at my last appointment about this and forgot. I tell my family the truth about scans, but not the best at the emotional truth. I feel they don't want to hear it! I tried a couple times, but all I ever got was you will be fine and they kind of walk away and start doing something. They aren't being mean, I just think it's the good old mom will be fine attitude. Moms aren't allowed to be sick! No matter how old the kids are. FF
Karent, My onc doesn't do tumor markers, says they are not reliable for most people. I'm sure you might have a better understanding of how yours have worked in the past, if they rise with progression. I'm sorry I can't remember what treatment you are on and have been on. I need to make a notebook, so I don't appear to be a ninny! When your oncologist said your markers were rising, was he concerned. Did he suggest a scan or change in treatment? I think if they took a big rise I would want a scan to see where I stood! Depending how long and what treatment you are on, maybe the treatment hasn't kicked in yet. I do believe hormonals can take a bit longer to show results. I do know for myself, I'm on letrozole and palbociclib my first scan at 3 months showed stable. Stable is good but with all the hoopla in the news about this new drug I was hoping for better results. My scan 6 months after that showed amazing results! I I'm not sure about this, but I also thought I read somewhere if you have bone mets that when it's first working on them your TM's can rise. The most important thing for you I believe is to talk to someone about this and get answers! You should be told if it's time to be concerned or not! You should not have to sit and worry needlessly! Hugs! FF
hi Karen, just wanted to say hi and re-iterate what the others have said. My onc has told me not to read too much into TMs but i have mine done regularly because i have skin mets (as well as bone and pleura) which arent picked up on scans so its an extra way of trying to monitor them. It is alays scary when they go p but he has told me that it doesnt necessarily mean bad things. Hope we have been able to reassre you a little bit. X
Yes, Marion is quite right Karen.
We all have days like this...honestly...my tumour markers shot up to over 1000 last summer...now they are under100, sometimes it takes a bit of adjustment to find the ideal drug...please try not to despair...I suspect you will be around for quite a while....'.there are a bundle of drugs In the basket' what is the onc planning
did he say?
keep chatting tho, best tonic is to share with all of us, we are all here for each otherxx
So sorry you're feeling this way.
There's another thread on here about tumour markers that might help - they are not always the be all and end all.
Is your onc sympathetic and approachable? If not, it might be worth changing to someone else. And maybe speak to the BCN - some hospitals have one specially for SBC - who will have more time to listen to your concerns.
Take care of yourself,