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Lymph node removal - questions.

13 REPLIES 13
Missbabs
Member

Re: Lymph node removal - questions.

Hi. I had mastectomy and 11 lymph nodes removed on nov 12th 2014 & had terrible burning pain in my chest and under and down my arm. I had cording down my arm as well. Started with physio after a few weeks and she has worked miracles. Couldn't lift my arm at all but now can stretch right up. My physio & breast nurse got together about the burning pain and told me to get Amitriptyline 10mg from my doctor. They took about 2 weeks to kick in but the pain has gone. I still have some numbness above my elbow up my arm and round my back but can put up with it now. Hope you soon feel better. I honestly never thought I would but I promise you it will come. Lol. X
sherrifh
Member

Re: Lymph node removal - questions.

Ladies. I have to under go this operation on 24 Feb and I am dreading it then chemo..... This is my second mx one in 2011 and then Nov. So hard to deal with. I'm just 40 with a 4 n 5 yr old. Helene x

maggie59
Member

Re: Lymph node removal - questions.

Hi Pippa
I have had further problems with the scar which became infected and had to be opened, drained and I am on very strong antibiotics. Thankfully it is now not swollen at all and I am hoping that it will stay that way,
I don't know why it is so bad, guess they have lots of nerves to navigate round and the scar is quite large.
I have bought a wrist band to remind myself as much as anything else that I need to be careful and have made an appointment with a specialist lymphodema nurse who will give me advice on avoiding swelling.
Good luck, hope you feel better soon. Maggie x
Pippa47
Member

Re: Lymph node removal - questions.

Just reading this thread - I had my lymph nodes out Thursday, and without dought I have found this much harder than the breast op. I hate the drain,and I really hate the thought of lymphoma. It was my left side and I am left handed, I am terrified of cutting it etc. why has this op got me the most?
Brewster
Member

Re: Lymph node removal - questions.

Thanks for replies. Reassuring to know that big op should be ok compared to node op. The nerve pain .... And sensation/ numbness under an is slowly driving me nuts! Good to know the main op should not be as bad as this 😄😄
emilysss
Member

Re: Lymph node removal - questions.

I had lymph node clearance just over a month ago, and still have a lot of pain. The emu oil has helped with the numbness and nerve symptoms I think, but not the pain which goes from my shoulder, under my arm and down to my wrist. I went to the GP about the pain as I haven't seen a surgeon since the op (moved house) and he prescribed ibuprofen and thrush cream! Hopefully I will get a referral to a breast unit soon and find out what exactly is going on, and what can be done if it is lymphodema.

I definitely agree that the lymph node surgery is far more difficult to cope with than the breast op.

Seabreeze
Member

Re: Lymph node removal - questions.

Brewster,
If the nerve pain continues consider telling your GP and asking if s/he can suggest anything. I took Amytripyline for a while after my op since bizarrely nerve pain popped out in my back. It does make you sleep a lot at night and seemed to help a lot over a few weeks. Then stopped taking it and thankfully pain seemed to stay away, until I wrestled with a shopping trolley too soon!
Thinking of you all going through this stage...
Seabreeze
SML1903
Member

Re: Lymph node removal - questions.

Hi Maggie.

I had node clearance under my arm 2 months ago and had all the numbness you describe. I still have most of it but it is improving slowly. When I asked my consultant about it he said it was likely to improve but sometimes people are left with permanent numbness. I also have some numbness around the scar where he did the WLE and it also feels lumpy.

Best wishes

Sheila x

maggie59
Member

Re: Lymph node removal - questions.

Thanks for the responses ladies.
Emu oil I saw on here somewhere described as miracle potion! Look it up on Amazon, it has great reviews as an anti-inflammatory, antiseptic and soothing massage oil. I think you can get it in blue gel form too.
Don't really want to think where it might originate from but have ordered some and the soap to make it up to £10 free delivery.
Will let you know what it is like!!.
Mx
Weeannie1
Member

Re: Lymph node removal - questions.

Hi Maggie,

I had sentinel node biopsy in December las year, and it took a couple of months before I has much feeling in my upper arm and underarm. I still don't have full sensation in that area, but it has improved. My mum had a radical mastectomy way back in the 80s (standard treatment for bc back then) which involved removing all muscle on the right side, along with all nodes and breast tissue. She told me it took an awful long time before she had any feeling in her upper arm, and still has very little feeling in her underarm. But she also added that she really didn't notice it after a couple of months and it certainly hasn't had any effect on her ability to carry out every day tasks.

Hope this was of help.

Take care and I wish you well. Ann x x
Brewster
Member

Re: Lymph node removal - questions.

Hi Maggie
I had my sentinel node biopsies 3 weeks ago. The second week was the most uncomfortable. Still is now, but getting better very slowly. I feel like I need to chop my arm off. Nerves jangling all the time, burning, on edge sensation.. Driving me nuts. Apparently this is normal, particularly if they have nicked a nerve.
I too have some lymphedema but am trying to ignore this. Don't go for main surgery until 28 November .

Hope you start to recover soon, intrigued by Emu oil ?? Never heard of it

Sam x
maggie59
Member

Re: Lymph node removal - questions.

Thanks for your response Petran.
My surgery, breast reduction to remove 4cm cancerous lump plus full node removal was only a week ago so I know that it is early days. I was just quite shocked at how different the whole arm area feels.
I have been massaging it and have ordered some of the emu oil that others have recommended on these forums.
Patience is not one of my virtues unfortunately but it seems that in this case time is a healer.
Have you suffered from lymphedema at all?
Petran
Member

Re: Lymph node removal - questions.

I myself had surgery in Sepember and I'm having the same sensations you are. A physiotherapist told me that the numbness will decrease over time and improvements may go on for as long as a year. After that it's more or less considererd a state.

My numbness has in fact improved so I stay hopefull. How long ago was your surgery?
maggie59
Member

Lymph node removal - questions.

I wasn't expecting to have to have all my lymph nodes removed as the needle biopsy and ultrasound showed the first one to be clear.
Obviously it was necessary but it came as a big shock and I have found the side effects harder to deal with than the surgery. In particular the numbness in the armpit and down the back of the arm.
Can anyone tell me if this is likely to improve, by how much and how long it might take?
Thanks.
Maggie x