Hi to everyone and thank you all lovely ladies for your kind words x wat an inspiration and comfort you all are , well my treatment was changed as the c was found in nodes , so Instead of recon etc in jan I had a mascetomany on the 22nd x lovely christmas present , 13 nodes were removed I'm seeing doc on 7th jan so will no more then I guess , op was,nt as bad as I thought but the armpit and node removable so painful,
I finially manage to take my first look at the no boobie bits and must admit had a complete melt down , my wonderful little 27 year old soldier came and stayed as I live alone and was such a big support , silly mummy crying all the time and moaning about how I look ,
but today I've thought hey ! who the ..... Cares I'm 57 and I'm here and love reading all your lovely thoughts and stories , bless you all , just wish we cud all meet up , you have all kept me somewhat sane over the last 8 weeks ,,,,, with love
Sorry I've not been here to wish everyone Happy and Jolly Christmas - my trusty old lap top died and I am having to use a new one. I have had it a while but to this computer illiterate using it has terrified me!!!
Anyway here I am Windows 10 ing with a touch screen. Sounds wonderful except my fingers just won't touch in the right places because they are so stiff and I often end up somewhere I didn't expect.
No real excuse for not sending good wishes. I think the letter I received has made me box up last year and now I can only look forward - I feel that is what you all are doing
It was lovely to have my family here and those ooop norff we skyped on Christmas day, so we were together .
Now it's nearly New Year so I wish you all a healthy and Happy New Year.
I often think of you all and thank goodness I found you all on this forum. It has pulled me through and made me ealise that being POSITIVE is the only way forward
Sorry this is a bit rambling but I hope you know what I mean
Love Bery xxxxx
Evening lovelies, just wanted to send you all my very best wishes for Christmas and the coming year, what a year we have had. And yet we have weathered it, with all its crap, together and I can't thank you enough for being there, with wise words and comforting messages. The year has taken its toll on me, with the cancer, my parents and the ms diagnosis but sharing and seeing all,your posts has given me a great deal of comfort. And for that my virtual friends, a huge thank you. ,sending all my love, big virtual hugs and wishing you the best of Christmas's with your dearest ones. Lots of love Cheryl X X X X
Great to hear you've got the dreaded mammo out of the way Pandorra and hope it will be nothing but good news. SueB I expect it is a bit of a relief not to be facing surgery for a few more months isn't it? Or were you hoping to get it done quickly? Sure you're right though that it's better to wait for the radiation to finish cooking you.
Today is my anniversary of joining the forum, I'd been stalking you all for a few weeks before I plucked up the courage to start posting. I remember sitting here last Christmas Eve feeling so low and worried and it was an enormous relief to be able to reach out to you all and get such comforting responses. Said it before but it bears repeating: you ladies are just wonderful, you made the whole experience tolerable and I'll be eternally grateful for the support you gave me. Big thanks and HAPPY CHRISTMAS!
Love to all
Hi my special ladies, can't believe xmas is here, almost. Well, had the dreaded mamo today and it really wasn't that bad. Had the same lady from last year and she was a great help. So, see my surgeon on 22nd with results and what will be will be. Oh dont we go through some c...! Felt strange being there as the last time, January, I had that wire hanging from my boob. Anyway, hope everyone is ready with wine, champagne bucks fizz to hand and maybe a slice or two of turkey. Wish you all the best phenomenal xmas, the best phenomenal new year and phenominal health and happiness. Love and trillions of xxxxxx
Evening lovely ladies
Well I've just finished work until the New Year and will be out and about enjoying myself for the next few days (in amongst a billion errands that still need doing of course) so just wanted to wish luck to Pandorra and anyone else who has check-ups due this week, fingers crossed that it all goes well for you.
Love to all
Evening lovely ladies
I'm so pleased to hear everyone sounding a bit perkier as check-up results come in, so great to hear good news after good news, so hope you'll hear the same on 23rd Pandorra (and don't forget the painkillers before the mammo does the squishy thing!)
I'm more cheerful now that it seems I don't have the cancer thing to worry about (sure they'd have called me back already if there was a problem with the mammo pictures) but I've had a horrible sinus infection again with swelling and popping blood vessels in my nose so not a pretty sight. And yesterday a tonsil infection started so I guess my immune system is still not up to par (damn that life-saving radiotherapy!) Still, just another week at work and then a whole fortnight off and I love all things Christmassy so other than feeling a bit yuk life is good. Right, off to anaesthetise myself with some home-baked Christmas muffins now (not baked by me I hasten to add )
Love & big hugs to all
Hi all my lovely ladies, Eileen i can just imagine you hurtling that stupid woman across the room. When you hear some of the whinging couldn't you just scream! Jill, stay with us on this incredible site where you can shout,laugh, cry whatever and we are all here to help. Try and stay positive and above all normal. Waiting is awful Sharon, but it sounds reassuring when there's nothing to be biopsed, dont think that's a word but you know what I mean. Are you still in your job? Dreading the mammo on 23rd as the thought of them crushing this boob makes my stomach churn, but will take paracetamol and put a 'bit' between my teeth. Well done francine, you certainly deserve a crate of champers, go careful on driving. Hope everyone else is ok, love and xxxxxxxxx millions of wishesxxxxxxxxxxxx
Can't find anything to biopsy - what is going on Sharon. What a worry I'm not surprised you are feeling down.
Fracine so very pleased you are finally healing and Eileen you seem to be as well.
In 2014 my Mum died, then my lovely dog and then THE DIAGNOSIS.
This year has been one of recovery from all of that.
Mum's boxes are finally out of the loft for me to sort through as I am ready to do it now
It has also been one of slow recovery and I now feel really good in myself.
I am finally losing the weight I put on at beginning of year (medics recommendation), I have a new (crazy) dog and today I had a letter from the consultant about my results. The last sentence says::
This is highly reassuring
Tears from both of us.
I really feel for you all and just hope with all my heart that you continue to improve and are able to put this year behind you
Lots of love
Thanks for those lovely kind words Jill - you sound like you have been through a lot yourself and these forums always helpful particularly when you are feeling down. keep telling myself bad things happen in 3 s so hopefully I'm done for a while - BC, Mum ,then Dad - quite enough for now! Got back from burying Dad yesterday to discover a blocked drain - so year ends literally in poo!
Sorry things still not going as smoothly as they should Francine - putting it mildly! - and hope things improve for you too Sharon.
This has been such a hard year. Think my most surreal moment was the morning I came into work after my diagnosis, told everyone in the Department and then 10 minutes later had to listen to one of them moaning on about a paper cut which reaaaaalllllly hurt! Restrained myself from walloping her and causing some real pain.
Love to all xxx
Evening ladies and hello Jill, welcome to the boards!
Went for my core biopsy today and the consultant (yet another one I hadn't met before) couldn't find anything that needed biopsying so I just had some more mammogram pictures done and was sent away again. Not really sure how I feel about that to be honest other than tired and low still.
Glad to hear others are moving ahead and good luck to everyone still waiting on their follow up checks or next stage of treatment.
love to all
WEll Jill you have had a rough time of it as well.
Most of us on here have been through the rough part of the journey and are coming out the otherside with sense of humour intact, if not our boobs!
We have learnt a lot in the past year and I am sure you will as well.
One piece of advice though - if at all possible always have someome with you when you go in to see the medics. Make sure they also know your hoped and fears as sometimes, in being upset, you forget to ask something which to you is crucial.
Have you joined the first threads on here - 'Recently diagnosed' that is haow we all met up way back in Nov/Dec last year and have held each other 'hand' all the way.
Eileen x wat a time you are having ,my heart goes out to you , and I am sorry for your lost , I can not imagine to lose both parents so closely x my parents are still with me and have been together 65 years , 3 years ago my husband died and 2 days later my 85 yr old dad was diagnosis with throat cancer , bless him , he had such a long and tuff journey , and happly is still with us , 6 weeks ago I was diagnosed with bc and the day after my poor brother with a brain tumour , he has been given 6 months
how can you tell your parent both there children have the big c ,
i am completely shattered with it all , hospital appointants fears , tears, shattered lives and elderly parents all so sad , whilst waiting for mastectomy and recon my node results came back , they removed 3 all came back with c cells , so now what ,
i am finding this so hard to cope with, tomorrow I find out what will happen next x
this is such a great place to find and listening to other peoples story's really does help
good luck to you all and bless you Eileen x
That is terrible. When I had to have really expensive dressings they certainly made a difference to my healing rate,
Still sounds as if GP is on your case now,
So relieved I didn't have rads - phew
All the best on the journey- have you got one of those heart shaped cushions, great design, sort of cushions and supports all the areas you need. Keep mine in car glove box still.
Hope Sharon is OK
Well done Francine on putting your body first.
Phoned up BCN today and she told me mammogram was clear YAY
She couldn't understand why I haven't had a consultant appointment as i need to be checked regularly because of the infections. She is looking into it, and my Anatrozole problems.
This BCN is lovely and is my named one but she has been very ill so not around for the last 4 months and although I have seen one when I had my foob fitted she did not really check me.
Sharon i hope all goes well this week and the biopsy isn't too bad.
Thinking of you
Hi lovely ladies,
Eileen what an awful year you've had; so sorry to hear about your Mum & Dad, it's always so painful to lose them no matter how old we are when it happens. I'm sure you've got plenty of precious memories of them though so I hope that is at least some small comfort on the difficult days ahead.
Glad to hear you've finally got a bit of respite from the stabbing pains Pandorra and all fingers and toes crossed for your annual mammogram check, it'll be a relief for you to get it over and done with I expect. Not liking the sound of that ripping feeling you're getting though *hunts around for vomit bucket again*
Any news of the finger problem Beryl? I know I've said it before but oh my, those anti-hormone medications sound just awful
Francine are you done with the radiotherapy now? Swinging from the rafters of the hostelry nearest your hospital while eying up the medical talent I expect! Now leave those little radiotherapy lads alone, they're only young! If I remember correctly the rest of us were all too tired to party even in a virtual world, the fatigue sort of creeps up on you doesn't it but at least it's all over.
My mood is getting lower the longer I have to wait for this next biopsy so I'm not exactly a pleasure to be around at the moment. However much I tell myself that there is almost certainly nothing to worry about I can't seem to stop the 'what if...' thinking and three weeks is a ridiculously long time to have to wait in these circumstances. But I am making the most of all the Christmas stuff that's on at the moment so it's not all doom and gloom. Ballet on Tuesday was amazingly beautiful, went to a wonderful Christmas market in an old Elizabethan Hall on Thursday, Christmas lunch with a group of friends on Friday so all good.
Hope everyone else is doing OK too.
Everyone seems very up beat at the moment.
Hard luck on not openiing he champers - maybe tonight?
Pleased some Marchers finally met up, sounds areally lovely event.
I'm still waiting for my mammogram results - 10 days now but OH says no news is good news - I just wish I knew. If nothing b y Monday will ring BCN
Sharon my thoughts iare with you. Just hope the biopsy goes Ok and Boob is not too sore.
I have had some blood tests for arthritis etc as sometimes I find it hard to move and my fingers don't always do the pincer grip (breaking things because of poor grip). I think it's the Anatrozole as well. Waiting for those results as well
Seems as if we are never clear of it.
A friends DIL has just been diagnosed so I have given her this forum to use - so very helpful. Hope she does, She has the big meet with consultant next week
Keep inmaging loads of jolly ladies in pineapple hats at the Royal Albert Hall,now
Hi lovely ladies, so pleased for the good news and Eileen certainly not been easy for you. They say these 'thing' are meant to try us and they surely do. All these appointments are keeping our minds working thats for sure. I have my mammogram on 23rd December, last year 22nd . My appointment with my surgeon 15th January, times flying already. Having probs with side effects with anastrozole, affecting my joints, in my hands and trigger thumb. Oh what we go through, but I know I shouldn't moan. Not long to wait now Sharon, so annoying they didn't get it right. My boob is not as painful now but still get ripping feeling if a wrong move. Have been massaging the oil in the scar though and doesnt feel as lumpyand not had the burning sensation. Well, we will soldier on as we have this last year. A year in which I have been at least lucky in meeting all of you wonderful bunch. Lol and hugs xxxxxxx
Glad that everyone seems to be doing well. We all seem to have our ups and downs and I have to try and stop googling every time I feel a twinge or a strange sensation of any kind- that way leads to madness ! Francine you are an inspiration after all you have been through and Sharon - fingers crossed biopsy shows nothing awful - though you have such a great attitude you seem to cope well with everything thrown at you. This year has been rubbish for so many in so many ways - mine started with mammogram on Jan 6th and downhill from there. My mum had a heart attack at the beginning of my treatment and died after I finished. My dad clearly couldn't live without her - they would have been married for 65 years the week he died- 2 weeks ago now. I am really hoping 2016 will be better for us all.
Love to everyone and thanks for the support. Only seem to check in here when times seem rough but need to get better at keeping in touch. I do get lots of love and support from my long-suffering partner, friends and family but I think only those of us who have been there can really understand.
Here's to a better year next year
Been to the London BCC Candlelight Carol Concert tonight and got to meet Francine at last; she is every bit as lovely in real life as she is on the boards, and her daughter is a delight as well. The concert was fab with a beautiful church, excellent choirs, great readers (including Cherie Blair, Vanessa Redgrave & Catherine Tate) and mulled wine/mince pies too. Hope we managed to raise some money for BCC.
Great news about your results Cheryl, so glad for you that you've finally got a bit of good news.
Off to the ballet tomorrow night to see Matthew Bourne's Sleeping Beauty which is getting rave reviews so looking forward to that. In fact, I'm doing everything I can to avoid thinking about the next biopsy which is due next week although having a throbbing boob isn't helping at all. Sigh.
Love to all
Morning all,it's a beautiful sunny day here in Eastbourne, no Rain or wind for a change. Had a very short letter yesterday but it's the nicest one ever read, following your recent scan....I am pleased to advise no features of concern ....don't you love the way they tell you but am mightily relieved.
Matty, I love the sketch with the 2 ronnies and four candles, i absolutely dissolve into fits of giggles on the floor . Sharon am sorry to hear you have more wait and they didn't get what they needed. Hope it's sorted soon. A small tip when you meet Francine, take some reins cos it sounds like you might loose her with her newly found roving eye!!! Francine, you are nearly at the top of the mountain, so big hugs for the final ascent ( don't know where the climbing analogies are coming from but....) and it will soon be over.
have a lovely weekend one and all, lots of love X X x
Francine I've sent you a PM with my mobile number but you'll spot me easily on Monday as the ginger hair is always a giveaway (photo on my profile page here too). Glad to hear the radiotherapy is going OK and hope you're not too fatigued but a bit of carol singing and some mulled wine will sort us both out I'm sure. Should we have a small wager on which of us will be the first to blub at the concert? I'm pretty sure it'll be me as I'm all over the place waiting for yet another biopsy and the slightest little thing has me weeping.
Thanks for kind words Rosemary, hope you're doing OK still and looking forward to a relaxing Christmas break in a few weeks. Is there any treatment for your arthritis and spine problems or is it just painkillers as and when? Or wine of course. And cake. And photos of George Clooney always lift the..err...spirits...I find
Beryl you've got me humming the Copacobana now as I picture myself dancing round the room with a pineapple on my head
Love to all
Hard luck Sharon, you'd think they would know a core biosy is best (what am I saying)
Just back from mammogram, got in a bit of a state before. The radiographer showed me the pictures. Boob and foob didn't smile though!!
Now the hangiing around to find out results
I wear a pineapple if I were you!!
I go onto a gardener forum, we are called Fork Handles, so when I arranged to meet up with a Forker she put plastic forks in her hat!! You could do it with boobs - just a thought - I'll get my coat!!!!
Fed up now I've been waiting patiently for my biopsy results on the 'good' boob and got a call today saying that they'd only done a fine needle biopsy and that didn't give them enough tissue to determine a result. So, back for another core biopsy on 9th December.
Grrrrrrr. Hope you're all having a better time of it.
My lovely breast care nurse has just rang me first mammogram since diagnosis has come back clear feel like I have won the lottery love Judi x
Hi mammogram done, 2 weeks wait for results.....ms nurse been and am starting on injections 3 times a week, side effects as ever but will give it a go. It looks like mine is mild and not aggressive although apparently they can't determine what silent activity is going on, so I am going to focus on the fact that I have had it for 4 and half years and largely not had many probs........and lots of chocolate can't be bad!!! Sharon you sound like you had cake fest and cake gate all in one go......go girl. 🍩🍩🍩🍩🍩🍩🍩🍩🍰🍰🍰🍰🍰🍰🎂🎂🎂🎂🎂🎂🍘🍘🍘🍘🍪🍪🍪🍪🍪🍮🍮🍮🍮🍮🍮
Seems mammos are being positive so fingers crossed for everyone else.
Doc has said I'm to have a blood test on Friday - fortunately I won't be joining Sharon on the 'passing out' couch, just the worry one - I know - deep breaths and will get through it.
Might be Anastrozole causing pain or arthritis (but very rapid if that) will find out.
Unfortunately it was a junior GP - didn't know what pains would be in boob and told me to contact consultant. Obviously didn't know that our first call is to the BCN (again!!)