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MARCHING together

ValS1
Member

Re: MARCHING together

Thanks Sue, OH has a few days off work so we plan to go out a bit, I had planned on a walk somewhere nice today and lunch but the weather is awful today, wind & rain 😞
bobtail61
Member

Re: MARCHING together

Good to hear you have finished Eastanglian, can't wait to get started on Monday, before I change my mind!

Chez, was interested to read you started your periods when you were 8. I was 9, and you are the first person I know who started so early. Always knew I was high risk for BC, no kids either.

Wishing everyone well with this treatment - I am hoping to continue working through the rads - has anyone else been OK to do so?

Sue

loobylou111
Member

Re: MARCHING together

Hi Sharon, 

Just one rest day! Back to normal again tomorrow through to next Thursday (last treatment) yippee!

I may give the hormone tablets a try but at this time im very undecided. 

Hope all going well with your treatment.

Take care, 

Lynne xxx

ValS1
Member

Re: MARCHING together

Hi ladies, final Rad today so the end of that bit of the treatment plan for me, although a relief I think I will feel a bit lost for a few days after 3 weeks of going to the hospital.
Fuffs123
Member

Re: MARCHING together

Oh you ladies do make me laugh, which is much needed. Time is hanging heavily with me at the moment, although I'm keeping busy. I have to admit I've just eaten a whole pot of houmus with a bag of tortilla chips and now feel quite queasy. Hope it wears off before I'm due to eat the chocolate eclair! OH seems to think that feeding me will help the waiting stress but at this rate they might have to wheel me in to the rad dept in a truck, lol. X
ValS1
Member

Re: MARCHING together

Hi Chez, mine was a rare type of stroke when I was 52, now ten years on got BC diagnosis plus benign neuroendocrine lung tumour which (found by chance when I had MRI for the BC. Just never know whats in store do we. All the best 🙂
ValS1
Member

Re: MARCHING together

Good plan 🙂 my chocolate consumption is definitely up, there's something about hanging about hospital waiting areas that draws me to the WRVS restaurant for just a cup of tea and a sneaky kit kat!!
13gerbera
Member

Re: MARCHING together

Evening all 🙂

 

Pandorra I'll be looking out for a post from you tomorrow to see where exactly you end up with your tattoos, probably on your knees at this rate Woman LOL So long as they don't keep you hanging around you should be fine as it isn't a horrible thing to go through, unlike the other stuff.

 

10/25 done today, nice and straightforward again and no hanging around so very happy with that.  

 

Todays treat was a colouring book for adults (not the pornographic kind I hasten to add) and some colouring pencils .I spent a happy hour colouring in a pretty pattern (photo on my profile) before leaving to get zapped Very relaxing (and inexpensive) way to pass the time.

xx

Sharon

pandorra1
Member

Re: MARCHING together

Hi lovely ladies, hope you have sailed through your rads today sharon. I imagine it to be like willy wonkas factory, and the munchkins are rushing here and there. And then of course, the machine oozes chocolate as our treat. Oh if!  Well of for my planning tomorrow. They called me this afternoon to ask if all ok and remind me I get free parking. She seemed very nice, so fingers crossed all will be ok. Going into work for the afternoon shift, I  am in a medical centre, and the girls are brilliant telling me not to stress if running late as they will cover. That's as long as I dont lose direction on the machine. Quite fancy the idea of my head going where my feet should go as mentioned by Sharon.  Will report in. Lol xxxxxxx

Chez666
Member

Re: MARCHING together

Lol you two....snorting Imodium whatever next....drugs baroness or bearded lady...choices, choices!!!😄😄
13gerbera
Member

Re: MARCHING together

LOL - Imodium not working then Cheryl?! Woman LOL

Rosemaryanne
Member

Re: MARCHING together

Actually snorted when I read this! xx
Chez666
Member

Re: MARCHING together

Actually given i pooped into work, it's not really surprising then people dashed by me, my usual polite and appropriate behaviour has gone by the wayside which I am putting down to too much time in hospitals!!!!!!
Chez666
Member

Re: MARCHING together

Hi all, well done eastanglian, glad you're through and hope you continue to make good progress. We seem to be connected in 3 ways now, as am adding stroke to the location and BC. I had one for my 50th birthday and yesterday i read an article that women who start periods before 10( I was 😎 are not only pre disposed to BC but stroke and heart disease so have conclude Mother Nature is not really a sister!! I don't smoke,,am a prolific exerciser and whilst not a saint with food and alcohol don't over consume so so much for good advice!! I just pooped into work and again have been surprised by the people who dash by me or avoid eye contact, perhaps BC is contagious as well😄😄 I think we underplay things because that's natures way too as a couple of my friends have reacted as others have said. Bith my sessions have been delayed by an hour but am an avid reader so have my head in the kindle until zap time. My OH broke down last night for the first time, he is finding seeing me disappear off, and he can't be there to hide my hand, quite distressing. But the sun is shining in sunny eastbourne today and I slept till 6 this morning which compared to my 4.30 ones, was a real lie in. Have been to the salon to see if they can thread my chin as hairs are starting to grow through at at an alarming rate and whilst I don't quite resemble the bearded lady think there might be a new career for me, am getting more aches and pains and low level headaches,,all of which I am associating with aromasin and zoladex but am going to keep going and see where I am in June when I see the oncologist. Wishing everyone a good day. Love and hugs x x x
13gerbera
Member

Re: MARCHING together

Ha! We could demonstrate stress levels of each stage on the flowchart by correlating the amount of chocolate/cake/alcohol consumed. Waiting for diagnosis pre and post surgery is definitely a high scorer on that one Woman LOL

ValS1
Member

Re: MARCHING together

I definitely think there's room for some awareness info out there for folk to help them understand what its like to go through this, I don't think people comprehend that its not just a series of steps, diagnosis, surgery, treatment, done & dusted, its the weeks in between each stage, scans, biopsy, surgery, waiting for results, that takes its toll. I feel a flow chart coming on 🙂
Fuffs123
Member

Re: MARCHING together

Hi Sharon
Opps itchy finger! Yep Crouch End is lovely, there's a very nice coffee shop just up from the clocktower called The Haberdashery. My daughter helps organise the Crouch End music festival every year, booking the bands. She's just had to look for a new place to rent as her landlord has just put the rent up on her 2 bed flat to £1700 per month, yikes! She's going to house share with some other 30 some professionals, none of whom can afford to buy in London. Makes me laugh when I think we bought our first place in Kingston, Surrey, for £14,000 in 1976!!

Thanks for the info on Predict. I've gone and done it (of course!) and results show a very low benefit after 5 yrs but a bit more benefit after 10 yrs. i also had a large area of DCIS as well as the Grade 3 invasive so this will probably tip me in to taking the Anastrazole. My surgeon wanted to wait for the oncs report before deciding on further surgery and I had a wait for the onc appt (lost my paperwork) he said at last appt that another WLE was very borderline as there was a 1.5mm clear margin all round. He's a very nice guy, not at all a 'cut and slash person' !! so I trust his judgement.
Like others, I am also finding the 'silence' from some of my friends a bit upsetting. I'm sure it's because they think it's all over now and everything is fine but I don't want to seem needy by telling them it's not. As you say, unless you've been thro it all, you can't have any conception of how it plays with your head. I feel rather guilty at times, as so many ladies have had to go thro far more than me, especially chemo, so I shouldn't be feeling so down. Perhaps a raging ear infection and trying to keep the business going at the same time doesn't help! So nice to have you lovely ladies to sound off to sometimes, keeps me going. Hugs to all. Francine xx
ValS1
Member

Re: MARCHING together

As we've been talking about people's perception of what being diagnosed with BC involves, I thought this was a good summary of the stages BC patients have to go through
Link edited by moderator
Fuffs123
Member

Re: MARCHING together

Hi Sharon
ValS1
Member

Re: MARCHING together

Hi Sharon, yes it feels good to have got to the end of the Rad. It seemed daunting at the beginning of it, the thought of going every day for 3 wks but it has gone quickly and I feel I've coped fine, I had an email from a friend who is a bit of a merchant of doom but I've known her since school and she means well, however the she related to me all the hassle people she knew who've had rads recently had experienced at the hospital, waiting ages, machines breaking down etc. so that fed into my expectations when I started mine, but although the staff did warn of possible hold-ups such as faulty equipment etc. I was fortunate & most days wasn 't kep waiting too long the most was 40 mins one day but that was a one-off. i did motice that the majority of people waiting didn't bring a book or anything to occupy them so they would be sitting there clock watching which makes waiting worse, I took a book and also some knitting some days which helped to pass the time but that's me I always have to have something to do. My skin is fine, it only pinked up this week but thats settled and no itching, When I saw the oncologist for follow up last week & asked if there could be further skin problems after she said she thought I'd probably be fine, do will have to see. We are all the same, underplaying it so mixed message, but people mean well when they ask how you are and I don't want to go into all the details all the time, it definitely helps to come on here and talk about stuff as we're all in the same boat. I will keep posting next few weeks - all the best to all of you ladies still going through the Rad. Xxxxx
13gerbera
Member

Re: MARCHING together

Woohoo Eastanglian, you're done at last! How are you doing now?  I know you said you were a bit itchy and pinking up a bit halfway through, did that get any worse? A celebratory lunch sounds fab - eat lots of cake on our behalf!

 

I know what you mean about underplaying it, I did the same with my family and some of my friends because I didn't want them worrying about me (and, if I'm completely honest, I also didn't want them thinking I am some kind of wimp because we're all supposed to be 'brave' and stoical aren't we?!)  A couple of good friends and you lovely ladies have been lifesavers in that respect because I can at least be totally honest and talk about all the various concerns and minor issues that worry me, but when family and most friends ask I just say it's all fine and will soon be over. 

 

xx

Sharon

ValS1
Member

Re: MARCHING together

Hi all, final day of my 15 Rad sessions today, so relieved I'm at the end. I'm on Anastrozole tabs for 5 yrs, hVe been on it for 2 months & no problems so far, they said Tamoxifen not suitable for me as I had a stroke 10 yrs ago. I am looking forward to relaxing & doing something non hospital related. I just got a text from a friend to fix up meeting for lunch, I replied yes please & mentioned this is the final day of my Rad. She texted back all apologetic she hadn't been in touch she assumed she said that I wad in the clear! I think I didnt get the message out clearly to people whats involved when you have BC, i have found that those ladies who've not had it haven't a clue whats involved & why would they I suppose, you only find out when it happens to you. One of my friends has been absolutely brilliant, coming round all through & took me out to lunch this week too, but she is a radiographer who used to run a BC unit so I suppose thats the difference. However this has left me feeling a bit let down by some friends, but I am going to let it go as I've realised its partly due to how I put the message out after my surgery when I said it was all clear, many took that literally, so when I told my cousin I had to have radiotherapy she said why was that as I was in the clear, so I had to explain that althiugh the surgery got it out the Rad was still required.
Rosemaryanne
Member

Re: MARCHING together

Hi Sharon

That sounds perfect!

Agree with you about the dewy skin, etc. Oddly i noticed recently my hand on the operated side looks much better than the other one. Could be because I've been protecting it a bit, but it's all soft and smooth!  (Just realised that's another bit of me that's not symmetrical. Best not check the feet...!)

Thanks for cheering me up, you are a star!

Love, Rose xx

13gerbera
Member

Re: MARCHING together

Hi Lynne,

 

Ooh, I'm jealous of your rest day, how often do you get those?  I think I have to do every week day (except Good Friday and Easter Monday) with just the weekends off and thought everybody did the same unless they had some sort of skin breakdown that needed to heal.  Fingers crossed that all of us get through this without that happening.

 

The hormone question is a tricky one isn't it.  I'm still planning to take the hormone once I've finished radiotherapy but won't hesitate to stop it if the side effects have too much impact on my quality of life.  But you never know, we might be the lucky ones who don't get any side effects and I know that has happened for a few people who post on these boards. 

 

Enjoy your rest day

xx

Sharon

13gerbera
Member

Re: MARCHING together

Hi Rose 🙂

 

Glad to hear today went OK and I agree that all the radiology staff look like teenagers.  Bit depressing really as I'm feeling every one of my fifty years and then some at the moment.  Shame radiation doesn't miraculously cure wrinkles and give dewy youthful skin isn't Woman LOL

 

You are sounding so low about the Tamoxifen sickness, must be horrible so I admire you for being strong enough to stick it out even for 3 months. I hope it is just a temporary thing for you and eases off but in the meatime, I'll pootle off to my kitchen to make you some virtual ginger cordial and some virtual crystallised ginger cookies.  I'll fax them over to you in about 30 mins so you have time to dose up before heading off for a good nights sleep.

 

Take care of yourself

xx

Sharon

13gerbera
Member

Re: MARCHING together

Aww, so sorry Francine, the waiting is soul-destroying isn't it as no matter how much you try not to think about it, worst case scenarios keep popping into your head in the early hours of the morning only to vanish in a cloud of positive thinking the next morning before reappearing that night.  I think the waiting makes us all go a little bit bonkers and it certainly did for me.  I'm surprised you're having to wait so long to hear whether a second surgery is needed, has your surgeon gone on holiday or something?  I thought it was normal to be told about this when they gave you the post-surgery pathology results.

 

About the hormone treatment, have you looked at the Predict! site yet which lets you put in the data about your tumour and tells you the 5 and 10 year survival rates with and without the hormone treatment?  It also gives the same information for chemo.  Like Lynne (Loubyloo), the improvement in survival rates for me is very small so my Consultant said it is up to me whether I want to take it or not.

 

I know Crouch End very well (it's full of lovely vintage clothes shops so a favourite shopping haunt for me :D) so maybe we'll bump into each other in one of the gorgeous coffee shops one day and can compare surgery/radiotherapy war stories! 

 

Hope you start to feel a bit better soon but if not, keep coming on here as I'm always up for a good rant/whinge!

xx

Sharon

Fuffs123
Member

Re: MARCHING together

Hi Sharon
Ah Ally Pally, my favourite place to have a picnic, wonderful views. My daughter lives in Crouch End. I'm also fascinated with The Wellcome Collection! My aunt was the first ever female consultant pathologist back in the 30s and apparently there is a plaque up in The Royal Free with her name on it. I'm starting to wonder whether the benefits of taking the Anastrazole will be outweighed by the side effects. Just how much does it improve the recurrence rates? It's not a subject I can broach at home, as the OH gets very worried about me even considering the subject. He just wants me to take everything thrown at me! Wonder if he'd feel the same if it was him?! I'm finding this time more stressful than I thought. Not having the surgery to focus on getting through and jut waiting to see my surgeon on 14th is hard. Had to cancel my rad planning meeting this week, as no point until the surgeon decides whether he wants to do more surgery. Having a real wobble! Hugs to everyone going thro treatment xxFrancine
Rosemaryanne
Member

Re: MARCHING together

Hi,

I'm hoping things will reach a crescendo then tail off. I'm almost 4 weeks in and it's getting worse rather than better. I've decided to give it 3 months before I make a decision, but can't really see myself sticking it out for 5 years. I've cleared the shelves in Waitrose of all ginger products as recommended on the other thread, cos getting rid of the sicky feeling is my main aim. The rest is tolerable.

Had my first zap, the girl in charge looked about 12 but seemed to know what she was doing! It's too soon to say, obviously, but this seems to be the easiest of the treatments so far. Hope not to have to eat my words in a couple of weeks...

Just wishing this was over, tired of it all now

Love, Rose xx

loobylou111
Member

Re: MARCHING together

Hi ladies,

Another one bites yhe dust!! luckiky I have a rest day from radiotherapy and thats exactly what I intend to do! I have noticed that I am getting stiff on the treated side. Its feels very tight and I get a bit of pain through to my back, so im trying to remember to do more arm exercises.

Like Sharon im not sure about taking the hormone tablets, the benefit is 0.8% extra survival over a person who doesnt take them. Im going ti wait until the radiotherapy is over and have rethink then.

Love to you all xxxx lynne.

13gerbera
Member

Re: MARCHING together

Rose you've got my sympathies with the Tamoxifen thing, I saw your other post and it all sounds hideous to me Woman Frustrated  Are you going to stick with it for a while (possibly using a different brand) and see if the side effects sort themselves out? 

 

I'm seeing some sort of doctor once the rads are over to discuss whether or not to take it as the benefits for me are so low that I'm just not sure it is worth it if it means putting up with the side effects that you've described.  Of course I might not get any side effects so I'm going to try it just to see, but I can't say I'm looking forward to it

xx

Sharon

13gerbera
Member

Re: MARCHING together

Hi ladies,

 

How is everyone doing?  Rose I have started to get tired now although that might be because i wasn't sleeping very well but certainly nothing you could call fatigue yet. I had session 9/25 today and it was all straightforward again, although I did have a weekly review meeting with a BCN which I wasn't expecting (another one of those times when I heard 'oh, someone should have told you about that' and thought if I had a pound for everytime I heard it I'd be getting rich from this whole experience!).  She was lovely though and I was very happy to talk to her and reassured to know I'll be able to talk to her even after the treatment finishes if I have any concerns. 

 

Skin marginally pinker today and seroma at tumour site has swollen up again but nothing too worrying. As it is practically next door to the hospital I stopped off at the Wellcome Collection on the way home where they have an exhibition on Forensics, including a load of stuff about pathology.  Totally fascinating in a gruesome kind of way and, weirdo that I am, it really cheered me up!Woman LOL

 

Right, off to slather on even more cream before tackling my exercises.  Oh, I should have mentioned as well that I've noticed the arm on my treated side is stiffening up again.  I'd got full movement back post-surgery so I'm keeping an eye on it to make sure it doesn't get any worse and will be disciplined about doing extra exercise.  BCN said that if it doesn't resolve itself after increasing the exercise a bit she'll refer me to a doctor...who will tell me to do more exercise!

xx

Sharon

Rosemaryanne
Member

Re: MARCHING together

Hi

3 hours to go to my first zapping.

Not worried about that, just wish the Tamoxifen didn't make me feel pregnant and menopausal at the same time (nausea and hot flushes- not a great combination)!

Good to read that most people seem to get through without too much in the way of skin problems. Anyone suffering the fatigue I was warned about?

Love, Rose xx

 

ValS1
Member

Re: MARCHING together

Hi Margaret, yes I thought that was probably the case re dose determined by breast size, I am small busted, A cup. I am glad to get to the end of the rt, just today & tomorrow left to go. Best wishes & good luck with it all. 🙂
Mynahcharlie
Member

Re: MARCHING together

Hi Eastanglian, I believe that the amount of radiation given (GY) in order to achieve the 6.6 GY for each of the 15 session treatment is to do with the volume of the breast. So with larger breasts they have to give more radiation to achieve the correct amount of radiation. I think that is at least one of the reasons that some have more problems with their skin. As well as that it also seems to differ according to whether you have recently had chemo.

 

As for me, I have size C cup and my skin is holding up well with just 3 of the 15 sessions to go. Bit pink and sensitive. I put on the Jeans cream (aloavera + vitamin e) all the time including the night before my next treatment. But in the morning I wash it off very carefully with very gentle soap and rinse with demineralised water. That as if there is any cream left the skin will be affected worse as the 'passing harmlessly through the first top layer of skin' of the rays is diminished by a layer of cream. As for the rinsing, my husband, a physicist, told me that the hard tap water here, containing calcium will act as a metal when it dries which would (slightly) increase the intensity of the rays.

 

I am relieved that I am almost through my lumpectomy, rt. Then have to pick up on the Tamixifen again which I stopped for the rt.

 

What is terribly worrying is that my eye pressure is way up, I take anti glaucoma drops to reduce it and they have stopped working. My ophthalmologist put me on different ones which burn my eyes. They are called Ganfort and in the UK they are available without preservatives but not in France. Am trying to persuade an online pharmacy in England to send them but I don't think it will work. I think it's all this stress that has been pushing up the pressure in my eyes, but my father went blind and I have all kinds of patholody (including extreme myopia) putting me at great risk.

 

As if that's not enough agony, my breast cancer was found during a scan for digestive probs. Had them since last June when I overindulged in non-pasteurised milk products. Ignored it at the time and developed haemorrhoids. Very painful and embarrassing, didn't want to see my gp  for it.  

 

Patronising gastro guy wanted to do a colonoscopy and I refused as the prep of drinking liters of liquid and throwing up beforehand would cause my eye pressure to go up badly. He ordered the scan where they found the breast tumor. So everything was put on hold. Now I am in pain from the haemorrhoids in spite of putting some cream on it and still have the (I think it's IBS) digestive troubles. Might of course be something worse.

 

Really feel too much is going on... Very hard to take, sleepless nights worrying........... I know I shouldn't complain, some/many of you ladies are going through mucn worse and being so terribly brave about it.

All my love to you all, xxxxx Margaret

 

 

  

ValS1
Member

Re: MARCHING together

Good luck with the chemo Eileen, hope all goes well for you 🙂
Lena2
Member

Re: MARCHING together

Hi,
I too was told. I had a small cyst on one of my ovaries but the consultant said this is quite common. However I have an appointment for April for ultrasound with internal to have a look. Will have to change this as it is the same date as chemo 10 minutes apart so it's a no no. I had my first chemo yesterday so keeping my fingers crossed I will not have several bad days with sickness. Love to everyone. Eileen 😊🌺
ValS1
Member

Re: MARCHING together

Hi again ladies - just to report that this evening my skin is now quite pink & hot so finally showing some reaction after 13th session & 2 more to go 🙂
13gerbera
Member

Re: MARCHING together

Hi Fuffs,

 

I'm in North London too, near Alexandra Palace and although I'm an Essex girl originally (couldn't you guess from my name? Woman LOL) I've been in London for 32 years so consider myself a proper Londoner.  The V&A is my favourite spot in London, I'm a member which gives free entrance to the exhibitions and have been to all of their exhibitions for the last few years (almost died of excitement over the Hollywood costumes one - Vivien Leigh's frocks from Gone With The Wind; Judy Garland's outfit inc red shoes from The Wizard of Oz; Marilyn Monroe's famous white dress....oh, it was wonderful!) Went to the Alexander McQueen one on Saturday and loved it. I seem to end up there at least once a month even if only for coffee and a chat with a friend.  

 

Not sure if it helps at all but they didn't get the required 2mm margins around all of my cancer, at one border it was just 1.5mm but they didn't say there was any need to reoperate (thank heavens because I'm not sure I could have faced it again after the fiasco of the first one).

xx

Sharon

ValS1
Member

Re: MARCHING together

Hi Lynne, glad to hear you also have no skin problems, I've been wondering if they've been forgetting to plug my machine in! From what the hospital told me when the MRI scan found my lung lump, its quite common these days for other things to show up during scans the medics call the, 'findings', could have done without it though as I'm sure you could also, but at least it can be sorted. Best wishes.
loobylou111
Member

Re: MARCHING together

Hi ladies,

Well treatment no 8 gone and dusted just 7 more to go!! Today I was collected by the nhs transport as usual but they came 3hrs before my treatment,  we had to collect another lady who had her appt 45mins before mine. So I arrived and had to wait over a hour then had to wait nearly hour and half for transport home, finally got back at 6pm....absolutely shattering all this travelling and waiting around. 

I also had a appointment at my local hospital with the gynaecological department (as they found a lump on my ovary shown on my ct scan) anyway the dr says he is almost 100% sure its just a cyst...phew! So on the 11th May I have to have it removed and both my ovaries too. 

Like most of you, I have gone without the bra....quite liberating really lol. and no skin problems either, so that's a blessing. I only use the cream supplied by the hospital as I was told not to use the aloe vera until after the treatment has finished.

take care everyone xxx lynne xxx

ValS1
Member

Re: MARCHING together

Just wondering .... I presume that as the Rads are tailored to each patient the dosage varies also, so in my case the tumour size was 8mm so the Rad dosage would be less than for someone with a larger tumour? Would this explain why some people have bad skin reactions while others don't. Mine is IGRT (image guided) presume that is the standard now?
Fuffs123
Member

Re: MARCHING together

Hi Sharon

Oh I miss London, always will be home to me. Born there and spent 40 years there before moving to the Midlands in 1993. I spent my childhood at the Natural History Museum and the Science Museum but love the V AND A also. My daughter also loved the museums and still does, at 30! She lives in North London now but I spent my time in West London and worked at Hammersmith Hospital. Where are you based? My rads have been put on hold until I see my surgeon on 14 April but I just wish I could get on with it. I suppose if he decides to take a bit more tissue from my poor mangled boob, then no rads until it's healed again. I didn't quite get a clear margin all the way round so probably will. No chemo at least, so that's something to be very grateful for. It's the waiting driving me mad again, good job my business is so busy, keeps my mind occupied until the night time, when it goes into action. Hate those long nights, thank goodness for BBC I player and the World Service! Was going to Leicester today to watch the internment of Richard III but didn't feel up to it, battling nasty ear infection. Feeling rather sorry for myself 😤 sending hugs to all the lovely ladies on the march xx. Francine
ValS1
Member

Re: MARCHING together

Hi Sharon, I seem to have avoided skin problems so far which surprised me as I had been expecting some effects as my skin can be sensitive, I have been using aqueous cream instead of soap in the shower, then a thin layer of it to moisturise at night. I am small busted so have ditched the bra to reduce any chafing, wearing M&S vests instead, am drinking alot more water than I usually do as they said at the hospital it helps with tiredness and keeps the skin hydrated. The children break your heart don't they, it so sad. Hope you enjoy the theatre, OH has a few days off end of this week so we are planning on doing something nice too, need to try and think about other things for a while. Best wishes.
13gerbera
Member

Re: MARCHING together

Hi EastAnglian, lovely to hear from you but sorry you've got yet another step to go after the rads & hormones, must be mentally exhausting never mind the physical trauma of it all.

 

Have you had any reaction at all to the rads so far?  Not even a bit of pinkness? If not you seem to be very lucky in that respect at least or have you found some miracle cream that you can tip us off about?  I'm only on 8/25 and already have quite a reaction so dread to think what sort of state I'm going to be in when I'm through. But, as you so rightly say, even if I end up with my skin in a mess it is nothing compared to some of the poor people I see in the department everyday.  There were two very young children in today who've obviously had chemo already - makes your heart ache for them doesn't it and heaven knows how difficult it must be for a parent to see their little ones like that.

 

I've booked to go to the theatre on Thursday to see Harvey and to the Opera the following week to see Madama Butterfly.  Feeling the need for regular treats and I can't keep on eating this much food or I'll explode, which won't be good for the poor mangled boob Smiley Tongue

xx

Sharon

ValS1
Member

Re: MARCHING together

Hi all, I had my 13th rad. of 15 today so 2 more to go, no skin issues yet but that might come later, I feel the same as others in this thread, my diagnosis was stage 1 BC, no lymph node spread, had a lumpectomy & prescribed anastrazole for 5 yrs, plus 15 Rads. I recovered fine from the op but was dreading starting the radiotherapy, I was quite low today, its getting to me seeing very ill people at the Rad clinics, alot of men with prostrate cancer some of them having 6 wks of Rad, lots of little children, brings it home to you doesn't it. I have an added issue after this is over as when I had the MRI for the BC they found a lump on my lung so I was referred to the chest clinic and after a lung biopsy under a local they said its a benign neuroendocrine tumour which they say needs to come out so will be having another op for that soon. Good luck all with the rest of your rads.
13gerbera
Member

Re: MARCHING together

Hurrah for holidays, time to start thinking about where you want to go next 😄

 

I'm doing fine thanks, the radiotherapists are keeping a close eye on my skin so I know they'll refer me to someone if they think it needs to be checked.  I did ask them about it today and they said it was just inflammation from the radiation and isn't uncommon and, since it doesn't hurt at all, I'm not worried. And you're right of course, stretch marks are the least of our worries!

xx

Sharon

Chez666
Member

Re: MARCHING together

Lovely thanks, OH spoilt me rotten and consider myself very fortunate to have been able to go away as we did manage to leave the cancer bag behind. I live in eastbourne but have to travel to Brighton. 2 hrs travelling but others have more than me so not grumbling. Your swelling sounds painful... Are you ok?? I must admit with swelling and shrinkage, stretch marks had not occurred to me but am not going to fret about that as more worried that I can't use aloe Vera until after the radiotherapy has finished!! X x x x
13gerbera
Member

Re: MARCHING together

Hi Cheryl, hope you've had a fantastic holiday?  Bit of a downer to have to come back I imagine!

 

I'm glad your first session went well and the radiotherapy staff are really lovely aren't they, and having staff who seem to care about how you are feeling makes all the difference.  I forgot to ask where you were being treated but assume it is somewhere in Herts?

 

I had 8/25 today and boob is well and truly baking now - swelling all over the shop and is now bigger than the untreated boob by quite some way.  I wonder if we get stretchmarks from all the shrinking and swelling that they do in such a short space of time 😄

 

By the way, if anybody is in or around London and can get tickets, I highly recommend the Alexander McQueen exhibition at the V&A, it's marvellous.  I wouldn't even consider wearing any of his clothes (and couldn't anyway as I'm only 5ft 1) but each creation was a work of art.

xx

Sharon

Chez666
Member

Re: MARCHING together

Hi hope today went positively and that you got some sleep last night x x x
Chez666
Member

Re: MARCHING together

Hi all, had 1/15 today. An hours wait and then into the black hole, 2 lovely radiographers and a student who were really helpful,and reassuring and did not tell me off due to 7lbs I have put on, but as I lost 10lbs am still in credit. No aloe Vera until after treatment and they did warn me my nicely closed up scar of 10 days might be unhappy with the treatment 😞. Sharon Thanks for the porn image,I remembered it when the machine started and had to stifle the giggles 😄😄😳and hope you have had nicer radiographers today. I hope everyone else who was zapped today is okay.love and hugs x x x x