Positivethinker - pleased to hear it's getting a bit more under control and you have a sleeve. Did the nurse say to where the sleeve prior to the MLD as well?
I have my first private MLD appointment in April for £45.
Sarah - it seems that some areas provide MLD on the NHS even for mild cases of lymphodema. It is worth asking your lymphodema nurse. However, my feeling is that in most places it's only provided on the NHS for the most severe cases.
If you decide to have it done privately then you need to make sure that your therapist is registered and preferably check with your lymphodema nurse that they are good.
take care all, Elinda x
Whilst you await replies here's the link to the BCC publication 'Living with lymphoedema after breast cancer' which contains information about MLD:
Having some trouble with my lymphoedema ( right arm) at the mo - there's a 39% difference from the left one. I'm trying to address the weight issue (!), I exercise my arms 2x a day (exercises from booklet given to me by lymph. nurse) and wear my (heavy duty) sleeve every day. What does the MLD mentioned here involve? - is it simply massage ie. can you do it/somebody at home do it for you or does it have to be a specialist? My l.nurse hasn't mentioned it,so I doubt if it's offered by my local hospital ( go to l. clinic in Singleton , Swansea ). Any ideas would be great!
I paid privately for mine and found it helped the swelling go down a bit, especially when i had 3 in week. I am abroad alot and it cost me 33 euros a go, but that was discounted as i had it over a week.
I only just got fitted for my sleeve and have been told that when i go my my next block of mld puting the sleeve on straight after, will help more than ever.
In my area, MLD is only offered when it is worse and is done at th elocal hospice. The BC nurses dont have time to do it, although she did teach me how to do it myelf. I was diagnosed as having just 5%, but it is all in my hand forearm and what was a skinny wrist, so it shows.
It is my belief that MLD works well alongside the sleeve, it is just a shaame we have to pay for it.
hi all .ive been having mld for the last week together with bandaging . i have been having sleeves etc prescribed for me for the last 4 yrs and after getting a new nurse we were talking about bandaging ect and she was suprised that i hadnt been given the option before ! well ive had massage and bandaging and i can say its working for me ,my arm was 1cm after just a week .the bandages are not very comfortable and make dresssing and washing a problem but if it works im willing to try anything as i was getting really fed up and now the weather is getting warmer really want to be able to not wear heavy jumpers to hide the swelling!
hope you can get relief soon ,do try it if you can .x
Hi all and thanks so much for all the replies.
I really want to have one MLD session so I can learn more what to do for myself. Although I've been taught the basics, I haven't really learned what to do on my arm itself.
Someone else using this site has been to this therapist and said they're very good, so either I caught her on an off day or she has an unfortunate telephone manner. I also think I feel quite vulnerable about it all and wanted to feel looked after not criticised.
Has anyone been given in depth instructions on SLD or can recommend any website that shows this?
Norberte - I haven't tried taping as my lymphodema nurse seems to think that the sleeve is working well but I may mention next time. I've sent you a PM about the exercises - thanks.
Ouch that is costly. I only have mild lymphoedema and at the mo am lucky enough to have a monthly session of MLD on the NHS which seems to just keep on top of it with me doing my self massage. However, I was told that they thinking of making it 6 monthly visits but doing 3 sessions of MLD over the week. What I get at the mo seems to be holding mine in check so don't want to change it. The problem with lymphoedema is it is very individual and what works for one person doesnt neccesarily work for another. Good luck with sorting it, MLD certainly seems to work for me and shifts any stubborn bits and just seems to give my system a bit of a kick up the backside, I also find it very relaxing so the feel good factor works for me too.
I think you're right, I should feel confident and comfortable with her.
I don't know about that charity - I don't think so as I've not heard of it but I'll check. Elinda x
My local Helen Rollalson charity does MLD for free for those who need it. Do you have something like that in your area?
I think if your thearapist made you feel under pressure and panicky then she is probably not the right one. Did you ask for a discount if you booked in for several sessions?
I was wondering how much effect people think MLD has?
I rang a therapist today and it's £45 per hour and she wants me to go for 6 weeks in a row and then monthly. I simply can't afford that - is it worth going occasionally or even having one session?
My lymphodema is very mild. The therapist made me panic though as she said why was I waiting so long and I needed to get it treated to stop it getting worse. My lymphodema nurse said it wasn't necessary but I could do it as an extra if I wanted.
Feeling anxious about it all now again.