Hi Collista, I agree with Ali could be pent up indigestion. Someone recommended lansoprozole from the GP and that really helped esp at night. Are you also having the injections to boost your white bloodcells? I was told they give you pain where they are boosting the cell production often in centre of your chest so it could also be a bit of that which will ease when you stop them. I also find I am doing explosive burps which releases the wind and helps the indigestion pain, what polite company we all are now!!! Hope you get some respite soon, off to buy more bird feeders so I have more to look at out the window after the next cycle, a bit of change from my usual mad hobbies xxx
Hi March ladies, I am off for my 1st T today, got a 9-15 appointment. So not looking forward to it. I will let you know how it goes.
hi folks, I had my second FEC last week and it was fine at the time, although I have been a bit more nauseas this time than the 1st time. my hair is all gone, bar a couple of tufts at the back. I didn't realise how cold my head would feel, especially through the night.( I'm in Scotland and is still freezing here through night) . I've now got a nightcap which gives the family a good laugh....they say i, m like dopey from 7 dwarfs! been wearing my wig out which takes a bit of getting used to....but so far nobody's stared. Has anyone lost their eyebrows?? My seem ok so far.
I am absolutely loaded with the cold which I just can't shake off. Hoping it doesn't delay any treatment, I'm desperate to get this all over and done with.
keep strong everyone, your all doing brilliantly
hi all,have not posted for a while, had 2nd fec, not been to bad, nausea worse s/e for me, but my farts!!!! they are toxic, so bad s/e for everyone else, been told i need herceptin, told this a wonder drug, so anything extra that will help, bring it on, not liking hair loss, but hey oh, i find it weird when you open a door, the rush of air you feel round your head, also make up, how strange putting foundation on, with no hair line, got third fec tuesday, i find i cant eat for a week, everything smells, i feel really well this week, hope everyone getting on ok
Hope you are doing OK.
Is there anyone having weekly Taxol? (like me!). I've now done 6 out of 12 cycles, and just want it to end. It seems I'm not "recovering" now as I did for the first couple, and tiredness just hits me over the head with a hammer and I end up on the sofa for most of the afternoon & evening. Even opening a can of tomato soup is a real effort. Other side effects are minor in the scheme of things, but starting to aggravate me. The plus I hang on to is... I still have my hair! A bit finer, a bit thinner but still there, with new stuff starting to grow. For e, the cold capping is worth it. Can't wait for the end, when next steps will be "radiotherapy with boost" (whatever that is).
Take care of yourselves, love to all, Mary xx
Hi ladies I will be having my boob lump checked after my 4th chemo I have got 2 weeks to wait for this.
Just hoping it's got smaller. I had to ring my BC naurse and ask her when I was going to be checked. After the phone call I got my letter with 3 dates, one for a mammogram one to see the surgeon and one to see the chemo doc.
i might as well move me bed to the hospital lol lol
x X X
Hi Tonya, I've not had any scans since just before 1st chemo. I have my review on Friday (3rd session due Tuesday) so will mention it then. Xx
Hi ladies Feb starter here, I wish I got constipated it's the opposite I must go loads a day, sore bum I use baby nappy cream. I have never been constipated.
I will be having my T tomorrow don't know what se I will get.
x x X
'Lactulose' is excellent at softening poop you can buy it over the counter as well as getting it on prescription and it is a benign supplement. I take a half dose every day as my last round of chemo had me so bunged up I almost thought I'd have to go to A&E!! I thought I would expell my entire bowel when I finally managed OUCH 💩💩💩💩 and yes I am still sore too. 😳
Of course any natural stuff is a no brainer, so dried prunes, apricots, beans anything which might work is a bonus.
Just a little note- have found a couple of glasses of purple grape juice (the one in the fridge) really helping "loosen" things up. Hope everyone manages ok today, hugs to all. glad the sun is shining down here xxx
Emma Jane, can recommend germolene haemarroid cream for sore bums 😶, it's got local anaesthetic it and you don't need much.
Hi Tonya, I admire you that you can still self examine. I can't bear to look at my boobs and when I'm showering
i barely touch them! I'm having my 3rd FEC on Tuesday and haven't been examined since just before 1st chemo so no idea of any changes or if it's shrinking (fingers crossed it has).
glad to read it's not just me with wind - I was blaming the smoothies my hubby makes!
love to all xx
Thanks Emmajane. Perhaps you should ask him to take a look next time. Every time I have seen the lady oncologist she has asked me if I minded her examining me. I am always delighted but it got me thinking that perhaps some patients are not too keen and so they are a bit hesitant unless there is good reason. The male oncologist I saw Initially has never examined me.
Regarding the wind, I'll just say I'm pleased I have a dog. lol
Had my appointment with the oncologist this morning. She was mainly interested in side effects and is going to give me different meds for after the second chemo session so fingers crossed that they will help. She examined my breast again and said the lumps seem smaller and softer than before the first chemo. I think all the side effects were worth it If the chemo is doing its job!
It looks like I need a third biopsy to determine if I am HER2+ or not. It seems that when they classify it as borderline they don't really know. I may be mistaken but this is the impression I came away with.
Let hubby loose with the hair clippers last night and feel better about taking charge of the hair loss. Feeling much more positive that this is doable.
Tonya, I have heard them referred to as coils and markers. They could also be known as pins. I think they insert them so they can find them easily when the lumps shrink. It sounds as if they still expect me to need a full mastectomy though.
Emmajane, hope all goes well on Thursday. Will be thinking of you while I have my second.
Thank you for your kind replies.
Tonya, my fingers are crossed for you. Did they put coils in? I had two coils inserted into my right breast as I have two tumours there and one in the left breast as they saw something "suspect" and want to keep an eye on it.
The main side effects were terrible pain in my feet, lower legs and back and very sensitive skin. I felt as if the skin on the soles of my feet was being burnt off. My nails also throbbed but they look ok. I have painted them a dark black cherry and I am hoping this helps. I also developed a thrush patch on the skin at the top of my hip. Also had confusion, indigestion and vomitting, diarrhoea, and developed a permanent dripping nose with nosebleeds and felt generally very tired and weak but not too surprising as I haven't been able to sleep very well. I am just feeling good in time for next chemo on Thursday. 🙂
Aileen, good to hear your doctor is sympathetic and the PICC line is a big help.
Suzie, I am a bit squeamish and feel funny when I think about the PICC but it sounds as if the process is not too bad. Pleased to hear your se were manageable. I am hoping that now that I know what to expect I will be able to get on top of them.
Hi Primrose, I've been diagnosed grade 3 HER2 positive. I've had 2 X FEC my 3rd is next Tuesday. Then 3 X FEC-T - so nearly halfway there. Hopefully it will shrink and zap any others before surgery. I've a PICC line and I truly never felt a thing when it was been put in and was surprised when I was told I could get up!
i have found the s/e manageable (just) and so far have been lucky with only suffering nausea, tiredness and generally feeling washed out.
I have found this site invaluable with everyone's positivity, helpful tips on how to stay on top of this and not let it beat us!!!
love and hugs xx
Sounds like you are doing your chemo the other way round to me. I have just had my third fec and start my first of 3 doxytaxel in a few weeks. Hope the oncologist can help with some of the side effects, although you might also want to try your doctor. My doctor has been lovely and more syathetic than my oncologist - whenever i have an issue i just call up the surgery and she is happy to call me back so i don't have to go into the waiting room for an appointment. She then leaves a prescription for different antisickness or whatever i need at reception or the pharmacy. Do let us know what works for your side effects as it is so useful to know what works well for others.
Re the picc line, i have one and have found it great -so much better than canulas which i hate and can give your veins real issues. The process to put it in was fine. I had a local anesthetic on my arm so didn't feel a thing. It felt a bit strange under my arm for a few days but don't notice it now at all. Having a shower is a bit of a pain but hopefully they will give you a waterproof cover for it so not too awkward.