Ah I have an injection called Lonquinex or something like that, I get it day after treatment and does the same thing. I feel for you ladies with young children going through such a rubbish time. Praying you and I feel better soon 💕💕
Aw Loolyboo the mouth is horrible. What's the injection, I don't get that? I pretty much had an easy time with Fec so I'm really struggling with feeling rubbish on T. Xx
Hi ladies, I'm currently day 7 after first T and hate it so much. Was fine for first 4 days then it hit. Vile taste in my mouth and very white, been taking fluconasol but doesn't seem to be clearing. Ended up in hospital day 5 with temp of 38.5 although all tests proved ok. Is anybody over day 7? Desperate to know when I'll feel better. Sending you all love xx
Hi all, haven't watched the big c but I can only speak from previous experience when I went through treatment for bowel cancer 8 years ago and say I was extremely emotional and depressed for a long time during and after and now I look back and am sad at the time that was wasted feeling like this instead of getting on and embracing my kids and life to keep going. I have been much more positive this time and tried to take treatment and keep life going as normal as possible (although keeping working 2 weeks out of 3 has been a big strain). Having said that the day 7 1st T has kicked me hard and just got back from 2 days in hospital with neutropeana. And to think I hated FEC hmmm am saying constantly to myself "just keep swimming" and planning all the amazing food I will eat when my mouth recovers.. Anyone else have a grey mouth but been told not thrush? Keep going girls, the nhs and treatment solutions for bc are well founded xxxxxxxx
I would under normal circumstances watched the 'C' prog, but couldn't. any programmes that contain anything to do with 'C' I won't watched. In denial ?? Scared....definitely.
hating chemo wanting it to end but scared at the same time.
trying to stay positive, but coping with all the s/e certainly does test you.
we can do this ............ most certainly WE CAN!!!
ice cream is good but the best thing for me is hot soup with loads of added salt. Really soothes my mouth. Not sure whether to watch 'The big C' on tv tonight?
Radiotherapy will be 20 sessions - 15 (right breast) plus 5 "boost" (tumour site). In the euphoria of finishing chemo I expected all side effects to suddently stop! they haven't, so I am still taking the domperidone and ondansetron for nausea; still falling asleep after doing very little (even going upstairs can be exhausting) and still unable to taste much. but it's not yet been a week, and I'm sure it will get better soon. I also know that the Herceptin injections will continue, and that endocrine treatment will start at some point (Tamoxifen was mentioned by BC nurse).
Good luck to all, take care of yourselves,
Hi Loolyboo, so glad you're feeling good after such a short time from having first T. I more or less had the same, but experienced zero energy levels and had quite a few emotional episodes. Pleased to say with one week to go til first Herceptin and second T I've got a bit more spring in my step now. Love to all xx
Hope you are all doing OK; just dropped in to say I have now completed 12 cycles of Taxol and am having 3 weeks off before starting radiotherapy (Herceptin injections will continue every 3 weeks). For me, the cold capping worked & I still have my hair, even if it is a bit thinner & more brittle. Releived, delighted, apprehensive are just some of the feelings I have at finishing the chemo - I am aware that there are plenty of others who are continuing with their various treatments and wish them all the best.
Take care of yourselves, love to all, Mary xx
Hi lovely ladies, sorry not been on in a while, hope everyone's doing good. I had a really long day in hospital yesterday as I started on Herceptin and Docetaxol, glad to get the 1st of both of these treatments under my belt. Woke up this morning feeling the best I've felt since I started on Fec, long may it continue. I've read the se's don't usually kick in for a few days so I'll make the most of today and tomorrow. Hope you are all well and enjoy the bank holiday weekend xxx
cjrd - Thats great news. Glad you won't have to suffer again.
Ali - Thanks for sharing. Looks really interesting - will watch it over the next few days (2nd T tomorrow so have plenty of rest time ahead)
Jembossable - sorry to hear your very sad news.
They told me today I only need to have 4 injections after this chemo so hopefully I won't get that horrible back ad hip pain again - fingers crossed!
Hope everyone is ok today.
Well I was taken off Docetaxel/Taxotere yesterday and was put back on to FEC (for No.5) - it was felt that my side effects were too severe; also my CRP was sitting on 180 and this should normally be below 10 - this test is not performed in my hospital but was done when I landed in A and E in my local hospital two weeks ago. They will keep me on FEC for the final treatment - I am so relieved. Hope that all is well for everybody. X
Thank you Ali-B. I ve watched it through in its entirety. I cried along with Victoria.
I have been dreading cycles 5&6 of T and didn't know if I'd be able to cope. I feel I can now and whenever I have another wobble I'll go back and watch her diary again.
Aargh forgot to paint my nails, now mixing nail polish with packed lunch preparation , the kids may have purple tinged sandwiches 😊
Hi Amylou, I can't sleep either.i only seem to manage a few hours at a time. I have been prescribed sleeping tabs and have used them on and off since I was first diagnosed. Although they get me off to sleep its only for 3-4 hours (I sometimes take another then). Otherwise I could be awake from 2/3am onwards. During my good week I normally sleep ok, but that's because I go back to work and rejoin the normal world.
Will I get a good week on T every day I seem to get rid of one s/e only to get it replaced by something else!!! Xx
Thanks, cjrd. Good to hear FEC was kinder for you. I hope you have a much easier time with the rest of the T.
Good luck to everyone having chemo this week.
Good luck tomorrow all on their first T, me too. Have eaten for England today before I lose the taste buds! Hoping everyone does ok. Really hoping less nausea, now have phobia of tablets- managed to throw up before they even gave me 3rd FEC last time oh dear, sort of looking forward to T because it not supposed to be as sicky p if that s not too weird!!!! Hugs to all we are HALF WAYxx