Sorry not been on for a couple of days, we have changed internet so didn't have any!!!
Yes we we are at very similar stages, I had my first on 28th March. I think we are doing well you sound very up spirited and I think that is very good and half the battle. I have had similar side effects to you too, tomatoe face, foggy head. I have had my hair cut short and have got my wig ready!!! I am also finishing in July and its my 59th on the 19th so like you double celebration!!! I wasn't going to have a party as I'm not really into doing parties but thought what the hell I will bloody well have a lot to celebrate!!😀😀. I will need rads but don't know how long yet and tamoxifen.
keep up the good work. This week has been a good week so far so good it's getting better each day, I'm hoping next week is even better. I am not wanting to eat as much this week eatger, last week I would have eaten the TV.
take care xxx
Hi Linda, nice to have u on board! Yeah, both on same treatment plan. I'll be curious to see how u get on on round 2 of chemo, I'm hoping I'll just be feeling the same as the first lot. Last few days now just feeling a bit tired, don't feel like doing much, drove briefly into town to buy a few things, felt like I had jet lag!! I'm hoping next week I'll bounce back to action!😁Xx
Hi, can I join in- my first chemo is next week so does that mean I'm an April starter? it's useful for me to hear what other 'chemo chicks' are going through and getting up to, especially as you're a bit ahead of me. I'm currently fighting the hair loss fear (some of you may have spotted my earlier downbeat message this morning). I'm in a bit better frame of mind now after having a chat with a local hairdresser. My first chemo is next Tuesday, I've read everything the NHS has given me but most is fairly negative, warning of side effects etc. I know they need to make sure I know what 'could' happen but I'm really glad I looked up the BCC website and this forum as a balance and for support.
I'll start a diary as recommended and will drop into the forum regularly. Best wishes to everyone for their own journey, Sue
Would love to join this thread...😃
Im Linda, I had my first EC on 22nd march, next is 12th April. would be good to chat.
cheers Linda xx
Hi meash, yes! I'm doing 3xEC then 3XDoceataxel. Today is day 4 for me since starting chemo, so far so good, still have heart burn, got meds for that, feel a bit foggy headed at times! Hard to explain really! Just not quite with it! Have had a couple of flushed face and shivers! All normal due to side effects, just have to keep checking my temp! I'm looking forward to Friday, at least then I'm out of the woods in this first round and will know roughly what to expect on the next. I had surgery first, lumpectomy then later mastectomy! Not needing rads, will be on tamoxifen later. My last chemo is 14th July, it's my 54th birthday on July 23rd! So I think I may have a big party! Celebrating end of treatment and birthday! Glad all's going well with you.😀Xxx
I have my second round of chemo Thursday, really not looking forward to it as after first round I got a chest infection and I know I'm going to be checking my temperature every few hours.I quite agree losing my breast was easier to handle than losing my hair, but I keep reminding myself it will grow back.
Hi Helesbelles, even though I knew it would happen and I had the wig ready, losing my hair was extremely hard to deal with.
Now I have accepted it and like my wig. However it feels like a loss of identity and when I look in the mirror, it's not me I see!!
I have total admiration for all the ladies who 'go bald' but thats not for me. As normal as possible is how I need to feel and look.
Good luck to you all this week xxxxx
Hope everyone had a chance to enjoy some sunshine this weekend. After my low last week which seemed to last forever, on Saturday I felt a bit better and that continued yesterday. I was out and about for a wee while yesterday and did some gardening - felt so good - like a fog had lifted from my brain. I've started a diary so that I can check for a pattern. Unfortunately my tastebuds only recognise strong spices, brown sauce and salt and vinegar crisps which is frustrating - my husband is enjoying cooking extra spicy foods which I usually can't eat! 11 days till my next chemo so hoping my energy levels will continue to rise. It's a roller coaster this - then back for more.
Good luck to everyone who is getting chemo this week.
How are you doing? Not heard from you in a few days, hope all is good.
I had had my hair cut today!! It's now short bob, my sister cut it and we measured it at 16" so had a lot off but I have made the first step. Hope your ok xxxx
Think we must have started FEC on the same day last Monday 27th, I had my hair cut today into Bob will let you know when I see a change, I am trying to only wash every third day and see how it goes. I also have a fantastic wig just hope we don't get any high winds!!! Keep me posted how yours is going xxx
are you having 3x FEC then 3 x doc? I was brave today and let my sister cut 8 inches off my hair to a bob!!! She has also cut my wig to shape putting a feather fringe in it for me, this does look good and I can't see my eyebrows. I am now on day 6 of first FEC, today I did feel very good, I think I surprised myself at how I felt. It is the first day today that I have been able to taste things!!! Everything has either had no taste or tasted horrible, I have had an appetite which has been good. I like you woke on day two to a red face, it got worse on 3,4 but temp was fine and told just another side effect to have. It is a waiting game you are right as we are in unknown territory for this first course, I am hopping that next time around we might be a bit more prepared!! Do you have to have surgery yet or have you had that to. You are doing well take each day as it comes, we will get there xxxx😬
I am currently on day 4 of my second round of FEC. I have had a red face and neck for the last 3 days but it subsided after a cool flannel. I have had a 2 hour nap in the afternoons for the last 3 days and then I can last til late evening. I am able to eat but just don't enjoy the food as much, though I did enjoy my dinner this evening. I have had a paxman coolcap for my 2 FEC treatments. I had my hair cut to a bob before treatment began. I have noticed alot of hairloss over the weekend, lots of strands of hair on clothing, just persistent all day long. I has been just washing my hair twice a week and drying with a T shirt. Not sure whether to wash my hair tomorrow or wait another day. I am going into work in the mornings so abit concerned about all the loose hair on my shoulders.
Wishing everyone the best in the next few days. I am looking forward to feeling better on the next half of the cycle.
Hi Ladies .Week two of first TC and my hair's falling out fast .Finding my head is quite sore and wearing my wig hurts and feels like my head is in a vice, so only wearing if I go out. Also suffered from a very red face for four days and had a chest infection and hospitalised for a week. Next cycle Thursday hope I don't get any infections , and things are better . Fingers crossed. Enjoy this lovely sunshine everyone.
Just an update on the hair front as I think Cartwheels asked about that. I had my hair cut from shoulder length th crop last week in anticipation of some hair loss coming up soon. I couldn't face going into a town hair salon so emailed one of the tutors at college where I work and she booked me in with a Level 3 hairdressing student who understood my situation. I couldn't face the whole "where are going on holiday," just fancied a change did you" type of conversation I would have had to have had otherwise. It was good experience for the student who was being really gentle and careful and sensitive and also I got a free haircut! You have to make the most of small blessings! I have also booked a consultation with a wig shop on Thursday this week. My daughter is getting married this summer so I want a wig for special occasions although I am not anticipating wearing it all the time. I have also ordered a couple of soft turbans from"Live better with" which seemed reasonably priced. I was not offered a cold cap at our local hospital so it will be interesting to see if those of you who are using one keep your hair better than I do!
Best wishes to you all - have a good week and enjoy the better times when they come along xx
Hi meash, I had my first chemo treatment yesterday, EC, have felt sort of okay, just heart burn, but earlier this morning my face felt quite warm, looked in the mirror, it was bright red! Took my temperature it was fine, It seems to have calmed down a bit, I also have a slight rash on my hand, it's all like a waiting game, what's going to come next!!😁Xxx
Good Morning Ladies.
Hope you are having a nice weekend so far.
My tomatoe face has gone this morning!! I look kind of normal I think, I look in the mirror but some how I just don't see me, I know this sounds bizzar but strange. I also don't know which thread to use to follow to reply to you ladies, my mind has gone blank today. I have just clicked reply do I reply to thread as I can't read the threads when typing!! I'm having a bit of a melt down but I'm sure it will go. I am like you ladies so fed up of not being able to taste anything it's awful. My hair has become dry but is still there for now, I'm having it cut short tomorrow and will wear my wig when I go out. This is day 6 of first FEC so I am trying to keep a diary note of each day's effects, feelings. I am hoping that next week will be slightly better. I do feel isolated from the rest of the world slightly you don't feel like you can just go ahead and do something, you have to plan it all out before you go.
But overall things have been manageable there just frustrating because you can't taste, can't eat what you would like.
Take care are ladies and enjoy the weekend xxx
Hi everyone no real se to moan about which is good red face now gone a little wobbly and a little tired but it is a lovely day and plan to get out and enjoy it even if just for a a wall
Wow Eliza no wonder you feel tired go girl I am a great believer in doing the things you can when you can and rest when you can't so definitely with you have a good day everyone
Hi to all,
i am day 16 following first treatment, 2nd due Thursday. Despite the PICC Line problem & initial scarlet faced 4 days, it's been ok. I felt so much better week 2 that I did far too much; garden centres, shopping for skin products etc, browsing at Easter Eggs ☺️ eating fish fingers wraps outside Waitrose cafe (have dog) and so on. Yesterday I suddenly felt weak, shaky and frail which alarmed me. Not sure if it's hormones, the chemo or just failing to rest properly. It's hard to get a balance - probably need to slow down a bit. HellesBelles I don't know how you cope with the tiredness and looking after young children too.
Glad to read everyone's progress.
Meash, Onwards & Munchkin hope your side effects aren't too bad & you feel a sense of relief that it's perhaps not as bad as you thought. I was Queen of the tomato face 🍅 but all settled down around day 4. Munchkin we are having the same treatment so am interested to hear how you get on.
Cartwheels your blog quote just about sums it up! It's alarming to see our bodies change. I'm trying to keep calm but underneath it all Inam freaked out. You try to keep a lid on it for those around you but it's hard.
Yesterday Day 15, my hair started shedding, I knew it was coming but it's still a shock. It's my other halfs birthday tomorrow so am going to breath in, not touch it (impossible) so I can look like me for the day. I've got thick wavy hair which is usaully shoulder length. I'm planning on having it shaved early next week, pre chemo no 2. i am dreading it but hoping I'll feel less anxious about it once this hair stage is over.
Hoping you all have a good side effect free weekend......
Hi Cartwheels, I think I'm just a day or two behind you! Started FEC on 23rd. I've been washing my hair normally (so every 2-3 days) and so far no changes. It looks pretty bad as it's about 2 months overdue for a cut & colour but I thought there was no point going to salon as I'll lose it anyway. I decided against the cold cap and have bought a wig which I'll probably alternate with turbans; I'm keeping an open mind! I've been told the hair will probably start to fall out soon after the next chemo. My son has agreed to do the buzz cut if & when I want it... xx
Had my first fec treatment on Monday decided against cod cap hair is looking pretty lifeless I have used dry shampoo in the hope it might stay around a bit longer but expecting it to start to go in the next week. I have already got my wig which I must say is really awesome and plan to get some chemo hats there are some good websites. I don't feel too bad about losing my hair but I think it might be a different story when it happens just another turn in this rock and roll journey. Do you loose it gradually my hair is currently in a bob so not sure if I should now take the step of having it crop cut.
Hope you've all got something nice planned for this weekend. The days being longer now has certainly helped lift my mood.
Just wondering how everyone is doing with their hair? My first FEC was 11 days ago, and I tried the cold cap. However, it really wasn't as painful as I expected so I'm fearful it was too loose and won't have worked. I know we're told we'll lose hair after a couple of weeks so I'm waiting to see what the next few days bring. I've only washed it once in 11 days so I don't aggravate any loss which ironically means my hair looks awful so I'm covering it up!
I'm wondering whether to take the plunge next week and just get it cut very short, pixie style. It's currently shoulder length fringed bob and I normally love my hair.
Would love to hear what everyone else is doing.
certainly felt more tired between cycles from 3 onwards. Not so many good days and when I do make the effort to go out and about I don't have much energy.
My SEs have been generally the same for the first few days after each treatment but tiredness is alot worse.
Yes there a light at the end of this tunnel but my ONC was very keen to plan RAD and herceptin injections after 3/4 weeks of last cycle. Really want to finish the chemo but it seems full steam ahead!!
Suppose the sooner its al over the better.
Thanks for all your supportive comments - it means a lot.
Re. Radiography - it seems different depending on your oncologist - some start it immediately, others leave it a while.
Hi Ladies, I had FECcycle 5 of 6 yesterday and all your thoughts and comments ring true.
It is almost now a routine or way of life and I try to think that chemo is my mate not my enermy.
It has been really useful for me to keep a diary for atleast the first week of each cycle.
I can refer back to it and good if there are things to discuss with the ONC. Although I am not obsessed with my temperature I am aware of it and also jot that down in the diary.
It is a rubbish time but not all bad - spring is coming and all the help is at hand for you all
Love to all - Lou xx
Hi RuthElisabeth and Moijan,
Thanks for the reflux advice, I'm waiting for the chemo team to call me back so I can get some medication as I still have the reflux after three days. Burping a lot too!
I think you're feeling how I felt at the weekend. I live alone and on Mothers' Day my brother Skyped me (we'd already arranged it) so I could "virtually" join the family get together, especially for my Mum's benefit. Well, I hated doing it. I felt sh*t, I looked sh*t and I did not want to talk to or see anyone. My mood was crushingly low and my thoughts negative (I'm generally a positive person). But on Monday I felt a bit better, then Tuesday better again and the last two days I'm back to the old me. You'll be you again soon, I'm sure.
I write a blog, and this is how I summed up the feeling: "Where did I go? The weirdest side effect of chemo is you feel like you’ve lost yourself. Your brain, your emotions and your body are completely alien to you. But today I’m back – wobbly, weak and weird, but I feel like me again".
We feel your pain, it is a roller coaster, I have to say that I feel this is the hardest thing I have had to tackle so far in my life!!! You sound like you are on a low ebb, just keep thinking that this is the second one and I have done it, I'm a survivor it won't get me down I may feel **bleep** right now but the future is so bright and worth it. You are doing yourself proud hang in there. I have this to come next so you may have to explain this to me next week please 😀😀 take care and try to have the best weekend possible xx
I am day 5 of first FEC and for the last 3 days have had very red face, but no temp, this is normal they say!!! It does go, mine is only half as bad today so it's getting better, hang in there xx
I'm now on day 8 of my second FEC cycle. The first few days were okay - better than I expected, and then the slump came - now I have been feeling very tired and low for a couple of days. The mettalic taste in my mouth is driving me crazy - all I can taste is salt, brown sauce, mints and salt and vinegar crisps! My husband is a real foodie and determined to cook tasty, healthy meals - and I hate saying to him that I can't taste anything (or that it tastes horrible). I'm feeling very tearful too, which doesn't help. I know that I'll feel better again maybe tomorrow - I can't wait to get some fresh air. This is all very frustrating and I know I've got another 4 rounds of chemo to go - my life has come to a standstill and I have no control. We're all in the same boat and it's good to read all of your comments - the good and the bad - it's good to get stuff off our chests and support each other. Here's to the good days!
Well I am now coming through the bad days I think!!! I think it has gone so far as expected, finished the steroids!! They have blown my face up and I look like a tomatoe!!! But today it looks better. I slept better last night too. I think some of you lovely ladies are a couple of days ahead of me. I started first FEC on Monday, next one on Easter Monday!! I totally agree that work is out of the question for the first week and maybe second. I like you ladies miss my work and chats, but I keep telling myself that this is one day at a time. Getting through the first round you will no more how to deal with second. I went yesterday and picked my wig up from hospital, it looks good, I just need it trimming for a fringe. I am over all really pleased with it. I now have to take the next step, I have always had long hair so I am getting it cut into a bob on Sunday to begin with. It hasn't shown any sign of coming out yet!!! I always need to be prepared or I panicked.
I know now we all miss work, but we now have one another as our work colleagues, this is our full time job at the moment and God you lot are so helpful to me. Thanks 😬😀😬😀xxxx
sorry o hear about the reflux...I have had a lot of it over the past three years as ive been on constant chemo..
.(my bc is dead and inactive just now, but have to stay on chemo to prevent it start up again)
anyway chemo often seems to cause reflux...I was on omeprazole but in the end had to stop that..as it made it worse over time...so decided to see what foods were encouraging the reflux...I discovered tomatoes( cooked and in sauces too) cause it for me and very spicy food or very acidic....like vinegar on fish and chips...that caused it. So now, I do try to avoid those where I can...i also lie on my left side at night if im expecting it, as the research shows that on that side we are less likely to get reflux than on our backs or on the right side.
I get refux rarely now....dont take omeprazole...but keep some milk handy through the night, in case.
Hi Cartwheels. I work at a college in the office so luckily they are happy for me to dip in and out. If it gets too much though I will stop all together. I want to keep some of my 6 month allowance for my op and radio if possible. I am home today organising my wig appointment (lol) and some help with the cleaning and gardening for the next few months. Glad to hear the nausea is easing. I have been given Lansoprazole for the acid reflux - it is the only tablet I am still taking now. Have you been given that? If not it might be worth asking for. Take care. Let's make the most of next week! X
I feel just the same, still really tired. Nausea is better but I've now got acid reflux. Hoping that will pass in next couple of days.
Well done on getting your hair cut, that's such a big step, and great that your family like it too. I'm still plucking up the courage, hoping my hair won't fall out. I'll be getting a wig too, much to much disbelief!
I'm really lucky to have a very supportive employer so I have been signed off sick for six months (minimum). Also, my job would not work well if I dipped in and out so my boss and I agreed it was better for me to just be off. I miss my work colleagues hugely, but they often pop in to see me. But I do feel like next week I will be back to something like normal (ready for round 2!)
Hi ladies I am 2 days post 1st Chemo fec no sickness but bright red face no rise in temperature so reassuring to see that others are having this reaction so good to have this forum and tips along the way love to all on this journey we are on
Hi all you lovely ladies. Managed to get to the hairdressers today to get my hair cut short - it was not nearly as traumatic as I thought it would be and has met with approval from my OH and the kids. I need to get some turbans ordered ready for when it starts to come out but so far so good. I am also going to look for a wig as our daughter is getting married in the summer and I think I would like to have hair in the photos - for her sake as much as mine. This journey certainly takes you into whole new territory! I'm on Day 8 cycle 1 of FEC and nausea has gone now although I am still getting quite tired. I've finished the injections and the steroids now. I am going to try and get into work for a bit next week before the next round but I shall see how it goes. Take care everyone.
How are you today? Glad it has started well for you again, another one ticked off and well done you. I didn't sleep well again last night, this is the last day of the steroids so I am hoping that tonight will be the last bad night. I have a bright red face at the moment too!!! I look like a red tomatoe!! Anyone else had this? My temp is 36.7 so it's normal but my face is like the rising sun. Other than that so far so good!! I am also going to the hospital hairdressers tomorrow to get my wig!!!! My sister is going to cut my hair and wig at the weekend, this is a blo@@@y horrible experience but needed. Has your sleep improved?
Hi ladies wishing you all good days on this bloody horrible journey. I am also wanting to return to work next week if I feel well enough, I think I am just going to play this day by day, if I feel tit to go in then I will but if not I need to get myself as fit and ready for my next treatment so nothing holds it up. If I can go work I will but I am not going to jeopardise my treatment plan to go to work!!!
Take care ladies, have the best day you can 😀Xxx
You and me started FEC on the same day I think and SEs sound pretty similar. I spent the first few days on the sofa but feel much more with it today. I agree about the brain fog though - I thought I might be back at work by now but have taken a few more days off. Hoping to get back for a few days between treatments rather than take the whole 6 months off but might have to change my plans. I am hoping that will be the worst over with now though until it is all go again on the 11th. Is anyone else still working? I wonder whether I will just have to get a sick note each time I have chemo for a week or so.
Good of luck to all of you out there who have just started or just about to start. That will be one ticked off!