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March 2017 Starters

Moonstruck
Member

Re: March 2017 Starters

Hi Amanda

Thanks for your support - I'm doing fine.

Glad to hear that you have finished chemo - so hopefully in the next couple of weeks you will begin to feel like your usual self.

I agree that having cancer does change your life - your whole perspective on things.  I have one more chemo to go and then radiotherapy so not far behind you.  I have been planning to go on holiday and do lots of things once this is done, but at the moment I don't feel like I can commit to anything - I don't know how I will feel - don't want to be far from home in case I feel rubbish etc - it's very unsettling.  Even thinking about going back to work as usual - it all seems like a different world my life before this - will I be able to get back into the swing of it again?  - although I normally enjoy my work - do I still want to do it?

I hear the Doctors and nurses etc saying- yes, you'll be fine - things will go back to normal - but I suppose after putting my body through all of this I am doubting what they say.  That's probably a normal reaction and maybe I'm just feeling a bit low.

Sorry - this has turned into a bit of a rant - I find it very frustrating, I used to feel so in control of my life.

Hopefully I will be walking along a beach in a few months enjoying the sunshine and the cocktails!

Moonstruck xx

amanda63
Member

Re: March 2017 Starters

Hello everyone, especially to Moonstruck who has been having a particularly difficult time.  I was sorry to read your sad news.

 

I have finished my chemo now (yay!), but I am still suffering the SEs (boo!).  My sense of taste has improved and I no longer have morning nosebleeds, but I still tired and achy, especially at the end of the day, and I have peripheral neuropathy.  I am due to start Tamoxifen in a couple of weeks.  I am worried about the possible SEs, but am aware that I just have to get on with it!

 

I have been to a LGFB workshop (lovely!) and I am currently doing a Breast Cancer Care Moving Forward course.  I also went for a bra fitting and I now have a comfy bra.  I also found out that I have been wearing the wrong band size for years!

 

Although things are improving for me, I do still have anxieties about my diagnosis and the future.  I suspect that having Breast cancer really has changed things forever.  The challenge is how to manage that and remain positive.  Hmmmmm.

 

Thinking of you all,

Best wishes to those of you still having chemo,

Amanda x

 

meash67mosh
Member

Re: March 2017 Starters

Hi lumpytits

 

i understand your concern with the radiotherapy appointment being to soon after chemo, but you might be surprised.  When did you find out, when is your last chemo date? 

 

Moonstruck ni am sorry to hear your news.

 

cartwheels have you had any discussions about your radiotherapy yet?  Are you due to have your last chemo on 11th July? I am due to have my last doc on 10th July, my oncologist has discussed and I have signed the concent forms but not heard anymore.

Has anyone put weight on? I have put weight on and would like to try to lose some before starting tamoxifen, people have said that it is hard to shift whilst on tamoxifen, anyone heard anything like this. Love to all xx👍

Moonstruck
Member

Re: March 2017 Starters

Sorry - that should have said - hope your recovery from surgery goes well Ruthelisabeth.
Moonstrick xx
Moonstruck
Member

Re: March 2017 Starters

Hi Everyone
Thanks again for all your support and good wishes - my brothers service was lovely and made me smile and cry. It was so good to be with my family. Thanks for that lovely expression Layla - one to remember.
I'm on day 10 after my doc and still very tired although most of the aches are gone - really takes it out of you. I've got an appointment this week about radiotherapy and also going to the LGFB at the local Maggie's centre. Hope to be able to.plan a few days away once I have the radiotherapy schedule.
Hope everyone is doing ok- Hope your recovery from surgery goes well .
Keep strong everyone xx
RuthElisabeth
Member

Re: March 2017 Starters

Hi all

thanks for your best wishes for my op on Monday. All went well and I am just resting up now and taking it easy. Feeling a bit bruised and lopsided but otherwise ok. They gave me a sports support bra at the hospital and that is helping although it is a bit tight! I think I have put on weight too with all this sitting around and eating choc to feel better! I go back in a couple of weeks to get the results of the biopsy they did and hopefully find out when my radiotherapy starts. Good to hear that the chemo stage is finishing for some of you now and we are all moving closer to the end of this. Let me know how you find the radiotherapy and what the side effects are. I might get it before my daughter's wedding so hope it doesn't make me too tired to enjoy that. Very best wishes to you all xx

Hellesbelles
Member

Re: March 2017 Starters

Hi ladies,
Hope you are all ok. Moonstruck I'm so sorry about your brother, I hope you manage to get through today. Life really can be be c**p at times.
I have now had my planning appointment for radio, where they take measurements of chest area and give you the tattoo dots. It starts next Thursday 15th which is 4 weeks after last chemo. I'm having 15 sessions. Bit apprehensive as tiredness is main side effect.
I still have numb fingers and toes and tastebuds not returned yet 😡. Nice to see some of you finishing chemo too, it's so good knowing that bit is over.
Leyla great news your lump has shrunk.
Aussie I've also put on weight, eating chocolate mostly out of boredom and the hunger from steroids, even though I can't taste anything properly! I don't have any local support groups, so this forum is fantastic.
Ruthelisabeth I hope your surgery went well this week.
Tinkerbell I hope your arm is ok. Lumpytits sorry to hear about your chest infection, I think I did well to get through without any illness or hospital admissions. Eliza hope you are ok after your night in hospital. I have a lovely image of us in Costas running to the loo both with our dodgy eyebrows!
Hope the rest of you ladies are doing ok xx
Lumpytits
Member

Re: March 2017 Starters

I have my first radiotherapy booked to start just 10 days after last chemo, I feel it's too soon, based on this last doc/hercep I will still be feeling grotty. Friends have about 3 weeks between chemo and radiotherapy....think I will phone and spk to oncologist.....
Lumpytits
Member

Re: March 2017 Starters

Hi Moonstruck,

Sorry to hear your sad news. Sending you strength, Hugs linda xx
Leyla1977
Member

Re: March 2017 Starters

Hello Moonstruck I'm so sorry for your loss. When my grandad passed a friend sent me this message:

A wise lady said to me grief is the price we pay for love. I think it's well worth the investment.

Thinking of you and sending you much love and hugs.
Lxx
RuthElisabeth
Member

Re: March 2017 Starters

Hugs Moonstruck. Will be thinking of you tomorrow and hope you feel strong enough to deal with it all x
aussiegonewrong
Member

Re: March 2017 Starters

Hi everyone 

Moonstruck it is very sad news about your brother , I hope you are okay and can take care of yourself too as best you can in this difficult time,

 

I am feeling fine at the moment just cant stop eating mostly chocolate too and sugar , I feel frustrated with myself but a bit out of control with it at the moment and the weight is piling on, especially as I am sitting around alot , One nice thing I did this week was go to the Look Good feel better workshop which I enjoyed and got loads of lovely free products and learnt how to draw on eyebrow too!

 

I have been back at work , i am too a little nervous on public transport but have been using handgel as much as possible and hoping to enjoy the next few days before next D on the 14th June

Moonstruck
Member

Re: March 2017 Starters

Hi Amoyart
Thanks for your supportive comments. I hope you feel better in the next couple of days xx
Cartwheels
Member

Re: March 2017 Starters

Hi Moonstruck,

Just wanted to send you hugs for what you are going through at the moment. I'm pleased to read you have a supportive family to help you through. Chemotherapy is tough enough as it is, it's just so unfair you have the loss of your brother too. Will be thinking of you tomorrow x  

 

Hi meash67mosh,

Yes, I think we're on the same cycle! My second docetaxol is 20th June. I've found sleeping has been on and off. I even had head sweats for two nights this weekend, woke up with my pillow wet. Yuk! But today I feel much, much better. Hope you do too. I think they give us about three weeks after the last chemo before rads - I should see my radiologist after chemo #5.

And I got a period too! Was glad I hadn't throw away all my tampons.....

 

Hi Lumpytits,

I still go out and about when I'm strong enough. I'm much more cautious about touching my face and mouth until I've had a chance to wash my hands. I also carry anti-bacterial gel with me at all times. And I just avoid anyone who looks ill or is coughing and blowing nose! 

 

Hi Eliza76,

My fingers and nails are ok so far, but I know the peeling skin and nail damage can start weeks after the first docetaxol. I'm wearing dark nail varnish, mositurising regularly and wearing rubber gloves for my household chores. It's bad enough losing hair, without losing nails as well!!!

 

I'm going to a Race For Life this evening. I usually run it every year, but this year it will be a gentle stroll 🙂 At least it gets me out of the house!

 

Keep strong x 

 

Amoyart
Member

Re: March 2017 Starters

Hi Moonstruck, just wished to send my sincere sympathy on the loss of your brother.  You are dealing with alot at the moment and I hope you get the strength to get through the next 2 days.

 

 

I did post something yesterday morning but it didn't seem to register.   I am on day 7 of my 2nd docetaxel.   I am really relieved I haven't developed an allergic reaction this time (they gave me lenograstim rather than filgrastim), though I have 2 more days of injections.   Just feeling really sleepy in last 5 days, with aches and pains mostly responsive to paracetamol in the evenings.  With having a 2 hour nap every day, my night time sleep is abit variable and wake up from 3-4am.  I have kept drinking water and I have not been out at all til today to avoid infections as the head cold I had on the last docetaxel made me very miserable.

 

Hi Tinkerbell,   really hope your arm is doing better,  during my chemo I did notice some variable mottling/bruising on the inside of my mastectomy site which is ok at present.  I had an axillary node clearance so I am at increased risk of lymphoedema.  I have tried to keep doing the basic exercises from the breastcancercare leaflet, I do them whilst waiting for toast or food in the microwave as I know it is difficult to find the energy sometimes.  I only do them once daily but they suggest 3 times a day.  

 

Best wishes to you all and that the end is in sight. Xxxx

Moonstruck
Member

Re: March 2017 Starters

Hi Everyone
Sounds like everyone is doing ok. I'm in day 7 of my second doc - they gave me really strong painkillers which really zonked me out - did a lot of sleeping and now my back is so sore! Feeling better now but still really tired - this drug really takes it out of you. I am getting under arm pain too - feels uncomfortable a lot of the time. I'm feeling quite low at the moment - sadly my brother passed away and his funeral is tomorrow - don't know how I'll cope with that or how long I'll manage to stay. I come from a large family and I know that they'll look after me. I just need time to grieve and don't feel I've had that with being zonked.
Can't wait for my final treatment to be over and done with so that I can focus on getting my life back.
Good luck to everyone who is getting treatment this week xx
meash67mosh
Member

Re: March 2017 Starters

Hi cartwheels

 

sounds like you are about the same stage as me with Doc.  I am now on day 9 of the 1st round of 3.  I like you felt great day 2/3, then 4/5/6/7 pain just hit me.  I am finding it hard to get comfy at night, sleeping is difficult.  I also am getting so desperate for so etching nice to eat.  I have also just got another period which they said would stop, so extra is so annoying.

 

i did find Fec easier I think due to have one bad week then getting better and third week was good for me.  Well 2 more then radiotherapy.  Does a tone no how long in between we get?? I am trying to arrange my 50th in July so would like to feel a bit better for that if possible.

 

havent we all cone so far now. Big hugs to all and stay strong xx

meash67mosh
Member

Re: March 2017 Starters

Hi tinkerbell

 

I am like you I get a tight feeling under my arm sometimes, also it hurts when pressure is on it.  Someone said something strange to me the other day. They have had there leg removed at the knee, when the weather changes either hot or cold they get pain in the scar!!! I have looked up breast surgery aches and this does seem to be common, so don't worry to much just keep an eye on it.  When are you back at your hospital? Ask then.

 

well ladies we are all coming or have finished chemo!!! I myself are on day 8 of doc, today has been my first full good day.  Day 1/2 were ok but God day 3/4/5 hit me like a steam train, I have just had aches in both legs and feet.  Last night was also the best night sleep in a long while.  I am injection free now thank god.  I had a super long bath last night which was fantastic.  How is everyone else doing?  I have two more doc to go, next one on 19th June.  How is everyone finding doc compared to Fec????? 

 

Well done one to all those lovely, strong ladies who have come to an end, good luck now if you are either going to have surgery or starting radiotherapy.  Stay strong xxx

Bluelily
Member

Re: March 2017 Starters

Hi Tinkerbell, I posted on here other news but but for some reason it's dissapeared!
yes I'm finished with chemo now, just waiting to hear when radiotherapy will start. Hope you are doing ok now. Amanda63 should be finished chemo same as me too. Hope everyone is having a good week and trying to keep strong, it's another week gone so nearer to finishing for everyone.
Take care all
Bluelily
Lumpytits
Member

Re: March 2017 Starters

I feel nervous of going into public places cafes etc. as now realise how low immune system must be. Does anyone else feel like this? Xx
Lumpytits
Member

Re: March 2017 Starters

Hi all, not been on for a while so really good to catch up on how everyone is doing. It's one hell of a journey thats for sure. We can do this!! I had my 4th chemo 14 days ago first of docetaxal and herceptin. Side effects were worse so far, emotional, tired, nausea etc. then got chest infection so just had four nights in hospital, the staff were great💜. Been told to use nail hardener on my nails, has anyone lost their nails? What are the skin problems you can get? Today had a short drive first time in 3 weeks but feeling brighter today. Thinking of you all... we got this.... love and hugs xx
tinkerbell
Member

Re: March 2017 Starters

Hope you feel better soon Moonstruck!
tinkerbell
Member

Re: March 2017 Starters

Hi meash67mosh

 

I only had a lumpectomy and two nodes removed, but at the moment my right arm and right side are really sore and all my bras hurt me. I ended up buying a nursing bra to get something that wasn't hurting! So far even wireless bras hurt me quite quickly. I'm praying it's post surgery/taxol irritation and not lymphedema, which i'm terrified of getting. It's possible I was a bit too active at home doing chores etc although I've tried not to lift anything on that side. surgery healed really fast which is why swelling is worrying me. 

tinkerbell
Member

Re: March 2017 Starters

Hi amoyart

 

I think I will finish chemo on the 6th and start radiotherapy on around the 19th. I'm getting 3 weeks altogether. I think they're doing it like this so I can go on a holiday I'd booked in mid-July. I asked if it was OK and they said it was - I'm quite nervous about radiotherapy because I now have a sore breast and right arm where the surgery was and I suspect it might be lymphedema. seeing a specialist to make sure this week. 

 

 

Leyla1977
Member

Re: March 2017 Starters

Hello

Good luck RuthElizabeth with your lumpectomy tomorrow.

Thank you Eliza, I was given Emend but was only prescribed for 2 days after chemo. I may ask if I can take it for longer next time.

Cartwheels, you are so right, we are all nailing this 👊🏻💪🏻

Lxx
Eliza76
Member

Re: March 2017 Starters

 

Hi all,

Quick update on Docetaxol Day 10 - good news is it so much better. Feeling ok just a bit tired but side effects mostly easing off now.

Cartwheels - glad to hear you're coming through it too. I had Neulasta which is one slow release injection as opposed to your daily injections, I've had no extra side effects since it's worn off so fingers crossed it'll be the same for you. Hoping to get out for a walk today which always makes me feel better. How are your nails/skin? Mine are ok at present but apparently these are affects after cycle 2/3 of Docetaxol.
Leyla - Glad to hear you are coping ok with FEC - ask them if you can try Emend for nausea, if it works for you it can make FEC very bearable. Congrats on your news re shrinkage, & your 40th birthday plans sound great!
Hi Aussiegonewrong - your support group sounds good, wish there was something like that here. I am also hitting the chocolate a bit, loving dark mint chocolate. Nothing wrong with a bit of indulgence, we need all the help we can get especially as we are stuck indoors more. Hope your LGFB is ok and you come out with a nice goody bag....

Love to all xx
Eliza

Eliza76
Member

Re: March 2017 Starters

Hi RuthElizabeth - Great to hear surgery going ahead tomorrow Hopefully you won't be too sore afterwards, I had a lumpectomy and some lymph nodes removed and it was fine, just followed advice with taking it easy, gentle massage, physio exercises etc. It will surely be a huge relief to get this stage over with. Glad to hear you've managed to sort your wedding outfit, hat etc beforehand which is great, I'm sure it is gorgeous, glamorous tasteful etc and you will look fabulous - or have you gone for peacock brights and a massive feather fascinator?
Thinking of you tomorrow, good luck!
Eliza

Cartwheels
Member

Re: March 2017 Starters

Morning everyone, it's so good to hear that everyone is getting through treatment.

RuthElisabeth, I completely agree with your sentiments, the news of yet another terrorist attack last night is too much for me at the moment and I can't watch the news. I have to focus on the good in people, not the bad and the sadness. Good luck with your surgery - it's such a good feeling to get the pesky cancer cut out and not have to carry it around anymore. 

Aussiegonewrong, that support group sounds great. I haven't found anything like it in London, although I have found a charity called Shine for young adults (under 50) with cancer which has helped me. 

Leyla, I love your plans for your 40th! Great news about your shrinking cancer too 🙂 

Eliza76, hope you are now recovered after your hospital admission. My side effects from my first docetaxol on Tuesday sound like yours.

I felt really good for two days after (even went to a spin class at gym). Then on evening of day 2, Thursday, the pain started in my legs, but it is easing now. I'm alterating nurofen and paracetemol and having a couple of baths a day. It's bearable but tiring. So annoying not being able to get comfortable, and how can your knees hurt when all you're doing is lying down!!! Weird and frustrating 😉

Appetite is worse than on FEC, but overall I've felt better than after FEC. Having prunes for breakfast which has kept things moving....

My oncologist said the hand and feet pain may kick in after I finish the filgrastim injections, which is today, so I'm ready for a new set of side effects!

Keep strong ladies, we're all doing brilliantly. We're nailing this x 

RuthElisabeth
Member

Re: March 2017 Starters

Hi everyone.  It's good to hear how you are all doing. Someone gave me a postcard at the start of my treatment. It just said "I can. I will. Watch me!". I have it on the fridge and look at it to remind me that I will get through this. The support of all of you on this forum is brilliant. Whether it's sharing experiences so we know what's 'normal' or sharing tips to make things easier - you are all amazing people. This is such an unknown journey and we need all the help we can get. I know there are times when we feel rubbish and want it all to be over but each day is another step nearer to finishing. We are all extremely brave and can do this! 

i am in for my surgery tomorrow morning - they are doing a lumpectomy and checking out my lymph nodes. I will be very relieved to get this next stage done and finally get rid of the lump. It will be one step nearer the end of treatment. I've had to cancel my LGFB workshop again - I might get to one before my daughter's wedding at the end of July! The planning for the wedding has been a welcome distraction from medical appointments and I managed to get to the shops this week to finally get my outfit sorted and order my husband's hire suit. I have got a hat big enough to go over my wig! 

All the best to everyone - there is so much rubbish stuff going on in the world at the moment but all we can do is try and keep positive and share the love. Moonstruck - thoughts and best wishes are with you particularly at this time as you try and deal with everything going on in your family x

aussiegonewrong
Member

Re: March 2017 Starters

good to hear how everyone is getting on , day 13 now for me and I almost feel normal apart from the taste buds buts it is not stopping me from eating chocolate !, eyelashes gone but nails still okay , I too am going to a Look good feel better workshop tomorrow here in sydney so will see how that goes , my sister in UK ewas unimpressed with the one she went on but I think its worth a go,

 I have also been invited to join a early breast cancer support group like a educational group which I have been going to for the last few weeks and each week they have a different topic like radiotherapy, reconstruction,  diet, its been good and I have met other ladies at a similar stage to me.

Has anyone overthere been to anything similar

 It sure is a journey and it makes you reevulate everything on your life so I find some things are no longer important and I can let them go.  I also have not felt much like being social so life is a fair bit quieter these days but I am so looking forward to the finish line , I also bought myself a new wig so now I have one curly wig which is a proper wig and a topper which I do like but no so secure now I dont have much hair!

Onwards we go , good luck to all having next round 

 

Leyla1977
Member

Re: March 2017 Starters

Hello ladies

I hope everyone is coping as well as they can. I had my 4th chemo on 20th May, my first FEC. I came home after treatment and had a nap but woke feeling sick and felt like that for about 5 days! Not nice, I felt quite low. Since then I've had the usual tiredness but not the aches like with docetaxel. I've managed to enjoy half term with my girls and husband.

I saw my surgeon last week and my lump has shrunk to half the size it was at diagnosis! This cheered me up so much and has made having chemo and all the rubbish side effects worth it. I have a provisional date of 10th August for my lumpectomy and starting radiotherapy in September.

I turn 40 at the end of September so hopefully I will start my 40s cancer free! I'm off on a mini cruise with 5 of my mum friends at the beginning of September and so looking forward to it! Also having a party August bank holiday weekend for my birthday - guests have to come wearing a wig! 😆

Moonstruck I'm so sorry to hear about your brother, you are both in my thoughts.

Hellesbelles hope your radiotherapy went as well as expected?

I have my LGFB workshop on Thursday, day before my next treatment. I'm looking forward to meeting other ladies and also for a bit of pampering.

Lots of love to you all, we are so very close to the end of this journey.
Lxx
Amoyart
Member

Re: March 2017 Starters

Hi all,  Had my 2nd docetaxel and herceptin yesterday with a premed as I had a delayed allergic reaction last time with a rash so not sure if it was docetaxel or the filgrastim.   They have given me lenograstim in the hope I won't react to it and I have piriton and 1% hydrocortisone cream at the ready.  I have finally shook off the heavy head cold so I'm in a better place than on 1st docetaxel.  I went v low physically and emotionally.   It definitely feels good to see the end in sight just like you other ladies.  However haven't heard anything about my radiotherapy appointment though the referral was made 6w ago.  Tinkerbell, you seem to be going ahead quite quickly as my consultant said I would be best to wait til chemo out of system for less skin reaction. 

 

 

I have lost 80% of my hair but I managed to cold cap yesterday with the help of gauze on the crown where I have  bald patches and a scrub cap on top and a hairband. .  I had a very efficient nurse which helped as well as some gossip magazines.  I am hoping it will make the hair grow quicker.  Does anyone know of any good supplements to help?

 

I wish the rest of you ladies the best in the days to come. Xxx

Eliza76
Member

Re: March 2017 Starters

Hi ladies,

 

Eliza here. Lovely to hear your updates as planet chemo can be a lonely place. I've got good support but only those going or who've been through it really know the score.

 

Day 7 after 1st Docetaxol. Summary for me is ok first couple of days, ankle/feet/leg pain day 3/4/5 unpleasant but sortable with cocodamol. Mouth like I've been drinking from the sewer, dry, bit sore, tastes rubbish. Bit of the gastrics - stomach pain, rushing to loo etc. And very very tired. Hopefully things will improve over the next few days. My temp went to 38 on Monday evening so also had a lovely night in hosp, no sleep, IV antibiotics, whizzed off for chest X-ray at 1.30 am, buzzers going all night etc. Found nothing wrong so they don't know if it was an infection or not as all bloods were fine. Protocol is they treat you as if you have an infection, so home with oral ABs which make the old stomach bowel thing even dodgier. Aussiegonewrong - it helps to hear that you're coming through other side of D1 and that things do improve over the cycle.

 

Moonstruck - great to hear you got through No 2 with no allergic reaction, I can just imagine how anxious you must have been during that infusion. Hopefully the SEs will be better on this one. Also my sympathy really goes out to you with your brother, that must be very hard for you right now.

 

Meash & Cartwheels - hope you're doing ok after D1 this week. I love the fact you've got some Radox in your side effects kit. I'll cheer myself up by think of you soaking in that with the purple nails.....

 

HellesBelles - lovely to hear you are slowly coming through the last Tax & moving on to radiotherapy, let us know all about it. I'll definitely meet up when through the worst - will we be fighting over the loos at Costa? I'll be the one with in the wig with the dodgy drawn in eyebrows and red hot face, I trust you'll recognise me.

Wishing you all a good week.

Eliza xx

 

Top Tip of the week: Moist wipes
Top Telly Tip:  Poldark returns Sun 11/06 9pm

Hellesbelles
Member

Re: March 2017 Starters

Hi ladies, well it's now 16 days since my final Docetaxol. I still have no tastebuds and have the yukky taste in my mouth. My fingers on both hands are numb and I still have diarrhoea. On the up side my mood is so much better. I can't wait to feel normal again, that's if I ever will ? Once you have had cancer I'm not sure things are ever the same. Moonstruck I'm so sorry to hear about your brother, this disease is so cruel.
I'm currently at Bath hospital waiting for my 1st radiotherapy appointment, I'll let you know what to expect.
I hope you are all coping with the Docetaxol, I can't compare it to FEC as I didn't have it. You are all nearly there and there is light at the end of the tunnel now.
Eliza I love your top tip, and definitely up for meeting, I'll be coming to Bath for the radiotherapy which is half way between Bristol and me. When you feel up to it I'll make myself free! All other ladies welcome if you are near enough. Xx
aussiegonewrong
Member

Re: March 2017 Starters

Hi all

 

Good to hear everyone okay after the Docetaxal , I am 10 days out now and got over the aches and the mouth thrush now , just feel ta bit tired and everything still tastes yuck but I have been able to go to work and go out for a few walks so that has helped , trying to make the most of this and not think about the next one !

 

Moonstruck
Member

Re: March 2017 Starters

Hi Everyone
Had my 2nd docetaxemol with pre meds this time yesterday and it went ok - dozed most of the way through it - was very nervous. Ok today waiting for it to kick in in the next day or two - got painkillers and lots of other drugs at the ready - and won't forget to water and more water this time!!
Hope everyone else is doing ok.

Moonstruck xx
Cartwheels
Member

Re: March 2017 Starters

Hello all, first day of summer, hooray!

 

I had my first docetaxel on Tuesday, two days ago, and so far so good, I feel much better than on FEC. So I'm just waiting for the pain to kick in.... I have lots of painkillers and radox ready for if and when it does. 

 

Have dark nail varnish on fingers and toes in the hope of preserving them. Also putting on hand and foor cream religiously as can feel them getting drier already (or am I just imagining it?).

 

Appetite as massive as it was after FEC and craving carbs like crazy.

 

Hope you're all doing ok. We're getting there!!!!

 

x

meash67mosh
Member

Re: March 2017 Starters

Good morning ladies

 

Hope your enjoying the sunshine.

 

Hope you are all doing well this week, it sounds like a lot of us now are coming towards the end of this journey in one way or another.  I started my first doc on Monday, it us difference from Fec so far, it feels like everything is so much if an effort. I also have a slight ache on surgery side tinker bell, I think this might be down to the heat as well.  Did you have a node clearance as well or just a lumpectomy.

 

take care all, enjoy the sun xx

tinkerbell
Member

Re: March 2017 Starters

Hi Bluelily and Amanda63 

 

NEARLY FINISHED! I can't quite believe I am here! best of luck to both of you and Moonstruck to you too with the next chemo and the premeds. It's definitely tougher, I am more fatigued and my words keep coming out scrambled like a Twin Peaks character. various pains everywhere, I am fed up of it. I keep telling myself not to expect to recover immediately, I discovered it takes a while because I had a week off in the middle of treatment. but I am certainly hoping to feel better!

 

I have a holiday booked in Greece after radiotherapy finishes, can't wait, even if I have to wear a tent and factor 50. 

 

Love to all xxxx

Bluelily
Member

Re: March 2017 Starters

Hope everyone doing ok these past few days and enjoyed the bank holiday weekend and some sunshine 🌞
Amanda63 - starting your last week of chemo, I hope it all goes well for you, I'm guessing you will just go for your injection every 3 weeks after that. I've had a bit of a up and down week, one day I'm fine then the next I'm feeling like I'm stuck in thick mud! Aches seemed to be worse this week for some reason plus not sleeping well past few days (writing this at 4.30am - been awake since 3!!)
Hope everyone has a good week, keep pushing on we are all doing amazing to get this far.
Take care all
Bluelily
Moonstruck
Member

Re: March 2017 Starters

Hi everyone

Hope you are all doing well and enjoying some sunshine.

Unfortunately my 2nd docetaxel was stopped on Friday as I had an allergic reaction to it which was a bit scary. I will have to go back again sometime this week and they will give me a pre med to stop it happening again.

Very frustrating just when I thought I could see the light at the end of the tunnel! Does get you down sometimes when you have no control over your body - feeling a bit low and stuck at the moment - hopefully there won't be any more delays.

Moonstruck xx

amanda63
Member

Re: March 2017 Starters

Hello everyone,

Just wanted to let you know that I am reading your posts and thinking of you.  Bluelily and tinkerbell - we are getting very near to the end of our chemo, which I am very happy about!  The side effects are definitely getting worse and lasting longer at this end of the treatment.  No radiotherapy or scans for me, but I will be starting Tamoxifen in a few weeks.

 

Stay strong ladies!

Amanda63

tinkerbell
Member

Re: March 2017 Starters

Hi just wanted to send my support and best wishes to everyone. I'm about to do number 10 of 12 taxol, so happy it's nearly over! Am getting neuropathy in hands and feet and am worried about lymphedema as I have some pain and swelling on surgery side. But generally it's not been as bad as I thought it would be. Love to everyone, we will get through this xxxxx
aussiegonewrong
Member

Re: March 2017 Starters

Hi Everyone

Hope you enjoying sunshine over there , its still quite sunny here although meant to coming into winter ,

Moonstruck thats very hard to see your brother going through that , cancer is a bastard no doubt , look after yourself as I think the emotional side of going through chemo is tough enough and of course you will be worrying about your brother

I am so over the mouth thing its just a horrible side effect that I didnt get with the FEC , my tongue is white everything tastes so yuck even water, I have been using Biotene mouth wash and Nystatin drops but no relief yet , havent had alot of energy but I went for a walk and did a yoga class yester day to drag myself off the couch

Its day 6 today for me today , havent had to have painkillers today so thats one good thing

Heres hoping the chemo is working for everyone  and zapping the cancer cells to oblivion x

Cartwheels
Member

Re: March 2017 Starters

Hi Moonstruck,

Hope your chemo went ok yesterday and you're not feeling too rough today. I know what you mean about feeling beaten up, the side effects seem to be the gift that keeps on giving! Hope it feels like the end is in sight for you. I know I can't even think about radiotherapy yet, I just want to get through the chemo. 

So sorry to read about your brother, life is just so unfair sometimes. I've heard that the treatment for throat cancer is pretty brutal, I can imagine it's been really tough to see him go through it. 

Take care, and hope your recovery is on its way.

x

Moonstruck
Member

Re: March 2017 Starters

Hi Everyone

Eliza sounds like you have been through the mill. Docetaxemol is definitely more wearing for me. The side effects knocked me sideways for 4 days or so - also felt quite low. My next chemo is tomorrow and the last week has been good - been out every day and enjoying the sun, even went into work - but still get very tired and have now had swollen ankles for the last few days - the list just gets longer!

I hope everyone is ok and coping with everything that is being thrown at them - I feel that my body has taken a severe beating! I'm on my countdown now -  2 sessions to go and then radiotherapy. Then the questions start - when will I feel normal? - if ever.

My younger brother is in the final stages of throat cancer and there is nothing more that can be done - about two half years he's had it - difficult to see him go through it and makes me feel like a wimp - breast cancer is the 'good' one to have in terms of treatment .

Keep fighting the good fight everyone - stay strong😊😘

Moonstruck

Eliza76
Member

Re: March 2017 Starters

Hi everyone,

 

Good to hear your news. My 1st Docetaxol treatment was delayed a week. Took the steroids last Weds and went white (makes a change from the old red) sweating and faint after the morning dose. Second dose I was alabaster white, clammy and ice cold with a really low temp. Consultant advised postponing Docetaxol My OH had had a cold all week & I was sneezing a bit. He thought an infection might be underlying plus sensitivity to high dose steroids. Turned out to be a bad cold & sinus infection. So a week of blinding sinus headaches and worry about delays means I was so happy(!) to take the steroids yesterday spread out 2 tabs every 3 hours, 8 to 5pm, which meant little sleep. Will be having Docetaxol and Herceptin this morning at the clinic. I usually have chemo at home so a long clinic session is a first for me.

Aussiegonerong, Moonstruck, Amoyart and Hellesbelles - It's been helpful to read your posts as you are ahead of me slightly in this journey. Docetaxol looks like a tricky but essential piece of kit. Just hoping I can tolerate it and the steroids too. P.S Helen I'm jealous of your Look Good Feel Better session in Bristol. It must have given you a boost. I have never got to a session because it is 3 weekly and always landed just after my chemo. One plus in my treatment delay is that I have a chance of getting there now. When we're through this crap we should meet up and discuss side effects over a cappuccino. Anyone else welcome of course, aussiegonewrong do you have any airmiles 🙂 ?


Meash and Cartwheels - your Docetaxol is early next week I see. I'll let you know how it goes.
RuthElizabeth - great to hear you have a date for surgery.

Top tip: do what ever makes you happy on good days and on bad days lay about looking hideous and scream at your nearest and dearest and bore anyone who'll listen rigid by moaning about the weird, unpredictable and effects.

 

Hottest day of the year today in Bristol - hope you ladies are doing ok.

Love Eliza xx

 

 

 

aussiegonewrong
Member

Re: March 2017 Starters

Hello everyone

 

day 4 for me , feel so tired I went to work yesterday not a good idea today have barely left the sofa and mouth is awful and Ifeel so bloated 

Hope everyone is okay , 

I did leave lutterworth in the early 80s to go abroad to live but always come back as family live in Littlethorpe

I do like sydney but times like this would be closer to home , mind you been an awful week with the sad news from Manchester

Hoping everyone going okay

Hellesbelles
Member

Re: March 2017 Starters

Hi ladies, well it's been a week since my 4th and final Docetaxol. The sickness feeling but hard from Friday for about 4 days I didn't even want to drink water or eat for two days as the taste in my mouth was probably at it's worst. No aches or pains though. My mood has lifted so much knowing that bit is over. Cold cap huge success as lost minimal hair this time, I just have a very wispy fringe which shouldn't take too long to grow back. I've also still got the never ending cold/virus. Docs gave me antibiotics and steroids for my asthma on Monday as can't stop coughing. Also had bloods taken need to go back tommorow to see her.
I have 1st appointment for radiotherapy on 2nd June, so will hopefully be done by July. I'm staying here to see you through your Docetaxol rounds!

Ruthelisabeth good luck with your op. Cartwheels good luck with your speech. Well done meash to your husband and sons, I would like to do the walk next year.
I managed to get to the 'look good feel better' yesterday in Bristol, worth going if you can, the products you are given are fantastic! Been for a pedicure today and booked my hairdresser in a few weeks, little things to make me feel like me again. One bonus is not having to wax/shave legs at the moment 😁
Good luck all with Docetaxol rounds xx


meash67mosh
Member

Re: March 2017 Starters

Hi all

 

Hope you are enjoying the warm weather, it is nice to have some sunshine.

 

aussiegonewrong, you are from Lutterworth, I live in Lutterworth when did you leave.  I no Narborough very well.

 

i too start my first Dox on Monday, saw my consultant today and we discussed radiotherapy 3 weeks normal, 1 week if direct to where the tumour was.  This journey is very tiring for us all ladies, but we keep one another going.  Keep up the good work.