Thanks for your support - I'm doing fine.
Glad to hear that you have finished chemo - so hopefully in the next couple of weeks you will begin to feel like your usual self.
I agree that having cancer does change your life - your whole perspective on things. I have one more chemo to go and then radiotherapy so not far behind you. I have been planning to go on holiday and do lots of things once this is done, but at the moment I don't feel like I can commit to anything - I don't know how I will feel - don't want to be far from home in case I feel rubbish etc - it's very unsettling. Even thinking about going back to work as usual - it all seems like a different world my life before this - will I be able to get back into the swing of it again? - although I normally enjoy my work - do I still want to do it?
I hear the Doctors and nurses etc saying- yes, you'll be fine - things will go back to normal - but I suppose after putting my body through all of this I am doubting what they say. That's probably a normal reaction and maybe I'm just feeling a bit low.
Sorry - this has turned into a bit of a rant - I find it very frustrating, I used to feel so in control of my life.
Hopefully I will be walking along a beach in a few months enjoying the sunshine and the cocktails!
Hello everyone, especially to Moonstruck who has been having a particularly difficult time. I was sorry to read your sad news.
I have finished my chemo now (yay!), but I am still suffering the SEs (boo!). My sense of taste has improved and I no longer have morning nosebleeds, but I still tired and achy, especially at the end of the day, and I have peripheral neuropathy. I am due to start Tamoxifen in a couple of weeks. I am worried about the possible SEs, but am aware that I just have to get on with it!
I have been to a LGFB workshop (lovely!) and I am currently doing a Breast Cancer Care Moving Forward course. I also went for a bra fitting and I now have a comfy bra. I also found out that I have been wearing the wrong band size for years!
Although things are improving for me, I do still have anxieties about my diagnosis and the future. I suspect that having Breast cancer really has changed things forever. The challenge is how to manage that and remain positive. Hmmmmm.
Thinking of you all,
Best wishes to those of you still having chemo,
i understand your concern with the radiotherapy appointment being to soon after chemo, but you might be surprised. When did you find out, when is your last chemo date?
Moonstruck ni am sorry to hear your news.
cartwheels have you had any discussions about your radiotherapy yet? Are you due to have your last chemo on 11th July? I am due to have my last doc on 10th July, my oncologist has discussed and I have signed the concent forms but not heard anymore.
Has anyone put weight on? I have put weight on and would like to try to lose some before starting tamoxifen, people have said that it is hard to shift whilst on tamoxifen, anyone heard anything like this. Love to all xx👍
thanks for your best wishes for my op on Monday. All went well and I am just resting up now and taking it easy. Feeling a bit bruised and lopsided but otherwise ok. They gave me a sports support bra at the hospital and that is helping although it is a bit tight! I think I have put on weight too with all this sitting around and eating choc to feel better! I go back in a couple of weeks to get the results of the biopsy they did and hopefully find out when my radiotherapy starts. Good to hear that the chemo stage is finishing for some of you now and we are all moving closer to the end of this. Let me know how you find the radiotherapy and what the side effects are. I might get it before my daughter's wedding so hope it doesn't make me too tired to enjoy that. Very best wishes to you all xx
Moonstruck it is very sad news about your brother , I hope you are okay and can take care of yourself too as best you can in this difficult time,
I am feeling fine at the moment just cant stop eating mostly chocolate too and sugar , I feel frustrated with myself but a bit out of control with it at the moment and the weight is piling on, especially as I am sitting around alot , One nice thing I did this week was go to the Look Good feel better workshop which I enjoyed and got loads of lovely free products and learnt how to draw on eyebrow too!
I have been back at work , i am too a little nervous on public transport but have been using handgel as much as possible and hoping to enjoy the next few days before next D on the 14th June
Just wanted to send you hugs for what you are going through at the moment. I'm pleased to read you have a supportive family to help you through. Chemotherapy is tough enough as it is, it's just so unfair you have the loss of your brother too. Will be thinking of you tomorrow x
Yes, I think we're on the same cycle! My second docetaxol is 20th June. I've found sleeping has been on and off. I even had head sweats for two nights this weekend, woke up with my pillow wet. Yuk! But today I feel much, much better. Hope you do too. I think they give us about three weeks after the last chemo before rads - I should see my radiologist after chemo #5.
And I got a period too! Was glad I hadn't throw away all my tampons.....
I still go out and about when I'm strong enough. I'm much more cautious about touching my face and mouth until I've had a chance to wash my hands. I also carry anti-bacterial gel with me at all times. And I just avoid anyone who looks ill or is coughing and blowing nose!
My fingers and nails are ok so far, but I know the peeling skin and nail damage can start weeks after the first docetaxol. I'm wearing dark nail varnish, mositurising regularly and wearing rubber gloves for my household chores. It's bad enough losing hair, without losing nails as well!!!
I'm going to a Race For Life this evening. I usually run it every year, but this year it will be a gentle stroll 🙂 At least it gets me out of the house!
Keep strong x
Hi Moonstruck, just wished to send my sincere sympathy on the loss of your brother. You are dealing with alot at the moment and I hope you get the strength to get through the next 2 days.
I did post something yesterday morning but it didn't seem to register. I am on day 7 of my 2nd docetaxel. I am really relieved I haven't developed an allergic reaction this time (they gave me lenograstim rather than filgrastim), though I have 2 more days of injections. Just feeling really sleepy in last 5 days, with aches and pains mostly responsive to paracetamol in the evenings. With having a 2 hour nap every day, my night time sleep is abit variable and wake up from 3-4am. I have kept drinking water and I have not been out at all til today to avoid infections as the head cold I had on the last docetaxel made me very miserable.
Hi Tinkerbell, really hope your arm is doing better, during my chemo I did notice some variable mottling/bruising on the inside of my mastectomy site which is ok at present. I had an axillary node clearance so I am at increased risk of lymphoedema. I have tried to keep doing the basic exercises from the breastcancercare leaflet, I do them whilst waiting for toast or food in the microwave as I know it is difficult to find the energy sometimes. I only do them once daily but they suggest 3 times a day.
Best wishes to you all and that the end is in sight. Xxxx
sounds like you are about the same stage as me with Doc. I am now on day 9 of the 1st round of 3. I like you felt great day 2/3, then 4/5/6/7 pain just hit me. I am finding it hard to get comfy at night, sleeping is difficult. I also am getting so desperate for so etching nice to eat. I have also just got another period which they said would stop, so extra is so annoying.
i did find Fec easier I think due to have one bad week then getting better and third week was good for me. Well 2 more then radiotherapy. Does a tone no how long in between we get?? I am trying to arrange my 50th in July so would like to feel a bit better for that if possible.
havent we all cone so far now. Big hugs to all and stay strong xx
I am like you I get a tight feeling under my arm sometimes, also it hurts when pressure is on it. Someone said something strange to me the other day. They have had there leg removed at the knee, when the weather changes either hot or cold they get pain in the scar!!! I have looked up breast surgery aches and this does seem to be common, so don't worry to much just keep an eye on it. When are you back at your hospital? Ask then.
well ladies we are all coming or have finished chemo!!! I myself are on day 8 of doc, today has been my first full good day. Day 1/2 were ok but God day 3/4/5 hit me like a steam train, I have just had aches in both legs and feet. Last night was also the best night sleep in a long while. I am injection free now thank god. I had a super long bath last night which was fantastic. How is everyone else doing? I have two more doc to go, next one on 19th June. How is everyone finding doc compared to Fec?????
Well done one to all those lovely, strong ladies who have come to an end, good luck now if you are either going to have surgery or starting radiotherapy. Stay strong xxx
I only had a lumpectomy and two nodes removed, but at the moment my right arm and right side are really sore and all my bras hurt me. I ended up buying a nursing bra to get something that wasn't hurting! So far even wireless bras hurt me quite quickly. I'm praying it's post surgery/taxol irritation and not lymphedema, which i'm terrified of getting. It's possible I was a bit too active at home doing chores etc although I've tried not to lift anything on that side. surgery healed really fast which is why swelling is worrying me.
I think I will finish chemo on the 6th and start radiotherapy on around the 19th. I'm getting 3 weeks altogether. I think they're doing it like this so I can go on a holiday I'd booked in mid-July. I asked if it was OK and they said it was - I'm quite nervous about radiotherapy because I now have a sore breast and right arm where the surgery was and I suspect it might be lymphedema. seeing a specialist to make sure this week.
Quick update on Docetaxol Day 10 - good news is it so much better. Feeling ok just a bit tired but side effects mostly easing off now.
Cartwheels - glad to hear you're coming through it too. I had Neulasta which is one slow release injection as opposed to your daily injections, I've had no extra side effects since it's worn off so fingers crossed it'll be the same for you. Hoping to get out for a walk today which always makes me feel better. How are your nails/skin? Mine are ok at present but apparently these are affects after cycle 2/3 of Docetaxol.
Leyla - Glad to hear you are coping ok with FEC - ask them if you can try Emend for nausea, if it works for you it can make FEC very bearable. Congrats on your news re shrinkage, & your 40th birthday plans sound great!
Hi Aussiegonewrong - your support group sounds good, wish there was something like that here. I am also hitting the chocolate a bit, loving dark mint chocolate. Nothing wrong with a bit of indulgence, we need all the help we can get especially as we are stuck indoors more. Hope your LGFB is ok and you come out with a nice goody bag....
Love to all xx
Hi RuthElizabeth - Great to hear surgery going ahead tomorrow Hopefully you won't be too sore afterwards, I had a lumpectomy and some lymph nodes removed and it was fine, just followed advice with taking it easy, gentle massage, physio exercises etc. It will surely be a huge relief to get this stage over with. Glad to hear you've managed to sort your wedding outfit, hat etc beforehand which is great, I'm sure it is gorgeous, glamorous tasteful etc and you will look fabulous - or have you gone for peacock brights and a massive feather fascinator?
Thinking of you tomorrow, good luck!
Morning everyone, it's so good to hear that everyone is getting through treatment.
RuthElisabeth, I completely agree with your sentiments, the news of yet another terrorist attack last night is too much for me at the moment and I can't watch the news. I have to focus on the good in people, not the bad and the sadness. Good luck with your surgery - it's such a good feeling to get the pesky cancer cut out and not have to carry it around anymore.
Aussiegonewrong, that support group sounds great. I haven't found anything like it in London, although I have found a charity called Shine for young adults (under 50) with cancer which has helped me.
Leyla, I love your plans for your 40th! Great news about your shrinking cancer too 🙂
Eliza76, hope you are now recovered after your hospital admission. My side effects from my first docetaxol on Tuesday sound like yours.
I felt really good for two days after (even went to a spin class at gym). Then on evening of day 2, Thursday, the pain started in my legs, but it is easing now. I'm alterating nurofen and paracetemol and having a couple of baths a day. It's bearable but tiring. So annoying not being able to get comfortable, and how can your knees hurt when all you're doing is lying down!!! Weird and frustrating 😉
Appetite is worse than on FEC, but overall I've felt better than after FEC. Having prunes for breakfast which has kept things moving....
My oncologist said the hand and feet pain may kick in after I finish the filgrastim injections, which is today, so I'm ready for a new set of side effects!
Keep strong ladies, we're all doing brilliantly. We're nailing this x
Hi everyone. It's good to hear how you are all doing. Someone gave me a postcard at the start of my treatment. It just said "I can. I will. Watch me!". I have it on the fridge and look at it to remind me that I will get through this. The support of all of you on this forum is brilliant. Whether it's sharing experiences so we know what's 'normal' or sharing tips to make things easier - you are all amazing people. This is such an unknown journey and we need all the help we can get. I know there are times when we feel rubbish and want it all to be over but each day is another step nearer to finishing. We are all extremely brave and can do this!
i am in for my surgery tomorrow morning - they are doing a lumpectomy and checking out my lymph nodes. I will be very relieved to get this next stage done and finally get rid of the lump. It will be one step nearer the end of treatment. I've had to cancel my LGFB workshop again - I might get to one before my daughter's wedding at the end of July! The planning for the wedding has been a welcome distraction from medical appointments and I managed to get to the shops this week to finally get my outfit sorted and order my husband's hire suit. I have got a hat big enough to go over my wig!
All the best to everyone - there is so much rubbish stuff going on in the world at the moment but all we can do is try and keep positive and share the love. Moonstruck - thoughts and best wishes are with you particularly at this time as you try and deal with everything going on in your family x
good to hear how everyone is getting on , day 13 now for me and I almost feel normal apart from the taste buds buts it is not stopping me from eating chocolate !, eyelashes gone but nails still okay , I too am going to a Look good feel better workshop tomorrow here in sydney so will see how that goes , my sister in UK ewas unimpressed with the one she went on but I think its worth a go,
I have also been invited to join a early breast cancer support group like a educational group which I have been going to for the last few weeks and each week they have a different topic like radiotherapy, reconstruction, diet, its been good and I have met other ladies at a similar stage to me.
Has anyone overthere been to anything similar
It sure is a journey and it makes you reevulate everything on your life so I find some things are no longer important and I can let them go. I also have not felt much like being social so life is a fair bit quieter these days but I am so looking forward to the finish line , I also bought myself a new wig so now I have one curly wig which is a proper wig and a topper which I do like but no so secure now I dont have much hair!
Onwards we go , good luck to all having next round
Hi all, Had my 2nd docetaxel and herceptin yesterday with a premed as I had a delayed allergic reaction last time with a rash so not sure if it was docetaxel or the filgrastim. They have given me lenograstim in the hope I won't react to it and I have piriton and 1% hydrocortisone cream at the ready. I have finally shook off the heavy head cold so I'm in a better place than on 1st docetaxel. I went v low physically and emotionally. It definitely feels good to see the end in sight just like you other ladies. However haven't heard anything about my radiotherapy appointment though the referral was made 6w ago. Tinkerbell, you seem to be going ahead quite quickly as my consultant said I would be best to wait til chemo out of system for less skin reaction.
I have lost 80% of my hair but I managed to cold cap yesterday with the help of gauze on the crown where I have bald patches and a scrub cap on top and a hairband. . I had a very efficient nurse which helped as well as some gossip magazines. I am hoping it will make the hair grow quicker. Does anyone know of any good supplements to help?
I wish the rest of you ladies the best in the days to come. Xxx
Eliza here. Lovely to hear your updates as planet chemo can be a lonely place. I've got good support but only those going or who've been through it really know the score.
Day 7 after 1st Docetaxol. Summary for me is ok first couple of days, ankle/feet/leg pain day 3/4/5 unpleasant but sortable with cocodamol. Mouth like I've been drinking from the sewer, dry, bit sore, tastes rubbish. Bit of the gastrics - stomach pain, rushing to loo etc. And very very tired. Hopefully things will improve over the next few days. My temp went to 38 on Monday evening so also had a lovely night in hosp, no sleep, IV antibiotics, whizzed off for chest X-ray at 1.30 am, buzzers going all night etc. Found nothing wrong so they don't know if it was an infection or not as all bloods were fine. Protocol is they treat you as if you have an infection, so home with oral ABs which make the old stomach bowel thing even dodgier. Aussiegonewrong - it helps to hear that you're coming through other side of D1 and that things do improve over the cycle.
Moonstruck - great to hear you got through No 2 with no allergic reaction, I can just imagine how anxious you must have been during that infusion. Hopefully the SEs will be better on this one. Also my sympathy really goes out to you with your brother, that must be very hard for you right now.
Meash & Cartwheels - hope you're doing ok after D1 this week. I love the fact you've got some Radox in your side effects kit. I'll cheer myself up by think of you soaking in that with the purple nails.....
HellesBelles - lovely to hear you are slowly coming through the last Tax & moving on to radiotherapy, let us know all about it. I'll definitely meet up when through the worst - will we be fighting over the loos at Costa? I'll be the one with in the wig with the dodgy drawn in eyebrows and red hot face, I trust you'll recognise me.
Wishing you all a good week.
Top Tip of the week: Moist wipes
Top Telly Tip: Poldark returns Sun 11/06 9pm
Good to hear everyone okay after the Docetaxal , I am 10 days out now and got over the aches and the mouth thrush now , just feel ta bit tired and everything still tastes yuck but I have been able to go to work and go out for a few walks so that has helped , trying to make the most of this and not think about the next one !
Hello all, first day of summer, hooray!
I had my first docetaxel on Tuesday, two days ago, and so far so good, I feel much better than on FEC. So I'm just waiting for the pain to kick in.... I have lots of painkillers and radox ready for if and when it does.
Have dark nail varnish on fingers and toes in the hope of preserving them. Also putting on hand and foor cream religiously as can feel them getting drier already (or am I just imagining it?).
Appetite as massive as it was after FEC and craving carbs like crazy.
Hope you're all doing ok. We're getting there!!!!
Good morning ladies
Hope your enjoying the sunshine.
Hope you are all doing well this week, it sounds like a lot of us now are coming towards the end of this journey in one way or another. I started my first doc on Monday, it us difference from Fec so far, it feels like everything is so much if an effort. I also have a slight ache on surgery side tinker bell, I think this might be down to the heat as well. Did you have a node clearance as well or just a lumpectomy.
take care all, enjoy the sun xx
Hi Bluelily and Amanda63
NEARLY FINISHED! I can't quite believe I am here! best of luck to both of you and Moonstruck to you too with the next chemo and the premeds. It's definitely tougher, I am more fatigued and my words keep coming out scrambled like a Twin Peaks character. various pains everywhere, I am fed up of it. I keep telling myself not to expect to recover immediately, I discovered it takes a while because I had a week off in the middle of treatment. but I am certainly hoping to feel better!
I have a holiday booked in Greece after radiotherapy finishes, can't wait, even if I have to wear a tent and factor 50.
Love to all xxxx
Hope you are all doing well and enjoying some sunshine.
Unfortunately my 2nd docetaxel was stopped on Friday as I had an allergic reaction to it which was a bit scary. I will have to go back again sometime this week and they will give me a pre med to stop it happening again.
Very frustrating just when I thought I could see the light at the end of the tunnel! Does get you down sometimes when you have no control over your body - feeling a bit low and stuck at the moment - hopefully there won't be any more delays.
Just wanted to let you know that I am reading your posts and thinking of you. Bluelily and tinkerbell - we are getting very near to the end of our chemo, which I am very happy about! The side effects are definitely getting worse and lasting longer at this end of the treatment. No radiotherapy or scans for me, but I will be starting Tamoxifen in a few weeks.
Stay strong ladies!
Hope you enjoying sunshine over there , its still quite sunny here although meant to coming into winter ,
Moonstruck thats very hard to see your brother going through that , cancer is a bastard no doubt , look after yourself as I think the emotional side of going through chemo is tough enough and of course you will be worrying about your brother
I am so over the mouth thing its just a horrible side effect that I didnt get with the FEC , my tongue is white everything tastes so yuck even water, I have been using Biotene mouth wash and Nystatin drops but no relief yet , havent had alot of energy but I went for a walk and did a yoga class yester day to drag myself off the couch
Its day 6 today for me today , havent had to have painkillers today so thats one good thing
Heres hoping the chemo is working for everyone and zapping the cancer cells to oblivion x
Hope your chemo went ok yesterday and you're not feeling too rough today. I know what you mean about feeling beaten up, the side effects seem to be the gift that keeps on giving! Hope it feels like the end is in sight for you. I know I can't even think about radiotherapy yet, I just want to get through the chemo.
So sorry to read about your brother, life is just so unfair sometimes. I've heard that the treatment for throat cancer is pretty brutal, I can imagine it's been really tough to see him go through it.
Take care, and hope your recovery is on its way.
Eliza sounds like you have been through the mill. Docetaxemol is definitely more wearing for me. The side effects knocked me sideways for 4 days or so - also felt quite low. My next chemo is tomorrow and the last week has been good - been out every day and enjoying the sun, even went into work - but still get very tired and have now had swollen ankles for the last few days - the list just gets longer!
I hope everyone is ok and coping with everything that is being thrown at them - I feel that my body has taken a severe beating! I'm on my countdown now - 2 sessions to go and then radiotherapy. Then the questions start - when will I feel normal? - if ever.
My younger brother is in the final stages of throat cancer and there is nothing more that can be done - about two half years he's had it - difficult to see him go through it and makes me feel like a wimp - breast cancer is the 'good' one to have in terms of treatment .
Keep fighting the good fight everyone - stay strong😊😘
Good to hear your news. My 1st Docetaxol treatment was delayed a week. Took the steroids last Weds and went white (makes a change from the old red) sweating and faint after the morning dose. Second dose I was alabaster white, clammy and ice cold with a really low temp. Consultant advised postponing Docetaxol My OH had had a cold all week & I was sneezing a bit. He thought an infection might be underlying plus sensitivity to high dose steroids. Turned out to be a bad cold & sinus infection. So a week of blinding sinus headaches and worry about delays means I was so happy(!) to take the steroids yesterday spread out 2 tabs every 3 hours, 8 to 5pm, which meant little sleep. Will be having Docetaxol and Herceptin this morning at the clinic. I usually have chemo at home so a long clinic session is a first for me.
Aussiegonerong, Moonstruck, Amoyart and Hellesbelles - It's been helpful to read your posts as you are ahead of me slightly in this journey. Docetaxol looks like a tricky but essential piece of kit. Just hoping I can tolerate it and the steroids too. P.S Helen I'm jealous of your Look Good Feel Better session in Bristol. It must have given you a boost. I have never got to a session because it is 3 weekly and always landed just after my chemo. One plus in my treatment delay is that I have a chance of getting there now. When we're through this crap we should meet up and discuss side effects over a cappuccino. Anyone else welcome of course, aussiegonewrong do you have any airmiles 🙂 ?
Meash and Cartwheels - your Docetaxol is early next week I see. I'll let you know how it goes.
RuthElizabeth - great to hear you have a date for surgery.
Top tip: do what ever makes you happy on good days and on bad days lay about looking hideous and scream at your nearest and dearest and bore anyone who'll listen rigid by moaning about the weird, unpredictable and effects.
Hottest day of the year today in Bristol - hope you ladies are doing ok.
Love Eliza xx
day 4 for me , feel so tired I went to work yesterday not a good idea today have barely left the sofa and mouth is awful and Ifeel so bloated
Hope everyone is okay ,
I did leave lutterworth in the early 80s to go abroad to live but always come back as family live in Littlethorpe
I do like sydney but times like this would be closer to home , mind you been an awful week with the sad news from Manchester
Hoping everyone going okay
Hope you are enjoying the warm weather, it is nice to have some sunshine.
aussiegonewrong, you are from Lutterworth, I live in Lutterworth when did you leave. I no Narborough very well.
i too start my first Dox on Monday, saw my consultant today and we discussed radiotherapy 3 weeks normal, 1 week if direct to where the tumour was. This journey is very tiring for us all ladies, but we keep one another going. Keep up the good work.