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Marvellous Marchies 2012 Moving on

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Re: Marvellous Marchies 2012 Moving on

Hi Carolyn i too start chemo in March. Went to see oncologist yesterday and have PCA next Tues then start 5th March,having FEC x3 and T x3 then Tamoxifen for 5 years. I am really worried about everything involved i.e. side effects and hope to carry on working inbetween treatments. Hope all goes well for you

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Re: Marvellous Marchies 2012 Moving on

Girls, have you been given info on the cold cap at your hospital or have you looked into it yourselves? I was told yesterday there was no way to prevent hair loss, so I wonder if I should call and ask them...

poppyD
Member

Re: Marvellous Marchies 2012 Moving on

HI everyone

you are all so positive,

I so hope i dont have to join you on the chemo journey but you help allay some of the fear and tension by your positive vibes. If i decide to go ahead i am less afraid now seeing your positive comments and know you will all help

Good luck to you lovely inspiring ladies, hope you are all ok

love Poppy x

chascat
Member

Re: Marvellous Marchies 2012 Moving on

Hi Kitcat

Just had a look at randrconfidence.co.uk, what a beautiful collection, thank you for posting the link.

Big hugs

Lydia x

Kitcat
Member

Re: Marvellous Marchies 2012 Moving on

Hi Everyone,
Had my chat with the pharmacist and nurse today. The nurse was unable to get any blood out of my arm, hope she will have more luck with the cannula for the chemo next week.

It all sounds OK, they have given me a list of what anti-emetic drugs I will be given together with the doses and a chart for when I have to take them. Also I have been given an emergency number for out of hours help and they promised if the side effects became intolerable there would be a drug to help. So I feel quite a bit more reassured, and not least because my BCC buddy phoned and she also gave me some excellent tips.

Over the weekend I spent some time looking for pretty headwear in case the cold cap doesn't work and I came across two websites I liked randrconfidence.co.uk and bohemia fashions headwear. The first one has some beautiful silk creations and, while they're not cheap, I think they will be my first choice should I need them.
KC

Patchit
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Re: Marvellous Marchies 2012 Moving on

Hello Carmy

Welcome to the rollercoaster! I am sure we will all help each other along the way!

Take care, hugs and xx

Joan

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Re: Marvellous Marchies 2012 Moving on

Hi ladies,

I was only confirmed today I will start my chemo March 13th. I'll have six sessions (finishing end of June), then rads. I have this blue feeling looming since we left the hospital, but I am mostly feeling strongish. I'm so happy to have found this thread, though. I'll try to catch up with how you are all doing doing and with all the info I have been given today. See you all around.

Many many warm sparly hugs,

Carmy xxx

Patchit
Member

Re: Marvellous Marchies 2012 Moving on

Good evening ladies, hope the week has got off to a good start for eveyone. Good luck to those who have appointments this week. For the first time in I don't know how long, I have no appointments this week! Hooray!

I have had some good news about my cat (sorry, I know this is a support group for breast cancer really, I'm afraid my cat has got in on the act, having just also been diagnosed!). The steroid injection has agreed with her so she has now gone on steroid tablets which will keep it under control day to day. The outcome will be the same, but at least we will have some time to get used to the situation.

Carolyn, I am having my chemo at Lister too. I think you said your first treat is on 1st March? That is the same day as me. My appointment is 10.30am, we might cross paths if your appointment is the same time? I am having my rads at Addenbrooks though, it is closer than Mount Vernon for me.

Good luck everyone this week, keep positive!

Joan x

Margaret_May
Member

Re: Marvellous Marchies 2012 Moving on

Hi marchies,

Di, my one remaining boob is big but not as big as a Church kneeler. That would just be showing off!!
Got a leaflet from BCC today about haircare, wigs and scarves which is really useful. We are off to Exeter to look for a wig tomorrow, not sure about scarves, some ladies look lovely in them, I've tried a couple on and look plain scary!!
Lydia that's good news about your results.
Welcome to Angelherts. I was a wreck last week but for some reason seem a bit more positive this week. Some of the "been there done that " ladies have posted on here and it's such a help to read their stories and put things back into perspective. Hope I can do the same when finally through this.Thank you hjv123 and sandytoes.
Here's to a new week and hope pet cats and children and partners and all of us have a good week.
Maggie May XX

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Re: Marvellous Marchies 2012 Moving on

Afternoon ladies

Hello Angelherts I'm having my radiotherapy at Mount Vernon but chemo at Lister, so might meet up
towards the end of the journey.

Good news for you Lydia hoping you heal quickly then join us later in March. I don't know about your area ( and Poppy) but I rang my local wig place but was told I had to have a referral letter from the hospital then proceed. Bit of a bummer really as I'd got my head around the wig and will have had one treatment before I even get to wigs but never mind.

Thank you for all those adding support and who have been through it, I'm looking forward to eventually joining that club.

Love to all

Carolyn

poppyD
Member

Re: Marvellous Marchies 2012 Moving on

hi lydia

i am glad there was no more bad news there is a wig shop in lutterworth if you try googleing lutterworth wigs i found it by chance I may need to go too so might see you there hope you feel a bit more settled

lors of love

Poppy x

chascat
Member

Re: Marvellous Marchies 2012 Moving on

Hi all

Well I've just had my results from my ANC and only a micro met on 1 node out of 15 so i'm very relieved, I definately need chemo so am now waiting for my oncology appointment, I expect to start towards the end of March once i've fully healed from surgery.

Hi angelherts, like you and everyone else i'm very scared and have had a little cry (even though I knew it was coming) but realise it's a necessary evil, I too am hoping to continue working throughout my treatment - albeit part time.

I'll be having my treatment at the George Eliot Hospital in Nuneaton, does anybody know of any wig shops within the Midlands/Warwickshire they could recommend?

Big hugs

Lydia x

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Re: Marvellous Marchies 2012 Moving on

Hi Ladies, just thought I'd add myself to this thread as will be joining you.

I am Angela - Aged 43/44 (turn 44 days before Chemo starts), Single mum of 1 teenage boy and live in Hertfordshire. Will be having Chemo at Mount Vernon Hospital and expect I will start on either Mon 19th Mar or Mon 26th March.

Not received the "Welcome to Chemo" letter yet but weirdly have received an Oncologist Appointment for 18th July - which I presume is the "light at the end of the tunnel" date for when it's over and he wants to do the Pre Chat before Rads. So working back from that date I am know my estimated start date 😉 (I should be a detective).

Had WLE and ANC on 7th Feb - Grade 3 IDC with 8/19 nodes affected.

Chemo will be 6 x FEC-T (which I understand is 3 x FEC and then 3 x TAX).

Worried about the Sickness, Nail Loss and then the "Tax Truck" that I've been reading about as need to work at least 2 days a week during the entire treatment as still have to pay the mortgage.

Currently struggling with the exercises as can't fully straighten my arm or raise it completely over my head but then it's only 2 weeks tomorrow and I am very impatient. Otherwise feeling very well and mentally prepared for the treatment.

Anyone else going to Mount Vernon Hospital ?

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Re: Marvellous Marchies 2012 Moving on

Morning ladies

Just popping in to wish anyone who is either going for results, or visiting oncologist today good luck.

I'm now waiting for first visit next week so trying not to read too much as obviously everyone's story is different.

A new week and a new outlook. Let's all get through this together 🙂

Hugs to all

Carolyn

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Re: Marvellous Marchies 2012 Moving on

Hi Marchies

Oh Margaret May, you’ve just cheered me up! I suppose a kneeler would have been too big!! Lol! I haven’t been back to church yet as I don’t want to get the spluttering colds from the congregation.

Thanks previous post ladies for keeping in touch; we need all the help we can get!

Hugs and xxxx
Di

Patchit
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Re: Marvellous Marchies 2012 Moving on

Hi hjv123

Thanks so much for your post. Full of helpful tips, much appreciated!

Hope you are doing well now

Joan x

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Re: Marvellous Marchies 2012 Moving on

Hi March ladies, i'm just popping in to offer some reassurance as well. As Sandytoes says, a lot of the time people only post when they have a problem so it can seem a bit one-sided. I finished 6 x FEC in January & had very few side effects. I too was dreading chemo & can remember the evening after having my first cycle, i just sat there waiting for something drastic to happen. But nothing did.

I would say make sure u take your anti-sickness meds as directed as they prevent not cure & also the meds can cause constipation so again prevention is better than cure. If u have any problems ring the chemo unit anytime esp if u feel unwell or had a temperature, mine were insistent on that & never minded, that's what they're there for.

I lost all hair but i bought a wig with a fringe so people didn't really notice my lack of eyebrows, i never had very good eyelashes anyway & my hair is now growing back.

All in all, the fear of chemo was way worse for me than the reality,not everyone is able to carry on working but i managed to work part time throughout when i felt up to it & i think mentally it
did me good. Wishing u all few SE's & im sure you'll find this thread a great support, love to all xx

Patchit
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Re: Marvellous Marchies 2012 Moving on

Hello Ladies

Sandytoes, thanks for popping in to give us some encouragement. It's very kind of you ladies who are further down the path to light the way for us.

Maggie, how funny! I know what you mean, I am often at home without a bra or my sofie in, heaven knows what they would say if I turned up at work like that!!

Muppets movie was great last night! Just fun and familiar!

Joan x

Margaret_May
Member

Re: Marvellous Marchies 2012 Moving on

PS On way to Church this morning suddenly realised I had forgotten to put "softie" prosthesis in.Luckily had a large coat and scark on!! Help I now have to remember not just glasses, handky etc but also boob!! And that's before chemo brain kicks in!

Margaret_May
Member

Re: Marvellous Marchies 2012 Moving on

Sandytoes thank you for your post. Am sure this is the worst bit waiting and imagining the absolute worst from chemo. Encouraging to hear from you and hopefully can just be really positive and take it all one day at a time. Thanks for taking the time to write on here. I really appreciate it!
Maggie

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Re: Marvellous Marchies 2012 Moving on

Hi
Feb lady from chemo
Re car parking - in nottingham we get a pass for the
Whole time we are having chemo.
I asked my having my chemo intro
Good luck
With love
Rosie x

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Re: Marvellous Marchies 2012 Moving on

Hello! I started my chemo last June and finished in September. I just read Margaret May's comment and just wanted to send a bit of reassurance as some people sail through chemo without many side effects. I had dose dense chemo and was one of the lucky ones. I was petrified at the start but my breast care nurse promised me that I wouldn't be sick (a big fear of mine - but she was right) and whenever I did have problems (nothing bad - dry skin flaking off and indigestion) there was a magic tablet to cure it! So when the time comes, and if you do get any side effects, don't suffer in silence!

This forun is fantastic for advice and support but it can also cause a bit of worry regarding expectations of different medications as you tend to hear the bad (as they are the ladies needing support) rather than the good (as those ladies are skipping along and not coming to the forum to say how great they feel!!).

The cold cap worked for me despite my onc saying it wouldn't as I was on the dose dense regime.

Wishing you all well Marchies!

X

Margaret_May
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Re: Marvellous Marchies 2012 Moving on

Hope you enjoyed the Muppets Joan, love them! GeorgieB good for you getting your hair highlighted, and hugs for the tears in the salon. It seesm to be one of the things of this journey, never know when the fears and tears will come on. Today I was reading the January chemo thread. They are a lovely supportive bunch but some of the side effects and the horrible stuff some were going through after chemo sessions just reduced me to a blithering wreck!! Blubbed all over my hubby who looked like he was going to do the same.Not sure it's a good idea to read but some are reassuring as well!! Wish I could run away from all this. As my wonderful Mum would have said when she was alive "Be a brave penguin"!! Now for a glass of wine!! Or two!

GeorgieB
Member

Re: Marvellous Marchies 2012 Moving on

Hi got my appt through today for 2nd march with the Oncologist. I decided to get my hair highlighted today as I am guessing I won't lose my hair for 6 weeks or so!
I was fine until I asked the hairdresser about wigs and then burst into tears in the middle of the salon! Poor hairdresser - I wander if everyone thought I was unhappy with my hair!! - and if so if only they knew!

Kitcat
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Re: Marvellous Marchies 2012 Moving on

So sorry to hear about your cat Patchit, I went through something similar with mine four years ago and it's so upsetting.

I've got quite a few hospital appointments before March 1, to see the pharmacist so he can work out the doses, the nurse for something I can't recall, physio, CT scan and something else. Nearly every day will be busy.

I suspect I will get a permanent line for the drugs, that was talked about a while ago so I'll need to find time for that.

My last appointment was to see the oncologist at 3.15pm and I was well over an hour late going in so incurred £4.20 of car park charges. I've now found that cancer patients at my hospital can get their card stamped so they don't have to pay, I wish someone had told me that before I started treatment, I've paid for lots of visits to this point. Might be worth everyone else asking if their hospitals have any concession.
KC

Patchit
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Re: Marvellous Marchies 2012 Moving on

Afternoon Ladies

Di, thanks for your understanding about my cat! She is quite comfy at the moment so we will just wait and see how she gets on. She also has an overactive thyroid so we have stopped the meds for that.

I went out shopping for a while this morning, and am just about to go and get ready as we are off to the cinema this evening to see the Muppet Movie. No kids to take, just me and OH, with another couple. Should be fun and a bit of escapism. I loved them when I was a teenager in the 70's, especially Miss Piggy, although I feel more like one of the grumpy old men these days! Imagine if Miss Piggy had BC! I bet she would be done up to the nines throughout her treatment and would certainly carry on wearing those wonderful false eye lashes!

Have a good evening everyone

Joan x

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Re: Marvellous Marchies 2012 Moving on

Hi Marvellous March ladies

Joan: so sorry about your dear cat. My elder cat is 19 and she has kidney disease and now an overactive thyroid, so now another tablet for her to take. You're right, they give you such comfort - ask no questions - tell no lies. I talk to both my cats and it't as if they take it all in and then say, don't worry mum, I'm here for you.

I feel as if I'm in limbo too, don't feel ill, but everyone expects me to be ill. I suppose when I start next week I'll be on another rollercoaster.

Hugs and xxxx
Di

Patchit
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Re: Marvellous Marchies 2012 Moving on

Hi Maggie

Thank you for your kind words, yes, she is comfy at the moment.

I know what you mean about things happening fast. I felt like I was in limbo for a while before I saw the oncologist, but after that I had my date to start and it all seemed to happen really quickly. I have my pre start checs on 27th then first treat on 1st. I think you can get away with pretending it isnt happening as yours is on 29th!! I am in Herts, so quite a long way from Devon, but next door in the virtual world!!

Hugs to all
Joan x

Margaret_May
Member

Re: Marvellous Marchies 2012 Moving on

Hi All,

Have been on the January surgery buddies thread which has been a huge help getting through the Mx and clearance. Am starting 6 FEC regime on 29th Feb. Was in a state after yesterday with the oncologist and everything coming so fast, but phoned the bcc help line this morning and she was brilliant at meking me feel calmer and more realistic. Still scared though!
Joan, so sorry to hear your cat is poorly, and hope she is comfortable. I know how awful it can be with our beloved pets and now doesn't sound the best of time for her to so ill.
I may be one of the oldest? Am 62. Had grade 3, 3 small areas and the sentinel node affected so advised to have chemo.
Anyone else in Devon?
Looks like I will be one day ahead of some of you on 29th (is that really a date or can I pretend its not a leap year?!!)
Hugs and love,
Maggie

Patchit
Member

Re: Marvellous Marchies 2012 Moving on

Thank you Carolyn, that's sort of how I feel about her. Its like she is taking my cancer away from me, but I feel silly saying that!! She is always around me when I am at home, under my feet or on my lap. She is a gorgeous girl!

Hugs and xxx

Joan

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Re: Marvellous Marchies 2012 Moving on

Ah Joan bless, yes we will all definitely be holding hands together. So sorry about the cat, animals often share confidences more than people.

Love to all

Carolyn xxx

Patchit
Member

Re: Marvellous Marchies 2012 Moving on

Evening ladies

I haven't been on for a couple of days, so have just caught up with all your posts. I had a really bad day yesterday. My lovely cat, Patch, who is 18, has been off colour this week so I took her to the vet yesterday morning. Can't believe it really, but she has cancer! Come out in sympathy with me! Nothing they can do really, she has had a steroid injection which has given her a boost, and she may be able to have steroid tablets iif she is gettting on ok, but in reality she is nearing the end of her life. I am really sad and upset. I had thought she would keep me company when I am having treatment, joining me for duvet days, but that wont happen now. This is a very trying time in my life!

Carolyn and KitKat, I too have invasive lobular cancer, grade 3, 57mm. I am having exactly the same treatment as Carolyn, not as intensive as KitKat. I am 51 and was told that I am also young to be going through this. Don't feel it though!! Carolyn, I think you just have to deal with things the best way for you. That isnt really burying your head in the sand, its just adapting to the situation as you go along.

My first session is also 1st March, looks like there will be a few of us going on that day! We can all hold hands virtually to give each other strength and positivity!

Good luck everyone,
Joan x

debh
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Re: Marvellous Marchies 2012 Moving on

Hi PoppyD,

I live very close to the centre of Leicester, are you having your chemo at the Royal Infirmary.

Deb xx

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Re: Marvellous Marchies 2012 Moving on

Hi KC

Snap had call today to say visit suite on 29th then start first course on 1st. I too have invasive lobular grade 2 or 3 they can't seem to de die, but luckily no lymph nodes affected. Been told it'll be FEC so maybe not as harsh as yours. Again snap then it'll be radiotherapy and Tamoxifen for me. God it's hit me like a sledge hammer so sharing with everyone else makes it more bearable. Think I'll take your advice and ring BC nurse.

Carolyn xx

Kitcat
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Re: Marvellous Marchies 2012 Moving on

Hi Everyone,
I start my chemo on March 1 and I'm getting what's called "dose intense" where I get two full courses of treatment in the space of one. The first is epirubicin and cyclophosphamide for three sessions and then another three sessions of Taxotere. Essentially I'll be getting double doses so I've been warned it's going to be tough.

I'm hoping to be able to work during part of it but I guess much depends on the side effects. Unfortunately I've got lobular invasive cancer and it was a large tumour with seven lymph nodes affected so they have said they are throwing everything at it. After this I get radiotherapy and then Arimidex.

Yesterday Breast Cancer Care put me in touch with someone who has already had similar treatment and it was great to hear how she dealt with the side effects, which have been my biggest concern. I'll be talking to her again next week after I've seen the pharmacist.

If anyone wants to talk their treatment over like this then just ring the helpline, they fixed me up with someone in just a few hours and I feel very reassured as a result.
KC

kiwijan
Member

Re: Marvellous Marchies 2012 Moving on

Hi everyone - just popping in from February Chemo to give you positive thoughts. I had my first session Wednesday gone and it honestly wasn't as bad as I thought - I was terrified of sickness but it hasn't happened - just make sure you take your anti-sickness tablets even if you don't feel icky and my best advice is to drink as much water as you can - try for 2 litres - after chemo - i think it works the chems out of your body a lot quicker.

Ask any questions you want to!

Love and best wishes!

Jan
x

teabelly
Member

Re: Marvellous Marchies 2012 Moving on

hi Everyone
got resuls yesterday got to have another operation but then chemo and radio
hope you dont mind me joining i should start chemo end of march i was hoping i didnt need it but unfortunately i do im so frighten of starting it
lots of love tracy x x

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Re: Marvellous Marchies 2012 Moving on

Morning ladies

Caren PM me if you need a winge, chat or whatever.

I met with my friends from work yesterday and that helped, but as one of my close friends said 'Carolyn you're still burying your head in the sand', and she's probably right but I quite like feeling like this is all happening to someone else and I'm just looking in on it!

Now EB Hippo you have a lot to answer for, as my creative juices have got charging ahead and all sorts of wig styles keep coming to mind:)

Hope all getting results or visiting oncologists are ok today, the rest of you ladies definitely keep me going.

Love to all

Carolyn xxx

poppyD
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Re: Marvellous Marchies 2012 Moving on

Deb i know its terrifying but somehow you will endure it. I sometimes think these things are influenced by our expectations. If we could find way of reducing stress then body may cope better but easier said than done
Some ladies manage to be very positive one lady on live chat last night called Ruth was doing very well through her chemo

I know i will find it hard and be terrified too which is why i find it so hard to make deciscion

thinking of you

love poppy x

poppyD
Member

Re: Marvellous Marchies 2012 Moving on

EBH Hip and Deb

I am not in leic but not far are you central to leic or out in the sticks
have been to glenfield for some of my treatment dont know why but it feels good to know that you are not too far away

good luck with your treatment

our paths may cross

lots of love

poppy x

Care_N
Member

Re: Marvellous Marchies 2012 Moving on

Hi All,

Carolyn a Crystall tips wig would be amazing!! lol

I feel really low today, I have Onc appointment on Monday and its all starting to feel too real - I feel like I've coped really well so far, but I'm not sure I can manage chemo.

But the posts on here really do help, from those who are going through it at the same time, and those who are coming out the other end, so thank you.

xxx

debh
Member

Re: Marvellous Marchies 2012 Moving on

Hi EBHippo,

I had my op at Glenfield and starting chemo soon at the Royal, where abouts in Leicester do you live.

Deb xx

EBHippo
Member

Re: Marvellous Marchies 2012 Moving on

its me that thinking of cleopatra

been at glenfield so far but think chemo is carried out at the royal

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Re: Marvellous Marchies 2012 Moving on

Hi ladies I continue to love all your comments.

No not being treated at Glenfield, could be different part of the country. Although registrar waffled something about cold cap I'm hoping to find out more, and maybe even digest more info when I go to chemotherapy for first visit.

Think it's actually hitting home now and have even made the decision to look at wigs just in case, although weirdly all that does is make me want to giggle! Did have a bit of a laugh ( which at these times can sometimes be thin on the ground), read on one thread somewhere that they had always wanted a cleopatra style wig so that got me thinking I always wanted to look like Crystaltips from the tv programme Crystaltips and Alastair when I suggested to oh I got a very definite NO! and that's without running this thought past my grown up daughter god only knows what she would say?

Love to all

Carolyn xxx

debh
Member

Re: Marvellous Marchies 2012 Moving on

Hello Ladies,

EBHippo and PoppyD are you both being treated at Glenfield Hospital.

Knoxybabes, hope you are feeling a bit better as the day has gone on, will be thinking of you tomorrow.

EBHippo, I know what you mean about being in denial, thats what happened to me when my letter came through the door.

I should be starting chemo either at the end of Feb or beginning of March and am so scared.

Deb xx

poppyD
Member

Re: Marvellous Marchies 2012 Moving on

caroline

Thanks for sharing i have decided to go for oncotype DX and then decide

Carolyn are you being treated at Glenfield. They are a big centre so may do cold cap

love poppy x

EBHippo
Member

Re: Marvellous Marchies 2012 Moving on

Got my letter through this morning for 1st appt with onc next week, think that until this arrived I was in denial and am now thinking SH** this is really going to happen.

Carolyn - like you, thought of losing eye brows and eye lashes - dont we deserve some dignity going through this. Its not something we asked for and we seem to be punished every step of the way [I sound a little bitter but .....]

TTM hope all is well, not seen or heard for a few days and was getting worried - take care xxx

Am hoping Leicester offers cold cap treatment, would like the chance to try it. Am thinking of wig styles, always wanted the Cleopatra look so maybe this is my chance.

Love to all out there going through this experience [apparently its character building - my character was fine as it was] xx

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Re: Marvellous Marchies 2012 Moving on

Hi TTM

lump was 35mm invasive lobular cancer, no lymph affected and grade 2 but kept changing to 3 but think that was because of affects of taking Tamoxifen during treatments. They said all this and age affected criteria. Hope this helps, but remember it seems that every hospital decides different things.

Don't worry yourself too much Knoxybabes as I reassure myself with the fact that they are the professionals and know what they're doing. Will think of you tomorrow and make sure you keep us informed.

Hugs to all

Carolyn xx

tommyticklemou
Member

Re: Marvellous Marchies 2012 Moving on

carolyn1709,

can i ask what grade the lump was and was any nodes affected. was these mentioned as part of criteria?

Many thanks TTM xxx

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Re: Marvellous Marchies 2012 Moving on

Morning everyone! Feel sick today just at the thought of seeing the oncologist for the first time tomorrow and had a nightmare trying to style my short hair for the first time this morning (had it cut short yesterday) - I could just sit and cry but coming on here and reading everyone else's journey keeps me going and thinking I can get through this!

You are all an inspiration - long journey ahead but wouldn't it be great to all meet up after the journey has finished? Hope you all have a lovely day and take care. Jo. X