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Marvellous Marchies 2012 Moving on

chascat
Member

Re: Marvellous Marchies 2012 Moving on

Hi all

I've got my onc appointment on Wednesday 29th Feb so will be joining you all for March chemo. I'm really nervous about seeing her and scared she'll tell me something about the cancer that will frighten me, can anyone give me any advice on what the consultation may be like?

Tina - I have an appointment with Headstrong on the 7th March, really looking forward to it, glad it went well for you.

love Lydia x

Ratina
Member

Re: Marvellous Marchies 2012 Moving on

Hello Marvelous Marchies!

I will be joining you as I have my first of 3-Fec, 3-T on March 2nd.

Do any of you ladies live by yourselves? I'm finding the thought of coping with this 'home alone' a bit scary.

I do have 2 daughters the oldest is married with 2 gorgeous little girls and lives about 120 miles away and my youngest is at university about 100 miles away. They are wonderfully supportive and I know it is difficult for them to be so far away from me at this time.

On a more positive note, Headstrong is great. I learned how to tie a headscarf in a few different styles and got to try on a few different hats, caps and other styles of scarf. I got a free large square scarf and a small silk one to dress it up with. Also looking forward to LGFB, I get to go on April 12th, the day before I should get my last Fec.

Hope you all have a great weekend,
Tina XXX

Guest user
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Re: Marvellous Marchies 2012 Moving on

Hi Joan! It is quiet indeed today!

I've gone back to work in the hope it would get my mind off things, but it back fired a bit. I was there trying to pretend everything was normal with my colleagues remarking on how well I seem to be doing, and then out of the blue I felt so down and wishing to go back under my duvet to not feel okay. To cheer me up I went after work to buy the Benefit eyebrow pencil (it looks great!)and some MAC foundation. The lady at MAC was super nice and I told her why I was buying all this make up and she gave me some tips on how to do my make up during chemo. I'll share them with you:

- Always use a orange/peache/pink blusher as they will give us a healthy look. We should avoid the ones with brown/bronce undertones. We should only place blusher in the "apples" of the cheeks and a little over the nose to get that healthy "day out in the sun" look.

- Eyeliner can be our friend and help us hide that we lost the eyelashes. We can apply eyeliner as we normally would to create a sort of cat-eye look, and then blend the line really well. We want the darkness in that area, but we don't want attention towards the fact that it's a thick line of eyeliner. We can also apply some in the upper and lower waterline. She says from the distance it'll be impossible to tell we've got no eyelashes, as we've given back the eye that darkness over it that eyes get from eyelashes (omg, excuse my awful English!)

- Cheerful warm colours such as oranges, reds, fuchsias... will compliment us, as they will reflect in our face and make the colour we might have on our face stand out. Dark colours on the other hand might make dark areas of our face stand out.

- A pretty attention-calling lipstick can be a great way of making a nice mouth stand out and to give the impression that the skin is more evened out.

And that was pretty much it. She said I can call back and ask more questions any time, as she has quite a few chemo patients going there for tips. Very nice! So I might not orde the LGFB DVD after all. I left the place painted as a door and a bit more happy.

Hope you all had a nice day and have an even better weekend!

Carmy xxx

Patchit
Member

Re: Marvellous Marchies 2012 Moving on

Hello Marvellous Marchies

Everyone is very quiet today! Thouht I had better post to bump us up a bit! Hope you have all had a good day. Has anyone had hospital appointments today (sorry, cant remember!).

I have a little question and don't know if anyone might be able to help. Is it best to get your prosthesis sorted out before buying any new bra's or is it best to get the bra first then go for the prosthesis appointment? Or doesnt it really matter which way round you do it?

Thank you in anticipation!

Joan xx

Guest user
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Re: Marvellous Marchies 2012 Moving on

Hi Marchies

Thanks CM, you’re a trouper and always available to support everyone!
I’m seeing Matt In Concert, wish I was meeting him; but may be a possibility as my daughter is receptionist at the hotel he stays at when he’s here (his girlfriend is from Newcastle). Don’t know whether he’s staying there though.

Carmie: I’ve ordered a book and DVD from the LGFB website, You have to pay (donation) but It’ll be worth it, I think.

Lee: Welcome, but what a decision to make. As Joan (Patchit) says, maybe the oncologist will be able to help you. Have you spoken to the bc nurses on the helpline?
Are we all going to dye our hair pink now, mine is red already so I’m halfway there! Perhaps it could be a sideline for BCC, making and selling pink wigs! Lol!

Lea; is that your ex-friend now, what a thing to do!
http://share.breastcancercare.org.uk/forum/glossary-useful-words-and-terms-f162.html
This may help you with the abbreviations.

Aw SueRoxy! What a double whammie! What a shame that you’ve had to cut your hair. Did you have chemo last time, and did you lose the hair? You can maybe get some help from the February Chemo 2012 thread, as they are just starting their treatment, none of us have started yet.

Is anyone going on the livechat at 9.00 tonight? Maybe see you there?

Hugs and xxxx
Di

Patchit
Member

Re: Marvellous Marchies 2012 Moving on

evening ladies

Ah Lea! How awful for you! Hope you told her it wasnt her news to tell! Glad your sons are supporting you, its a lot to take in, we all need time to adjust and we all handle it differently. I hope you are feeling calmer now. Do you know what your treatment plan is yet?

SueRoxy, what bad luck you have had. You will be just a few days behind me on the chemo path, I haev my first treat on 1st March. It seems that everyone is different with the side effects. I hope yours are mild and short lived!!

Hugs and xx
Joan

poppyD
Member

Re: Marvellous Marchies 2012 Moving on

Hi
for anyone who is interested inc cold cap treatment to reduce hair loss during chemo you can put your post code in and it tells you where they use it

http://www.paxman-coolers.co.uk/index.php/how-it-works/patient-hair-care/

Love Poppy

Guest user
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Re: Marvellous Marchies 2012 Moving on

Hi all

I am due to start 1st lot of 6 sessions of FEC-T chemo on March 9th. I am having a Portacath inserted on Friday 2nd.

Had DCIS resulting in right-side Mastctomy in Dec 2009. Found tumour left-side Dec 2011 which spread to Lymph 7/10 and was found to be Triple neg malignant. Had left-side mastectomy in Jan 2012. So not much luck there now, with lightining striking twice.

I did not use the forums much in 2009, but feel the need of some support this time.

I am hoping I will get away with no sickness but know I will lose hair and have had my long locks cut off in prep, that was very hard.

I am interested in finding out how long into the treatment does the tiredness come on or is it different for each person? I have opted to have my treatment late on Friday inj the hope the worst of it is over by Monday. This is important to me as I am starting a new job on Monday, and do not want to have too much time off understandably.

lea
Member

Re: Marvellous Marchies 2012 Moving on

Hi, what a brilliant day,sun shining beautiful blue sky. i am finding it hard to keep up with all the posts here - so many abbreviations LOL, guess i will get the hang of it.

I think I am still in denial and when I come on here I have to face up to what;'s happening.

what's been good since my diagnosis: my grown up sons have been incredibly supportive in a way I wouldn't have thought possible.

what's been bl**dy annoying: my 'friend' making an announcement about my condition at my club after me telling her I didn't want a lot of people to know!

I could go on here, but I'll spare you

lea xx

Patchit
Member

Re: Marvellous Marchies 2012 Moving on

Hello ladies, hope you are all enjoying the sunshine today!

Carmy, I expect you enjoy the sunshine most days, living in Spain. How have you found the health care system out there? I imagine that their health service is quite similar to ours.

Di, I really feel for you. Psyching yourself up for chemo then beign told to go away! I hope you get soreted out soon and get your treatment underway in the next couple of weeks. Matt Cardle though, nice!

Choccie muffin, thanks for your message of support, much appreciated!

Debbie, hope you get your dates soon and the seroma clears up quickly. The hair do will make you feel brighter. I know what you mean about hospital appointments and car park charges!!

Hello Lee, welcome to the party! I guess the oncologist might have more of an opinion as to whether you should go for chemo. Whatever you decide, keep us posted and remember we are here to virtually hold your hand. I have read posts from another lady who was in your position somenwhere on the forums, so as Carmy says, maybe have a look round for their take on it. You are not being naive, we all learn lots of stuff as we go along and you have to do that at a pace which is right for you.

The LGFB courses seen to fill up really quickly in some parts of the country. I was really lucky and got booked on within a week (next Tues). I also got my appointment through for my prosthesis fitting which is next Wednesday. I decided that I would have a reflexology session each time I have chemo so I am going for that next Weds eve then have my first treat on Thurs. Oh yes, then there is the pre-start check on Monday! Heavens! I will try to fit in some work around that lot! Ha ha!!

I am going to ask my friend to have a go with the eyebrow kit later. I got it through Groupon and it was £13 but should have been £30 so it should be good. I am not very good with all that stuff really!

Have a good day everyone and enjoy the sunshine!

Supersue, I hope everything is ok with you!

Joan xxxx

Guest user
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Re: Marvellous Marchies 2012 Moving on

Hi Lee, nice to meet you. I had nooo idea what a cold cap was until last week either. Some info on them:

http://www.rapunzelproject.org/ColdCaps.aspx

And nope, you are definitely not alone. Look for as much info as you need before taking your decision and maybe ask around in one of the sections of the forum. I'm sure there are members who have had to take the same decision as you and can offer insight.

Sending you warm fluffy hugs.

Carmy xx

Sameelee3
Member

Re: Marvellous Marchies 2012 Moving on

Hi Everyone,,

I've just caught up with these forums again, after reading loads of them when I was first diagnosed. I have to be honest, I found it all really upsetting; there were just so many things going wrong for so many women!
So, I backed off, tried to be calm and sensible while I waited for the MX. Yesterday, I got the results from the MX and am waiting to see an oncologist, but my surgeon says that the decision about chemo is up to me. And that's hard. In some ways it would be easier just to be told what to do. Have been reading about the oncotype DX test, and I might go for this if I can.
Reading all your posts is brilliant; makes me feel less alone, knowing that so many of you are faced with the same decision, and also dealing with worse.
I don't even know what a cold cap is yet, I'm that naive! Mollie43, I am glad to see that you are still going to have a hair colour; I just cancelled mine in a.knee-jerk reaction!
Reading all your posts might even help me make a decision!
Lee

Guest user
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Re: Marvellous Marchies 2012 Moving on

Mollie, welcome! We might be starting chemo on the same week, then. Hope all the appointments go well next week. Keep us updated!

Carolyn, haha, don't feel old! I had never heard of him maybe cause I'm young (29) but mostly because I've lived in Spain most of my life, hehe. 😉

Wow, LGFB does look great... I wish I could attend such a program here! Gonna have a look at their Beauty Guide (http://lookgoodfeelbetter.org/beauty-guide/)

Sending love,

Carmy xx

Guest user
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Re: Marvellous Marchies 2012 Moving on

Morning ladies

Oh Joan I don't think you were being flippant at all a laugh is what we all need. God I'm definitely going to need advice for make up by the sounds of it so I'll have to get on and ring LGFB. God Carmy you made me feel old when you didn't know who Denis Healy was! Good idea to go back to work though I wish I could and I'll definitely look at the link you sent. Keep putting off scarfs but might bite the bullet today and order one.

Fingers crossed for you Di, we all want you to stay in this thread and let's hope there's an explanation for the enlarged lobes. Don't forget to keep us involved and posted.

Hope today is a good one for everyone, I'm off to visit work this afternoon so better get on with a few jobs before then.

Love to all

Carolyn xxx

mollie43
Member

Re: Marvellous Marchies 2012 Moving on

Morning march ladies,

I have got my chemo assesment next monday then probably start 2 weeks later.I still have a bad seroma thats being drained twice a week with 500mls+ each time, they won't start the chemo till this has cleared up.

Kitcat i have spoken to my oncologist about the cold cap and going to try it when i start.

I have got a meeting with the wig people next week and a macmillan chemo evening as well as another appoint with my bcn for another drain feels like i am living at the hospital at the moment, 4 visits next week , you need to take out a mortgage for the car park charges.

I have got a LGFB meeting but not until 22 may as they are all booked up at my hospital but then its something to look forward to in the future. hope everyone has a good day, i'm off to get my hair coloured this mornig hoping it will make me feel better before the next leg of ythis journey. debbie xxx

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Re: Marvellous Marchies 2012 Moving on

Patchit, you made me laugh! xD I didn't know who Dennis Healey so when his eyesbrows popped all over my screen in the google image search I had to giggle.

Carolyn, I was also thinking about Benefit. The description of this one does look good: http://www.benefitcosmetics.com/product/view/instant-brow-pencil

Kitcat, I haven't had a similar experience. Hang in there. The waiting is frustrating but maybe they just want to double check. Sending you big hugs!

Newc, of course we are still with you! 😉 Keeping everything crossed for you. and omg, meeting Matt Cardle, now I'm jealous! What a cutie!

Choccie, thanks a lot for popping in!

I have decided that I'm going back to work tomorrow until chemo starts on march 13th. Now that pains from second surgery last week are also gone I can do with some going out other than to a hospital. My workmates are so nice too, so it'll be nice to see them. I'm gonna have a look at the entry with the checklist of stuff to get ready for your chemo and start getting some stuff ready, now that I can.

Hope you all have a lovely day, marvelous marchies!

ChoccieMuffin
Member

Re: Marvellous Marchies 2012 Moving on

Hello all. Just thought id pop in and say hello as I'm a year ahead of you so I can give you a bit of encouragement. I won't say it's going to be easy but the support you'll get from each other will be priceless. Hugs all round.

CM
x

Guest user
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Re: Marvellous Marchies 2012 Moving on

Hello MMs

Looks like I'll be a Marvellous March then! Went for my first chemo this morning, and it's been delayed. As I'm potentially on the Denosumab trial, I had to have a CT scan last Tuesday. The scan has shown x2 enlarged lymph nodes,(neck/cleavage area, well the half cleavage I have!). My medical profile fits in with the trial criteria, but I now have to have a PET scan (?) to investigate the lymphs. This will be next Friday 2nd, by the mobile scan unit. If it's secondary bc, I won't be on the trial and the chemo will blast it. If it's not I'll be on the trial, and still have chemo as they run concurrently.

Are you still with me?! Lol!!

The bcn said that I could normally have these enlarged nodes and if they are cancerous the chemo would have blasted it - Oh I've said that already! ... and now I'm rambling.

I thought that everything was going soooo smoothly - something had to happen to disrupt it! Now I'm being paranoid. I got so psyched up for my C-day today, and now I'm back in limbo. It's worked out quite well though, being delayed by 2 weeks, I won't be getting juiced-up on my birthday week (16th) and I'm going to see Matt Cardle then too!! Plus I have to go to Leeds on Friday for a meeting for work, so I won't have to take the charity collecting bucket as a sick bucket!!

Carolyn, I'm going to get booked in with LGFB soon, also with Headstrong, I think you get a free scarf or hat.
http://www.breastcancercare.org.uk/breast-cancer-services/information-support-sessions/headstrong

Joan: so pleased about your dear cat, these felines are very perceptive and sense when their owner is not 100%.

Maggie May: best wishes and good luck if you have rads. You'll be there before us, so you can let us know about that phase. Hope you find your missing boob!!

Going onto the UpAllNighters now!

Hugs and xxxx
Di

Patchit
Member

Re: Marvellous Marchies 2012 Moving on

Tried the eyebrow kit! Disaster darlings! Hmmm! Look like Dennis Healey! There are 3 different templates, thin, thick and natural. They all look roughly the same to me. You put the stencil over your brow then colour it in. The stencil is flimsy plastic so it doesnt stay in place even when you hold it as it just bends over your brow bone. The colour is very good though so I will get my friend to have a go tomorrow as I am not at all artistic and I am also messy so some of the problem may be with the operator rather than the product!!

Best bit is that I hadn't told my OH what I was doing and when I came back down stairs he asked if I had had my hair done!! Hilarious!!

Joan xxx

ps sorry if all this seems a bit flippant if you are having a hard day today!

Patchit
Member

Re: Marvellous Marchies 2012 Moving on

Hi Kitcat

Did you have a CT scan because you are having dose intense chemo? Its all the hanging round which is so frustrating isn't it? Fingers crossed that everything is ok for you. When do you have the scan?

Joan xx

Kitcat
Member

Re: Marvellous Marchies 2012 Moving on

While I was at the hospital today I was given a copy of the oncologist's report and I'll only be getting chemo next week if the CT scan is clear. I don't know what happens if it isn't clear, the only thing that is said in the report is that if it isn't they will be having other discussions with me.

I suppose I assumed that even if there was a problem with the scan that the treatment would still be going ahead as it would be better than nothing.

Has anyone else had this issue?
Thanks
KC

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Re: Marvellous Marchies 2012 Moving on

Hi ladies

Snap Caren and Joan I also blubber when I got the call. Hope my message to you Caren makes sense as I've only just caught up on emails. I know what you mean about posting though Joan this site gets a little addictive.

That's a great link and definitely worth a look at Carmy.

Let's hope we can all hold hands together and finally get to meet as I think this thread is going to get very long 9 pages already and it's not even March 🙂

I was recommended Benefit eyebrow stuff I'll have to pluck up courage and go to their counter in John Lewis.

Love to all and keep posting

Carolyn xxx

Guest user
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Re: Marvellous Marchies 2012 Moving on

Patchit, exciting about the eyebrow kit! Let us know how you like it.

xxxxx

Guest user
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Re: Marvellous Marchies 2012 Moving on

Me again!

Kitcat, thanks for the info on the cold cap! I asked my oncologist yesterday and she told me the do not have any access toone and she can't give me any advice on how good they are, etc. I saw they are relatively 'cheap' and thought about getting one, but looking at pretty scarves and wrapping styles has made me feel a bit better about the hair loss, so I think I'll give it a miss.

Angelherts, diagnosis and surgery buddy, nice to see you in this threat now (you know what I mean!). We will both be going through chemo at the exact same time too. Roll on July! We might be bold then, but we'll be more glad than ever that the summer has arrived. 😉

Okay, and another link that I've found around that you might like - Chemo Angels! You sign up as a patient and you get assigned an "angel" that sends you little treats weekly during your treatment to cheer you up. It works internationally. How sweet is the idea? I signed up yesterday and am so curious about the whole thing:

http://www.chemoangels.net/

Hugs and cookies for the march ladies.

Carmy xxx

Patchit
Member

Re: Marvellous Marchies 2012 Moving on

Hi Carmy

See, I'm still here! I am having 3x FEC, 3x TAX.

I hadn't seen the site for the scarves. What a lovely idea. Thank you for posting it, I will have a browse, in between my ramblings on here!

Eyebrows, well, today I have received a long lasting eyebrow kit. I havent tried it out yet (probably will be a disaster!) but I will let you know how it goes. Its meant to last 24 hours which I thought would be better than a pencil which I would probably wipe off or smudge in 10 minutes!!

Love and xxx
Joan

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Re: Marvellous Marchies 2012 Moving on

How I love this forum. Some of you starting literally together, same day, same place... 🙂

Which type of chemo will you be getting? Mine will be Adriamicina-Docetaxel X 6.

Is anyone starting on the 12th march week?

You might have bumped into this a million times, but just in case you haven't. They've got beautiful silk head scarves over here, free for BC patients (we only have to pay shipping):

http://www.goodwishesscarves.org/good_wishes_scarves.php

I'm gonna scroll back and check what someone posted about eyebrow makeup. We better get it all ready now that we are still active and feeling good, right? 🙂

Many hugs and love,

Carmy xxx

Patchit
Member

Re: Marvellous Marchies 2012 Moving on

Goodness! It looks like I have been on here all day! I really couldnt settle to anything at work today so I have been dipping in and out most of the day!!

Patchit
Member

Re: Marvellous Marchies 2012 Moving on

Hi Caren

Glad you got your dates through at last! I did exactly the same when I got my phone call at work! I have been feeling anxious and emotional about it today, but I know its just fear of the unknown. I am sure we will all feel better once our first treat is over!

Good luck on Wednesday, I will be virtually holding your hand and thinking of you, so be brave and strong! What time is your appointment?

Joan x

Care_N
Member

Re: Marvellous Marchies 2012 Moving on

Hi All,

After waiting so long to see Onc (WLE and ANC 11th Jan), I received a phone call this morning and I've got pre-appointment at the chemo unit on Friday afternoon, and first chemo on Wednesday 29th - so offically I should be on the Feb thread, but only because it's a leap year, so I hope you'll let me stay here, you all seem a friendly crowd!

Carolyn and Joan, I wish I was there the day after with you as I'm at Lister too.

I feel so nervous now, and thought I was going to burst into tears in the middle of the office when I pit the phone down. Luckily my work are being really supportive. I don't know whether to go in Monday and Tuesday, I don't want to pick up any germs before chemo, and I work in a really unhealthy office - but it's good to have something else to think about, and I will be going on to half pay at some point, so it would delay that a bit.

Good luck everyone, it's so good to know you're out there, and understand how I feel.

Caren
xx

Patchit
Member

Re: Marvellous Marchies 2012 Moving on

Carolyn, you will spot me easily, I will be standing under the big clock!!

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Re: Marvellous Marchies 2012 Moving on

Hi Joan

Ok I'll definitely look out for you I'll be carrying a copy of the days newspaper ( wink wink).

Lovely unpractical advice from your work then, as like most of us I know this has to happen it's just the unknown that's the worst bit. Luckily my work colleagues gave been great and if anything make me laugh about lots if it. I'm trying not to read too much about advice etc until I see them next week but it's hard as I also want to be prepared.

Hope to see you next week to put a face to a name, and see what kind if person gies around wearing Big red carnation lol.

Carolyn xxx

Patchit
Member

Re: Marvellous Marchies 2012 Moving on

Hi Carolyn

I am having my rads at Addenbrooks in Cambridge as I live in North Herts and that is much closer for me. I am only about 15 miles from Cambridge. I am also going there for the LGFB. I expect I will still be at Lister at 1.30 so I will look out for you! I will be wearing a big red carnation!! Ha ha!

Your lovely parents-in-law! How kind of them! Better than my work colleague who today asked me 'am I not making a bit much of going for chemo?!' After all, I don't know how I am going to be so would it be better if I didn't make such a fuss about it (which I am NOT!!!!!!!!!!!!) till I know what my side effects will be?!

GRRRRRR!

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Re: Marvellous Marchies 2012 Moving on

Hi Joan

Yes 1st but appt 1.30 so you may still be there. I looked on LGFB web site and they have workshops every two weeks at Mount Vernon which is where I'll have radio ( you too probably by the sounds of it). It would be good if we were there at the same time you get to feel you know people.

Carolyn xxx

Patchit
Member

Re: Marvellous Marchies 2012 Moving on

Carolyn

I think you said you are going to Lister for your chemo, first session 1st March? So am I, not sure if we may be there at the same time? My appt is 10.30am. Where are you going for your LGFB session?

SuperSie, how did you get on at the hospital today?

Joan x

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Re: Marvellous Marchies 2012 Moving on

Hi ladies

Joan you lucky thing we must be doing the same things at the same time. I'm also starting 6 x FEC next Thursday and strangely contacted LGFB yesterday but waiting to hear from them. I'm hoping I can get booked in after second treatment. Have spent a great day with my sister, and talked through loads and she finally made me realise I need to ask for help more and keep them posted. Have got lift sorted for first visit to chemo and now second to boot. Plus also met mother in law ( now she is an inspiration at 85charges around like a Tasmanian devil and not a sign of any I'll health.). Both her and dad in law feel useless at not being able to take me to appointments so have been so generous and given me a cheque which I'm already planning on using for a post chemo holiday with OH. You realise how fab people are when you need them. Seeing work colleagues tomorrow so that'll also cheer me up. At least this time next week I'll know what's happening and when so on count down now.

Fingers crossed for you getting to The Stranglers on 1st I'm sure all of us will be cheering you on.

Love and hugs to all and a bug thank you to those post chemo's who keep popping in your words of wisdom and experience keep us going.

Carolyn xxx

Lucy_BCC
Member

Re: Marvellous Marchies 2012 Moving on

Hi Lea and welcome to the BCC forums

In addition to the support and information you have here please feel free to call our helpliners, they are here to offer you support and a listening ear when you need one on 0808 800 6000 weekdays 9-5 and Sat 9-2

I am posting a link to the BCC treatments information link which I hope you will find helpful:

http://www.breastcancercare.org.uk/diagnosis

Take care
Lucy BCC

Patchit
Member

Re: Marvellous Marchies 2012 Moving on

Goodf Luck Magge May, pop in and let us know how you are doing from time to time!

Welcome Lea, I start my chemo on 1st March, 3x FEC, 3x TAC. Its all happening quickly now after feeling in limbo for a little while. I am very positive about what has happened to me MOST of the time. I am so grateful that things are not worse, which they could have been, and feel so sorry for those in a worse situation than me. I must say though that I am feeling a bit panicky and emotional about it all today (must be my hormones). This will pass though and I know I will feel in control agian soon!!

Thanks for poppin in Teresa, your wig looks great! Good luck with the op, I had my mx in January and like any operation, the anaesthetic takes a while to get over. Make sure you do your exercies religiously though, even when you don't feel like it!!!!

Joan x

keepthefaith
Member

Re: Marvellous Marchies 2012 Moving on

Just popping in from the October thread to say good luck to you ladies starting chemo next month. It is not pleasant, but you will be amazed at how quickly it goes in many respects - you suddenly start living your life in three week cycles! Hopefully most of you won't suffer too badly with the SEs and will have one week out of the 3 when you feel relatively normal, and can actually get out and about a bit.

Look after yourselves, use plenty of hand gel (esp if you have children constantly having colds like I did!) and take it easy - don't push yoursleves too hard.

I had 3 TAC and then 3 FEC - not a normal regime, I was supposed to have 6 TAC but was too poorly so they swapped me. Have just finished chemo, now looking forward (NOT!) to Mx and node clearance next week, which some of you have already done.

Pop into us on previous months threads if you want any advice.

BTW yes the photo is of me with my wig, my hair is actually now about 1/2 a centimetre long all over so already beginning to grow.

Teresa x

lea
Member

Re: Marvellous Marchies 2012 Moving on

Hi all, a friend found this forum and suggested I join, so here I am!

Had mx Jan 20th and waiting for chemo appt to come through...........just got letter through the door, deep breathing! Pre treatment meeting on 29th feb and treatment starts 2nd March. Like most ladies I have six treatments of FEC. I am going to print a calendar today and mark off all the dates.

look forward to all of us getting through this - i try to view it as i am lucky that i can have this treatment to kill off the cancer.

lea xx

Margaret_May
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Re: Marvellous Marchies 2012 Moving on

Thank you for your kind words Joan and Carolyn. Am off to Oncologist tomorrow to get booked onto Radiotherapy and starting the pills today, so all going forward quite fast. Great that you have an appointment so quickly Joan. must be a big boost to have a make over etc. With mastectomy etc its easy to start feeling a bit weird and lumpy. Since losing a boob have been reminded how big my stomach is (couldn't see it under the large boob pre mastectomy) so am having to do some sit ups!! And talking of boobs have lost one! 2 softies and we have been hunting for the lost one all over the bungalow. How can you lose a softie!? Going barmy with all this. Take care all of you and all the best with results, and life in general.Maggie May XX

Patchit
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Re: Marvellous Marchies 2012 Moving on

Morning Ladies

Kitcat, glad they did your blood ok yesterday, as you say, another thing ticked off.

Well, I am amazed! I phoned up this morning to get booked onto the Look Good Feel Better course and I am going next Tuesday! Can't believe it as I have read in other posts about there being a really long waiting list in different parts of the country. One lady couldn't get booked on till July! I feel very lucky, I am having my first chemo session next Thursday 1st March so it will be great to do this before I start.

Have a good day everyone. Good luck with appointments, test results etc.

Joan xx

Kitcat
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Re: Marvellous Marchies 2012 Moving on

Carmy,
I spoke to someone yesterday who used a cold cap and didn't lose any or much of her hair and there are lots of similar cases I've read on the internet.

I was shown the one at my hospital when I went on Monday and although I don't know if I will be able to tolerate it I will definitely give it a go. I tried one for size and it was explained how it worked. However, I was told that sometimes hair does fall out in patches.

I wonder if maybe your own hospital doesn't have access to cold caps? I would definitely ask them as soon as you can.

On another note, I went back to hospital today and one of the regular phlebotomists took the blood without any trouble so that's another job done.
KC

Patchit
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Re: Marvellous Marchies 2012 Moving on

Hi Supersue

Good luck tomorrow with your results, hope everything goes well. I had an mx on Jan 5th and start my chemo on March 1st. I too was on the Feb thread but jumped to March once I had my dates confirmed. I feel like I have been in limbo land for a little while, but at least the wait has given my body more time to recover from the surgery.

Have a lovely birthday on 1st, I shall think of you eating birthday cake (or not if you are still on your detox!), while I am hooked up! Hope the Stranglers are great!

Let us know your results and dates after your appt tomorrow and good luck!!

Joan xx

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Re: Marvellous Marchies 2012 Moving on

Been sat at the back of the feb chemo train watching all comments and how great they all coping, got my 1st oncology appointment tomorrow get my results from my CAT scan and my chemo plan.
Had lumpectomy and full node clearance 4/18 cancerous on Jan 9th. seems i have been waiting for ever to get on my chemo plan.
If my 1st chemo is in march jumping train onto the march group. Hoping my 1st will not be March 1st as my birthday and going to see Stranglers in concert.

Begun a detox on sunday no caffeine no alcohol, no fatty foods get my self a bit more body fit before my plan starts. Off to get a pixie hair cut end of week as i have long hair, do not fancy ice cap incase theres a stray colin hanging about in my head.

Fingers crossed for tomorrow i dreading the results of the scan

loads of caring hugs to you all, sue xxxxx ❤️

Patchit
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Re: Marvellous Marchies 2012 Moving on

Hi Trudi

Well done on getting to your last chemo session! That's great, a big step along the way. You will have to have a belated birthday / end of chemo celebration!! Thank you for your post, its good to get hints and tips from those who have been through it.

Take care
Joan x

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Re: Marvellous Marchies 2012 Moving on

Oh dear Maggie May

I send you love and hugs and lots of wishes for your next treatment, you'll be able to tell us all whatvradio is like. It must have been such a hard decision, but I can understand why you came to it. Seeing your posts has certainly helped me ( my late mums name was Margaret and one of my cousins always called her Maggie so reading your posts always brought her back to my mind). Please do keep us posted as we all started in January with surgery.

Love and hugs

Carolyn xxx

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Re: Marvellous Marchies 2012 Moving on

Hi Marchies

Another 'old girl'checking in. I am on the November thread with my last chemo on March 5th (the day after my birthday lol). Just wanted to reiterate the other ladies, you don't all react to chemo the same way, if you do get bad se's there is a solution to them and call the hosp straight away.

The only one thing I would say is about work. I run my own business and tried to work, whilst I found it ok for week three you must be careful of bugs as they hit you harder whilst on chemo. You must take care of yourselves, you are your priority at the mo. (I realise that financially this is tough but you can get support there too.)
Don't forget to speak to your Dr about free prescriptions as you are entitled to those too!

Take care of yourselves, I will pop in from time to time to see how you getting on.

Trudi x x

Patchit
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Re: Marvellous Marchies 2012 Moving on

Ah Maggie! Very best of luck with everything, I truly hope make a full recovery with no recurrence. Thanks for the posts you have left on this thread, you have raised a smile and I hope you keep with the positive attitude.

Lots of hugs, xxx and good vibes coming your way

Joan xxx

Margaret_May
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Re: Marvellous Marchies 2012 Moving on

Hi everyone,

Probably posting here for the last time. After long chat with GP yesterday have decided not to do chemo and go for radiotherapy and pills. I'm 62 and have a whole list of other stuff I have to take regular medication for including heart, asthma and reflux, plus chronic depression!! My Gp lookd at the whole picture with me and as the odds are 90 to 10 of recurrence without chemo. thought I would take the chance! I was awake most of the night but hadn't realised that going through chemo was a risk with the other stuff I have. It's rock and a hard place stuff, but have decided and will now live with the decision, recurrance or no recurrance. If I was 30 or even 10 years younger would have not done this, but then didn't have all the other probs then. Will keep an eye on this thread but I wish you all really well. You are all wonderful and I will probably keep posting on January Surgery buddies where I started. Loads of love, Maggie May XXXXXXX

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Re: Marvellous Marchies 2012 Moving on

Hi ladies

Been a good girl and had dental check up and all good therproblems ready though when he asked if there were any problems, and then had to mention the dreaded chemo! Had meltdown last night about it all and now have just heard my school is being Ofsteded so feel even more out of things. Like I said to Oh last night i just want my life back! Xxx