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Marvellous Marchies 2012 Moving on

Historygirl
Member

Re: Marvellous Marchies 2012 Moving on

Thanks Joan! Can't say I'm not scared, so good thing the hand-holding is virtual as my palms are a bit sweaty. Still, it's really helpful to read of others on the March rota already underway. Thanks again!

D x

Patchit
Member

Re: Marvellous Marchies 2012 Moving on

Just a quick good luck to Historygirl, Parayan and Nannyjack starting tomorrow, and anyone else I have missed off the list. Will be thinking of you all and virtually hand holding. Try not to worry, the apprehension is worse than the realism, and we have all left the light on for you!

Hugs
Joan xx

Guest user
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Re: Marvellous Marchies 2012 Moving on

Afternoon ladies, and indeed welcome to some new faces

Not feeling great today ( day 3) really tired and was very nearly sick last night, but I think the desperation for a wee stopped me actually throwing up, can't multitask two ends at once.

I too have been reading about Manuka honey and Amazon have it 2 jars at a good price of 15+ strength, think I'll bite the bullet and get some it can't do any harm.

Hope others feeling ok today, dont think this bloody awful weather helps perk up spirits.

Been a good girl though and sat here with my wig on as advised to get used to it, but maybe because today is a lazy day no make up on so not quite as pleasing a look as yesterday.

Thinking if anyone starting this week, and live to this still waiting.

Hugs

Carolyn xxx

Patchit
Member

Re: Marvellous Marchies 2012 Moving on

Welcome Parsnip amd Dee, nice to have you on board, if you know what I mean!

I don't really know if the manuka honey or the aloe juice help, I just think they do as my hygienist recommended them both to me as she had used them when she went through the same thing 3 years ago. She didn't seem to have awful SE's, although obviously everyone is different so what works for someone wont necessarily help the next person. I think you just have to pick out the things that you think might help you, there is so much information given, and you couldn't possibly go along with every piece of advice you are given. Just try to do what feels right for you, I guess! I am also an advertisers dream, so am probably someone who will try anything if someone tells me it will help!!!!! (within reason, of course!!)

Joan xx

chascat
Member

Re: Marvellous Marchies 2012 Moving on

Hi Carmy,

I've been looking at Holland and Barrett 15+ is £18.99 for 250gm but it's cheaper at this website

http://www.manukahoney.co.uk/categoryinternal.html

at £17.99 for 500g, they can also ship overseas if needed, there's quite a bit of information on the site too.

Love Lydia x

Patchit
Member

Re: Marvellous Marchies 2012 Moving on

Carmy, you can quite often get manuka honey on offer in Holland & Barrett or Julian Graves. Make sure you get the right strength, you need +10 as a general pick me up / boost. I got +25 as I didn't want to faff around with different tubs, but I think it does go up quite high to maybe +100, but that might not be the exact figure. There is a post on here somewhere which discusses this in more detail, think you could probably search 'manuka honey' on the forum homepage and it should come up.

Think mine cost about £8.

Joan xx

Guest user
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Re: Marvellous Marchies 2012 Moving on

Raechi, that's great news about the 7 embrios. So happy for you both. 🙂 Do you have a chemo date confirmed yet?

I have 9 days left until I start mine and I'm getting bits and pieces ready. Must order the Manuka honey today. How much did it cost to you all?

Sending lots of energy and love for you all. You're being such a great inspiration.

Carmy xxxx

Dee101
Member

Re: Marvellous Marchies 2012 Moving on

Hi, just joined the Forum today, have been reading a lot of the posts & felt I needed to join in, as it seems everyone is helping each other, which can only be a good thing, on this journey that we are all on, or have been on. I have been finding it quite hard. I was diagnosed in October, and am now half way through chemo. Joan, you are two days ahead of me, today is day 6 for me, & I too had a pretty horrible time, this time round. Interesting to read about Manuka honey, does this really help?

Dee :0)

Patchit
Member

Re: Marvellous Marchies 2012 Moving on

Hi everyone

I felt a bit drained and weak this morning (day 4). We went out for a walk over the fields for an hour and I have now had my Aloe juice and manuka honey and actually feel brighter than I did first thing. I have also taken my steroid too late in the day yesterday, although I did sleep ok once I eventually dropped off! Last day today thankfully.

Di, really glad you have got your start date confirmed, at least you wont be in limboland any longer! I am trying to find out about the bra thing, I know I saw something not too long ago but of course, didnt make a note of it at the time! I will post the info if I find it. I was surprised at how heavy the prosthesis is (mine is 0.5kg). I asked my chemo nurse whether the weight of it would affect the drugs they give you, as I only had my softie in which weights nothing, for my first treat when they weighed me. We decided between us that I will wear my softie for my weighing appointments so that I doesnt interfere with the medication calculations! Thanks for the toni and guy tip, will have a look at that! I have also had gritty eyes, but only on one morning so far. Do you have specs as a back up if your lenses are annoying?

KC, thanks for the tip about the wigs for specs wearers, I have ordered 2 to choose from and I will bear in mind what you say about the annoying bits at the side. I think one was slightly longer than the other so that may be a deciding factor!

Good luck tomorrow Debbie, hope its good news re your seroma.

KC, I havent had hot flushes as such, having actually started a period yesterday (!) which has been particularly helpful in the feeling drained department, but I have had a really high colour in the mornings when get up. Mine wears offafter an hour or so though, so not really a problem.

Hope you all have a good day, footie on the telly this afternoon!

Joan xxx

Parsnip
Member

Re: Marvellous Marchies 2012 Moving on

Just wanted to join you lovely ladies on the march thread. I started chemo on the 1st, 4ac then 4taxol at two week intervals. I had a picc line put in on the morning then straight up to chemo. Things have been going ok but I am exhausted, fortunately I have my folks visiting looking after my little boy (a very active 4yo!)
There's been a lot of talk on wigs here and I wanted to recommend the My New Hair charity, you can find details of people who can trim down and personalise your wig, I had a wonderful lady come round to my house and thin out my wig for me (I have very fine hair so it looked huge on me) and also cut my normal hair, all free of charge. There are some wonderful people out there.
I also have bought a LimbO elbow cover for my picc line, much easier than cling film for easy showering.
It's been good reading through everyone's posts, certainly keeps me company throughout this. Good luck for those about to start, and let's hope the SEs are low as they can be

Kitcat
Member

Re: Marvellous Marchies 2012 Moving on

Didn't have the greatest night unfortunately but think that was because I took the second lot of steroids too late, more like tea time than after lunch so they kept me awake. Going to follow the instructions to the letter today.

Think I might have done better without the constant hot flushes all night, if anyone has ideas about coping with those I'd love some tips. I'm fine with them during the day, hardly get any!

Hope everyone else has a symptom free Sunday as far as possible and thanks to Choccie Muffin for the advice about the WBC. I want to find out when I will be safest to work in an aircon office so will phone the helpline tomorrow.
KC

mollie43
Member

Re: Marvellous Marchies 2012 Moving on

Morning ladies,

I had my wig fitting on Friday and came home with it.I am in Portsmouth and they give you £120. Towards the wig everywhere must be different. I am supposed to be starting chemo 22nd but have to see my consultant tomorrow regarding my seroma wbdtarted soonest finished.hich will not go away.I want to start as soon as possible to get finished and get back to some sort of normal life. Have a good day everbody Debbie x

ChoccieMuffin
Member

Re: Marvellous Marchies 2012 Moving on

Rae, delighted about your embreyos. (That doesn't look right typed, sorry for spelling.) 7 is a great number, and lots of choices for the future.

KC, I think your WBC (white blood cell) count gets to its lowest towards the end of week 2, so that's when you're most vulnerable. Please give the helpline a ring to confirm that though, I could well be wrong. If you carry an anti-bac hand gel with you and use it frequently that'll do you a lot of good, as a lot of infections are passed on through hand to mouth contamination (your contaminated hand from touching something a sneezy person has touched) so while you have no control over other people sneezing, you can at least keep your own hands, that go to your own mouth and nose, clean and as germ-free as practical.

Re bras: I know a lot of charities collect old bras for redistribution. Please don't just chuck them in the bin, stick them in a carrier bag until I can find out where you can take or send them to. Haven rings a bell, but you might even find your chemo unit or cancer support centre has a bin to put cast-offs into. Don't just bin them, pass them on.

Wigs for specs wearers. I wear glasses, and after I got my hair cut short I went for a wig that was a similar style to the new short haircut. I found that the bits in front of the ears (specs wearers know what I'm on about, the bit of hair that you never know whether to tuck behind or leave in front of the arm of the specs) caused me big problems. So if you're going for a wig, perhaps a bob-length rather than a dead short style might be more comfortable. I got a short croppy style, and the bit in front of my ears irritated me so much I just grabbed it off in frustration and went commando from then on!

Love to the March Hares 2012

CM
x

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Re: Marvellous Marchies 2012 Moving on

Hello all you Marchies!

Well, that’s what I get for not looking at the thread since the 23rd! It’s taken me all evening to read through them all!

I’m still in limboland as I’m still waiting for this PET scan (due to the Denosumab trial). But now got it arranged for Monday in Teesside at 8.00 am – have to leave home about 6.30 to get there in time!
Nonetheless I will be starting chemo on Wednesday 7th if I’m on the trial or not.

Poor Ratina, must be the pits when you get infections and to have things delayed. I'm avoiding going out in the general public (like Church and coffee mornings) in case I get any infections/colds, I don't want to delay treatment any longer that I have to.

Patchit, think I’ll do the same with my bra drawer, I always used to wear underwired (being 38FF) but with having my ‘plastic boobie’, I can’t wear them now. Maybe BCC know of a charity, if not their own. Yes, I got my prosthesis on Wednesday, and at that size, it is rather large, but it feels fine, I'm balanced again. It's very difficult though to get bras to fit, especially pretty frilly ones, instead of white, black or cream. Any ideas, anyone?

Well done raechi about your eggs.

Welcome to kt23, raechi, nanyjack, pargayan, waitingtoo, Gabbylamb, SuperSue and anyone else I’ve missed out.

Choccie Muffin, you’ve come up trumps again, you treasure! Thanks for all the really useful info, I know I find it really helpful. As you’ve said before, everyone is individual and chemo effects us in different ways, but knowing a few people’s experiences is certainly useful.

I made an appointment to see the specialist stylist at Toni & Guy, recommended by Macmillan and she was wonderful. She said not to do anything with my hair until after my 1st or 2nd chemo, just see how it goes. I’m sure she’ll get a frantic phone call from me, HELP! Can you cut my hair NOW!

http://www.toniandguy.com/pages/article/135

I also bought some gentle shampoo and conditioner that they recommend to use during and after chemo.

Like Historygirl, I didn’t have to pay anything for my wig, I’ve got one that is a short bob, similar colour to my own hair. When I got it, I saw a younger lady in the shop who was very helpful, and she re-interated what the hairdresser said, don’t do anything until it happens.
So I would really suggest to wait and see what happens before you do anything drastic.

I see some of you have commented about having ‘gritty’ eyes. I wear contact lenses, can I still wear these whilst having chemo?

Good luck to everyone starting next week, enjoy the rest of the weekend.

Hugs and xxxx
Di

Lucy_BCC
Member

Re: Marvellous Marchies 2012 Moving on

Hi all

Here's a link to the publication about hair loss and breast cancer from BCC which you may find useful:

http://www2.breastcancercare.org.uk/publications/treatment-side-effects/breast-cancer-hair-loss-bcc5...

Best wishes
Lucy

Guest user
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Re: Marvellous Marchies 2012 Moving on

Hello all

Think I never listened to much today I can't remember them saying not to shave hair. I'm due a cut this week with my normal hairdresser so think I'll just get her to trim it, there were a few places it peeked out under the wig so it might give it a better look. God how funny would it be if we all met up wearingvthe same wig, he he.

I must get on an throw away old bras as well, constantly wearing sports bra now and will have to coninue to do so until my other boob is done to balance me up ( god we all sound like a right bunch of oddments).

Have sent my children wig photos and they approve so good there, might even live dangerously and post a photo here, that'll keep you on tenderhooks.

Know what you mean about losing posts it happens to me all the time, bloody annoying.

Great to hear no one getting too adverse side effects at the moment, same here feel ok maybe getting through so
much water does help together with the tablets.

Great news Rae about harvesting, there's lots of hope there for the future.

Love Carolyn xxx

raechi
Member

Re: Marvellous Marchies 2012 Moving on

Ps apologies for the typos. Am on me phone!

Patchit
Member

Re: Marvellous Marchies 2012 Moving on

Ah Rae, that's great, really pleased for you.

Big hug

Joan xx

raechi
Member

Re: Marvellous Marchies 2012 Moving on

Hello lovely ladies,
I have to say I am very proud of all who have had cheno so far. You are all very positive. Makes me not quite so scared.
Somne positive news from me too. I had my egss harvested Friday. I now have 7 embryos in the deep freeze. I am so pleased.

Love and hugs to all,

Rae.

X

Patchit
Member

Re: Marvellous Marchies 2012 Moving on

Kitcat, glad you are doing so well, especially as you are on dose intensive. Hope it continues for you. Keep well.

Another thing I did today was to clear out my bra drawer. They have all had a wash and I have recently heard about a charity which distributes donated bra's to ladies in the third world. Has anyone else heard about that and if so, do you know which charity it is? I have 15 here (?!) and its a shame to throw them away!

Thanks
Joan xx

Kitcat
Member

Re: Marvellous Marchies 2012 Moving on

Hi everyone,
I'm now at the end of day 3 after my first chemo of double EC and haven't even felt queasy so all the meds they have sent me home with have worked very well.

I'm drinking at least two litres of water a day as well. I understand that on this regime the side effects can start about days 3/4 so I hope I'm not being over optimistic about it, I'll continue to keep taking the pills as prescribed.

I do think I might be getting a cold though so going to keep out of shops etc for the next few days.

Hope everyone else who had a treatment this week is OK.
KC

Patchit
Member

Re: Marvellous Marchies 2012 Moving on

How ruddy frustrating, just typed a really long post and it just disappeared!!

Try again...........

Afternoon ladies

Just back from my wig appointment too. I couldn't choose between 2 so have ordered both and will go back once they arrive in the right colour to choose. I have gone for a short wig as my hair is short. The long hair wigs cannot be tied back for some reason, so I thought it would probably annoy me flapping round my face when I am not used to it. One good thing for me is that at least I will have more hair that I do at present as my natural hair is quite fine. They look really good, I was really plesantly surprised! The lady also gave me the same advice as she gave Caren about not shaving. I am hoping now that mine all falls out at once so that I dont have to make any further decisions about hair / shaving / not shaving! (never thought I would say that!!)

Carolyn, really impressed you have brought your wig home with you today. Hope the children like it!

Gabby, I am sure you will feel better about the hair thing as time goes on, I certainly feel much better about it all than I did even a few days ago. A lot of ladies do get their hair cut short beforehand, but you can only do what is right for you at the time.

Megsmum, I have to pay the same as Carolyn, we are both in Hertfordshire. I think it might be a different charg depending on where you live (a bit like car parking at hospital!). They will tell you about any charges when you get your referral.

Caren, Looks like we are in the same boat re return visits for our wigs! Hope you managed to get through your appointment without erupting!! Gald you are still feeling well. You are right about all the appointments, although I dont think I have any next week! I did go for my prosthesis appointment last week too, but have to wait for a new bra to arrive which I have ordered. So, I still have my saggy boob (mine) and my softie. I cant wait to have a matching pair in the right place!!

Historygirl, your wig experiences have made me laugh. The things we have to do, eh? Good thing we can find a bit of humour along the way!!

CM thanks for the advice, you are living proof that shaving works!!

Off to cook tea now

Joan xx

Care_N
Member

Re: Marvellous Marchies 2012 Moving on

Thanks CM, I was really surprised as everyone on here seems to recommend shaving or cutting hair short before it falls out - you're the experts, and I'll follow your advice, thanks
C

ChoccieMuffin
Member

Re: Marvellous Marchies 2012 Moving on

Caren, I have to say that's a load of nonsense. The hair that is growing out of your head is dead cells, so it doesn't matter a jot what you do with it! I did find that as my hair was about to fall out the follicles were really sore, like a ponytail being pulled, and it was a lot more comfortable to just get rid of the lot so that I didn't get that sensation. Any little bits of stubble just came out of their own accord afterwards. And mine has now grown back beautifully. I started my chemo in March 2011, shaved in the shower every few days during chemo to keep it tidy, moisturised my scalp with Nivea lotion if I happened to be using it, as your skin does dry out a bit during chemo. Stopped shaving when the bristles on my chin decided to reappear, I figured that if they were growing, perhaps the hair on my head would. Think that was just before FEC5.

One year after starting chemo, and in spite of having Herceptin ongoing, my hair is now about 3 inches long all over. I have been very lucky that it didn't grow back curly, though the very ends of the individual hairs that started growing during those last two cycles very clearly show distinct narrowing when chemo happened. I haven't been near it with a scissors and won't until it's long enough to have my plait back.

Care_N
Member

Re: Marvellous Marchies 2012 Moving on

Hi All,

Just got back from my wig appointment (and cake shopping!) Carolyn, I'm impressed that you have your wig already, and hope the children approve! I've ordered one in a different colour, but as long as it is in stock it should only take a few days. I was surprised to hear that you shouldn't cut or shave your hair, as it wouldn't fall out properly, and some would grow back weaker - I was planning to cut mine really short before it fell out, so will check with the Cancer Care hair girl at my appointment on Monday. So many hair appointments!

I gave myself my first injection this morning and it was really easy, although it sounds gross injecting your stomach it really was such a fine needle I didn't feel it.

Still feeling fairly well, just a bit queasy at times, and still have the burping problem!

Hope you all enjoy the rest of your weekend!

Caren xxx

Historygirl
Member

Re: Marvellous Marchies 2012 Moving on

Hi again

Maybe it works differently from NHS Trust to NHS Trust but I didn't have to pay anything for the wig (just the shampoo and wig stand). The nurse at my onc appt gave me a prescription and the name of a recommended hairdresser, I handed the prescription to the hairdresser and that was it.

When I went to the hairdresser she ushered me very secretively into a back room, she was lovely and the privacy was welcome but I did feel a bit like I'd come in to buy black market sausages or nylons or something!

D x

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Re: Marvellous Marchies 2012 Moving on

Hi megsmum

You get a letter from pre chemo visit from the nurse I then took mine to another dept and they gave me a referral letter. That should tell you where they recommend you go to. Make an appointment they definitely know their stuff. You have to pay a nhs prescription cost of £61.25 unless your exempt then that goes to nhs, I then only paid another £30 for accessories like stand brush shampoo etc. the wig price was £130 so I only paid nhs charge so not sure how it works. I actually thought it would be a lot more.

Gabby I can only say got or it if you've had your hair cut then they'll re on end what's best and the wig part is really not as bad as you think it might be. They give you loads of advice about how to wear and fit it and what to expect as the weeks pass. You soon will be brave as well and offering others advice before you know it.

Hope this helps

Love Carolyn xxx

megsmum
Member

Re: Marvellous Marchies 2012 Moving on

Did you get info re wigs from chemo unit, my appt with oncologist is on wed i,m hoping to get started asap, i have had my hair cut short already i don,t recognise the person looking back at me in the mirror. Also do you have to pay for your wigs, and have you got scarves etc. so many questions sorry x

Guest user
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Re: Marvellous Marchies 2012 Moving on

Carolyn, Supersue, Historygirl, you ladies are all so brave and positive! I hope I will be the same when my time comes. At the moment I feel I am going to wait until I have no choice but to get my hair cut, I cant do it in advance or even contemplate looking at wigs. Maybe I will change my mind as the days go by.

LOve Gabby

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Re: Marvellous Marchies 2012 Moving on

Hi ladies

Well Back from wig fitting. I have short hair anyway so not too much of a problem although slightly different colour and style to normal and on a plus side no grey. Apparently have to get used to wearing for about a year! Ladies at shop were lovely and trying them on was certainly an experience, at least it'll be good not having to wash dry and style hair every day. Let the dust gather in the straighteners and dryer!

Well off now to put it on and send pics to children fingers crossed its straight when I have to put it I myself:)

Good luck anyone else doing the same.

Love to all

Carolyn xxx

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Re: Marvellous Marchies 2012 Moving on

Just back from the hairdressers, had my lovely long hair cut off, came back with a plated pony tail in my pocket.
Its mega pixie short now, was shaking like a leaf before i went in, but it looks ok, just sent pics to the kids they sent happy smiles back.
In regard to wigs, what have you ladies opted for, short or long, i don't want to confuse the grandchildren one minute i got short hair next long, but do not fancy a short wig?
Need to make my appointment for fitting. i got a busy week ahead. xxx

Historygirl
Member

Re: Marvellous Marchies 2012 Moving on

Hi All

How have you got on with your wig fittings? I collected my wig yesterday. They'd ordered in three (which I'd selected week ago from catalogues) and I could have the one I liked the best. Well, one was out of stock, so scrap that. The two I got to try couldn't have been more different ... one was so horrendous that my husband told me it made me look like a, um how shall I put this ... a lady of the night. I have to say I cannot imagine that there would be any clientele for a scrawny middle-aged woman in a huge acrylic ginger wig - but each to their own. Luckily, I really liked the other wig so that is now sat ready on a wig head in the spare room. My one disappointment is that the hairdresser refused to cut my hair short. She's lopped off about four inches so I've now got a chin length bob but I had thought a short haircut would be better in the long run - oh well, I reckon the hairdresser was scared that I'd start crying in the salon and put the other customers off.

I also had my pre-assessment at the chemo unit yesterday (busy day). Sort of reassuring and frightening at the same time. I get my first batch of swamp juice (EC) on Monday.

Good luck to all. Onwards and upwards.

D x

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Re: Marvellous Marchies 2012 Moving on

Morning ladies

Great to hear from some of you welcome aboard Supersue. The time will go quickly and Lydia And Georgie the first will be over before you know it. Like CM says each oncologist and person is different, I'm not having injections yet but who knows if that'll change at some time. Don't worry about the anti sickness medication I'm rubbish at remembering to take tablets but the nurse wrote when to take them, just remember the steroids are first thing in the morning and before 2pm as they can affect sleep at night.

Again like you Joan had a good night, feel a little bloated this morning but just had Allbran so hopefully that'll help.

Off now for wig fitting and while a little excited also apprehensive as my images of wigs are like you Joan the ones you where as a child that look plastic and never fit, but from what other people have told me it's nothing like that. I just have a fear of it being massively obvious it's a wig.

Well love to all have a good day all.

Hugs

Carolyn xxx

Patchit
Member

Re: Marvellous Marchies 2012 Moving on

Morning ladies

I had a good night again and feel ok so far this morning, thankfully. Hope others are as fortunate as I have been so far, and if not, I really hope you are coping ok with things and that you soon start to feel stronger and back to normal.

Wig appointment this afternoon, not too sure about the whole wig thing at the moment, I have visions of the dressing up wigs I used to wear as a child! Still, I will try to go with an open mind, and hope to be pleasantly surprised!!

Have a good day everyone,

Hugs and xxx
Joan

Patchit
Member

Re: Marvellous Marchies 2012 Moving on

Ah! Supersue! I am so happy 2 read your post, i have been wondering where you are as your last post was before you got your results. I am very pleased your results were good, thats the most important thing. What a shame re your chemo. I can understand your frustration but at least u are having it earlier than you thought which is a good thing. And as you are rushing round you wont dwell on it quite so much! Every cloud eh......!
Sleep tight
Joan xx

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Re: Marvellous Marchies 2012 Moving on

Hi all sorry i not been on thought i'd take a week away from thinking and reading posts.
WELL i jumped train onto March one.
SHOULD HAVE BEEN STAYING on the feb train BUT HOSPITaL MESSED MY CHEMO APPOINTMENTS UP.
I was told on my hospital visit pre assessment 27th march 1st chemo 29th march, so i went away to chill,
then my son phones me to say an appointment card arrived on the 29th Feb post dated 28th. but wrote on the 2nd feb,saying pre assessment 27th FEB 1st chemo 29th FEB. well i missed it obviously as not expecting it till march, the doctor that told me on the 22nd Feb got it wrong!!!!!!!!!!! To make things worse a district nurse turned up at the house to give me an after chemo injection yesterday!

So i now having pre chemo assessment monday 5th MARCH and 1st chemo Thursday 8th MARCH

Jumps train, runs round like an idiot this weekend getting hair cut as past shoulder length, buy thermometer, make wig appointment, reads what i need to do in preparation on forum. repeat after me GINGER GINGER remember ginger!!! lol

One the good side my CAT scan was clear 🙂

Hugs to everyone. xxxx

GeorgieB
Member

Re: Marvellous Marchies 2012 Moving on

I haven't been given a wig appointment yet. Was just told I would get an appt to visit the cancer suite. Thought I would get everything sorted today. AND it looks like I will have my fitting for a prosthesis on the same day!!

chascat
Member

Re: Marvellous Marchies 2012 Moving on

Hi all

I haven't started chemo yet but all of your posts are helping me, there's a lot of warmth and humour on here despite all the misery everyone feels.

Georgie - I'm starting my chemo on the 19th March too, and will then hit all the bank holidays which will delay me finishing treatment by 3 or 4 weeks unfortunately. I'd like to start the week before but the chemo nurse said they're really busy on the 12th and that's not a good idea for my first one.

I have my wig appointment on the 6th March then my pre chemo assessment on the 16th. I'm feeling ok at the minute and quite calm about things, although I am concerned about remembering to take any medication as I struggle to remember the routine stuff I take now. I've been off work sick for 6 weeks now but have booked the next two weeks as annual leave as I had some to use before financial year end - I shall spend that time cleaning (what else!) and preparing things for my first juicing!

Love and hugs to all

Lydia x

ChoccieMuffin
Member

Re: Marvellous Marchies 2012 Moving on

Georgie, different oncs have different concoctions of anti-sickness meds, so you'll get a range of different things. Some of the common ones are dexamethasone (a steroid), domperidone, ondansetron, clo-something-or-other, etc etc etc...

The injections can be a single one the day after chemo, or a set of five starting from day 3 (I think). Again, depends on your onc, but they're not every day for 16 weeks. And if you have to give them yourself, the needle is really fine and very easy to administer, even if you're a bit of a needle-phobe.

GeorgieB
Member

Re: Marvellous Marchies 2012 Moving on

Hi all I had my oncology appt today and look as if I will starting chemo the week of the 19th. You all mention the anti sickness drug. Unless I misunderstood he said the first one is given intravenously and from then on I will be given tablets to take prior to to going in for my next session. He also mentioned having to give myself injection but can't remember how often -,surely not for the 16 weeks?
Hope everyone has a good weekend.
Georgie xxx

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Re: Marvellous Marchies 2012 Moving on

Hi Ladies!! I love reading all your posts!! You really take the fear and sting out of all this! I went to a 'cafe' today called Hospice Hope which gives emotional support to people suffering from life shortening or serious illness. Had a complimentary pedicure which was amazing, and I felt very spoilt! There are up side to this is seems!!

Im wishing you all well for tonight and tomorrow with minimal SE's, but more than wishing I am thinking of you all and sending special prayers for us all that we get through smiling.

Loads of love and gentle hugs
Gabby

Kitcat
Member

Re: Marvellous Marchies 2012 Moving on

Hi KellC and everyone,
Thanks for the info about the steroids. I had my last dose to take at lunchtime but fell asleep so didn't take it until 4pm. I feel very tired so can't see it keeping me awake although if it does I'm OK about it.

There are such a lot of tablets to take that I'm finding it difficult to remember what's what. Fortunately they gave me a chart which helps. I must ask my Macmillan nurse if I need to space out the doses to get the best effect as taking some at lunch and tea seems quite close together.

I understand the worst of any side effects come on days 3 and 4 which is over the weekend so I haven't planned to do anything except stay at home although if I feel OK in the morning I might go out for a short time to get some fresh air. Until I know more about how I'll be affected I don't want to be more than 10 minutes drive from home.
KC

Patchit
Member

Re: Marvellous Marchies 2012 Moving on

Lea, didn,t you have your first treat today as well? Hope you got on ok.

Joan xx

poppyD
Member

Re: Marvellous Marchies 2012 Moving on

oh dear

If i start chemo I am sure I will end up with a windy problem thank God we have a dog as hopefully people will kindly assume that I am too ladylike oh unfortunately people who know me well will realise dog is innocent and my secret will be out. Expect its handy for getting rid of visitors though

Love Poppy x

Patchit
Member

Re: Marvellous Marchies 2012 Moving on

Tina

Well done for surviving your first FEC. I should just take your anti sickness tabs. I had my first one yesterday at about 11am then took my tabs at home at 3pm, 7pm and 10.30pm. I felt nauseous all day yesterday but wasnt actually sick. I am sticking to the 4 doses today. Its easier to prevent sickness than to stop it if it actually starts.

You will be dead jealous of everyone else farting away and you are not able to join in!!

Remember to dring lots of water

Joan xx

Ratina
Member

Re: Marvellous Marchies 2012 Moving on

Evening ladies,

Had my first Fec this afternoon. I'm starting to feel a little queasy and wobbly now (about 5 hours after) and can't take my anti-sickness meds for another hour.

About the wind - I've got one up on you ladies, I cant fart! Seriously! I knew this ileostomy had to have some perks 🙂

Hoping everyone's SEs are tiny,
Hugs
Tina

Patchit
Member

Re: Marvellous Marchies 2012 Moving on

Afternoon ladies

Carolyn, that's great! Glad you got your appointment changed, it will be good to all meet up and compare notes! I will have my red carnation at the ready and will (hopefully) be sitting under the clock. Hope your wig appointment goes well tomorrow, I am not sure about the whole wig thing at the moment, but it will be good to have an alterntive to scarves. My headstrong appointment is on March 15th at QE11 Welwyn GC.

I started the day with some prunes and dried apricots and prune juice, but nothing has happened yet. I am just trying to ward off any problems but really after not eating much yesterday due to the tooth problem, its not really surprising!

Caren my wig appointment is at 3.30 tomorrow so I expect you will have left by the time I get there. Still, it will be lovely to meet up on 19th! Glad you are feeling better today, long may it last!

CM, the WIND thread is very funny! Thank you!

I went for a nice long walk this afternoon over the fields and popped in to work on the way home. Everyone was surprised to see me and I am hoping to go in for at least a couple of days next week, but we will see how things go.

OH has just gone out for fish and chips! Yum!

Hope the day has gone well for those starting today. Sorry, I have got a bit mixed up with people's dates.

Have a good evening
Joan xx

Guest user
Not applicable

Re: Marvellous Marchies 2012 Moving on

Thank you for wind thread I did laugh. Must admit I'm a bit windy as well, and as OH suffers from IBS which my god stink, then it's quite a nice change to get my own back!!

Small minds Poppy I did in fact book my Headstrong appointment today.

Caren don't forget the red carnation.

Hoping everyone else ok with se's.

Love and hugs

Carolyn xxx

Anna_BCC
Member

Re: Marvellous Marchies 2012 Moving on

Dear All

If you follow the link below, you will find out all about our free headstrong services and where they are.

http://www.breastcancercare.org.uk/campaigning-volunteering/volunteering/service-volunteering/headst...

Best wishes
Poppy

Care_N
Member

Re: Marvellous Marchies 2012 Moving on

CM I've found it and it's hilarious, thank you again! I wish I knew how to attaching a link but it's on page 2 of Undergoing Treatment / Chemotherapy if anyone needs a laugh. Thank goodness I haven't had this problem yet!
C