Hi, finally reached the finishing line with rads yesterday. I felt really emotional as I have made a lot of new friends and also feel a bit scared about leaving the security of the hospital. Its been a long road but at least I have reached the finishing line still with a smile on my face.
So today felt really weird not rushing out to the hospital but I was so tired I just chilled out all day and then my sister came round with a lovely box of choccies and big bunch of flowers.
I hope you're all well.
Just a quickie post to let you all know I'm still about and thinking of you all...had so much trouble with broadband access this last week and can still only get on intermittantly at home grrrrrr!!!
On Rads No 7 today and had Herceptin No 6 yesterday day....was a little bit phobic about the cannula after last heart scan but it was fine:))) Boob seems to be ok at the min and am slapping on the cream 4-5 times a day which I find quite hard as I don't actually like touching my boob anymore in case I find something which I suppose is understandable. Am quite tired but sleepinglike a babe at the min...managed to avoid Onc yesterday in case he advanced waving packet of Tamoxifen lololol......
Dulcie...just a quickie post for you to let you know you are not alone:))) When my OH was on tabs for a swollen knee and I was worming the cats at the same time...I managed to worm the OH too......never did tell him :)))) Shhhhhxxxx
Love to all
Morning ladies, please see this from the Secondary Breast Cancer thread - please sign and share on facebook
Calling all Facebookers & Tweeters!
There are a couple of very quick things you can do to raise awareness of secondary breast cancer awareness day this year. Lucy mentioned them above and I wanted to explain a bit more so you all know what to do.
Join our Thunderclap
A Thunderclap is a way of donating a Facebook status or Twitter update. Sign up herehttp://bcc.cx/Thunderclap and if we get enough support (we need 250 people to donate their status) they'll all be sent out at the same time on 13 October and create a "thunderclap" of noise about secondary breast cancer. So far we've got about 50 people to donate their status, so we need another 200 otherwise the thunderclap doesn't go out. So please do sign up and ask your friends and family to as well.
Join the twobby
As well as raising people's awareness of secondary breast cancer, we also want to improve the standards of care people with a secondary diagnosis receive. To this end, we'd like people to tweet their MP and ask them to ask their local Cancer Network to sign up to the Breast Cancer Care Standards of Care. There are lots more details on the twobby page and again we're trying to co-ordinate the action so it has the most impact. The twobby will take place 10-12 on Friday 12 October (the working day before Secondary Breast Cancer Awareness Day on 13 Oct), so if you are a tweeter, please take part in the twobby and help raise the standards of care people receive.
Just one more thing... This blog by Ismena Clout was published on the Independent website today. Ismena talks about her experience of being diagnosed with and living with secondary breast cancer.
Sun is breaking through here on the east coast with a nice breeze, so some more washing in the machine for a nice blow on the line. Got another MacMillan Coffee Morning to go to today and hubby is coming with me. I think it's the thought of a nice bit of cake that's luring him there!
Socks - Good to hear that you have your rads planning done and a date for starting with very little wait. Also fantastic news about your accommodation, I wish I'd had that option but sadly not. It just goes to show how things vary across the country. I think my stay in our caravan and travel cost us about £400. I later found out, after treatment, that they do have hostel accommodation at Addenbrookes but I was told otherwise. It is something I will be bringing up at my Onc appointment on 15th Oct, so that will be interesting.
Mary (Peanut) - Nice to hear from you and that you had a nice break away with your family. As I've said before my hair is coming back quite well but all shades of grey and very faded ginger. The jury is out about when, if or what colour it will be when I can have it coloured again. Eyebrows are a little better than they were before chemo but they have always been a bit sparse due to over plucking in my youth. Eyelashes are fine but only thinned a little during chemo. I hope your return to full time soon goes well and you can get the rest you need in between. Your holiday is also looming up and that must be a huge encouragement for you and your lovely OH. We have nothing planned to go away before I see the Surgeon in January, but we haven't totally ruled it out. There are so many things in the diary for his golf and our indoor bowls league going forward to Xmas so it looks unlikely. Our eldest daughter is also talking about coming home sometime soon so we can't plan anything just in case it puts a spanner in the works. I told her that it's OK if she doesn't come and not to worry, but of course she does. Australia is so far away and we will be looking at going out there again, but the thought of the flight time gives me the jitters.
Got to get off here now and get cleaned up. Will check in with you all again later.
Sorry not been on for a while, thinking of you all lots. work very busy, on 4 full days this week then full time from next week. I have been really tired after work, lots of early nights struggling a bit but will have to get used to it.
I had a lovely time in london with daughter and grandaughter, went last weds and came back sat. Grandaughter just begining to walk, tiring keeping her entertained but enjoyable. Thinking of all you ladies who have had to manage with young children whilst having chemo must have been exhausting for you all.
Eyebrows and lashes growing back quite well, really dark!! looks like I have eyeliner on!! They werent dark before, in fact they were nearly white so dont know whats going on there!! Arm and leg hair back with a vengence, underarm also very numb so have used Immac and seems ok although I must admit at first i did shave in front of a mirror then had a little panic in case i nicked myself so went for the cream! Head hair growth really slow and very grey, typical!
lovely to hear from you Dulcie, hope all goes well at the Marsden. Wolsty and Twinkle - I think we are all going to have the odd wobble unsurprisingly so dont feel you are on your own. I have had a few teary days myself lately, I blame the tabs! but we are getting there arent we? Beryl - Great to hear you are out and about enjoying yourself. Joan - Have a fab time in Cyprus. Ceej - Can we all come to Turkey with you? OH and I love Tenerife and would like to spend more time there then we do at the moment. WS - Thats fab news that you can stay whilst having your rads and free!
I am really looking forward to our meet up in nov. Just because I dont come on very often doesnt mean I dont think of you all and the massive support you have all given to each other, dont know if I could have survived with out you all so thank you xxx
Hiya all lovely ladies,
Well off I went to St James's Institute of Oncology in Leeds. Wow, what a place! it is huge, absolutely massive. I saw the lovely doc I saw last, and he is lovely. So kind and explained everything. I went for the scan and was not expecting the needles (3 times) ouch! for the tattoes.
At the institute, they have a 'hotel' for people having rads, I was told I could have a double room (2 beds) 1 for me and the other for a relative. All, free of charge!!. I was shown round and was very impressed, en-suite bathroom, tea and coffee, freeview tv. I have booked it as the doc thought it a good idea as he thought I might get too tired with the journey every day. Isn't that marvellous!. It is on the top floor, so there is a great view of Leeds. I start on the 16th (15 fractions) and finish 6th Nov (good timing for our meet-up).
Will post more in a bit as 15 yr old is hungry!
Enjoyed my first trip to the gym this morning since Feb this year and it was nice to get back into it. Feeling more than a little tired now so doubt that I will have a latish night. Nights are now drawing in and it will soon be time to change our clocks again and I hate it when it all changes and gets dark early. You can understand why some people get the winter blues!
Dulcie - It's lovely to hear from you and thank you for letting us all know how you and your lovely man are doing. It all seems to be taking so long for OH to get a diagnosis from the hospital. I can understand your anxiety and requesting a scan for him, hope everything goes well there and they can get him onto the right treatment plan very soon. Hope your eyes aren't too sore after puttting the wrong drops in and they settle down soon and likewise for your temp'. What will happen when you go to the RM next week? Is it for an intial consultation or will you be having any treatment? I know you mentioned that one of your friends will be going down with you, so I hope everything will be alright and you get there and back without any delays. It sounds like you have a very nice and caring Vet and it's not very often that a dog likes the Vet is it? Our little dog used to hate going to the Vet and we had such a job to even get him to go through the door . The meeting in Liverpool sounds like a good idea and I'm sure you will get lots of support from it when you meet the other ladies. I'm always thinking of you and send my very best wishes and positive vibes. Here's hoping the RM lives up to its reputation and takes great care of you, which I'm sure they will. We will be down in that neck of the woods weekend of 16th 17th November or thereabouts, staying with one of my sisters and she told me that she lives relatively close to the hospital. If you want to email me anytime then please do so and take care. Big hugs for you both XX.
Ceej - Sounds like you had a nice break - champagne and strawberries! Five years to go then off to Turkey, well there's something to aim for! It looks like you both had a lovely time and it was well deserved.
My eyes are starting to droop so must be off. It's only a little before 7.00pm and I'm going to get ready for bed just in case I nod off. Eveyone take care and sending my best wishes.
Hi Joan and Beryl and all you other fantastic ladies...xx
I am off to the Marsden next Monday..but i have not been to good for the last few days..temp up and down..otherwise the se's have been bearable so far! But only at the beginning..yet..
Off to the doctors later..with swollen glands...and what did i do this morning..put the dogs steriod eye drops in MY eyes instead of my own drops ...i had to ring the vets...and she said 'have you barked yet' lol so i am having to wash my eyes out too! My vet who owns the practise knows us VERY well because we where always there...and my dog loves him...so he has agreed to take my little dog for his own when the time is right...that is such a relief for me..as i have worried SO much....OH still not dx yet..they want to take the spleen out whole to look at it..as there are shadows on it...but i want him to have a PET scan first! It is a big op and its only exploretery...
You are all getting on with your lives now? but life still has it's ups and downs...not long till you have you 'get together'
In Liverpool there is a 'secondaries meeting' next month they do lunch ...give advice plus loads more...and i will get to actually meet some of these ladies too!
Hi Amylou xx
I will come back soon and hopefully better news!
Well had a fab weekend with my OH celebrating end of rads and our 10 years together. Started off with a movie and meal on Friday, then he’d booked us into the superior suite at Village hotel, Dudley of all places ha ha – but the bed was huge and we had champagne and strawberries (maybe a bit too much information there! Still haven’t finished book 3 of Mr Grey :--))Had a meal there in the evening and a nice swim and relax in the spa. I’m one lucky girl. He said in 5 years’ time we will be living in Turkey woohoo!
Anyway, until then ……got appointment with ONC on 18th – apparently they don’t want a blood test beforehand or anything hmmmm, and I’ve already had letter through for a smear test too! Plus mammogram due again in November – ho hum. At least we’ll get a holiday over Xmas to throw this year out!!
I’m still wearing the gel and dressings at night on sore skin – but why cant they give you large ones instead of a third of the size of the ones from the hospital??? I spent last night trying to strategically place 3 dressings to cover all parts – then when I woke up the morning they were all in the bed anyway ha!
My daughter has a nice new boyfriend with a job and a car – which is making her much happier, and the father of her son has got a job in Wales but keeps messaging me and her to say how much he still loves her etc etc – I’m just making sure he sees his son and feel sorry for him in a way, but she gave him loads of chances to get a job and sort himself out - but am not happy that he hasn’t given her a penny towards his keep – good job she lives with me! I worry so much about everyone – my .OH has told me off and said that I really have to put myself first now which is difficult when my mum was so selfless!
I haven’t dared weigh myself after the weekend, and when I got to the gym last night I hadn’t got a sports bra in my bag so ended up just walking on the treadmill which wouldn’t have burned off the 3 biscuits I ate at work! I’m finding it so hard and I suppose Tamoxifen doesn’t help!
Righto – got work to do – MD here as well so gotta look busy.
Have a lovely day all xxxx
Socks - Whoops I missed your message and have just read it. Hope you are feeling a little better today and a blooming cold isn't what you needed right now. Hope it's the first and last of the winter so it will be done and out of the way. Keep snuggled up as much as you can and take care. XXXXX.
Didn't have a very good nights sleep last night so feel a bit 'bog eyed' this morning! Got washing in the machine and going to get myself ready for my first day back at the gym today. Got on the scales and weighed myself - shock horror! Not good, but I knew that I'd put on weight so have to get myself in gear and get rid of it asap..........
Megsmum - Glad to hear that you are spending quality time with your little grandson and daughter and can understand them not wanting you to go back to work until after Xmas. Going back at that time of year maybe extra stressful for you but I suppose it depends of the type of work you do. I use a battery operated shaver which does an OK job but my underarm hair is very fine/fair and doesn't grow that fast. sometimes I have to remind myself to do it because you can hardly see it so I'm not complaining.
Joan (Patchit) - You have done a great job organising everything for the get together so thank you again!!!!!! It will soon be upon us and I know when the time comes I will be so excited. Like a school kid going of a trip and we can all remember them. I went into our local M&S yesterday, which isn't that good, and hardly got inspired by anything I saw. In a way I think it's partly me because since going through this thing I just haven't been bothered about updating my wardrobe, just can't find the inspiration to riffle through things and try them on. It will be needs must soon so will have to get on with it! When I get some of this weight off then it will spur me on a bit more. My trousers are a bit tight and I refuse to go up a size but I don't think I'm on my own there when it comes to female vanity. I think I've had the last Chinese food for a very long time. Have to remember to keep saying NO!
Twinky - You seem to be getting things moving with your band and going on the Radio sounds exciting to and I can understand you being a little anxious about it because I would be to. What an opportunity for you and the band - go for it girl! Quite frankly I'm glad that I no longer have to go to work, because I know that I would just get too tired, so I admire all you ladies going back to it and well done to you all.
Marie (Jane) - Blooming hot flushes I wish they would go away. They always come out to play when you don't want them to, very inconvenient. My hair is coming back quite well now with all shades of grey and very faded ginger which is interesting. I keep getting told that short hair suits me and how trendy it looks. I have a natural wave in my hair and it's quite obvious at the back and it is starting to curl up at the base of my nect to the sides. I'm going to have to decide what I want to do with it soon but I know that it will need a tidy up if nothing else. My twin is planning to come home next May for our birthday and if I haven't coloured it by then she will get into nagging mode to do it. She is more dominant than me so I will probably comply, time will tell. At least she will know what her hair would look like if she left it to go grey - ha ha!
Well washing is now done so I'd better get up and sort it out. Take care lovely ladies and I'm always thinking of you all.
Marie 67 i too have been wondering about shaving as my axilla is totally numb, i'm going to try immac i think just incase i nic myself and cause a problem.
I admire you ladies who have gone back to work, my sicknote runs until 1st Dec and i'm really dreading going back, my family dont want me to go back untill Jan as i worked both xmas and new year last year and found my lump on xmas day. 😞
I have been helping my daughter with the baby and having a great time, I love being a grandma. 🙂
PS, can I have the remaining food choices for our meet up asap please? Gabbylamb and PoppyD, I think you were both coming in the day and not staying over? I also PM’d Jayjay, who I thought had booked 2 nights and Angelhearts who we also have not heard from for ages.
I need to get our order in to them in the next couple of days and pay the deposit. I am sure there wont be a problem adding people on if there are any late-comers, but I just didn’t want to miss anyone out!!
Its been a nice sunny afternoon here, shame I didn’t have the washing out! Went to see my hygienist today. Luckily, everything was fine, so she just cleaned and polished. She also had bc about 3-4 years ago and has just had some surgery to even up her boobs (she had a lumpectomy). She looks really well and healthy.
Marie67, Jane, got a couple of bits in M&S on Saturday, no doubt at least one item will be returned! I didn’t really see much in there that caught my eye. Hope work is going ok this week, despite the hot flushes! My chest area and under arm on my mx side are still numb and I think that’s just how it will be now. I have a fairly good range of movement , but didn’t have an ANC, I just had 8 nodes removed so that has probably helped. I have no idea if you can use immac, I use an electric one on that side, think it’s a braun, but its not as good as wet shaving. Better than nothing though!
Waiting too, Clare, your weekend away sounds fab! Nice spot of pampering, that’s what you need! Apart from the conversation, that is! Like the cartoon! Glad you are getting your work and study time plans in place.
WS, hope you are feeling better this evening. Time of year for colds, isn’t it? We are going to Cyprus next week (woo hoo!). November dates are Fri 9th – Sun 11th. Glad you are getting your food choices sorted out. Glad you are getting your rads dates sorted out. Have you got an actual start date yet? Are you having 15 sessions? Hope you got your counselling session sorted out.
Beryl, glad the Chinese was nice. We have a really good takeaway in the next town to us, but I haven’t been for a sit down Chinese (or Indian for that matter) for years. I am not surprised you were tired last night, your posts have sounded very busy for the last few days! Its great to hear you are getting your social life back again.
Twinky, sorry to hear you have had an emotional day. It just creeps up on us sometimes, doesn’t it? That sounds very exciting, your radio performance, you must let us know the details nearer the time so we can all tune in! I would love to come and see you at one of your gigs, but don’t suppose you come this far east!
Dulcie, hope you have got on well at the Marsden, let us know how things are going when you get a chance. Thinking of you.
When I got my tamoxifen last time I was given a different brand. The first 2 packs were Wrockhart, but the latest one was different. I haven’t been as keen on this last lot, seem to have had more se’s from them, so I am going to check with the chemist when I go for my next lot. If they don’t have the brand I want, I will have to go elsewhere. Another thing I have noticed is changes in hair colour. My head hair has come back really grey / white (no surprise there really!), but my lulu hair is really very dark brown, much darker than it was before it fell out! Has anyone else had that happen?!
There seems to be a lot of colds & coughs & other nasty things doing the rounds! I have stated clear so far but taking multivitamins to try & help keep them at bay.
WS no we haven't played up north but I confess that yesterday I agreed to having a radio interview & play four songs live at the beginning of Dec. I had suggested that the band take the slot & we do an acoustic set but the guitarist got cold feet so it'll just be me performing some of my songs. Totally put of my comfort zone but sometimes you have to just go for it! Will let you know nearer the time as the radio station is a local one but can be heard over the Internet.
Got to say this working for a living thing is tiring & not healthy. If I was at home I would potter about & also do some gardening. At work all I do is sit at a desk most of the day! Good to have company though & get my brain working. I'm not good at dealing with stress yet though or having too many things going on so I have to watch myself carefully. Felt very tearful today but an early night should nip that in the bud!
Well weather been miserable here today, but at least at the moment I don't have to worry about the weather making me have a bad hair day at work!!!!!!!!!!!!!!!!! Am not fairing so well with all the patients that have their heating on then I am doing their dressings, it doesn't go well with my hot flushes!!!
My hair has started to come back under the arm where I had ANC I still don't have full range of movement in that arm following MX and alot of the area is still numb. I know I can't wet shave under there, can I use IMMAC or does anybody know a good electric shaver? I don't want to look like a Yeti!! I didn't mind not have no hair on legs or under arms!!
WS yes I did manage a glass of wine, though I find these days it seems to go straight to my head!!. Glad you are sorted for mapping appointment, and may even get counselling to.
WAITING TOO glad that you enjoyed some time away, and had some lovely pampering.
Hugs to all especially those we have not heard from in a while.
Thought I would drop a quick line or two to you all out there. Hope those having rads at the moment are doing OK and slapping on the cream to help with the soreness or the possibility of. Had a nice chinese lunch yesterday with friends and then my friends husband came to visit which was nice. Felt quite tired at about 9.00 last night so had a good night sleeep which was welcomed.
Not sure what I'm going to do this morning but still in my dressing gown at the moment so should get myself sorted out and make a decision.
Wolsty - So sorry to hear about your friends passing and it must have been an awful shock to you. Sending big hug your way and to let you know that I'm thinking of you!
Mary (Peanut) - Hope your visit down to London went well and you enjoyed your time with daughter and grand-daughter, which I'm sure you did. I'm sure you are still on a phased return to work and all is going well, hope you are handling the tirednes thing and getting your stamina back.
Marie (Jane) - Doubt I will get a letter from my GP ref Flu jab, don't think they are quite on the ball, but I may be surprised! They told my hubby that he needed one and he queried it but they insisted that he should have one. When he went to see the nurse for the appointment she told him he wasn't entitled....... So that's what we are up against at the surgery one half doesn't know what the other is doing or needs!
Witingtoo - Lovely to hear from you and your break away sounds wonderful. I love having massages but haven't had one since diagnosis, perhaps one day soon but I will make sure they know where they can massage etc. Your cartoon comment made me laugh as well. Virtual hug to you to.
Dulcie and Amylou - Thinking of you both and hope you are OK. XX
I'm also thinking of all our other lovely ladies and sending my best wishes.
Good Morning Marchies,
Sitting here watching day-time TV as I am feeling rotten with a stinking cold (and thinking it might be b/c related!). I know it's mad but there you go.
Unfortunately, I have to make my way to ST James' in Leeds for my mapping appointment (I think). This RADS seem a long time in coming! I do hope I can start next week. Dani, I think you might be starting at a similar time? We do seem to do things more or less together. Beryl- I do know what you mean drinking tea and simultaeneous hot flushes. My surgeon told me to stop or cut down. Imagine stopping tea. Twinky: Do you ever play 'up North' - it would be great to see you. Carabel: Pleased to hear you are stretched out on that sun lounger (you are I hope!) Marie67: Did you have that glass of wine after your first week back at work? Chascat: I hate flying too! My eldest son also! He refuses to get on a plane ever again following a hairy flight to New York some years ago. KQ: my partner tried to explain golf to me and I fell asleep. Joan: Ooh a holiday! how exiting. Where are you going? I have contacted the restaurant and they have invited me to look at thier menu, which they will tweak for me. I think the £22 meal deal is the one. Could you remind me of the Nov dates we are meeting please?? (whoops a bit disorganised!) EBHippo - How nice to hear from you, what a shame you cannot make the meet. Never mind we may hve another.... Do you know if the cancer jab is recommended for all cancer patients? I too have to have another smear, and have a doc peer at my cervix (abrasion) I think. But she won't treat at the moment. My loyalty card has hundreds of stamps on it!! Wolsty: I was saddend to hear of your friends death, a sudden death is very shocking. My brother died very suddenly at 19. I was 21. I have always understood the fragility of life ever since. I think that's why I stuggle to be positive. Some knocks are just too hard to recover from.....I do hope you are feeling a little brighter. I think also we are all hyper-sensitve to illness/pain/...and death at the moment.. Waitingtoo: Glad you managed to get away for a while. How lovely. Yes, there is usually some one who has a 'cancer tale' isn't there? I try to make a quick exit when I feel one coming on!
When I was in Leeds the other day, there was a McMillan mobile van thingy. I stopped to grab a leaflet and got talking to a lovely advisor. She says she is going to see if a counsellor type woman will see me at St James tomorrow if there is a slot as she thinks I could do with it. She is going to email me later. She was just so fab. Even asked if my partner would be interested too....as he is 'my carer' She said. Apparently, the only criteria is that you 'care about someone who has cancer'. I don't think he will do it though.
Well, that's all my news. I do hope all are ok? For some reason Carmy is popping up in my head. Hope you are ok Carmy?
Hope this finds you all getting on with life. I notice that this March thread is one of the most active, even after all this time. I know we moan about the new software glitches but I also am grateful to BCC for giving us this platform on which to seek out and support one another.
Pachit (Joan) sent menu choise to you via PM.
I had a lovely weekend away with OH. A friend offered to take our kids and in 2 weeks we will take their kids for the weekend. We went to a spa hotel on the coast - looking out onto the Island of Gilgio. Y'know where the cruseliner sank. We got an off season deal for the spa. It was lovely. The only sad bit was when i went for a massage (taking lots of care and towels to lie on my front as boob is ultra senitive). The masseuse asked if I was sure I could have a massage whilst underoing treatment and I said yes, inthe UK its encourged to help us relax. She then told me the whole story of her husbands cancer and how he died.... so much for a relaxing massage I was in tears. I acturally felt guilty - 'why do I get to live when he didn't?' Don't worry Marchies this thought was quickly followed by another 'Eell, you are alive Clare so make the most of it'. First time, I've ever fely guilty for having a good result!
I'll go back to work 19th Nov for 3 days a week until winter break. I've then decided to only do 4 days a week until May. I have my thesis to write for my studies and am entitled to study leave so I am not going to cram my life full when I don't need to.
I saw a funny cartoon the other day it said "I have PMS and a GPS so I'm in a bad mood and I will find you !' Made me laugh.
Sending virtual hugs all around,
Well it's been a lovely weekend here, so have managed to get lots sorted in the garden and greenhouse. Went to Gt Yarmouth today as I had some vouchers for Next, but as is always the way when I had money to spend , I couldn't find anything that I liked or that fitted ok!!!
Heading back to work again in the morning, had forgotten what it was like to get up at 6am, doing 4 short days this week.
WOLTSY sorry to read about your sad news, sending you a BIG HUG.
JOAN hope you managed to get some bargains at M&S when you went shopping.
BERYL I to got a letter offering the flu jab. I get offered it each year through work, but have never had it apart from when I was student nurse and I was really poorly afterwards!!! So I won't be having it this year, I assume that my body is better equiped now than it was going through chemo to fight bugs,and I got through chemo ok. Hope you enjoyed your chinese.
CARMY hope that you are doing ok, guess you have finished rads now, hope that the weather in Spain hasn't caused you too many problems.
GEORGIE hope the feet are ok after you stubbed your toe.
CHASCAT glad that you got your sick note sorted out and hopefully you won't have to wait too long for your bone scan, maybe you will have to have a glass of wine to cure your flying nerves.
Hugs to all still having treatment.
Feel so low. Had some very sad news this morning that an old friend has died. He lived in Brazil and I haven't seen him for years but we saw the Millenium in together and his wife was an old work colleague of mine. He has died very suddenly, I don't know the circumstances yet but not cancer related.
This news has hit me for six, I have been in tears all morning and can't seem to pick myself up. Just feel very vulnerable at the moment and life seems very fragile xx
EBHippo - You made me laugh 'Loyalty Point Scheme' now that would be something! Sorry to hear that you can'tmake November meet but I'm sure you will be thinking of us. Don't know if my surgery will contact me ref Flu jab, I doubt it. Probably just as well because I don't think I'd have one. I know of people that have had one and have ended us felt really rough afterwards, so I think I'll take my chances.
Chascat (Lydia) - Sorry to hear that your flight got cancelled but these things happen but it doesn't help you. Not long before your holiday and you must be getting really excited about getting away. I had a Dexa bone scan because of taking Arrimadex and poss s/e's of that. The scan was nothing but I don't know if yours is a Dexa scan or another type. Hope all goes well.
KQ - I've heard of these Mr Grey books but apart from that know nothing about them. I get the impression that they are a bit racey, are they? I found it strange when waiting for rads and other people/ladies sitting there waiting as well. As soon as I made the first move to talk then they got quite chatty, but until then they just sat there waiting for their names to be called out or ready a mag'. I did meet some very nice people and they were not all BC patients which I automatically thought there were for some reason.
My husband was speaking to his sister last night and we discovered that their daughters (our niece) mother in law has just been diagnosed with BC. She is quite elderly and will be having her operation mid October. She is on her own so I believe our niece will be doing most of the running around and caring where necessary. I told her that if she needs any support or advice to contact me but it's early days yet and it depends on what they find. I'll keep my fingers crossed for her and hope everything goes OK.
We are having lunch out with friends today, which will be nice. Going to a Chinese Restaurant for an all you can eat buffet, which is usually very good and you have to book because they only do it on a Sunday lunch. I don't stuff myself silly but have enough within my comfort zone and I always enjoy it.
Planning to potter in the garden this morning with hubby, doing some pruning back but it's windy out there.
Thinking of you all and hope everything is going OK. Keep slapping of the cream ladies!
Not posted for ages, suppose its a sign of getting my old life back. Received a letter this morning from GP, apparently I now fall in the category where it is advised that I should have the flu jab - is it because immune system after chemo is a still low. Also had a letter to say that it is nearly time for next smear test - I am thinking the NHS must really be missing me and are desperate to get me back in their clutches.
Unfortunately I am now unable to make the November meet-up but sure it will only be the first of many. I know you will all have a superb time with many funny moments that you will share on the forum.
Sending you all hugs xxxxx
ps. Just thinking, pity the NHS dont do a loyalty point scheme !!!
Thought I would check in before I go out shopping. Just popping over to Cambridge. M&S have 20% off their knitwear this weekend!
Beryl, glad the coffee morning went well, that was a lot of money to raise! Glad your 2nd cake was a success!
Twinky, hello, good to hear that your return to work is going well. I read that you had some problems with work so I hope everything is ironed out now. I cant wait for my hair to be a bit longer! Just so it looks like a short hair cut. Did you see Denise Welch on Piers Morgan last night? Her hair looked fab and it was really quite short. That’s what I am aiming for!! Glad your gig went well and that you have plans for further performances. Stick to the NO when people are demanding, its easier said than done but they will soon get the message.
Carabel, thank you for your message, glad to hear Greece is sunny and warm! Xxx
Marie67, Jane, glad your week went well. You will soon be back in the swing of things, I am sure.
Chascat, how inconvenient! Fancy that pilot being in hospital! You would think he could have been ill some other time! Lol!! Glad you are being referred for a bone scan, especially if you have other health problems. Hope its all clear for you.
KQ, yes, still on Mr Grey! Just don’t get time to read much these days! I am only half way through book 2! Got my holiday soon, so that will give me time to polish them off. Glad your rads have got off to a good start, soon will be done and dusted for you. Funny, I had a lady when I was going who seemed very similar to the one you mention. One day I asked her how many more sessions she had left and we just got chatting. Sat together every day after that and it certainly made the time go quicker with someone to talk to!
Have a good day, marvellous marchies! My credit card is burning a hole in my pocket so I am off!!
So sorry not been on for a few days...B T did upgrade on Broadband so obviously it hasn't worked for two days...grrrrr took OH in full rant mode to sort it......:)))
Firstly Joan......sooooo pleased re your mammo results xxxxx still on mr grey.....hmmmmmm...taking a while:))))?
Chascat..coud do with fear of flying course myself.....hate it xx
Beryls... I am the person who makes scones that turn out like biscuits whatever I do !
Rads are going well, cream being slapped 4/5 times a day. There is Lady there same time as me with her hubby and neither of them will look at me or smile or speak to he point of blatantly ignoring me....soooo weird...
Oh, well only 15 more rads to go and 13herceptins.....:))))) but can see glimmer at end of tunnel.....
Oh good, O H. Has fallen asleepnwatching golf"....
FEAR OF FLYING COURSE CANCELLED - AAAARRRRRRGGGGGGHHHHHH! The pilot who runs it is in hospital with a blood infection - how very rude!
Well my GP has signed me off for another month, I was talking to him about my anxiety and we had quite a nice chat, he's also decided I should have a bone density scan as I've been on steroids for a number of years for Rheumatoid Arthritis and also now with the Tamoxifen, he says it's better to find out now in order to prevent it getting any worse than being sorry further down the line.
Have signed up to donate to Macmillan now on a monthly basis, how could I not?
Love to all
Well I can't believe how quick my first week back at work has gone, it's nice to be back, although I still find it hard for my brain to keep up with everything. My body is also getting used to being back at work, and doesn't feel so stiff today despite having knelt on so many peoples floors and got myself into strange positions to do their dressings!!!!!
BERYL glad that the coffee morning went well, that was a good amount to have raised.
TWINKY glad that you are more settled at work, and that you are back enjoying doing your gigs.
CARABEL make the most of the sun, we are definitely lacking in it here!!!
WOLTSY hope that you enjoyed your rads free day and lunch out with oyur OH.
CHASCAT hope the flying goes ok for you tomorrow, and that oyu manage to get your sick note extended.
Well off to sort tea, may even manage a glass of wine later.
Hope those we haven't heard from for a while are doing ok
Back from MacMillan Coffee Morning and we had a good time. There were lots of people there and it would appear that we made over £400. I took my fruit cake and just put it down on the stall to sell when a lady asked how much? Anyway, she offered £4 for it and it was duly sold, so that was good. I purchased a bracelet from one our crafters and won something on the Tombola that I didn't want so gave them it back to be offered again. Got another cookery book with receipes for two which made my hubby laugh because I have a mountain of cook books that I hardly ever refer to! Came home and went to lunch with hubby and friends. All in all quite a good day.
Hope everyone is OK and will be back on later to catch up on any messages.
Morning Marches. Just a quick post as I'm relaxing in sunny Greece! Just wanted to say to Joan I am so pleased that mammo was clear. I think we will all be very anxious when it's our turn. and to Danni please don't worry about rads. As everyone has said it really is a piece of cake compared to chemo.
Will try to catch up again before I come home.
Sorry I haven't posted for a while...all this going to work stuff gets in the way! Still building up my hours but up to 5.5 hours four days a week. Will be properly full time by mid October bit not back in my original job until January. Currently office based at the moment working in a lovely team of ladies. Still feel very self conscious about my head of short grey hair but everyone says they like it....just me that doesn't then! Want my hair back to normal colour & length ASAP.
First gig went well. Pub wants us back for more gigs. Noticed the tiredness kicking in halfway through the second set & was fit for nothing afterwards but I knew that would be the case & planned to do nothing but rest Sunday. Still finding it hard now I feel soight better to get the work/rest balance right but am loving feeling more passionate about life again. Counsellor helping me change my attitude & put me first & so look after myself going forward. It has changed my priorities too & I feel stronger to say NO at work if demands are too much. I will not go back to working long unpaid hours again. I need my life back outside of work. Musical activities going well. Working hard on plan to eventually make my living as a songwriter & composer...eventually! Plus I'm loving bring in the band again. Next gig is in Sutton Coldfield on 6th Oct at the Three Tuns pub.
Higs to those of you with negative thoughts. It's a hard time when treatment finishes, you start to look & feel better physically but there is a feeling of being abandoned after so much medical scrutiny! Hold on, things will improve.
Very many thanks for all your messages yesterday. I really wasn’t prepared for how I felt! Should have been I suppose! I have had a great day today, only been to work but I feel like a weight has been lifted. I hadn’t really realised how worried I was, alls well now thankfully. Re our meet-up, I have sent PM’s to the ladies we haven’t heard from for a while, including Jayjay and Angelherts. I have most of the food choices in, just a few to let me know.
Rae, how are things with you? Let us know how you are doing after your op?
Carmy, hope you are getting on ok at work. Your rads must be progressing now, I expect you will be coming to the end of them soon?
Bettie, last rads looming for you too. Sorry you are feeling so emotional at the moment. Bc brings physical and mental problems! I am sure how you are feeling is a mixture of all the things you mention. Who would have thought what 2012 would be like for us? Good thing we don’t know what is around the corner!
Wintersocks, sounds like you are steaming ahead with your treatment! Glad you have got a date for your rads planning, soon be all done now. I have PM’d you about the food choices for November.
Marie67, Jane, hope work is going ok for you. Weren’t we lucky going away last week instead of this? We would have been flooded out in Northumberland! A colleague at work keeps stroking my hair and I have started to purr when she does it! More tests?! Guess your Onc just wants to be doubly sure that everything is ok with you now.
Chascat, we must be going away around the same time, we are going to Cyprus on 10 October. Hope you get on well at the flying day on Saturday. I know where you are coming from with the anxiety you speak about. That was me yesterday. Normally I can keep things in perspective, but not this bc! Its normal to have this anxiety I guess, but we must try to not let it rule our lives. We have had all this treatment over the last few months and it really does work! I am sure that our levels of worry will diminish with time. It must be so much harder though when you have young children, hope you feel better about everything soon. Sorry to hear you have had a stressful day. Hope Tabitha is better for you tomorrow!
Ceej, how is your skin doing? Sorry, but I did laugh at your description of being trussed up like a chicken!! Well done on finishing rads. I will definitely be commando in November. If its cold I will wear a hat for warmth but I haven’t worn a scarf of Wendy wig for ages now.
Gabbylamb, hope your skin infection clears up soon. And the thrush! Poor you! I remember your wobble before you started rads! Seems ages ago! Your post is lovely, and so right! I bet you are glad that you went ahead with your rads now?
Parsnip, I think you are doing the right thing by sorting out some counselling. It must be so hard when you have young children. You have my utmost admiration, going through these last few months and caring for youngsters too. All you ladies in that position, I am in awe of you all. You are all wonderful, strong, young women, and you all deserve a future where you see your youngsters grow up. Its normal to have these feelings of anxiety, I am sure though that with each passing year the anxiety levels will lessen.
KQ, hope you continue to get on well with your rads. Remember the cream!
Wolsty, rads nearly over for you now. Well done, that is quite a slog, 25 sessions. And glutton for punishment that you must be, dentist too?! Crickey! Hope you had a nice meal out with your friends and have a nice day with OH tomorrow.
Beryl, its good to hear that you are getting on with your life and enjoying a social life again! This thread has been a big part of my social life over the last few months. I wonder what will happen eventually, whether we will all just stop posting? Or whether we will carry on forever?! Its quite funny, things people say to us about how we have handled the last few months. What choice did we have? I have had lots of similar things said to me, especially after my ‘all clear’ yesterday. Our lives went off at a tangent for a few months, but we are getting back on track now. Poor you with your cake! You are good to make another one! Hope that came out ok. Glad your bowel cancer test came back clear. That’s a brilliant idea about your hubby doing the group photo! If he doesn’t mind, I think it would be great!
Waiting too, Clare, you are having a lot of rads sessions. Maybe things are different because you are in a different country?
Gary, well done on finishing your rads too. Soon you will be finished your treatment altogether. I am glad that you got on better with the taxol in the end. I hope you get your holiday booked soon, it will give you something lovely to look forward to.
Right, I am off to bed now with a green tea and Mr Grey for company, until OH and Cleo come up that is!!
Evening ladies. I am fine thank you Beryl - other then a swollen gum and would you believe it i
I caught my little toe on the foot of our sofa and its really bruised just hope it is okay for the wedding!
i am back to work in November and even then the Dr said I should use my annual leave to have an extra day off a week.
It does feel weird to finish all treatment. I have 3 appt - one with the surgery team, one with the oncology and one with radiology but as far as I know no more tests how do they know the cancer didn't spread?!
Love to all Georgie xxx
Beryl - group photo, fab idea!
Been to see my BCN today just to have my skin checked over, I've been very lucky, it's barely pink and no soreness at all. I was telling her about my dillemma re returning to work in 2 weeks as my manager is expecting me back but I don't feel ready, she said i'd only just finished treatment and to be kind to myself etc etc so going to ask my gp to sign me off for another month. I also told her how anxious I was which she said was normal but is going to arrange some counselling for me, she thought a support group would be a bit dangerous as i'd only dwell on the the scary stuff, which is what I do with this site, I love our thread but find I get drawn into some of the other ones that don't apply to me and then end up scared witless. I also asked her how long it would take for Tamoxifen to be effective as I've not really had any side effects, i'm getting hot flushes and night sweats but that started during chemo and hasn't got any worse, she said it was effected almost immediately so all good, i'm hoping it doesn't get any worse.
Had a stressful day today, washing machine has broken, also a burst water main so no water, also had to collect my daughter from school early for the same reason, and she's been an absolute so and so, has been in her bedroom for hours, only coming downstairs to eat - if she tells me no one for time I will swing for her!
Love to all
Joan - I am so pleased for you that your mamogram was clear - its so nerve wracking but great when you get positive results. I just also cant thank people enough for the kindnesses I have received over the last 8 months, I have sent thank you letters, bought flowers, chocs but nothing seems enough does it. I am feeling so emotional at the moment (3 rads to go) and feel like I could cry at anything, not in a sorry for myself way, I dont know whether its because I am coming to the end of my treatment and have done it or whether I am going to genuinely miss all the wonderful people I have met at New Cross. I am also a little scared of coming away from the security of the hospital but I guess this is completely natural. What a journey we have all been on and how lovely its been to have the support of this forum and to share our experiences with people who know exactly what its like so a big thank you to all of you.
Well, so much for baking my fruit cake this morning because I messed it up!!!!! Only went and put the oven on too hot and the cake had been in the oven for over a hour before I realised it. Tried to salvage but thought it best to bake another this evening. I will put it down to belated chemo brain. Just as well that I had enough supplies to bake another - what am I like?
My bowel test results came back today and they reported nothing found, which is a relief but they always word things so you are never 100% sure and have to be vigilant etc. We will soon have to be checking all points of the compass!
Dulcie - Hope you and your lovely man are OK and you are getting the treatment you both need and deserve. Please let us know how you get on at RM when you can. Thinking of you both and send my best wishes XX
Raechi - How are things your end because nothing heard from you in a while?
Jayjay and Angelherts - Likewise nothing heard from you either in a while, hope everything is OK and it would be lovely to hear from you when you can.
Poppyd - How are you and your son doing? Hope you are both OK and your DIL is behaving herself and not making life extra difficult. Thinking of you......
Parsnip - Hope that you are getting the rest that you need and your little boy is enjoying his time at school. Take care.
GeorgieB and Megsmum - Also how are you both doing and hope all is well your end?
Waitingtoo - Sorry, read your last post and didn't respond when I messaged earlier. Good that you are getting through your rads now and won't be too long before you are coming to the end as well. Hope you don't get too sore and everything goes to plan with little delay to appointment times. Will be nice to see you in November and it's great that you can travel from overseas to make get together.
Going to get my hubby to take another photo because I'm fed up looking at current one. Will get hubby to bring his big camera to the get together so he can take a group photo if you want. It's a Cannon 35mm digital and it takes nice quality pictures. I'm sure he will pop-in and oblige if we want him to.
I know there are plenty of names to mention and sorry that I haven't, but I want to let you all know that I'm thinking of you and once again send my best wishes.
Marie (Jane) - I haven't been given anything ref blood test and nothing mentioned. I've made a note of the points you mentioned and will bring it up at Onc appointment on the 15th Oct. Thanks for that and hope all goes well when you visit your friend in hospital.
Gary - Good to hear that you are doing OK and rads now done and dusted. One more chemo to go so you will soon be out the other end and a holiday to look forward to which is something. Shame you can't be with us in November but a holiday takes priority, so enjoy.
Dani - Glad to hear that you are feeling more positive about rads and you can move forward. It's just the last part of the jigsaw and you will be fine going through it. Compared to what you have already been through rads are nothing - you will be fine!
Jane (Wolsty) - Last rad this morning for you and well done! It's good having all the tests that they throw at you and early prevention is key to everything. It's just waiting for the results thing that gets us going but nothing we can do about it. I know when my results came back from Genetics, I just put the letter on the table and looked at it for a minute or two, then told myself that it needs to be opened and dealt with because there's no point in delaying it. Phew - what a relief when it's good news!
Been good this morning and have a fruit cake in the oven for our MacMillan coffee morning tomorrow. I'm picking up three friends and taking them with me to our craft group. It helps to boost the numbers and I'm sure they will enjoy the trip out into the sticks (35 min journey). I'm sure they haven't been to that part of the Norfolk Fens before, so it will be interesting to say the least.
Where are all our lovely ladies we haven't heard from in quite a while - come on and give us an update so we know how you are doing?
Must be off to do some chores because out and about this afternoon. Take care all and best wishes.
JOAN that is great news, after such a stressful wait, glad you went out to have a nice meal.
GARY nice to hear from you, glad that you have finished your rads and the end of chemo is in sight for you. Great that your are planning for a holiday.
WOLTSY glad that you are also coming across the finishing line for rads.
AMYLOU nice to hear from you.
Well have been and had bloods taken this morning prior to ONC apt next week, I had the same nurse who took my bloods pre chemo and she was quite impressed how my hair has grown.
BERYL I was given the blood form at my last chemo apt in June and told to get the bloods done prior to ONC apt, the bloods are to check cholesterol, kidney function, liver function, bone group and tumour markers!!!!!!!!!!!!!! So now I have to wait and see what they show. Rational head says that with everything that's been thrown at they will be fine and it's just for comparison, iratioanl head says they will show up all sorts!!!!!!!!!
Off to visit friend in hosp this afternoon, having done housework this morning, then back to work again tomorrow morning.
Love to all
Sorry ladies I didnot post for so long. I am just getting exhausted with over weight and tiredness with radiotherapy. I have a good news to share among the dark clouds. I finished my radio yesterday and i have got one cycle of chemo in the next 2 weeks, hopefully that is it.
You have all been marvellous supporting me even though i didnt post often. I am planning for holidays, so will miss our big day on Nov 2nd, but you will all be in my thoughts. I am happy for Joan, hope we will all get the good news like her. take care
Joan - A sigh of relief and now breathe. Excellent news Joan. I'm punching the air and jumping up and down.
Thanks ladies for your reassuring words re RADS.
Clare - mi manca tanto Roma e to ringrazio per le tue belle parole.
love to all
Gabby - well said - when you list everything we have been through it's amazing - and here we all are coming out the other side 🙂
Beryl - my dad died of bowel cancer so I too have to have the test. Chatted to my oncologist about it last week and am going to wait until next year I think as just need to get over all this first. I think its unlikely to be genetic but you never know!
I have my last rad session this morning - Dani - it has been absolutely fine - my skin is a little pink but that's all and I haven't felt tired at all. OH is taking day off work tomorrow as it will seem a little strange not having to go to hospital so we are going to go out for a nice lunch to celebrate.
Have a good day everyone - now off to be zapped one last time.
Hello ladies, back at last! REALLY pleased to report my mammo was CLEAR!!!! Had 1.5 hr delay for my appointment, so I had worked myself into a right tizzy by then! I sam a lady dr, the same one I saw way back when I first went a year ago. She gave me the results of the mammo and did another physical examination, which was fine. She doesnt want to see me for 6 months, unless I have any concerns, then I am to ring them straight away. I have another appointment with my Onc in a couple of weeks, which is just a follow up as I had my rads at a different hospital. So, for me for now, everything is fine, I am cancer free, I have put the worries I had back in the box at the bottom of a big chest in a dusty corner of my mind. There they will stay, at least for the next 6 months.
OH and I went for a meal after hospital, then I took some flowers round to my brother & sister-in-law and also to my friend, to say thank you for all the help and support they have been to me over the last few months. Hence the lateness of my post! I am sure you will forgive me, lovely ladies for not posting sooner, and thank you so much for all your support, hand holding and hugs today. I really appreciate you all.
I will catch up with posts etc tomorrow
God bless and sleep tight with sweet dreams