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Marvellous Marchies 2012 Moving on

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Re: Marvellous Marchies 2012 Moving on

Morning MM's

Socks - I'm not going overseas for holiday so that means you are not on your own and I'm sure there are other ladies in the same situation. Will probably look at something next year depending on what is happening going forward. No, our daughters don't need to get genetically tested now but can request routine check ups from age 40 because of my diagnosis. I was told that they could get tested from 30 if I had the BRCA1 and 2 problem, thankfully that's not the case. My identical twin doesn't need to get tested now but she could if she wanted to. They said that it is highly likely that she would be the same given that we are identical twins, but nothing is for certain on that side.

Wolsty - Your hair is looking very good and you have such a glorious smile! The Haven sounds like a nice place to go, you are so lucky to have somewhere to go like that.

Liz (EBhippo) - Your Boss made it short and sweet which is good in away but probably he didn't need to say anything at all! Can't help you on the toe nail front because not had a problem with mine apart from them feeling a little tender. Propolis gel is supposed to be a very good aid to healing. I think it is mainly used on the skin but it derived from Bees wax (I think) which is supposed to have good healing properties. Perhaps your local chemist may be able to advise you on how to treat it. Hope it gets sorted out for you soon. Glad that your eyes tested OK, so now you can move on from any poss problems there. I'd only had mine tested a few months before diagnosis so reluctant to go again after paying a lot of money for new specs then. Will drag it out as long as I can before going again.

Joan - Great news that you have now been signed of from your Onc and back to your surgeon. I have my Onc appointment next week so hopefully the same will happen for me. I know that you have already left but have a great and well deserved holiday and we look forward to hearing from you very soon.

My husband made me chuckle this morning - he trimmed my hair at the base of my neck yesterday because it was uneven, one side was longer than the other and curling up. I told him that he had done a great job and it looked like the hairdresser had done it and cost nothing. He grinned and said "that I hadn't seen the bill yet"! He's so cheeky at times and he's got a wicked sense of humour. What would we do without them?

I'm on Arimadex and get joint pains from them but I'm OK once I'm up and mobile. I've put some Arnica get on my knees, hands and feet this morning, which is supposed to help with joint and muscle discomfort. I'll let you know if it helps at all, fingers crossed.

I'm on my second cup of tea which has also gone cold so I'd better go and refresh again. I always have my tablets in the morning before breakfast so I don't forget them. It's something we have always done so it is a rictual/habit for us.

Dulcie - Hope everything went OK for you yesterday and it wasn't too tiring a journey for you. Hope to hear from you soon and take care. Big hugs to you both.

Hope everyone is doing OK and able to get out and about. Sending my best wishes to all.

Beryl XX

Re: Marvellous Marchies 2012 Moving on

Hi Ladies

Very quick post from me as I need to get to bed. We are leaving home at 4.30 tomorrow morning. Just wanted to say that my Onc appointment went really well on Monday. He has now signed me off and I am back under the care of my surgeon.

Will post on my return from holiday but have a good week everyone.

Joan xxx

Re: Marvellous Marchies 2012 Moving on

Hi Marchies, doesnt it seem ages ago since we started this journey, we have all come so far and think its finally sinking in that treatment is over. Wish the side effects were, still get very tingly fingers and my big toe although it kept its nail is leaking horribly - any suggestions ladies ??
I am now back at work 7 hours a day mon - thurs but tend to need friday to recharge batteries still. The Company where I work are exhibiting at the NIA this week and I went yesterday with my boss. 8.5 hours which was tiring but so glad I went, no scarves or wigs and how did he introduce me ..... this is liz my secretary and her hair is growing back now. Didnt know whether to laugh or hit him.
Hope you are all getting back to more exciting lives than hospital appointments and those with appointments left [sorry, terrible with names] you are catching us up fast.
Love and hugs to all and if anybody has ideas re toenails would love to hear xxxx
ps. Had eyes tested last week as I have been struggling and to my amazement optician says there is a slight improvement !!! So cant blame chemo for everything !

Re: Marvellous Marchies 2012 Moving on

Sorry you are feeling low and in pain Bettie - sending you a big hug xx
KQ - hope the first tamoxifen tablet goes down OK tomorrow. I have been taking my for 2 weeks now and no problems so far apart from forgetting to take them!!!
Pargayan - I would try the cycle ride - you can always get off and walk if its too much. I am feeling lots better for getting back into exercise.
Dani - pleased your Rad planning went OK and you now have a start date. The end is in sight. I felt fine through my 25 rad sessions, a little tired towards the end but otherwise no problems at all - hope you are the same xx
Jane - my brain is a bit mushy too - have to write myself lots of reminders all the time. I do hope my memory improves as I'm not functioning well at the moment.
I have been to The Haven in London for the first time today for an introductory day. Lots of people have told me how good it is so thought I would give it a try and then can go there again if I feel the need. We learn a little about meditation and also nutrition. I thought I ate relatively healthily but not healthily enough - also they say I am only allowed one small glass of wine a week!!! Shan't be sticking to that part!!!
Anyway, I can go back for up to 10 hours of complimentary therapies, nutrional advice and lots of other things so think it will be good. Now have my homemade granola in the oven - don't know how long this will last for!!!

Jane xx

Re: Marvellous Marchies 2012 Moving on

Ok trying again!!!!
It does seem so quiet on here now, i guess it is signs of us retrning to normal? however I still have my rads to start as does Dani too.

Dani - mine starts on the 16th, I think you are starting a week or so after me? I have decided to stay at the 'hotel'in St James as otherwise the travelling will be too much and too expensive. I can wander around Leeds in the daytime and go to The Haven (www.thehaven.org.uk) they have loads going on there and it is all for breast cancer patients and all free. So thast will give me something to do.

Joan: I have emailed the restaurant about the gluten free diet, but they haven't got back as yet. I will try them again. I don't think you need to know those details from me do you? If you do I will pass them on. I do hope that your onc appointment went ok? and that there was nothing to be worried about? I am unsure if you are on holiday at the moment? If you are I do hope you are having the best time.

Lydia: I think you might be on your hols too? And the same- I hope you are having a glorious time. Am I th only one who has not been abroad from this thread this year? If that is so -I am going to sulk! It's not fair!

Parsnip - Well done on raising the money. How lovely for your little boy to give his money too, that is such a lovely image.

KQ- I am pleased that you now know what your ER AND PR status is. D'you think it makes any diffference to know? I sort of wanted to know and not know at the same time.

Caren - It is a shame you have been pre-occupied with work. But I suppose it is inevitable that it is not going to be so easy to simply slide back into, after what has happenend. Unfortunately, I lost my job (as a result of b/c) I am not sure what I am going to do now about getting another. - It is really worrying me.
Remembering to take those pesky tablets is a real pain isn't it? I too stuggle to remember right time/right day. The Letrozloe are so small that when i pop them from the packet they usually role under the table and I have to retrieve them amongst the fluff and bits of food. _ yuk. Still, I do not seem to have had any side3 effects and I am wondering whjere they are????

Bettie: I am so saddenend to hear of your continuing health problems. No wonder you feel gutted. Just the thought of having to have more invasive procedures is too much. I do hope you have a good team who help you come to the best decision here or as Beryl says it might be worth getting another opinion. I am going to (get a 2nd) for some gynae stuff. I will be thinking of you as you navigate this next medical round.
Wolsty, your hair is certainly looking good. How long after your last chemo, did you feel able to go without any headwear? Has it come back different in color and texture? Does it make you feel a lot more confident having it?

Beryl; Your hair is looking good too. it is very dark on top. Mine is still grey, grey ,grey and very sparse on top. I am so impatient for it to return and am still worried that it is not going to come back properly. On the subject of bingo I have always wanted to have a go, but when I have mentioned to my girlfriends they just laugh. Perhaps I will go on my own?? As far as the genetic testing goes is that it now ? and your daughters don't have to get tested?

Marie67: I hope you to are beginning to enjoy work although it might be disorientating and tiring to start off with.

There are many ladies we have not heard from in a while jayjay (who hasn't been too well) Gary Carmy et al....I do hope all are ok and can give us a wave when they get a chance.

love to all. wintersockless

Re: Marvellous Marchies 2012 Moving on

KQ - Thanks and good luck with the Tamoxifen. I found I had quite a bit of joint pain at the start but this has definately got easier now.
Still feeling really low but am taking regular pain killers so hopefully in a few days I'll feel a bit better. Just want to get back to work which will hopefully take my mind off the pain I'm in. The really frustrating thing is that the consultant is reluctant to operate because of a tumour in the same area. Its a hard thing to take especially with the BC as well.
Anyway, onwards and upwards, feeling sorry for myself wont help.

Hope you're all ok
Bettie xx

Re: Marvellous Marchies 2012 Moving on

Have lost my post - MAD now.

xxxx

Re: Marvellous Marchies 2012 Moving on

Hi MM's,
Seem to have got Broadband sorted both at work and home so will do longer post later and catch up.
Went to see Onc after rads today, turns out that I am both ER and Pr + after me believing I was practically neither for 7 months so am to start Tamoxifen tomorrow...I have got my head round it now and at least it will be more ammo to fight with.
Bettie..am so sorry you are feeling low, it doesn't seem fair that you have even more to go through, big hugs to you xxx
Wolsty---you have given me hair envy...looks fab xxx
Back in a bit
HUgs
KQ

Re: Marvellous Marchies 2012 Moving on

Hi ladies, well I survived my first day back working full time, but I can't say it was easy! I feel that now I'm expected to be working at the capacity I was before all this crap, and I suppose I feel that myself too, but really not sure I can. I keep telling myself its only work, but I've woken up this morning and know I've been thinking about work all night.
Pargayan, I can't cycle up hill at all, so I'm very impressed that you're considering it! I think you should decide nearer the time, if you're working short hours and its a nice sunny day I'm sure you'll be fine.
Dani I went away for a weekend mid-rads and it was fine. It must feel like your treatment is never-ending, but yyou'll soon be there.
Beryl, hope you won at bingo! I've only played a couple of times but I couldn't believe how hard it was - I couldn't keep up!
Marie I agree with Dani, a satnav is the answer! I couldn't cope without one. Hope you're ok and work goes well this week.
Beattie so sorry about your news, I hope you're feeling better.
carabel glad you had a lovely holiday.
Peanut when I looked for holiday insurance I was getting really big quotes, but one company suggested excluding breast cancer then they could do it really cheaply so I did that in the end. I couldn't imagine any bc emergency I might have. Where are you going?
Joan have a fabulous holiday!!
parsnip well done with the fund raising, your son sounds adorable!
waiting too, we spent a day in Rome on our trip, I really enjoyed it, you are so lucky to live there
i am on Arimidex / anastrozole and had really bad joint pains while I was away, I thought it was all the sightseeing/walking around ruins etc, but when I got home I realised my tablets finish a day earlier than they should, and I must have taken a double dose one day!! I sometimes took the tablet before I went out in the evening as I thought I might forget when I got back, so guess it happened then! Oops!
anyway, must get up for work, I have soooo much to do! Aargh!
hope everyone is doing well, thinking of you all
Caren xxxx

Re: Marvellous Marchies 2012 Moving on

Evening all,
I am becoming a lurker rather than a regular poster. Hope everyone is on the improving menu of BC life.
I am scheduled to start back at work at the end of October. I used to bike into work and am wondering if any of the ladies who have started back at work think it is feasible to us e my bike. The only up hill is the last 200 yds before home but it is a steep little hill. Still find myslef feeling really tired and my brain struggles to keep up with everything but I have to start back sometime. I will hopefully be on short hours for a while, seeing Occ health on the 29th so will know more then.
Dani - glad you have got a start date for your rads.
Bettie - sorry to hear you cannot get your hernia sorted

Alarm is ringing saying tea is ready so must go, will try and do individual posts later this evening xx

Re: Marvellous Marchies 2012 Moving on

Evening ladies,
RADS planning went ok and feel like this journey is never ending. I officially start RADS on 22 October which means I will be in the middle of my treatment when we meet up in Novenber.
Jane - my appetite has improved slightly but not much... I have a Sat Nav that does my thinking for me.
Carabel - Glad you had a lovely holiday. I feel constantly in need of one.
Bettie - thinking of you..
i'm posting from my phone so will keep this shOrr needless to say am thinking of you all.
love Dani Xx

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Re: Marvellous Marchies 2012 Moving on

Evening Ladies

Bettie- Sending you a big hug to help you along! Could you ask for a second opinion just so you know that you have been given the best advice? I know that It's not an easy thing to do, but there is so much for you to try and take in at the moment what with everything else you have been through so far. Thinking of you and take care.

Marie - I have been out to play in our indoor bowls leaque this afternoon and that quite whacks me out, so I don't know how you must be feeling and coping having to do a days work. I know that there are many of our lovely ladies who have returned to work and you all have my admiration getting through it on a dialy basis.

Dulcie - I've been thinking about you today and I do hope that everything went well for you at the RM. Hopefully we will hear from you soon. Sending you and your lovely OH a big hug each.

Amylou and Socks - You are both still going through the rads and I do hope everything is going OK for you both - thinking of you.

Danni - Thinking of you today and your rad planning appointment. Hope you won't have too long to wait before they get under way. Let us know when you can?

I'm off out tonight to play bingo with some lady friends, what a high life I lead - HA HA! I've cut it down to one night a week because it gets so boring, and also I can't sleep when I get home because I have numbers going through my head.

I'll have to be off now to get myself ready for the event. Bye, bye for now.

Beryl XX
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Re: Marvellous Marchies 2012 Moving on

Hello MM'S
Well am out and about on the District on my own this week, mentally and physically it's much harder than being out with someone, my brain is still mushy and I have to keep checking the A-Z as I can't remember how to get to some places, I look then drive for a bit then have to stop and look again!!!!!!!!!!!!!!!!!. My arm is also more achy, but guess it will improve eventually.
BETTIE sorry you didn't get the option you were hoping for today and that you have to wait until next year to have a review. I hope you will be ok when you get back to work, what do you do?
JOAN hope all has gone well with your onc apt today, guess you will be busty packing that suitcase now.
CARABEL glad that you had a lovely holiday, don't think we will be seeing much sun here for a while, I am not surprised that you have tucked awawy the literature for a while.
DANI hope the rads planning has gone ok.My appetite seems to vary on a daily basis.
KQ hope they soon sort your internet access out following the upgrade.
WAITING TOO glad that all is going ok with you and that you have a plan for returning to work.
DULCIE hope all went ok for you at the RM today.
GEORGIE my finger nails are still horrid they seem to grow then the tips flake off.
PARAGYAN hope you have managed to sort out a holiday , now you have OH's results.
GABBYLAMB hope the skin infection has now gone away.
TWINKY hope the gigs are still going well and that things at work are going ok.
POPPY hope that your sore areas are starting to heal, and that your son is doing ok.
AMYLOU glad that the rads are going ok, hopefully you will be able to find a comfy bra soon.
MEGSMUM hope you have manage to sort your return to work so that you can have Christmas off.
CARE N hope you do ok now you are back full time,
PEANUT Hope you also do ok now you are back full time.
Hope everyone else doing ok whether having rads or herceptin or hospital apts, or just getting on with life.
Hope those we have not heard from in a while are doing ok.
Jane

Re: Marvellous Marchies 2012 Moving on

Afternoon ladies hope you're all having a good day. I've just returned from the hospital re having my hernia operated on as its giving me a load of pain. It appears that the operation could be complicated because of the tumour in that area and they couldnt rule out there being a risk of a colostomy. I am gutted as I so much want to get back to work which I will do in three weeks time. I'll just have to manage with pain killers. I was so hoping that it would be a minor thing. So I go back in Jan for more tests and then will have to make a decision on what to do. I could cry, with this on top of everything else.
Wish this could be a more positive post but am feeling really low.
Bettie xx

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Re: Marvellous Marchies 2012 Moving on

Morning Lovely Ladies

Just dropped hubby off to play golf and have to take car into local garage to get slow puncture sorted out. Bit of a pain but at least it's only a slow puncture. I don't know how many times my hubby's shown me were he thinks it is and what to say when I get there! Told him not to worry, I'm in control..............

Nice to hear everyones news and glad that we are all marching on with treatment and recovery.

Carabel - Glad to have you back and to hear that you have had a lovely relaxing holiday. Hope all goes well when you see your surgeon today. My genetics test showed no alteration to BRCA1 & 2 but they also told me, and no doubt you as well, that there are genes that they don't even know about yet. I can understand you not reading through the literature yet because there's so much to take in and we have already been through a great deal.

Mary (Peanut) - Hope your return to full time doesn't hit you too hard and you can get the rest you need as and when. I have a pink badge as well which was given to me by one of the ladies at the craft group I go to. She's been through it all to and understands what chemo does to you. She is a very talented lady and does all sorts of crafting things and is very nice. Her husband sadly passed away recently after heart surgery and it was a big shock and loss to her, but she still finds the time to be so helpful and supportive. It's nice to have such caring people around isn't it? I'm sure you will get your insurance sorted out and when you do let us know who with and if it was any hassle? I think this insurance business is one of the reasons we haven't sorted anything out to go overseas in the near future. My nails are OK at the moment and were getting to look quite good, but then a few of them started to break very close or below the nail line so I had to cut them back.

Joan (Patchit) - I'm good about whatever is organised on the day. We are going to get the train from Northampton because we will be stopping with my brother a couple of days prior to meet up and when we get back. It's an easier train journey from there and cheaper, not that that really matters. I expect that we will get there sometime mid afternoon on the Friday. It's good that the restaurant doesn't require a deposit anymore. One again, thanks for all the time and effort you are putting into this and I'm sure you will have a lovely holiday away, which is well deserved and much needed by you both.

Ladies I have to go now and take the car to the garage but I'm sending my best wishes to you all and will come back on later.

Beryl XX

Re: Marvellous Marchies 2012 Moving on

Hello Marchies
I have just spent ages typing post & doing personals only for it to disappear! I will try again but I apologise if I miss anyone.
I am back now from a lovely, relaxing two weeks in Corfu where the sun shone every day. Being away has done me the world of good and I feel really well. More or less like my old, pre bc self. I go back to work on Tuesday. I have been working most of the way through chemo and rads apart from five weeks after final chemo and two weeks after finishing rads right before I went on holiday so it feels like I've been off for ages. And I think because treatment is finished I feel like I am going back properly and getting back to normal. I still have quite a bit of annual leave to use so I might use it to work a four day week for a bit.
Joan - You really are a star for organising our weekend & it's good that no deposit is required. Makes things that bit easier. I am happy to do canal trip or anything else. Not sure what time I will arrive on the Saturday as I haven't booked my flight yet. Will get on to that this week & let you know.
Well done to your hubby for doing the Great North Run. Hope everything goes well at your onc appointment tomorrow. I've not yet heard when I will see onc but presume it will be some time soon.
Is it Wednesday you are off to Cyprus?
KQ - your worming story had me laughing out loud! I am glad your rads are going okay and hope that continues.
Beryl - Well done you getting back to gym. I will need to get started on some exercise soon. I feel so unfit and am very stiff when I get out of bed in the morning and when I get up from sitting for a while. Not sure if this has anything to do with chemo.
Ceej - Unfortunately I love Mediterranean food too. I have put on about 5lb whilst on holiday and that's on top of what I have put on since diagnosis.
Bettie - I am glad you are now finished rads. I understand your feelings. When I finished I felt as though I should be jumping for joy but I felt a bit down - like it was all a bit of an anti-climax. However, a few weeks on I feel really great.
I've also not had a period since chemo starting. I'm not on Tamoxifen or anything so not sure if they will come back or not.
Amylou - Glad your rads are going well and hope that this continues to be the case.
GeorgieB - I so sympathise with you about your toenail and hope you manage to get your wedding shoes on for the wedding. I have lost both my big toenails (one of the them twice) and a few fingernails. Currently one toenail and my pinkie nail are detached from the nail bed and only held on at the cuticle. Can't believe that I'm three months out of chemo and they are still coming off! They are still in terrible condition and are a horrible colour.
Chascat - I am sure you will enjoy Rhodes once you get there! I love the Greek Islands but have never been to Rhodes. I hope the sun shines for you.
Parsnip - That was a really good amount to make at your afternoon tea. How sweet of your little boy to raid his piggy bank. I really admire the ladies who have had to cope with young children whilst going through this. You have done so well.
Marie67 - Yes I was stretched out on sun lounger (but in the shade and covered in factor 30). Nevertheless I had a great time. I am so pleased you got such good news from onc.
Care-N - I am glad you had a great holiday.
Dani - Good luck with rads planning tomorrow and hope you get started soon. I found that the time went really quickly. As others have said, it is really easy compared to chemo. I hope too that you get a date soon for Phase 2 of your surgery.
I have an appointment with my surgeon in November to discuss possible risk-reducing surgery. Although I tested negative for BRCA1 and BRCA2 I have a strong family history. The Genetic Counsellor I saw has sent me some stats on the risk of recurrence and of another primary on the other side but I've not read through it yet. I feel that I have come so far and am now feeling normal that I don't want to be thinking about it all again.
Beryl/ Joan / Marie67 / Woltsy - Love the new pics. You all have so much hair. Mine has come on whilst on holiday but I still look like a baldy. I will try to upload a new picture too.
Off to bed now as am tired after a day of retail therapy!
Carabel xxxx

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Re: Marvellous Marchies 2012 Moving on

Hi Everyone
Great to hear everyone doing ok. It has been lovely and sunny here today but not done much as trying to rest as back full time from tomorrow!! I did 4 days last week and was exhausted by Thurs, laid in bed on Fri till 11am felt really lazy but needed it!!
Bettie- Good luck with your phased return, it is a bit scary going back after so long!! I was worried I wouldnt pick the work up but now I feel as if I never left!!
Beryl- Great to hear you are doing well. That is so weird about the Kipling bags because on Fri I took some stuff to the charity shop and they had some of the bags there but I didnt know the brand so went back today and told the lady what you said as I checked online also. They were selling them foe £3!!! She was very grateful for the info and took them back in to reprice them. She offered me one at £3 but I couldnt take it at that price so I said no!! Doh!! Bit daft maybe but it is a charity shop!!
Chascat- I have signed the Thunderclap, hope they get enough people to do it. Have a fab time in Rhodes, 6 weeks to my hol cant wait. Did you get hol insurance? Who did you go with if you dont mind me asking? I need to sort mine out.
Ceej- Enjoy your time with OH.
Patchit- when I went to get my last lot of Tamoxifen from the chemist they tried to give me another brand but listening to you all I refused and said I wanted to continue with the Wrockhardt brand as I havent had too many ses with this, mainly flushes. Chemist wasnt very happy at first but I said I would go elsewhere and asked for my perscription back but he eventually agree and as he is attached to surgery will make sure i have same brand all the time so thanks everyone for that info. The other brand may have been ok but i didnt want to tempt fate!! The canal trip sounds good Joan but like you say it will be nov so i dont see we would have any problem getting on one. Thats good also that you didnt have to pay deposit for the meal but thank you so much for doing all that, you are a star.
CareN- Good luck with going full time, I am going full time next week also, struggling a bit as been very tired but I have just been having early nights and am sure it will get better, will be thinking of you.
Danigirl- Good luck with your mapping session, you might find you will start earlier then you think. My appettite is not as good as it used to be, there are some foods I used to love before but now cant stand, particularly any soup makes me feel sick thinking of it as I had so much of it when i couldnt eat on chemo. Mind you I could do with losing some weight anyway!!
Amylou- Love your smiley faces!! They say so much, hope you ok?
GeorgieB- All my fingernails have now fallen off, new nails growing but they are very ridged, am hoping they are ok for my hols in Nov as got a spa day just before I go and supposed to be having a manicure!!
Marie67- i know what you mean about not enough time now we are back at work!! I cleaned the whole flat this morning not had time to do it properly since going back to work, too knackered also but pleased it smells quite nice now!!
Wolsty- What a beautiful profile pic. I keep meaning to put mine back up but I havent got a decent one that I would like to put up!! I hate having my photo taken!!
Parsnip- Well done on raising so much and how cute is your little boy emptying his money box, it just shows how well you have brought him up for someone so young to think of doing that so well done. I looked after my grandaughter for 2 days last week, loved it but was really tiring and all i kept thinking of was all you young mums with young children having to look after them whilst going through chemo, amazing how you managed.
Well off to sort tea out and watch Downton Abbey later, will need to record Homeland also.
Really looking forward to our meet up in nov, I have got my badge all ready, Pink of course!!
Thinking of you all lots, will try and get on more often.
Mary xx

Re: Marvellous Marchies 2012 Moving on

Afternoon Ladies

Hope everyone is ok. I am loving all the new pictures, Jane (Wolsty), your hair is so dark! I have just spoken to someone at the restaurant for November and they have decided that they don’t want any deposit after all!! She said she didn’t know why we had been asked for one and that they were happy not to have one. So, that’s all sorted out then! Bettie phoned the canal trip company but they wanted money up front £8 each. Bettie and I thought that there shouldn’t really be a problem if we just turn up, after all, it is November! Bettie also said that there are other things to do in that area, and art gallery and an Edwardian tea room to name but 2, so if we couldn’t do the trip for any reason, there will still be something else on hand. Is everyone ok with that?

Wolsty, Jane, glad you are getting your levels of fitness back again and have booked to go skiing. Don’t worry about not being fit in time, you can always just opt for the après-ski if you are still having problems!

Parsnip, well done on your fund-raising. Your little boy is going to grow up to be a thoughtful and caring person by the sound of it. Yes, he has had a lot to cope with, but it wont seem like that to him, so don’t beat yourself up about it. You have done a fantastic job, caring for him while going through your treatment. You always put him first and were an inspiration on this thread.

Danigirl, good luck for your mapping session tomorrow, hope you get your starting date confirmed. I cant say that I have noticed a lessening in my appetite unfortunately!!!!

Dulcie, hope your appointment at RM goes really well tomorrow. Do come back on and let us know how you get on. I think of you often and sending you healthy vibes. Xxx

Caren, good luck back at work full time tomorrow.

I have an appointment to see my Onc tomorrow morning, which is just a follow up as I had my rads at a different hospital. After that, I don’t have any appointments until next MARCH!!!!! Marvellous Marchies, Musketeers! March, March, March!!!!!

Off to do dinner and then sit in front of the box.

Have a good evening ladies

Joan xxx

Re: Marvellous Marchies 2012 Moving on

Hello Marchies
Joan - my mapping is tomorrow and as far as I know the RADS will start couple of weeks after. Will possibly mean I will be finished just in time before our Big Meet! Have a super time in Cyprus!
We went out for dinner at Jamie's Italian in Birmingham and although the food is amazing there I couldn't eat most of my food and noticed in the last few mornings not wanting breakfast even though I have always been a keen cereal and toast eater. Just wondered if anyone else on Tamoxifen is experiencing loss of appetite? Just never seem to be hungry.
Have been looking back at our very first posts on this thread and wonder where all the other ladies are?
Enjoy the rest of this beautiful sunny Sunday!
Love Dani XX

Re: Marvellous Marchies 2012 Moving on

HI Ladies,
Just popping in to say HI. Not much ahppening around here other then studies and daily rads - but I's take that any day than returning to chemo !

I'm very much looking forward ot seeing you all in Nov.

Woltsy if you want recommendations for youR Rome visit send me a PM.
hugs,
Clare

Re: Marvellous Marchies 2012 Moving on

Evening all,
the afternoon tea went well and we raised £100 which I didn't think was bad for a few friends having a social get together. My little boy did really well and raided his money box to donate after we discussed why we were holding it, bless him, I do feel he's had to learn a lot of more grown up stuff fast with all that's gone on, quite hard to believe he's still only 4 (nearly five though!)
joan - well done on collating all those orders, and thanks again for organising it. I think a canal trip would be nice, I haven't been to Birmingham since I was 11 when I went to the bbc studio to be on blue Peter! Think it's changed rather a lot since then.
jane (wolsty) - lovely pic, and more hair now as well, wow it's growing fast.
jane (marie67) - a great pic as well, you look so happy, must've been a good holiday
beryl - glad you had such a lovely day, it feels wonderful to enjoy time with friends again doesn't it
will try to upload a new profile pic myself once I'm back on the laptop. Hair is growing and I had the nicest comment for a while from my neighbour who came to the fundraiser who told me she hadn't realised I had cancer, she just thought my short hair was some edgy statement As it suited me. I gave her such a big hug for that one, so fantastic to not feel like I'm being looked at as a cancer patient, just your average joe living their life, made my day.
night all, thinking of you
xx

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Re: Marvellous Marchies 2012 Moving on

Evening Lovely MM's

Friend and husband have just left and we have had a really lovely day! Just wanted to let you know that I think new pics look great. It just goes to show how we are moving on!

Going to to get myself sorted out and ready for bed, then sit down to watch Strictly which we have recorded.

Night, night all - thinking about you.

Beryl XX

Re: Marvellous Marchies 2012 Moving on

Hello Marchies

Love the new photos so prompted me to upload one too. This was taken in August so have a bit more hair now which has a mind of its own!!

Beautiful weather in London today so I have been out for a walk/run. I'm enjoying getting fit again although it does feel very strange jogging with my reconstruction - it just doesn't move!! I have booked to go skiing with my family for New Year and my best friend is coming too so its an incentive to get fit. Not sure how I will manage as I am having more surgery in November (nipple construction and uplift to other breast) but my surgeon seems to think it will be OK.

Amylou - I have one bra that I find comfortable that I bought from my BCN. I have a port under my reconstruction (which will be removed in November I hope) that catches against any other bra.

Joan, well done on sorting out weekend - I think a canal trip would be great too.

Georgie B - I think I'm going to go to the carol concert - sounds lovely

I am feeling a lot more cheerful now -thanks for your messages of support.

Jane xx

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Re: Marvellous Marchies 2012 Moving on

Hello All
Well lovely weather here in Norfolk, have managed to get 2 loads of washing dry and ironed, it's so much more difficult to fit everything in now I am back at work. Finally managed to upload new pic it was taken on our hol in Somerset.
PARSNIP l hope your afternoon tea goes well.
AMYLOU I to find wearing a bre uncomfy so only wear it for short times if I have to, then whip it of when I get home.
JOAN you really are a star sorting out our weekend, I think the canal trip still sounds fab and quite reasonable.
Oh well off to supermarket now.
Jane
XX

Re: Marvellous Marchies 2012 Moving on

Eeek! Well, I have done the deed and sent across our order for November! I still need a couple of bits: Amylou, starter & main course choices (hope you haev been able to read me earlier post where I listed what is available), Waiting Too, accompaniment for your crumble and drink choice (actually, sure we can add this on when we get there!!).

I am going to ring them later today with the deposit and to see if they have any queries!

Have a good day ladies

Joan xxx

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Re: Marvellous Marchies 2012 Moving on

Morning MM's

Lovely day here on the east coast and looking forward to my friend and husband coming shortly for the day. We are going into Hunstanton for a mooch around and walk along the sea front. My friend is into quilting and she's going to get me sorted and started on a table runner for Xmas. Hope I can get it done in time but it looks quite simple and should be OK for me to do.

Chascat and Joan - Enjoy your forthcoming holidays! I think Lydia (Chascat) will already be on her way. Cyprus and Rhodes sound very nice, no doubt you will both have a great time.

Thanks for saying my pic looks good. I generally think my pics are awful and had my poor hubby taking loads before I was reasonably happy with this one. My hair is dark grey at the back and mostly on the top but have light grey round the sides and areas on the top of my head. My poor faded red is fighting to come out but is being overtaken by the grey. Mustn't complain at least it's hair!

My friends have just pulled onto the drive so must be off. Will try and get back on again later. Best wishes to all and have a great day.

Beryl XX

Re: Marvellous Marchies 2012 Moving on

Wishing you a fab holiday Joan x

Re: Marvellous Marchies 2012 Moving on

Hello MM’s

Well, its really pouring here at the moment! Hope it is brighter over the weekend, need to get some washing done! Also, once I have confirmed our food order for November, we need to decide about the canal trip. Do we all still want to do that? I think it will last about an hour and cost around £6.

Bettie, it looks like there are 2 different places you can do the canal trip from, Sherbourne wharf or Brindley Place. Being a local girl, I wondered which one would be nearer where we are staying? Do you know whether one is better than the other? Hope you had a nice afternoon visiting your work colleagues.

Caren, glad you had a good holiday. Your hair story made me laugh! Cant wait to see you!! Sorry, I was so confused by your text yesterday! I am getting on ok at work, but have been working all the way through when I could. Also I just walk down the road and don’t have a long car trip too. Could you maybe have a sleeping bag under your desk so that you can have a little nap?! I am sure you will be fine and soon back in the swing of things, although it’s daunting now, things will fall into place for you, I am sure.

Danigirl, glad you are getting your rads sorted out. I wonder whether you will be finished before we meet up? It will be good to get it out of the way now.

KQ, glad you have been chatting to the scary lady! My friend had to wear a full head mould when she had rads. And she had 30 sessions! And they screwed the mould to the bed once she had it on so she couldn’t move! I didn’t appreciate at the time what a big thing she went through really.

Amylou, I still have bra trouble and cant wait to whip mine off when I get home! Its such a nuisance! Hope you find something comfy soon.

GeorgieB, poor you! Hopefully the toe has time to heal in the next 2 weeks. Is the carol concert at St Paul’s Cathedral, or is the church a different place? I am going to have a think about going, saw it advertised in Vita and thought it looked like a lovely thing to go to. Will let you know if I do decide to go.

Marie67, Jane, how lovely of your work colleagues!

Chascat, I am sure you will have a lovely holiday. I’ve never been to Rhodes, but have heard its very pretty. I hope the sun shines for you and that you can put your feet up and relax. I am off to Cyprus on Wednesday so send me some sunshine across!

Carolyn, I bet your hair is lovely now. Last time I saw you it was so dark and think and that was weeks ago! Glad work is going well, its good to be busy again and have other things to think about and stimulate you again, isn’t it? Really looking forward to November, it’ll be fab meeting everyone!

I’m off to bed now, hoping OH doesn’t keep me awake with his snoring tonight. Last night he sounded like a walrus!!

Sleep tight MM’s

Joan xxx


Re: Marvellous Marchies 2012 Moving on

Evening everyone,
have been trying to keep up with posts, for some reason I don't feel like I'm keeping up with anything at the moment, feels worse than whilst I was having treatment! I think it's the school runs followed by not having the helping hands doing things like cleaning every now and again, made such a difference. I just feel like I'm chasing my tail now and I'm not even back at work yet!
joan and Beryl, your profile pics look fantastic, how beautiful, healthy and happy you both look, great to see.
amylou, I just had to buy a couple of new bras, had been putting it off for ages but had needed some before all this. My old ones as well as being rather worn beyond use, were digging in and hurting with the underwires. I found a bra in M&S that has moulded cups but no wires. You wouldn't believe it to look at it. But very supportive and so comfortable even with still delicate areas after rads. They were twenty quid each though, but I haven't worn anything else since getting them. They also have enough padding that they even up my wonky mismatched boobs so I look ok in clothes at least whilst waiting for my final recon.
lydia, hope you have a good holiday, definitely sounds like you need a bbreak and, what great news from the onc, fantastic for you 🙂
bettie, I had a couple of days a week ago with cramps, which considering I've had a mirena coil in for two years and no periods foHempstead of that rather surprised me. Didn't actually have a period so am just assuming its my body getting used to the tamoxifen and zoladex. Sorry, not very helpful, but I thought I'd let you knoforesight, I need some sleep as I'm doing a Macmillan afternoon tea tomorrow (not a coffee morning on 28 sep but its for the same cause!). Good excuse to get some friends ground for a natter And raise some money
xxxx

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Re: Marvellous Marchies 2012 Moving on

Hi ladies

Oh Chascat sojealous I'd love a trip to Rhodes, and you too Joan hope you both have a great time. Don't worry downloading to Kindle is so easy!

All well here back working full time, first few weeks manic as usual but seem to be getting organised now, for the furst time in 4 weeks i didnt have to bring work home. Although looking after 2 NQTs is going to be a long journey.

Loving your pics Joan and Beryl I must try to download mine I keep getting comments on how much mines grown and us curling at the back. I'm so looking forward to November only a few weeks away? Think I'll need a few drinks that night we are having bathroom and loo re done in half term so it'll be bedlam, but worth it.

Hoping everyone keeping well, it's really strange though as we move on with our lives how things slow down. I've got follow up yearly due in December. I saw my surgeon a few weeks ago so just need to wait for appt for mammo and MRI, had her follow up appointment through but not those yet.

Sending everyone hugs and good vibes.

Love Carolyn xxx

Re: Marvellous Marchies 2012 Moving on

Evening ladies
Just a quickie, i'm off to Rhodes tomorrow lunchtime - i'm really not that interested and have just thrown our things in the cases any old how, my manager is of the opinion that because i'm not interested in a holiday, probably means that I need one, I just hope I enjoy when I'm there.
Love to all
Lydia x
P.S Beryl & Joan, lovely profile pics x

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Re: Marvellous Marchies 2012 Moving on

Hello All,
Well after my good news yesterday I went into work today and my lovely colleagues had got me some gorgeous flowers.
CAREN glad that you had alovely hol, yes it's all the washing that you have when you get home that is not so good.
GEORGIE sorry to hear about your toe, hope it settles down soon so you can still wear your wedding shoes. We generally have a carol concert in Norwich around that time for Marie Curie.
DANI glad that you have got your rads sorted.
BETTIE hope you start to feel better, as Joan says it could be a change in the brand of Tamoxifen I have been lucky so far and my pharmacist has always got me the same brand.
AMYLOU glad rads are going ok.
KQ keep slapping on the cream the soreness tends to creep up on you.
Will try and update pic over weekend. Have ordered my badge for our weekend away.
Now going to have a glass of wine and watch Strictly later.
Jane
XX

Re: Marvellous Marchies 2012 Moving on

Evening - 2 weeks before the wedding and my toe nail has come off! I have been really pissed off as did Zumba and watched my diet throughout treatment and always planned to do loads of exercise prior to the wedding an now cant because my little toe is still really bruised.
Is anyone going to the carol concert on the 3rd dec at st Paul's church in London?
Have a good weekend love George xxxx

Re: Marvellous Marchies 2012 Moving on

Hi amylou

Not sure if you got my PM as I am not sure if you could open it on your phone. Just in case I am repeating it here:

Hi Amylou
Really sorry, I totally forgot you use your phone to post! The starters are prawn cocktail, garlic & herb mushrooms, sticky chicken goujons or aromatic duck parcels. When you say mixed grill, do you mean the 10oz rump steak? There isnt a mixed grill that I can see!! If you want the steak, how do you want it cooked?
Dont worry about the deposit, I am going to pay everyone's and we will sort it out when we meet up.

Thanks

Joan xxx

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Re: Marvellous Marchies 2012 Moving on

Afternoon lovelies
just a quick one while Sam is asleep. thinking of you all, finish rads a week on Monday think its the 15th. counting down the days now. lol.
New boobs are doing ok still not wearing a bra just can't find anything comfortable only vests so if anyone has any input on what they've found comfortable i would much appreciate it.
Better get the teas on.
Love to you all x x x
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Re: Marvellous Marchies 2012 Moving on

Re: Marvellous Marchies 2012 Moving on

Afternoon MM's,
Am loving the new piccy's Beryl and Joan fabby xxxxxx
Beryl...I finally got the lady who I thought had totally blanked me the other day and it turned out she was absolutely petrified of having the rads as she had to wear a full face mould for her particular type of cancer (not breast)...she was lovely in the end :)))
Care-N....Pleased you had a lovely holiday.....can'tr wait to sort something myself soon when I finsh rads. xxx
Marie67...Jane fabby news from your ONC really pleased for you xxxxx
Still have no Internet at home and probably won't all weekend till engineer comes out on Monday. Am still ploughing through the rads 9 down 10 to go :))))) Not sore at the min but reliased am a bit tender when when of the cats gave me a loving headbut in the boob last night :)) Sooooooo hope you all have a lovely weekend if I can't get on xxxx
Love n Hugs to all
KQ

Re: Marvellous Marchies 2012 Moving on

Good luck with that Dani - they're a nice team there, very friendly x
You're lucky with the Tamoxifen - I feel like I'm in the old Ready Brek advert most nights
If we don't catch up before I'll see you in Nov. xx

Re: Marvellous Marchies 2012 Moving on

Hi everyone
Have been off the radar but have been reading some of your posts.
I just wanted to give you an update and let you know I finally have a date for my RADS mapping. It will be next Monday 8th, 3.30 at Walsgrave in Coventry. Then it will be another couple of weeks before treatment actually starts...
My third week on Tamoxifen and only thing I have noticed is the mild pain in my finger joints?
My next appointment with my surgeon is 25th October and I will be asking about Phase 2 of my surgery ie nipple recon and lipofil. Feel like "Frankinstein's bride" and just want to get back to being me again.
Hope everyone is coping and look forward to our meeting in November.
love to all
Dani XX

Re: Marvellous Marchies 2012 Moving on

Hi Caren - glad you had a relaxing time x i work full time - have worked all the way through but with the obvious days off! Its tiring but i certainly appreciate the weekends x hope you catch up with your washing !

Re: Marvellous Marchies 2012 Moving on

Hello ladies! Had a fabulous holiday, lots of sightseeing and far too much eating and drinking (I put on another 5lbs, so the diet starts tomorrow!)
There were 118 new messages to read, you've been very busy, but it was good to catch up, lots of positive posts which is really good. Especially pleased to hear about good news from Joan and Marie, I'm getting nervous about my Onc appointment already and it's not until end of October.
My hair is now very light ginger, the dye that didn't rub off on my pillow (very embarrassing) has faded so much in the sun. I wish I had left it grey!
Really nervous about going back to work next week, my phased return is finished and I'm supposed to be doing full time - and I'm used to an afternoon nap on a sunbed! Carolyn, how are you managing? Is anyone else doing full time yet?
I've got an absolute mountain of washing to do, so will post later.
I thought about you all everyday while I was away, even though I tried not to! Hope everyone is doing well, not long til our meet up - so exciting!
Caren x

Re: Marvellous Marchies 2012 Moving on

Joan - just wanted to say I love your profile picture, you look great and you Beryl as well.

Off to make myself beautiful to go into work to see my friends. Its the last day before the building closes and we move further out the City Centre (thank goodness, I might spend less ha ha)
Bettie xx

Re: Marvellous Marchies 2012 Moving on

Evening MM’s

I‘ve been busy tonight, getting the i-pod’s sorted out for holiday. It’s a job I keep meaning to do but keep putting off! Also down-loaded some pictures from my camera so decided to change my profile picture. Beryl gave me the inspiration! This is of me and OH when he did the Gt North Run. He hasn’t got all the money in yet, but its over £600. The other technical thing I have to do is put a book on my new kindle. Hope there is an idiots guide to doing it somewhere!

Beryl, like the new picture, its nice to see your face again!! Excuse my ignorance, but what are Kipling bags? Are they bags to keep your apple pie’s in?! Well done on winning the raffle and that was a fantastic amount of money they raised at the coffee morning.

Ceej, have a nice weekend in Hull. Hope you are getting on ok at the gym, it’s my aim to start some regular exercise after our hols, although it won’t be in a gym! Your grandson sounds like he is into everything!

Bettie, sorry to hear you are low at the moment. I haven’t had any signs of a period yet. My last one was after my first chemo and I’ve no idea if they will return or not. I am 52 so its quite likely they wont! How long have you been on the Tamoxifen now? One thing I have noticed is a difference in brands can give you different SE’s (there is a thread on here somewhere about it). My first 2 packs were ‘Wrockhardt’ brand. With them I had some slight flushing but didnt really notice any other SE’s. The last pack I had were ‘Generics (UK)’. The flushing has been slightly worse, nothing to worry about really, but my mood swings have definitely been a lot worse. I have also had splits in my lulu skin and more discharge (sorry TMI!). My chemist is getting me the ‘wrockhardt’ brand back for my next pack!! Its just something to be aware of, maybe try a different brand, the one you are on might not agree with you. Its trial and error though and my mood swings might not be anything to do with the Tamoxifen, I might just be a moody so and so anyway!! Lol!

Marie67, brilliant news! That’s a big weight off your mind, isn’t it? I could almost feel the worry fading away when I was given the news. Hope you are celebrating?

I am going to be sorting out the food order for November this weekend. Its only 5 weeks away now!

Hope all our mm’s are doing ok, thinking of you all and sending you good health wishes

Off to bed for me now

Joan xxx

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Re: Marvellous Marchies 2012 Moving on

Evening All

Jane (Marie) - It was nice to speak to you and hear your good news! Now you can get on with things and it must be a load off your mind. Look forward to seeing you again in November.

Take care and best wishes

Beryl XX
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Re: Marvellous Marchies 2012 Moving on

Hello MM'S
Just a quick post, had my appointmnet with Onc this afternoon, had got myself into a bit of a tizzy before I got to see him. didn't help that he was running late.
The wait was worth it though. He told me my bloods were absolutely fine, and that I was now classed as cancer free and in remission. He does not want to see me again I will just be under the care of breast surgeon who I see in Feb.
Worked through my list of questions
My seroma but he said to leave it alone. He thoroughly checked my scar as I was worried it kept getting swollen and tight, he said it is the continuing effects of the rads I was last zapped 7th Aug, which can continue to work for some time, and has given me some hydrocortisone cream to apply.
Eyes can now be tested as 4 months post chemo
Flying he advised to wear full length support stockings and to take 75mg Aspirin 2 days before flying, which should help rule out the risk of DVT that can be caused by Tamoxifen.
Periods returning, as I only had 1 node involved he said there is a chance my periods could return in 2 years ( I'm at a funny age!!), not to worry about hormones flying round my body!!!!, but I may be given an injection to run along side of Tamoxifen.
Arm exercises he advised to continue them regularly for life just to help prevent lymphoedema.
Reconstruction would have to wait another year if wanted to go down that route.
So I am quite a happy bunny, although I am sure I will find something to worry about, and will probably be in a tizzy again when I have next OPA.
Hugs to all.
Jane
xx

Re: Marvellous Marchies 2012 Moving on

Beryl - well done you raising that amount of money for MacMillan
Feeling very sorry for myself today, I'm really tired and have been having bad period type pains (I stopped my periods a year ago) and wondered if this could be the Tamoxifen? Have any of you had anything similar.
Really cold so going to have a hot bath and get my PJs on. Going into work tomorrow for a drink with my friends and then back on a phased return in 3 weeks time. Dead scary when you've been off for 8 months.

Have a good evening everyone, sorry about the negative post
Bettie x

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Re: Marvellous Marchies 2012 Moving on

Afternoon MM's

Been into the local town and now back, obviously. Quite an interesting trip because I went into a hospice charity shop for a look around and saw some Kipling bags being priced up on the counter. I stopped and asked the lady if I could take a look at them? They had a whole load of them that someone had donated (lady sadly passed away) and obviously they didn't know what they were donating. Anyway, I told them that they had under valued them at £3.50 each, yes £3.50! Me and my big mouth I should have taken the ones that I liked and left the shop but I couldn't do it. Lady fetched the Manager and I explained roughly how much they would normally cost to buy new and they went and researched on the Internet. Needless to say they increased the prices quite dramatically and I advised them to put them in the window with a big sign. I called back in there later to see how they were doing with them and they had already sold a lot of them. So I think that was my good deed for the day and they were very happy! It just goes to show that you never know what is going to turn up in charity shops! Kipling bags aren't everyones 'cup of tea' but I do know that they have quite a following and are pricey.

The MacMillan Coffee Morning that I went to yesterday raised the fantastic amount of £740, which is really great. I purchased a raffle ticket and won a big bottle of Southern Comfort 100% which will come in useful. I don't drink it myself but know several friends that do, so it will go into our store cupboard. I think if I were to drink it I would soon be on the floor!

KQ - I laughed so much about your giving your hubby the cat tablets - what a scream, you are so funny!

Ceej - It will be interesting to hear what the Onc says to me on the 17th when I have my follow-up appointment. I must make some notes before I go otherwise I will forget to ask questions. I hope it's not just how are you and goodbye and they actually check me over. If they do I think I will contact the BCN to see if she will check me over. I don't get to see anyone else until January 15, which is the surgeon. I'm hoping I will get a mam before then so he will have the results, otherwise I don't see the point of then having to go back to see him again. Enjoy your chilli and time in Hull.

Bettie - Well done on finishing your rads and getting through the tunnel. I know what you mean about finishing treatment and feeling in limbo. It will soon pass and you get into another routine. Don't forget to keep slapping on the cream. I'm still doing it and I finished 26th July, but only twice a day now. Haven't had any problems with break down but did get a slight bit of skin peeling to my lower arm pit, which didn't need any treatment.

Got to be off to get my washing in and think about dinner. Hubby away to golf tournament but wont need anything, so I will probably just have something very simple.

Love and best wishes to all.

Beryl XX

Re: Marvellous Marchies 2012 Moving on

Hi MMs
Twinky – great to hear the gigs are going well – keep us posted with dates and venues as I’m around the Midlands but up in Hull this weekend so cant make Sutton Coldfield. What sort of music do you play? It is really hard to put yourself first – I think it’s ingrained in us women to care for others more!
Carabel – hope you’ve had a lovely holiday – I love the Mediterranean food – which is why I’ll never be a size 8 again!!
Beryl – Well done on raising all that money. And well done on getting back to the gym. I went running last night again – it’s so hard to get motivated especially as winter is looming, but I found this local running group and they are very friendly and let me walk a lot! As for my hair – I’ve bought another colour as it’s grown a bit – I’ve used about 3 on it so far with no problems. I even had my eyebrows tidied up the other day – I’ve never plucked them or anything as they have always been blonde so you cant really see them – but when they grew back they were growing upwards and I looked like Ted Heath! Nice to have them back tho. My OH keeps on about going to Australia too but I worry now about DVT that we are more prone to thanks to chemo and Tamoxifen – suppose I’ll always worry about something!
Chascat – Hope you enjoy your holiday – thanks for the links, have read the blog and will do the necessary.
KQ - At least OH wouldn’t be dragging his bum along the floor ha ha. I never did anything like that to my OH but I did once make a spaghetti bolognaise and put nutmeg in it by mistake – I couldn’t face eating it, but he ate it and didn’t say anything. Good luck with the rads and hope you don’t get sore like me – they only told me to put cream on twice a day and it was difficult to do it more often when am at work all day, but the gel and dressings I got really do work, and I just have a brown boob though it’s peeling a bit.
Pachit – I’m halfway through book 3 and have found SO many parallels between the story and my OH – the nice parts of course! Even to the point where his ex- wife called him a “control freak” too! So I’m actually enjoying reading them for a change to my usual horror books! I keep telling him things that Christian has said and said “that’s exactly what you would say or do!” Anyway, he says not to look out for his autobiography as it’s already been written ha ha. Agree with you about the frequency of what they do in the books – obviously EL James is not speaking from experience!
Good idea about alternating between Turkey and Rome – I am expecting to have visitors!! I would love it, so you’ll have to keep in touch!
Thanks for organising the get together – am looking forward to it..
Wolsty – virtual hugs to you – so sorry about your friend, it must have been a shock x
Marie – well done to you getting up at 6am for work! I struggle to get up at 8am and even then I could turn off the alarm and forget work. I use an electric shaver now too – not that good. How did it go with the ONC? I’ve got my appointment on the 18th and I just don’t know what to ask if anything. The BC nurse says she wants to see me to talk about what to look out for – hmmmm
Waiting too – Sounds like a great weekend away. I have regular sports massage for my shoulder and I found my boob was particularly sore when I got up – having been on my front for an hour so I know the feeling!
Socks – Hope you’re feeling better. They sound like they really take care of you up there – I saw a counsellor once who was pretty much no use to my negativity and said I was realistic like her. So I still hide under that banner of being realistic when my OH says I’m being negative – ho hum. Looks like I’m up in Hull this weekend as someone is renting out his top floor flat and we have to go and furnish it quickly.
Megsmum – I’m a grandma too – he’s 15 months old and certainly makes me late for work every morning! I make myself, my daughter and him a cup of tea, and he insists on taking out every bit of my makeup and moving it around the bedroom.
Bettie – soooo glad you’ve finished rads. Onwards and upwards!
Nearly the weekend – yay! I got to make a chilli tonight to take with me to OH tomorrow so that we can eat a LITTLE bit healthily! Will do gym tonight first tho, the weight is firmly sticking – I think it must be because of the biscuit tin in my office – why do I have no will power!!!!!! or it might be the cheese and biscuits and red wine I had last night. Life is for living!!
Hope all ok with other ladies who are probably lurking like I usually do – Dulcie good luck at the RM – Amylou hope you’re ok too.
Head down and work to do now xxxxx


Re: Marvellous Marchies 2012 Moving on

Hello MM’s

Hope everyone is ok. It feels like Autumn is well and truly with us now! Lots of ladies not posted for a while now, hope everyone is getting on with their lives and trying to put the last few months behind us. I do think mentally it will be harder to move on, I suppose that is to be expected though.

Megsmum, really pleased for you that you are enjoying being a grandma. I am sure you are a big help to your daughter and I am sure the baby has taken your mind away from bc, which is a really good thing!

Beryl, well done on getting back to the gym. Hope you have some progress with the weight loss soon. I think you have asked about the ‘Mr Grey’ books? Yes, they are rather racy, to put it mildly! They are marketed as ‘mummy porn’, I think they are really quite funny and if I am honest, boring! The main characters ‘get it on’ so often, I cant understand how the woman doesn’t have permanent thrush and walk like John Wayne! Its also not very well written, grammatically, which is annoying. Having said all that, I will persevere as I want to know how it all ends!!!!!

Ceej, sounds like you had a fab weekend with your lovely OH! Its great that you are thinking about making plans into the future. Can I come with Peanut to visit you too? We could alternate between you and Waiting Too in Rome for our marvellous marchies meet up’s!! Hope your skin is soon healed and you can do away with the dressings.

Dulcie, lovely to hear from you and I am keeping everything crossed for you that your appointment at RM goes well. I hope you get some answers and some plans for the future. Your lovely vet! I am pleased for you that your mind is now at rest regarding your little dog. I am sure its something no-one wants to think about, but I can totally understand your fears. Hope OH gets his treatment sorted out soon, it seems to be dragging on! Hope you have a nice time at the secondaries meeting, I am sure it will be lovely to meet other ladies in a similar situation. Take care hon and let us know how you are doing. Xxx

WS, that’s great news about the accommodation you get when you go for rads. I am very pleased for you that you are getting everything in place and will soon be done and dusted.

Peanut, nice to hear from you, but sorry you have been so busy! I am sure it will take some time to adjust to working every day and running the home again, like we used to. I resent being so busy really and would love to take it a bit easier work-wise. Cant see that happening for a while though! Thank you for your lovely words about our thread, our marvellous marchies! You speak for everyone, I think!

Chascat, thankyou for the links and info you posted. I have signed the petition, but dont do facebook or twitter.

KQ, glad to hear you are getting through your rads and Herceptin. Shame about yoru technical problems, hope they are soon sorted out. You are a naughty girl, but you did make me laugh with the worming story!

Bettie, I have been thinking of you for the last couple of days, wondering where you had got to! Well done on finishing your rads. Its normal to feel so emotional coming to the end of active treatment. Big hug, keep that smile on your face and you will soon be getting on with your life again.

Marie67, good luck with your Onc tomorrow, I am not surprised you have a long list of questions. Its my turn next Monday. Got my next check up appointment through the other day for next March. No hospital for me for 6 months! Woo hoo!!

Caren I hope you had a good holiday, Carolyn, hope work is going well. Carabel, are you back from hols yet? Parsnip, how are you doing? Rae, Carmy, Danigirl, Amylou, Wolsty, Jayjay, Angelhearts, Pargayan, Poppy D, I hope you are all ok. I often think of you all, and I am sure there are others who have slipped my mind, sending you all good wishes and good health and a big hug.xxxx

Sleep tight MM’s

Joan xxx



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Re: Marvellous Marchies 2012 Moving on

Hello All
Well geting myself psyched/worked up to see Onc tomorow afternoon, I've worked out I haven't seen him since May just after 4th chemo(seems a lifetime ago now!), so have quite a list of questions.
BETTIE you to have crossed the rads finishing line, it does initially seem strange not having daily hospital visits after such a long period of time, but you do adjust.
KQ that was so funny re your OH. Glad that the rads and Herceptin are going ok.
WS glad that you have your rads sorted and the free accommodation sounds a great idea.
DULCIE lovely to hear from you, hope that your temp is behaving and that your eyes have recovered from the dogs drops. Hope all goes well on Mon at RM, hopefully you will get your OH 's sacn sorted.
CEEJ sounds like you had a lovely weekend, and that you are looking at long terem plans for the future.
BERYL hope the coffee morning went well.
JOAN hope you are all set for your hol, not long now.
Well OH now off to work so me and the cats will have the tv to ourselves!!!!
Hugs to all
Jane
XX