Marvellous Marchies 2012 Moving on

[Guest user]

Evening Lovely Ladies

Megsmum - Sorry you are feeling down with your emotions but I can understand that perfectly. I'm not sleeping too well at the moment either because I have this darned hospital appointment on my mind and I know tomorrow night will be awful. I wouldn't want to go down the anti-depresent road either and I just try to keep myself as busy as I can to take my mind off of things. Today I went into the local town with my hubby and had scone/coffee then home for lunch. I spent the afternoon working on a table runner for Xmas which is part of a quilting project I'm learning about. I know that isn't everyones cup of tea but I enjoy craft work and it certainly occupies your mind. I've ditched my wig also and it's been back in its box for a couple of months now. Not sure either about colouring it again now I'm used to the different shades of grey and very faded ginger, time will tell. It needs a trim to get rid of the chemo ends but I have a natural wave to my hair which at times looks quite interesting. Sending you a big hug and best wishes, chin up!

Wolsty - Well, white van man disappearing into the distance sounds awfully familier to me! Pitty you didn't get his number plate, or did you. That's an offence leaving the scene of an accident which you probably know. Stupid person going off like that! Hope you are OK after that experience and you can get everything sorted out with your car.

Socks - How many rad treatments have you got to have? I had 15 plus 4 boosters altogether and my skin, although sore, didn't breakdown which was a relief. Keep slapping on the cream which I still do but only twice a day now instead of 6 to 8. Glad you got some good accommodation to stay in whilst you are having treatment.

Bettie - Nice that you were able to meet up and have lunch with your sisters. I wish mine lived closer but they keep in touch with me on a regular basis. I speak almost everyday to my twin sister in the States and she is very encouraging and positive. Happy Anniversay for tomorrow and I'm sure you will enjoy your meal no matter where it is. We've been married 33 years and they have been good ones, he's a good husband and father.

Ceej - Think I've asked before but what is the Bowen tech'? If it leaves you feeling like that it must be heavy going. Did you dye your hair yourself or get it done in a salon? I need to go and speak to my hairdresser about it when I go in for a trim soon. Can't make up my mind about having it done before the meet up or to just leave it.

Danni - Pitty you can't be with us for the evening meal but at least you are able to come and join us for some of the day, which is great.

Have to go now before my tea gets cold. Night, night everyone and take care.

Beryl XX

[megsmum]

Hi all i have'nt posted but have been keeping up with you all, I am having a bad time at the moment with my emotions and find myself crying a lot and not sleeping just like when i was first diagnosed, my onc suggested antidepressents but i was not keen, can i ask a personal question please and won't be offended if no one answers has anyone had them and did they help, i cannot go back to work and cry with the patients lol.
I have spoken to my manager and am using holls when my sick note runs out in Dec so will be back on graduated return beg jan one year after diagnosis.
I have ditched the wig as i now have 1/2" of soft grey hair i think i might not bother colouring it after this and keep it very short too.
Keep strong everyone xx

[wintersocks]

Hi Jane (Wolsty)

Yes, that's how it is a sunburn feeling it's so tender, my arm is pink'ish and a bit swollen too. But no hand swelling, so hopefully not L.
White man van is a problem all round isn't he? I do hope you enjoy Sheffield it is a very vibrant city, my other half's nephew is at Uni there.
5th rads just done and no s/e as yet. I am staying over in the hotel tonight - very nice. I am currently in Starbucks, Leeds tap tapping away on my laptop (looking important).Well, tryin to but what with the baldy look and jeans and trainers, not quite living it like the other ladies in here .Oh well.
Ceej - my relationship breakdown was nearly 3 years ago - thankfully am now with a much nicer caring man. Tother was a workaholic. - What a bore that was.
WS

[Bettie]

Jane- re White Van Man, what an idiot!! Can relate to how you feel about medical appointments but hey at least we are keeping people in jobs!!
Had a lovely lunch out with my two lovely sisters. We're all very close which is great. Lots going on this week. Tm have been married 20 years, blimey you get less than that for life ha ha so hubby taking me out somewhere nice. It better not be Wetherspoons, I know whats he's like!! Whatever anyway and its the thought that counts.
Can't stop internet buying at the mo and I'm on half pay and should be economising. I just get drawn in and love it when stuff arrives in the post. I feel like its my birthday or Christmas!
Must go anyway
Bettie xx

[Ceej]

Afternoon all!
Wolsty – don’t believe that bloke – how dare he! Guess he wasn’t insured or something! Hope you can get it sorted. Have a lovely time with your sister tho – I’ve recently made a conscious effort to call in on my brothers and sisters tho am still trying to arrange to see my eldest sister as she’s never at home!
KQ – Wow wish I was a size 8/10 – sooooo jealous!
Bettie – hope you can get your pain sorted – it must be awful after having gone through all of this BC business too.
Ever since my “friend” did Bowen technique on me last Monday everything hurts! I get so scared as now I’ve got pains in my arms as if I’ve pulled every muscle in my body! Not good as I only managed one session at the gym last week. Am seeing her tonight and will see what she says, but every new pain makes me stress!
Dani – hope RADS go ok xx you’ll have to let me know what time your appointments are in case I’m passing x
Pachit – Gosh I remember Whipsnade Zoo from when I was a kid – I don’t even know where it is ha ha! I haven’t really had a problem with frenemies as since being made redundant by Mr Cameron I don’t really have any people I would class as friends anyway – my schoolfriend who was my best friend for years lives miles away so I’ve only seen her once. I suppose working full time and spending the weekends with my OH means I’ve never really missed close friends. My mum was always my best friend and when she went that was it for me L
WS – sorry to hear about your relationship breakdown and home troubles….my back is ok I guess – I shouldn’t moan about my minor troubles – I wasn’t discharged by my ONC tho and I read here someone else was discharged. I wonder why I’m seeing him again in February then plus apparently seeing the surgeon hmmmm.
Amylou – excellent weight loss – I started again today but then went and bought a milky way – doh!
Beryl – good luck on the appointment – we’re all sending positive vibes x
Twinky – I’ve coloured my hair about 3 times now, I couldn’t stand the grey anymore!
Virtual hugs to everyone xxxxxxxxxxxxxxxxx
Carol

[Wolsty]

Hi ladies

WS - I have a feeling of sunburn on the underside of the top of my arm - it's not red but then I don't think yours is either? According to my team, this is as a result of the full node clearance and nerves being disturbed. Hopefully it will settle down with time but then again it might not!!! I have also been told that lymphodema would definitely result in swelling of the hands and fingers - not sure if that is correct. I just keep permanently testing that my rings will still come off! I hope for your sake that its not Lymphodema. Hope the rads are going OK.

Beryl and Carabel - I have been thinking of you and hope that both your lumps prove to be nothing. Being back in the waiting room is not a fun place to be I'm sure.

Amylou - well done on weight loss - please pass my thoughts on to Dulcie too.

Ceej - white man van reversed into my car this morning whilst I was driving back from dropping my girls at school. I pulled over, I thought he did too - and then he just drove off leaving me with a dent on my front wing!! There was a lady who saw it all too and we were both left standing there open mouthed!

Just been for my 5th Herceptin and now got the dentist. I'm fed up with medical days.

Tomorrow I am catching the train up to Sheffield to visit my youngest sister for a couple of days so really looking forward to that.

Jane x

[Kittyqueen]

Morning MM's
Thanks for the update Lydia xxxxxxx
Had a lovely lunch with friends yesterday and thier daughter whi is almost same age as me bought me a lovely pair of fleecy spotty pyjamas...in size 12/14...I am 8/10 usually.....soooo if you see a baldy flapping around looking like a demented dalmation...tis only me lololol I do love them though they are so large and comfy...not the sexiest gear in the world but who cares !!!! I may bring them to the meet up in case any strange men are about :)))))
Wintersocks...Pleased Rads seem to be going well for you xxx
Bettie... Sorry to hear you are still in pain xxxx Big Hugs xxxx
Right...still suffering with this cold so rang chemo unit as go for Herceptin tomorrow... said ok and will probably be put in solitary :)))
KQ

[Patchit]

Thank you Lydia! Its great to hear she is ok!

Dani, shame you cant stay with us for the evening of our meet up too, shall I cancel your meal booking?

Bettie, you are quite right re friends. its hard to think of some people in those terms though. For me, this was a long standing friendship and it came as quite a shock to realise what was going on. In hindsight, I have been able to see that there were warning signs a long time ago but she had always been such a big part of my life I didnt want to recognise what was happening. Anyway, its been a lesson learnt for me and like you, fortunately I have met lots of people who have really supported me which I did not expect. I am really sorry to hear of the pain and discomfort you are in from your tumour. I keep my fingers crossed for you that you get some good news soon and your treatment plan is sorted out.

Night, ladies, sleep tight and sweet dreams

Joan xxx

[chascat]

Evening ladies
Amylou, thank you for letting us know about Dulcie, this disease is so cruel, please pass on my love.
Just noticed on the Sing for your life website somebody has added a comment about their friend Jay who was in the choir http://www.channel4.com/programmes/sing-for-your-life/episode-guide/series-1/episode-1

"Jo on 13 October 2012 at 22:22

Dante with a attitude as negative as yours you really could do with something positive to lift your mood, like joining a choir perhaps. Anyway lets not feed the troll anymore. Im so looking fwd to seeing this programe as my friend Jay is in it and the last couple of times Ive spoken to her she has been brimming over with so much passion and love for how much this choir has changed her life. She has a wonderful family and friend network who have helped her through the last year but I think doing this has lit a little flame of, Yes, positivity in her soul. I hope they get a record deal and go to number 1 like the soldiers wives did last year. Good luck and break a leg toall the performers x"

Hopefully we can all stop worrying about her now!

Love Lydia x

[Bettie]

Joan - re your friend, if there is one thing that this whole thing has taught me is that not to surround yourself with people who bring you down - life is too short. The funny thing is some people I hardly know or have never even met (my husbands work colleagues) have sent flowers, messages of support etc and a few people I know really well just havnt bothered and I just cant be a..... with them anymore.
WS - sorry to hear about your family - not talking about BC just isn't helpful. My Mum is 83, lost my brother when he was 44 and when I was diagnosed I thought my parents just dont need this but they have been amazing. I have felt really guilty at times and still do with my current problems but they've been great.
Had a lovely day today. Dosed myself up with painkillers and met an old school friend and her hubby for lunch and a nice walk. Felt in a really good mood.
Still stressing about going back to work, only in terms of how I will manage painwise as its very painful to sit as my tumour is in my lower pelvis but I'm really hoping that keeping busy will take my mind off things and I am only doing a phased return until Christmas. I'm then going back to see the Consultant beginning of Jan and really hope that we can get something sorted that dosn't involve an operation and very possibly a colostomy. I just wish that I could move on after the last 8 months and feel like I have taken a massive backward step. Sorry to be depressing but it helps talking about it on this forum.
Have a good night everyone, don't forget Downton Abbey!

Bettie xx

[Danigirl501]

WS - What a lovely post! I start RADS tomorrow. In reply to your question re swollen arm and redness like sunburn, I can say I haven't experienced this at all.... Your surgeon should give you appropriate diagnosis and treatment for your poorly arm.
Joan - I think I can only meet on Saturday during the day. Hope this is Ok.
Sorry to hear Dulcie is suffering my heart goes out to her.
love
Dani xx

[Patchit]

Evening Ladies

Had a lovely time at Whipsnade zoo, but came home really shattered. There is a lot of walking to do there! So I have had an hour’s nap and have just put the veggies in for dinner. Youngest son has just been up cadging money again, fortunately I was still in bed so didn’t see him. Goodness, that sounds awful, doesn’t it?! I must tell you all too, if you remember I was having problems with a friend of mine not so long back. WS, I think it was you who called her a ‘frenemy’. Well, I broached the subject of how she had been making me feel probably 4 weeks ago now. She was very defensive, didn’t acknowledge how she had been with me over my hair and boob and consequently we have had no contact since then. I have come to realise that this is the best thing even though it is really sad, we had been friends for about 30 years, but she just couldn’t understand anything to do with how things have been for me.

Amylou, hope the party has gone well!

KQ you have been lucky with the weather, it has been quite cold here and I could have done with my hat and gloves at the zoo. Hope you had a nice lunch at your friends.

Beryl, glad you have got your hospital appointment through quickly but its such a horrid thing to be going through. I totally understand your worries, when I had my mamm it felt like everything was starting all over again. Of course, it wasn’t, but its just how it makes you feel, isn’t it? Is it an ultrasound you are having? At least you will get the results immediately if it is, none of that hanging around waiting. Same goes for you Carabel, needless to say, I will be thinking of you both as I am sure will everyone else. Xxx

Twinky, what a lovely thing for you and the Claredroppers to do. I am sure its hard but it must also give you some comfort in a way. Glad the port removal was ok, hopefully it will soon heal up for you. Well done with the weight loss, always its easier to put on than loose!

Carabel, will be thinking of you tomorrow, please post as soon as you can to let us know how you get on. I am sure as WS says, you will have lumps and bumps that weren’t there before surgery, but it still needs checking out.

WS, glad you have had a lovely day. I have also been signed off by my Onc and am under my surgeon now. I have been told exactly the same as you re future scans. I did query it at one of my check-ups but was told the same thing as Ceej was told. Not all that reassuring I suppose, but something we will have to learn to live with. It was lovely to see Jayjay, I miss her posts on the thread. As far as I know she was booked for 2 nights for our weekend. I have PM’d her but not heard anything back. I think Beryl was going to PM her too so we will just have to hope she is ok and gets in touch. It would be lovely to see her too! Yes, the prosthesis is heavy! I have got used to it though, but I don’t think my boob weighs that much!! My arm is still numb at the top but isn’t swollen. Hope yours sorts itself out soon and isn’t Lymphodema. There will be 18 of us at our weekend plus 2 coming during the day. That includes Jayjay.

Right, dinner is calling at tv night tonight. Wasn’t Downton sad last week?!

Joan xxx

[wintersocks]

Hello all,
Just returned from a lovely afternoon sitting outside with my friend in a lovely cafe, and that lovely sun. So, I thought I'd catch up and see how you all are.

Amylou, thanks for letting us all known about Dulcie, it is very upsetting to hear about her not being well, she has been incredibley resiliant after all she has/is going through, she so needs a break. please let her know we do all think of her often.
I do hope your party has gone well, and most importantly you have resisted those yummy sausage rolls? - However having been so good and lost that weight - I do think you can sneak one or two - yeah go on!
Ceej: your oncs response seems pretty standard re scans. They don't appear to re-scan unless you are symptomatic. I am surprised a number of you still seem to be seeing the oncs. I was discharged from mine after chemo and am being looked after by the surgeon. I was told there is only a referral to the onc if there appears to be something suggestive of recurrance of cancer. That doesn't seem right to me. I do hope your back is better.

Beryl: Without scrolling back and just reading your last 2 posts I'm assuming you are having the ultrasound cos you think something is amiss? If that is the case I think it is important to remember that following a b/c dx and especially at the surgery site it seems we are almost certainly going to be getting curious lumps and bumps. Hopefully that is what it is for you. I know you will come back and tell us and you know we will be thinking of you on Weds.

Gabbylamb: As others have said please don't worry about not being a frequent poster. You must do what you feel able. It is understandable that you want to move away from the forum _ I do to at times. At the moment though for me I stll feel that the only people who understand are the friends on here. I do still need that support and I hope I am supporting others too. I to have had a relationship breakdown, and as we speak I am under threat of losing my (marital) home. My 18 year old refuse3s to address the cancer issue. I have stopped contact with my Mum and sister too. My Mother "I don't need this at my age." My sister failing to turn up 3 times. It has been a deeply horrendous year.

Joan, It sounds as if you had na very enjoyable holiday and that you have returned re-vitalised. Re jayjay, no I am not in touch with her I was just telling someone on here that it was her in the choir. It was so lovely to see her wasn't it? I do hope she is ok and it would be lovely if she were to come on our weekend. Is she booked to? The prosthesis is Mad or what? It is just so heavy. I must say that (dressed it looks pretty good) Although one has to be careful of the clothes choice to not show it off. But most of the time I forget it's there. I am however looking forward to the recon.
KQ- I too am still obssessed with the eyelash/brow/hair issue. Having eyelashes makes such a difference in making us look less "ill" - who would have thought they could be so significant? My hair is too too slow to come back (still more on the sides than top)

Caren: love your friends response! how refreshing to get such an honest and open/funny opinion. God I hate that usual "you have a lovely shaped head/you really suit being bald" guff.

Twinky: what a lovely thing to do, planting the snowdrops for Clare, How thoughtful you are. I am pleased to hear about the hair dyeing going ok. Mine is too short for that yet so I am with you there Mary - but I will have to think about what to do with it. Has it come back curly/different texture?
Carabel: just read you have a lump as well. Oh dear. I do think this is going to be the way for us now. I am certain that post-treatment it will happen for me too. I hope as with Beryl it turns out to be nothing.
I am returning to the hospital tomorrow for my 5th rad. So far all is fine. I am forgetting to put that aq cream on half the time! whoops. /Wolsty/Dan/Joan and any one else who has had an mx, quick question Did you have a sore swollen arm (that feels like sunburn) approx 1 1/2 months after surgery? I now seem to have 2 opinions on the lypmhodema issue. I am on antibiotics from the L nurse, but the doc at Leeds says it isn't as my hand and fingers aren't swollen. I don't know what to think??? but I am bookedo go back and see the L nurse when finished rads.
Dani - Have you started rads yet? - think you must have.

Lydia - Lovely lady are you ok?

Love WS

Love to all who no longer post - just in case they still read.

Joan - how many of us for the weekend?

[Guest user]

Hi Everyone
Sorry not been on for a while. just finished my 3rd week of full time, still quite tired as work very busy also.
So sorry to hear Dulcie not well my thoughts are with her as they are with you all every day.
My eyelashes have grown back well but hair still very slow. I would like to colour mine before my hols but not sure if there is enough to do!!
Caren- The skin under my boob broke down with rads, its healed now but gets very itchy so much so I had to take an anti histamine the other day. I see onc on the 30th so will have it checked then hopefully.
Amylou- Well done on losing weight, I dont have the energy at the moment to exercise!!
Beryl- hope all goes well with your appt. Every ache and pain is a constant worry after what we have been through, thinking of you. Let us know how you get on.
Looking forward to our meet up.
Take care everyone
Mary xxx

[Guest user]

Just want to send a massive hug to Our lovely Dulcie, I hope you are getting all the support that you and your OH need, and that you get painfree soon. Thanks for letting us know Amylou, hope the party goes well.
Jane

[Bettie]

Beryl - good luck with your hospital appointment. I'm sending positive vibes to you and I'm sure you will be ok but it dosn't stop us worrying. Big hug.
Bettie x

[Carabel]

Morning Marchies

Beryl sorry to hear you have a worrying lump as well. I am sure we will both be fine but as you say its really hard not to worry. I am managing not to think about it too much but every so often feel a sense of panic thinking how happy I am with my hair growing back, my eyelashes coming in and my energy levels getter better and dreading it all being snatched away again. I am keeping everything crossed that we both are reassured next week.
I have not used my breadmaker for ages and your talk of it has put me in the mood however this will not help me lose any weight so will try to resist!

Joan - glad o have you back and pleased to hear you had a nixe relaxing holiday. I wll check with Waiting Too about her flight arrival as you suggested. It would be good to have some company on the train.

WS - I am pleased your rads are going well

Gabbylamb - you mustn't worry about not posting. You need to do what feels right for you.

Care-N - what a nice picture! I did a lot of walking before as well and have not done a great deal over the last year. I used to walk to and from work most days which took an hour each way but have moved location and its not possible now. I really miss it as it was an easy way to get the excercise in.
Hope you bought lots of nice things yesterday. I like your friend's sense of humour!

KQ - Great news about your eyelashes. I still feel so excited that I can
wear mascara again!

Bettie - glad you are feeling happier and I hope you are not in much pain.

Marie67 - thanks for badge link.

Amylou - 11lb weight loss - well done. I am trying hard... So sad to hear Dulcie is not well. Please pass on my love. I miss her funny posts and wicked sense of humour on here. Enjoy the party today. I am now fantasising about sausage rolls lol.

Love to all
Carabel xxx

[Guest user]

Hi Ladies

Firstly massive hugs for Dulcie. Thanks Amylou for updating us. Hope that you tell her we're all thinking of her.
KQ...eyelashes....I was very excited to get mine back, they seemed to come out of nowhere. They'requite long & dark now. I also have a confession to make....I dyed my grey hair! I used a light brown Loreal one that covers grey hair & it looks very natural & much more my age! It helped with the confidence too. I felt it was ok to do it despite my hair being short as it's pretty thick & strong now. The original wispy fluff has gone.
I'm trying to lose weight too. Shifted half a stone but getting no further as I'm not really being good enough. Need to carry on, have a lot to lose before I can have my reconstruction next year.
My portacath was removed Thurs under local anaesthetic. They did however give me a sedative...and that's the last I remember!! I now have 3 stitches & feel a little sore/battered but not too bad although it's difficult with the site being at the top of the boob because whenever it moves the scar affected.
I had lunch with some of the Claredroppers yesterday in Clare's favourite pub. We went to the church & her grave to pay our respects first. She has a beautiful pink rose marking the spot. I went back later to plant Clare's favourite snowdrops & when we meet up again next Feb they should be blooming. We all wore her favourite colour turquoise. Was lovely to see everyone & talk about happy times with Clare.
Right well I have the outlaws coming for lunch so need to go put the leg of lamb in for a slow roasting!
Love to you all
Twinky x

[Guest user]

Morning All

Very grey morning here on the east coast but hopefully it with brighten up as the day progresses.

What horrible news about our dear Marchie Dulcie, it just makes me want to cry! Dulcie if you are reading this then please know that we are all thinking of you and send our very best wishes. It's all such a b-gger and makes me feel like screaming at something or someone about how you have been treated so far. I know it's not going to help in the scheme of things but it gets some of the anxiety and frustration out of the system. I hope that you are getting everything you need to help you through this and your lovely man also.

I have my hospital appointment on Wednesday and my stomach is churning up virtually all the time thinking about it. Trying to keep my mind and body active to calm things and take my mind off of it. I know there's nothing I can do about anything and I/we just have to go with the flow and meet whatever comes our way. I'm just not ready for another trip on the roller coaster yet!

Amylou - I'm sure you and your little ones will enjoy the party today and they will have lots of fun. My mouth was watering as well when you mentioned sausage rolls - yummy!

Joan - I remember Whipsnade Zoo from my childhood and I'm sure you will enjoy your day out there.

Gabby - You just do what you feel comfortable with and that's what it's all about. This journey has been rough for everyone and we have all dealt with things in different ways. Being able to come on here and message our thoughts and respond to others has been, for many of us, our saviour going through diagnosis and treatment. There are probably many ladies and some men who never post messages, but come on and read what we have to say and it helps them get through it or understand things as well. At times I'm just totally BC'd out and just don't want to hear, see or have anything to do with it and try to be 'normal' if there is such a thing now. Each day I have to switch on the computer and see how our Marchies are doing and when I feel like it put my four penny worth into the frame. For the most part I know that we are all thinking of one another and the ladies that we haven't heard from in quite a while also.

Need to go and get myself sorted because we have a practice bowls session this morning. See what I mean about trying to occupy myself? The things we have to put ourselves through!!!!

Bye for now and everyone take care and a very special hug for Dulcie XXXXXXXXX

Beryl XX

[Kittyqueen]

Morning MMs xxxx
Beautiful day here Again, hope it will be like that at the zoo for you Joan, not been to a zoo for years...nearest one to me would be chester.
Amylou...think I missed your last post...well done on losing weight and Inhope the party goes well. I want a Hallowe'en party this year as I always get a new witches hat or it lolol. So sorry to hear about Dulcie...please pass on my love, I hope she will post when she feels like it...she hasan amazing sense of hunour xxx
Marie67...Jane if we let Oh's son takestuff to the dump he comes back with more than we sent him with lol
Having a lazy morning then offto a friends for lunch.
Love KQ

[Patchit]

Wow! I just watched Jayjay's choir programme on 4OD. Fantastic! Very emotional and inspirational. Our Jayjay was so strong. I do hope we hear from her again. All the members of the choir were brilliant, you could tell how much they got out of it. Wonderful stuff. I want to join one now too, so can I please come with you Caren, being also totally tuneless and unable to sing!

Amylou, you have done really well with the weight loss! I am following behind you though! Well done. I hope you have a brilliant time tomorrow. I am really looking forward to the meet up too, think I might need some waterproof mascara though! Thank you also for letting us know about Dulcie. Awful news for her, I know she was pinning her hopes on RM. I really hope she is getting some support from the secondaries thread she posts on. I hope she will be able to post once things have settled down for her, like others, I think of her often, this bloody cancer, so unfair.

Joan xxx

[Guest user]

Evening beautifuls

well I've been cooking up a storm in the kitchen today ready for the party tomorrow lol. think i put it was last weekend. I've been doing really well on my diet and have managed to lose 11lb but the smell of freshly baked sausage rolls are making me slobber like a boxer dog!
Thank you for all your words of comfort since i last posted. its really encouraging. getting excited about the meet up now whoop whoop.

On a sadder note dulcie is not well. the meeting at the rm didn't go too well. they have said she also has bone and brain mets so discharged her. she's in quiet a bit of pain at the moment with her back and leg but hopefully they will be providing her with things to make things a bit easier. Not lost her sence of humour thoughalways manages to make me giggle bless her. not feeling well enough to post but im sure she will when able to.

Right better go. only have cocktail sausages and chicken things left to cook tonight then all the fresh things tomorrow

love to you all x x x x x x

[Guest user]

[Patchit]

How exciting for you KQ! Bet they will come through thick and fast now!

Caren, hope you had a great day out in London and did lots of retail therapy. Have you tried to put something like E45 cream on your itchy area? It might help a bit but probably best to check it out at your appointment.

Bettie, hope you have had a better day today. Losing weight is hard but I feel in the mood for it at the moment. I’m sure that feeling won’t last long though so I am trying to take advantage while it does!! We went out for a walk this morning (3.5 miles). We did lots of walking pre bc, but I haven’t really done much over the last year. That’s another thing I am trying to be better about.

We are going to Whipsnade Zoo tomorrow for the day. Think the weather is going to be ok and we have some Tesco vouchers to use up. I’ve never been but my OH used to go when he was growing up so it will probably bring back some memories for him.

Have a good evening ladies, hope everyone is doing ok.

Joan xxx

[Kittyqueen]

Evening.......
So excited...in a good light in mirror I can see EYELASHES whoop whoop........how sad am I that have spent most of afternoon staring in mirrors examining eyelids ......
Hugs to all
KQ

[Guest user]

Morning MM'S
Bit of a dull day here in Norfolk, off to take stuff to the dump later.
CARE N following my rads the area around my mx scar was itchy and puffy, when I saw onc a few weeks ago he said it was still the effects of rads and gave me some hydrocortisone cream, which helped a bit, but it is still quite puffy some am going to phone bcn next week for advice as I don't have anymore apts until Feb. Enjoy London.
BETTIE glad you are feeling a bit more upbeat.
JOAN glad you had a lovely holiday, shame you couldn't bring some nice weather with you!!!!! Work is going ok, I am still on phased return for another 2 weeks then will be full time.
GABBYLAMB You must do what you feel is right for you, and not worry about keeping up with everybody.
AMYLOU and PARSNIP I hope your children's parties go ok.
BERYL and CARABEL hope that your appointments go ok next week, again it's the waitng game.
WS glad that your first week of rads went ok, how is the lymphoedema?
TWINKY hope all went well having your port removed, and your tiredness levels are improving.
PEANUT hope you are doing ok at work, and that your tiredness is improving.
KQ glad that you have finished rads, yes keep up with the cream for a good few weeks.
WAITNG TOO not long until you have crossed the rads finishing line to.
CAROLYN hope you are feeling much better, unfortunately it's the time of year for bugs.
CHASCAT hope you are getting over your cold.
GEORGIE hope the wedding goes well.
MEGSMUM hope you are doing ok, and have managed to sort out your return to work and are still playing the doting granny!!
DANI hope you are doing ok, not long until your rads, then that will be another hurdle crossed.
WOLTSY hope the antibiotics are working ok and that your boob feels better.
POPPY hope that all your sore areas are improving, and that your son is doing ok.
PARAGYAN hope you are having a lovely cruise.
RAECHI, JAYJAY, DULCIE and others we have not heard from in a while hope you are all doing ok.
Jane

[Bettie]

KQ - I can understand how you feel about your eyelashes. I was fine losing my hair but was really funny about half my eyelashes going.
Am Mrs Postive, get on with it and put up with the pain woman today as my stress levels I'm sure have been exacerbating the pain. So, I might get absorbed with the housework or better still go back to bed ha ha.
Had my nails done yesterday all sparkly and pink but I hate them. They look like a 3 year old has done them but at least they stand out!
Joan -I have been talking about losing weight for ages but have I. No!! I must get a grip really but a lot of the time recently its been comfort eating and drinking. I have my hols in December so that ought to be an incentive.
Hope you all had a good weekend
Bettie xx

[Care_N]

Morning ladies,
l'm meeting a friend in London today for a bit of retail therapy. I haven't seen her for ages and she asked if I would be fit enough for shopping, or just wanted to do lunch. I told her I was fit to do anything (I really think i am, but I'll find out later if that's true) just look different - bald and fat! She emailed back saying yippee, a bald fat friend - how good will i look! lol.
KQ congratulations on finishing! I found my eyelashes came back really quickly once they started. I know what you mean, i really missed them and still admire them every time I put make up on, lol. Wonder if we'll ever take them for granted again. Hope your cold gets better soon. I'm just getting over one, can't remember when I last had one but I'm sure that wont be the last one this year.
Joan glad you had a lovely holiday. My picture was taken on our cruise in Palma cathedral, it was beautiful. I don't think it looks like me, no double chins as I've got my head up looking up at the lovely windows.
Gabby, you shouldn't feel any pressure to look in here, it will be lovely to meet up with everyone whether they've posted or not, we've all had this horrible year to go through and deserve a really good weekend away with a group of people who all understand what we've been through. Just try and do whatever makes you happy.
Socks glad the rads is going well. Good luck with the rest of it.
Betyl Bethan imagine your house smells of baking bread, how lovely!
I've had an itchy area between my boobs for months and I don't know if its getting worse or I'm just more conscious of it, but its starting to worry me. There's nothing much visible, just a few spots but it doesn't get better. I'll show Onc at my appointment on 31st but wondered if anyone else had anything similar.
2nd full time week at work finished and its going really well! Still sticking to my hours though.
Oops, better get ready for shopping! Have a lovely weekend everyone!
Caren x

[Kittyqueen]

Morning All,
Happy KQ here having crossed the finishing line for Rads:)) Still got stinking cold though but don't really mind as could have got it when having chemo couldn't I ? have to go for herceptin on Tues but think will ring unit and ask to be put in solitary as don't want to give cold to anyone having chemo should be gone by then hopefully. Boob bit tender so will continue with numerous cream application for the next few weeks.
Socks...sorry to hear you have lymphodema...what a pain but rads sound to be going well for you in Leeds xxx
GabbyLamb...Gosh you have had an eventful year but least you are so positive for the future xx
Patchit..Joan..glad you had a lovely holiday...think I am going to have a go at making a badge says the person who is really useless at making anything...will prob use one of the cats piccy's:))))
Am really getting anxious about eyelashes now, I know it's really silly but that's what I miss the most...I have 2 on one eye and 1 on the other lol vey dark though like they were before and I can feel bristly bits on the lids too. Starting to resent wearing wig now too....will not be long before it's banished to the back of the cupboard.
Haven't the colours of the trees n the sunshine been beautful this Autumn? and it has given a nice weekend so lets hope we all have one xxx
love
KQ

[Patchit]

Evening Marvellous Marchies

Thought I would try and catch up with posts from while I was away. I expect it will take me ages! I have been to work today and cooked a weightwatchers meal this evening, stuffed mushrooms with salad which was yummy! Really looking forward to our get together, all the talk of name badges etc has made it seem very soon!

Peanut, how is your working going? You were struggling with tiredness, I hope you have got used to the hours a bit better now. Sorry you are having to alter your travel arrangements for Birmingham, hope you manage to get a reasonably timed train.

Carabel, glad you had a good holiday. Hope work is going ok now you are back properly. I think Waiting too, Clare lands around lunchtime too but I can’t remember what time exactly (or even which day, but I think its Saturday!). It might be worth you checking with her, you could maybe meet at the airport and travel in together. Good luck on Monday at your check up. Sure it will be nothing to worry about but that doesn’t help really, does it?

Beryl, how is the gym going? At my Onc appointment he just examined me, there was a discussion and then he signed me off. I had to go for a mammogram and then back to my surgeon for the results of that. I haven’t had a blood test either. I guess you should have your mamm before your surgeon appointment so that you can get the results from him when you see him. I do agree with you about support for our carers / OH’s and families. Its been very hard for them too, and the focus is always on us, the patient. One of the reasons I have been so open about it all was so that my OH could talk about it to others if he felt he wanted to. I am sure it helped him. Glad you have got your appointment through for Wednesday, As you say, its best to get it checked out and get the all clear rather than it being on your mind.

Bettie, really sorry you are having health problems after coping with bc. I do hope you have got some other pain relief sorted out and that you soon get some respite from it. Really glad the other tests you had were so good, that must have given you a bit of a boost.

Marie67, Jane, how is work going for you?

Dani, rads for you next week, it will be good to get that out of the way now.

Caren, glad to hear that work is going ok for you. Love your new piccie, you look so serene!

KQ, hope your communication problems are sorted? We take it all for granted until it packs up! Well done on finishing your rads! My name badge has my real name and my forum name and its pink!

WS, you mentioned Jayjay in one of your posts. Are you in touch with her? I am sure she has booked 2 nights for our weekend, but she hasn’t posted for ages. I have sent her a PM, but still no answer. I do hope she is ok. I know she had a really bad time with chemo, like Angelhearts, who we also haven’t heard from. So sorry to hear you have lymphodema now, on top of everything else! Don’t you ever get a break?!! How are you getting on with your prosthesis? I had to get my first one changed as it was too big for me, but I get on fine with this one now. It took me quite a few months to really accept it but I wear it most days now. Its all about adjusting to it mentally as well as physically. Glad your first week of rads went well.

Wolsty, your hair looks great, and its so dark! Glad to hear you are getting your fitness levels back up again.

Carolyn, hope you have got over your laryngitis. That’s the trouble with working in a school, lots of bugs about!

Ceej, your hair looks great! Like a proper short haircut! Eeek! 5k run?! Well done you, I don’t think I have EVER been able to run 5K! Hope OH got his rash sorted out.

Twinky, hope you are less tired now? It must be hard to get back in a proper working routine. I am sure you will get there though, just keep saying no when its too much! How did your port removal go?

Amylou, well done on finishing your rads. How did the party go for your children? I am really sorry that your prognosis was not better, but I am sure that your children will be a big positive influence for you. You are obviously a great mum, so stick with the attitude you have if you can, yes, life is for living and you deserve to enjoy it for many years to come. Big hug honey xxx

Chascat, glad you enjoyed your holiday. Thanks for the link for the choir programme.

GeorgieB, how are you feeling now, I hope you are a bit brighter. How is your toenail?

Parsnip, hope the party goes well this weekend and your little boy is feeling better. Love your new piccie!

Gabbylamb, you mustn’t worry about not keeping up with everyone on here. It’s a natural progression that we will gradually move away from this thread as we get better (even me, I expect!!). We are all different and must do what-ever we feel is the right thing for us individually. Its already happened with some of our ladies, I am sure. Personally, I expect that there will be some ladies who I will always stay in touch with, not necessarily on this site, but through some medium. We all do things at different paces, but we all will move on eventually. The important thing is that we have all been here for each other through one of the hardest times of our lives and for that I will always be truly grateful to every person on this thread. We are all the Marvellous Marchies, and have been ‘All for one and one for all’ true Musketeers.

Raechi, Carmy I do hope you are both getting on with your lives now and starting to put bc behind you. xxx

I haven’t watched the choir programme yet but will do so over the weekend, box of hankies at my side! Hope all our other ladies are getting better and starting to enjoy life again.

Well, that’s my long catch-up post done. You can all look forward to the normal length of just one page instead of the 3 this has turned out to be.

Good night, MM’s, sleep tight and sweet dreams.

Joan xxx

[Guest user]

Hello lovely ladies, so sorry I havent posted much, I really have tried to distancemyself from all this year. Just started watching channel 4 Stand up to Cancer and couldnt take it afte 5 minutes. Its too raw still. Do any of you feel the same?
Im looking forward to seeing you in November, but I cant say I will be fully caught up with all your circumstances. Im so ashamed I cant log in here and post as much as some of you others, but I really find it a struggle. This year has taught me some hard lessons and I am determined to turn my life around to positives, which will be a huge challenge, having lost a 27 year marriage, a marital home, and my security.
God bless you all in everything you seek to do, may we never have to call on this site again for support from this hideous disease.

[wintersocks]

Hello all MM's

Am just back from my week spent in Leeds for the first lot of rads. I am pleased to report that everything went well. They are lovely and treatment was mostly on time.
The Institute is massive and serves all of Yorkshire and people are referred from everywhere in the country. It feels very cutting edge and on the ball, so that is reassuring.
I will catch up tomorrow on everyone's posts and do another one myself too.
WSx

[Guest user]

Afternoon Ladies

Back from my Craft Group which was good and we all had a nice natter, one of the ladies donated a load of jam doughnuts - yummy!

Spoke to BCN this morning about my visit to Onch last Wednesday and she's given me an appointment to see the Doctor next Wednesday and if necessary to have an Ultra Sound. It will be on my mind now but at least I will see the Doctor and get the opportunity to get things checked out further. Hopefully, everything will be OK but I didn't want to have to wait until Jan (13) to get it checked and then find out there's a problem. What a knife edge we lead going through this b----y awful desease.

Joan - Nice to have you back and so pleased you had a lovely holiday, and never mind the extra weight gain because you can do something about that which isn't too taxing.

Waitingtoo - Nearly at the finishing line along with the rest of us. Looking forward to meeting you and our other ladies soon.

Got to go and put the breadmaker on. I think it will cough when I switch it on. I've got so much stuff to use up it seems pointless to go out and buy a loaf.

Take care all and send my best wishes.

Beryl XX

[Wolsty]

Thanks Clare - you are not too late - I go on 29th October - can't wait!!

Jane x

[Ceej]

Morning ladies xx
Had my ONC appointment yesterday and asked him about scans to check for spread. His reponse was as a knew it would be – that they don’t bother as if there is spread it doesn’t matter when they find it as it’s not curable only treatable. Apparently with me being a grade 2 middle of the road type cancer person, mine is very lazy and can just wait around and come back 20 years later – very comforting!! Not sure I liked his comment that I “got away lightly” he was referring to the fact that I’ve had a lumpectomy and there’s not such a great difference between my two breasts! I’m due back on valentine’s day but apparently have to see the surgeon before that? I don’t know – they asked me if I had an appointment yet – it will be difficult as he retired after he did me!
And my OH wound me up last night too by texting after Embarrassing Bodies on cancer saying that there’s always someone worse off – until I text back saying yeah but they will get the “all clear” I wont….I’m now being called “grumpy girlfriend” ha ha.
Pachit – Glad you had lovely holiday – I always put on loads of weight when I go away – just LOVE food! Looking at Mexico again for Xmas but it’s so flipping expensive, and I KNOW I’m gonna put on loads of weight if we go, but I just want to see the back of this year!!
Waiting too – well done on nearly crossing the finishing line! My chemo brain is terrible – I can’t remember words or even if I’ve taken my tablets! I have to put them in a container with the days of the week on! Ridiculous really …..
Hope all you ladies with colds and stuff get better soon! I’m just suffering with back ache and now I feel like I’ve pulled a muscle in the lower part of my arm! Am falling apart and only been to the gym once this week as decided I’ve been too tired.
Still fed up about my car – I almost feel like I should go back to having an old banger as I don’t trust myself anymore! Hey ho – let’s see if this bloke gets back to me. One good thing is that when I renewed the insurance my OH told me to protect my no claims! So it’s just the excess that’s the issue.
MD turned up – I better do some proper work….laters xxxx

[waiting_too]

HI all,

Just popping in to say HHi. 3 more rads to go. All good.
I'm really seeing the effects of chemo brain - very short memory span. Hubby very sweet about it.
Woltsy I sent you a PM with recommendations for Rome. I hope I am not too late.
Ceej - Every time I get in my car to rads each day I think "will this be the day I bump it". We are all just that bit dumbed down just now - keep drinking the water is what my radilogist says... flush it out.

kisses to all especially Amylou and Socks.

Clare

[Patchit]

Hello MM’s!

Just checking in after my holiday. Had a really lovely time, did absolutely nothing other than eat and drink too much. So, tonight I have gone back to weightwatchers to help me lose some weight before I put even more on! I put on about 12 lbs in total, but that did include a weeks all inclusive food and drink!!

I went back to work today and am back to working normal hours, which is fine for me. As you know, I worked through treatment when possible so it’s been less of a transition for me than for those who didn’t work.

I am still reading through the posts from the last week so will do personals once I have caught up. I just wanted to especially send a big hug to Dulcie. I have been thinking of you and wonder how you got on at RM. Also to Amylou, you are a very special lady xxx. Bettie, sorry to read your on-going problems, sending you lots of healing thoughts and wishes.

Sleep tight Musketeers, and sweet dreams

Joan xxx

[Kittyqueen]

Evening All,
Back from visit to surgeon and he gave me a good prodding in both boobs and prononced he was happy and I don't have too see him till Feb which will be a year since first diagnosed so expect will have mammo etc.....I am sure he thinks I am nuts as I can't gt out of his room quick enough lol....
Bery that's interesting re skin types as I am fairly olive skinned and don't usually burn in the sun .
Carabel....I understand your fear butam sure it will be fine butdef best checked. Am wondering ifwe're all getting colds from letting our guard down after chemo.?
Twinky..hope you are ok hunni xxx
Chascat&Wolsty than for the choir info xx
Early night for me and the cold
love
KQ

[Guest user]

Evening All

Carabel - When I went to see the Onch yesterday for my follow up after chemo and rads he examined my surgery area and I voiced my concerns about lump, which may well just be scar tissue. Anyway, he asked his Registrar to refer me back to BCN for them to give me the once over to make sure all OK. I'm waiting for them to contact me but if I don't hear anything from them by early next week I will be on the phone to get appointment sorted out. I keep telling myself that everything's OK but there is always an element of doubt that sets in. Let us know how you get on and I send my best wishes.

KQ - I had 15 rads and 4 booster sessions. My boob did get quite sore before the boosters but I managed to get through without any skin breakdown. I just had slight peeling to lower armpit which didn't cause me any problems. When I had my booster sessions the machine got quite close to my skin but didn't touch it. The fact that you have got through this far without any redness or soreness is quite remarkable. I'm considered to be fair to med skinned so don't know if that makes any difference in the scheme of things. Also didn't get my boob taped either.

I've been very lazy today and stayed at home doing my craft work, because I've got my craft group tomorrow morning and needed to get something done before going.

Twinky - I hope all went well at the hospital today and you are not in too much discomfort after the procedure.

I hope everyone else is doing OK, especially those that we haven't heard from in a very long time.

Night, night all.

Beryl XX

[Carabel]

Bettie – Sorry to hear you are having such a rotten time. Like others have said it is definitely worth seeing if your GP can sort out better pain relief. Also your MIL’s comments won’t have helped you feel any better. I think it is great that you have kept a diary and that your family can get some true understanding of what you have been through. I wish I had kept a diary as too as I think it would reflect how far we have come over the last few months. I did think about it along the way but just never got around to doing anything about it.
Twinky – I hope the removal of your power port is not painful!!
Marie & Woltsy – Enjoy your shopping today. There’s nothing like a bit of retail therapy to lift the spirits.
Chascat - /KQ – I had 4 booster rads but didn’t need anything taped (also the machine didn’t touch me but was very close). I also wondered about it working as it didn’t seem to have any effect at the time however afterwards the skin did get a bit darker and peeled. Didn’t have any redness though and it wasn’t ever sore.
I am now just over three months from last chemo and my eyelashes & eyebrows are coming in well. It did seem to happen quite suddenly. I am thinking about getting eyebrows threaded very soon.Ladygardenalso flourishing unfortunately!
Beryl – You are so right about our partners / carers going through so much without the same level of support that we receive. I would have been lost without my OH and appreciate all he has done for me.
Ceej- It’s a real bummer about your bump but really not worth getting yourself stressed about it (easier said than done I know!). Hope you get it all sorted without too much trouble and expense.
Joan – Hope you had a great holiday.

I phoned my breast care nurse the other day as I have felt a lump on my boob (surgery side). To be honest the boob has felt different since surgery and then with rads but lumpy bits seemed to have come and gone. This one just feels a bit different. I am sure it is just scar tissue or changes due to rads but couldn’t put it out of my mind. She has said it is likely to be nothing but best to come in and get it checked out anyway. So going in on Monday morning. I am trying hard not to think about it too much but it’s difficult as you will all appreciate!
Like a lot of you I have a cold just now too. Not feeling too bad just a bit bunged up. Have an appointment to get my flu jab next week.
Meeting a good friend after work tonight and we are going for dinner so looking forward to that.
Well best get on with some work.
Love to all.

Carabel xxx

[Guest user]

At the hospital waiting to have my power port removed without being put under....gulp

Twinky x

[Guest user]

Morning MM'S
Miserable weather here in Norfolk, so am off to do some retail therapy in Norwich, then have to collect my niece from school later.
BETTIE sorry you are struggling, it may be worth seeing your GP and asking then to refer you to a pain management team if you have one in your area, or asking if you could try a Durogesic patch for pain, they stay on the skin for 72 hrs so you get a constant absorbtion through the skin. Hope you enjoy your cream tea.
WOLTSY hope the antibiotics kick in soon, enjoy time with your friends.
GEORGIE sorry you did not get your facial, as Chascat says it's all to do with the fear of being sued hope you are all set for the wedding hopefully the weather will be kind.
KQ I didn't have booster rads but I still ended up having to have my good boob ( I only have one!!) taped up as it got in the way.
CHASCAT hope you start felling better from your cold etc, sometimes it can be the side effects of the flu jab that can make you feel like that.
Well shops beckon
Love Jane

[chascat]

Morning ladies
Firstly Bettie, big hugs flower, I expect you're at the point where you're struggling to take anymore, I hope things settle down soon x
KQ - Eyelashes, my onc told me my eyebrows and eyelashes would take a while to come back, but they didn't! My eyelashes seemed to come back overnight, had my last chemo 16th July within a couple of months they were lovely and long, had my eyebrows waxed a couple of weeks ago and they look lovely now. Also, I had 5 rads boosters and had to have my boob taped too, my skin was brilliant throughout all of it, barely changed colour and the boosters didn't make any difference to it, like you I also questioned whether it was working, when I voiced this to the radiographer she assured me they weren't outside drinking tea and making buzzing noises! Link attached for 4 On Demand for Sing for your life http://www.channel4.com/programmes/sing-for-your-life/4od#3425790
Ceej - sorry about the car, as KQ says, take care not to be ripped off.

Socks - Sorry to hear you have lymphodema, it's one thing after another isn't it.

Parsnip - Glad you're getting some help, I started seeing a psychologist at the hospital but didn't like her so stopped going, however, one of the BCN's on the surgical side at my hospital is a counsellor so my nurse has referred me to her.

Georgieb - I know a lot of places are wary about treating anyone who's had surgery or a cancer diagnosis, age of litigation i'm afraid. I had a holistic massage whilst on holiday and thankfully they didn't question it, although I did tell them not to touch my right arm due to ANC.
Like many of you, I now have a cold, sore throat, earache, the works, have had the flu jab so hopefully a cold will be as bad as it gets.
Love to all
Lydia x

[Wolsty]

Bettie - so sorry you are feeling so low and in pain. As KQ says, sometimes it's good to have a good cry and let go of some pent up emotion. I think crossing the BC finishing line is affecting us all in different ways. My OH said to me this week "where has your positive mental attitude gone?". I think I have had a cold and slight infection, saw my consultant last night and she has put me on antibiotics again as my reconstruction is feeling sore. I know you are dealing with other issues so it must feel never-ending. Sending you a big hug xx
KQ - the choir programme is on 4oD at the moment - called Sing for your Life. It was very good but emotional so have tissues at the ready.
Ceej - you might want to get a quote yourself too if he comes up with silly prices or just ask a garage that you trust for a rough price.
Beryl - I asked at my GPs about the flu jab and he said I would be entitled to one so had it on Tuesday - worth asking to see what they say.
I am off shopping today with a couple of friends so looking forward to that.
jane x

[Bettie]

Beryl and KQ- Thanks so much for your kind words. It really helps knowing you can get support from here even if its a non BC issue.
My sister rang last night in tears. I have been keeping a diary since being diagnosed with BC and have included pictures from the last 8 months. I completed it last week and have given a copy to my sisters, niece and parents. I was really touched when my sister said how moving it was. You forget things that have happened along the way. Who knows maybe this is my hidden vocation ha ha.
Have a good day everyone. Off for a cream tea today so need to get my gladrags on. Theres not a lot I can do with my hair as its still growing upwards. The way its carrying on it'll look like a beehive soon,lol!
Bettie xx

[Kittyqueen]

Morning MM's xxx
Bettie...massive hug to you and don't feel bad about having a cry, it's a good release valve hunni xx As to your MIL, words fail, other than she must have some jealousy issues with you xxx
Ceej....def make guy get quotes.... I would as they're not above pulling a fast one.
I missed the choir programme:((( am hoping it will be repeated so if anyone sees anything, please can you let me know.
2nd to last rads today...have to say not keen on these 4booster ones...don't like machine actually touching me in fact got a bit stressy about it which isn't like me and I do not like boob being taped...as have phobia of taking plasters off, wuss that I am. Got to go and see surgeon after too, like surgeon, not as scarey as onc. Beryl did you have the boosters? Seem to remember you did, how did you find them? Boob still seems fine in fact radiographer said it didn't look likecanything had been done to it, which of course set me off thinking if it was working.
Sooooo after 8 chemos and 17 rads (2 to go) I have got a cold and feel quite cheated lolol wanted to celebrate friday night but shiny red nose, puffy eyes without eyelashes not good look lol...can one of you tell me how long eyelashes take, will be 8 weeks from last chemo now...can see some very fine bits and feel stubble,on the other hand my lady garden is flourishing, think will do transplant to head lol.
Hugs to all
KQ

[Guest user]

Morning All

Bettie - My thoughts are with you and feel so much for you having to go through this extra stuff as well as BC. I can fully understand you having a good cry because there's only so much you can put up with before letting things out! My husband made a comment when we came away from seeing the Rad Doctor at Addenbrookes just before finishing treatment there. He said that whenever we see the Doc/Nurse they always ask how the patient is doing but never think to ask how the carer of the patient is doing? He's got a valid point there because they are under so much stress looking after us that it must have a knock on effect on them. It certainly made me think more about things and be a lot more considerate to him, not that I wasn't before but you know what I mean? It's just the little things that we sometimes take for granted and come to automatically accept without being fully appreciative at times. I think all of our partners/husbands have had a hard time looking after us over the last months but we would do exactly the same for them if it was the other way around I'm sure! I'm sending you my best wishes and a massive hug but I know that isn't enough and I can't take your pain and discomfort away, I wish I could! I don't know what level of painkillers you are taking but if they are only taking the edge off of the pain then something stronger needs to be called for so you can be comfortable. You take care XX

[Bettie]

Morning ladies, hope you're all well. Had a massive cry last night because of the pain I'm in and because I want to move forward from BC and can't. Taking loads of painkillers which only just take the edge of the pain. It is so hard for my husband and I feel so guilty....
Bettie x

[Ceej]

Afternoon all
Bettie – how rude of your MIL – tho saying that I bet if mine was still alive she would have been the same!!
Marie – My daughter wasn’t sure how the interview went as they said they had other people to see and wouldn’t be making a decision til the end of this month. It’s so hard for youngsters nowadays!
Chap I hit has just been in touch and asked if I want to do it privately – so I said being as the damage to his car was minor I would like him to get me a quote first! My OH says it’s only money and he’ll sort it out for me! Hmpffff wish I had the money ……I really thought my priorities had changed with this BC business but I’m sooooo wound up about this today!
Oh well ………good job I’m at work! Will check in later xxxxx

[Guest user]

Afternoon Ladies

Back from Dentist and the hospital. Saw Onc Registrar and Onch who came in to examine and talk about treatment and Arimadex, because I told her that I had some joint pain etc. Onc went through things with me about joint pain and because I don't need to take anything for it he wasn't too concerned but if the situation alters and it needs pain management then they will look at putting me on the other one Tamoxifen but that's got issues as well. He's refered me back to Breat Care Nurse/Surgeon to get my scar area checked out so I must wait the them to contact me. It was a bit of a nightmare at the hospital because they are extending the MacMillan Cancer Unit so it was a bit all over the place and the usual parking problems. I'm going to chill out this afternoon and do some of my cross stitch and watch the TV.

Ceej - Sorry to hear about the car bump but in the scheme of things it's minimal considering what you have already been through. Of course you didn't need it to happen and these things test us when we don't need it. Take lots of deep breaths and put your best foot forward!!

Bettie - MIL's what would we do with them? Mine can be quite sarcastic in a tongue in cheek sort of way and one of these days I'm going to let her have it with both barrels! I had the golden opportunity last year (before diagnosis) and I let it slip away but that won't happen again. Last time I saw her she was on her best behaviour - I wonder why?

I've not been advised about having a flu jab and don't expect my surgery to call me for one either. We are certainly heading towards the 'cold' season and I normally get one about once a year which is either November or Jan time.

Well, I'm off to chill out and send everyone my love and best wishes.

Beryl XX