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May Moonbeams

Aly1971
Member

Re: May Moonbeams

FEC-T 3/6 Day 8

Hello ladies, been off air for a few days but keeping up with all the posts.
Penny - sorry you're suffering this time round and hope the SE's start to ease for you soon
Jo - what a nightmare with your throat and horrible doctors - made me so cross when they are so insensitive - they should know better.
Rachel - loved your mantra!
Namaste - sending you a big cyber hug and waves of strength to get you through this - god its bloody hard isn't it, oh for a day or 2 of cancer free normality.
Have to say I am really struggling in this heat - day 8 and although feeling less fuzzy as I stopped the last of the antisickness yesterday still wiped out and slightly nauseous - is it the weather or just the SE's still doing thier worst - the prospect of another week at these temperatures fills me with slight dread.
I would normally be out in the sunshine with the kids in the park or having a nice swim in the lovely Lido near me, or a cider in the local beer garden!! - its really starting to get me down. Normally I would take myself off for a head clearing walk but in this heat thats the last thing I want to do. Feeling slightly stir crazy and suddenly the prospect of another 2 months of chemo really doesn't appeal I thought I'd be relieved to be halfway there but the next half feels like a mountain to climb at the moment. Sorry normally pretty positive about everything but its getting me down today.
Also a quick question for the tax ladies - we'd planned to head down to dorset with the kids aroiund day 10 post my first TAX. We've booked a hotel in a lovely spot called Hope Cove - have I been a little over ambitious? My OH will do the drving and my intention was to relax on the beach whilst the girls play in the sand / sea / rockpools (weather permitting). I guess everyone is different so hard to know and we can always curtail if it all gets too much??
Love to you all and hope you're coping with the heat/SE's?Life!!
Aly xxxx
Dodo14
Member

Re: May Moonbeams

Has anyone been given a number as a result of an Echocardiogram? My onc says my heart is working in a very good condition but gave me a percentage of 65%. That doesn't sound great to me but he says 90-95% fall between 60 and 70 and that anything over 50 is good. Sounds like I have run out of excuses for the port now anyway so Wednesday it will be. Not looking forward to that...
barbara2013
Member

Re: May Moonbeams

Hi Skatemates- welcome! I'm with Rachel- take into consideration what your chemo unit is like. Mine is very open so you do see a lot of people some of whom look very sick- so I can find it a bit distressing myself-but perhaps yours has more private bays. On the other hand my son came to my second chemo with me and the advantage was it made me approach the whole thing really positively and cheerfully- but he is 'grown-up'- well kind of. The amusing event on that occasion was having a very keen trainee chemo nurse on his first few patients who was particularly rigorous on the side-effects questionnaire (do you all do this?). I foolishly answered that yes my sex life had been affected since last chemo (thinking sex on chemo- really??) and he wanted to discuss this with me and what they could do to help! I tried to signal to him that I was with my son but he persisted!
Penny - do hope you feel better soon.
Rara
Member

Re: May Moonbeams

Morning! What a hot horrid nights lack of sleep. Am sure I am not the only one.....
Jo, I don't know if we lose nails or they just get painful as yours are. I now have the hit by a bus feeling. It built up all day yesterday. Done the whole paracetamol thing which helps. I see what you mean about no worse or better then fec, just different side effects!
Skatesmates, I am not sure re taking children as some of the other patients in my chemo unit look so ill....the four men in my bay last Thursday were all very elderly and frail. they all have other health issues as well, one was there just for blood top up. So I am sitting on the fence on that question!
Penny, sorry to hear you are struggling. Hope it passes soon.
i really really find the heat is making it worse. Never wished for a thunderstorm so much !
keep cool moonies xx
Dodo14
Member

Re: May Moonbeams

Skatesmates - My chemo unit offered for my daug to go along for reassurance too. I spoke to her about it and she didn;t seem keen so I took my lead from her. She is 10. Perhaps talking it over with your two would give you a clearer idea about whether utis right for them or not.
Penny so sorry you have been feeling unwell - hope it clears really soon. xx
FEC T 4/6 Day 13 - Throat still improving. Eating more normally again, less coughing last night. Temperature keeping down. Feeling a bit nauseaus though - could be the antibitioics? Planning to go out for lunch today as thinking I am through the worst. Not looking forward to Wednesday when I have my port fitted but will try and forget about it until it is here. After all worrying is a waste of a good imagination... OH has made me a handy toilet flusher to help my sore nails cope with the job. Aaahhh.
Penny47
Member

Re: May Moonbeams

Ah Skakesmates the paddling pool! We have a horse trough outside the front door, a concrete one left over from when the house was a farm house, and I love lying in the lounger watching children and grandchildren hopping in and out- it's fed by a spring so pure and clear but dead cold. I put my feet in occasionally. We also have rigged up a waterslide on a slope in back of the house but this is a bit high-maintenance!


FEC-T 3/6 Day 5 - I've been out of circulation for a couple of days lying in a darkened room and back on Ondansetron-just too much to cope with. Back in the saddle soon I hope.
skatesmakes
Member

Re: May Moonbeams

Thanks for the welcome & reassurances it's made me feel so much calmer about the whole T thing.
I see my ONC on Wednesday & all being well have my first T on the 22nd.
Rara - thanks for your messages they made me feel a whole lot better - I don't want you to think I'm ignoring you & would have replied but couldn't work out how to, maybe I'm just missing something obvious lol!
As it's the first day of my kids summer hols on the 22nd when I'm due to have my 1st T dose we've been deliberating whether to take them with us to the hospital so that they can see where/how I have my 'medicine'. My BC & chemo nurse both say it's ok to do & there's a nice cafe & park nearby for my OH to take them so they don't have to stay around for the whole time but I just wondered if anyone thinks it's a good idea or not.
They're 6 & 8 years old & we've been pretty open & honest with them so far but just can't decide if it will reassure them or unsettle them.

Hope everyone's managing to stay cool - the advantage of having young children is having a paddling pool - I can highly recommend it!
Dodo14
Member

Re: May Moonbeams

Barbara - I was in my NQT year having just retrained after 21 years in financial services so I only get paid one month full pay and one month half pay then SSP. But the school are very supportive in terms of wanting me back (I must have been doing something right) so will keep my job open for me for when I am ready to return. Luckily with my previous line of work knowledge, I took out a critical illness policy which has basically paid off my mortgage on dx so financially we will be ok. In terms of post chemo, my next step in treatment is surgery probably late September. My new class have a new teacher (temp contract) for the first half term or so, who needs to be allowed to get on with her job but I had considered asking for part time work until my op taking small groups from the class to work with - would also let me get to know them a bit before I return properly. Haven't mentioned it to the Head yet though.
FEC T 4/6 Day 12 - Throat improving. Temperature keeping down. Dry cough keeping me up half the night though - very tired. Also nails extremely painful and finding it hard to do simple things like flushing the loo. Does this mean I will lose them?
Rara
Member

Re: May Moonbeams

I go on to half pay next month too.....what a worry.....but have a bit of savings and a credit card! Haha! Not going to cancel the kitchen being done because it is in a desperate state following a flood from the bathroom above.
time is a bizarre thing at the moment. Some days are soooo long and boring and others go quickly. I am trying to set myself goals to achieve so I actually feel mentally tired before bedtime as of course that helps with sleep.
If I arrange to go out, sometimes, I just don't feel like it as the time approaches and so I cancel and then regret it as then end up even more bored!
My son gets back from holiday tomorrow so at least I will have some nagging to look forward to! Also, perhaps the extra housework he causes will help too.
its hot here already but a slight breeze blowing through.
have a good day all and keep those side effects at bay if you can
xxx
barbara2013
Member

Re: May Moonbeams

Namaste- we all know exactly that feeling- loss of the life we had enjoyed heedlessly- and the amount you still have to go through must seem so arduous- lots of sympathy. But I do find time moves very oddly now- both as tedium and sweeping away. In some ways I still feel it is January when I was diagnosed! How did I get here? I have found that I have got more tired each cycle- am I giving in too much? Anyway, I do a lot less than most of you I think- read, radio, cook, doze is quite a full day! zzzz Back in the day I married an 'older man' which is convenient now as he retired in time to look after me in my illness- poor thing! One of my sons has yet to find 'gainful employment' so I have plenty of company! Jo- I am also a teacher but have not done any work since dx- are you on sick leave still? I go onto half pay soon which will be a bit difficult and wondered whether to try and get in a bit of work between chemo and radio- have you thought about this?
Penny, Rachel, Ann, Tersea- hope SE's from dose ok and Jo glad you're on the mend from throat. Hope that all moonbeams are able to relax this weekend.
Dodo14
Member

Re: May Moonbeams

Hi Namaste - WOW what a lot for you to take on board. It does seem endless doesn't it? I have been keeping busy by doing some work from home - planning, assessing and report writing mainly but as the end of school year approaches I have run out. So I subscribe to LoveFilm, play games on computer, meet friends, have visitors. I am thinking about going back to my family tree research and seeing where else that takes me now I have more time. I also cook big batches for freezer and bake lovely fresh bread to eat. Am starting to write a bit of poetry too. And I do puzzles - any kind crosswords, jigsaws etc...Time to find a new hobby!
Rara
Member

Re: May Moonbeams

You sound a bit better today Jo. Good to hear it.
Namaste, I have started to struggle with boredom and suspect it will be worse now I am on the t part of Fec t and feel better in many ways but obviously still have to be careful so still can't work ( consultant says my work to dangerous in a special needs school. i mean too dangerous, can't delete !
i knit, watch tv, play scrabble online, go on Facebook, play candy crush on computer, ask friends to drop in, little and often although all work so tricky. Have some nice neighbours who are retired started ting to socialise a bit with them in the day, coffee etc.
but basically, I have been so weak up to this point thspend was spending more time lying down resting my eyelids then anything. I am making a list of jobs I can manage to do next week. Boring household stuff. I have a new kitchen being fitted on
12th August so have to empty cupboards in there. Haha should take me days.
inshouldnt moan as compared to your weekly chemo, I have had it easy.
Take care Namaste. X
namaste
Member

Re: May Moonbeams

Afternoon moonbeams....
Pacletaxol 8/12 day 5/7
Have been awol as struggling a bit still. Think the heat's getting to me! Also, in some silly way I'd almost convinced myself that after this 12 weeks of chemo and an op the most I'd be facing is a bit of radiotherapy then everything would be hunky dory. Think I was also on the way to thinking radiotherapy wouldn't be necessary either 🙂 Silly mare.. just cos I don't want it doesn't mean it won't be needed. Anyway, have now had it well and truly hammered home that it's this 12 weeks, then an op then a further chemo regime. Probably FEC for up to 6 sessions which I'm having trouble coming to terms with. I sooooo want to be 'normal' again, like all of us I guess. I'm stir crazy allready, missing work and my old life... especially missing my financial independence 😞
I know at least I've more chance of having 'life' after this even if it isn't my old life but sometimes it all just feels a bit overwhelming.... I'm sure you all know what I mean 🙂
What do you all do to keep busy? I read, watch crap telly, crochet, knit, see friends sometimes but they're mostly at work..... what I really miss though is just being able to go out for a loooong walk, just take myself out and know I can go as far as I want and get home again!
Pft, clearly still feeling a bit sorry for meself
Dodo14
Member

Re: May Moonbeams

FEC T - 4/6 Day 11
It will certainly be a challenge keeping cool today. I will be using the soaking my bandana in water technique as well as everything open and fan on with lots of lovely fluids.
Have been to the hospital for my heart scan this morning before my port fitting on Wednesday. Fingers crossed all ok.
Throat seems to be improving slowly so hopefully we can put that episode behind us now - stupid comments and all.
Rachel - love the mantra. Except surely we want to be at cocktail bars as long as they are the right sort...
I have always had very strange dreams so it is hard to say if the steroids have affected me at all. Don't think so.
Glad to see some of the others reblogging. Still would love to hear from other missing moonies out there.
Rara
Member

Re: May Moonbeams

Morning Penny! you still look great! I love the phot so much.
yes weird dreams are common I do believe!
doesnt help though!
watch out for the heat today ladies.....we have to be keeping cool!
xx
Penny47
Member

Re: May Moonbeams

FEC-T 3/6 Day 3 Just about feeling human.

I know this is a minor gripe compared with what many of us have had to cope wit but does anyoone else find that the steroids give them wierd dreams? I don't mean just vivid dreams like we were talking about the other week (I had a run of dreams about being in charge of - and occasionally losing- groups of children!!!) but dreams like- when I'm falling asleep over a book I often start to dream about what I'm reading only the characters do not make any sense. When I was reading about the French President DeGaulle, my dreams would start with people talking in French (that's OK, I do speak and understand French) but then running down as if there was a problem with the sound, only it wasn't it was with the people...quite terrifying! Last night I was also waking myself up dreaming about people talking and not making any sense to each other or to me. I've never had dreams like this before! If I weren't on the steroids I would think I was going mad!

Apart from this all is well and I am cheered up by my cats who in this head are really good company for one another. And us.

Rachel thanks for a new mantra.

Zuzy and Teresa sorry you were ill again!

Ann-Hope your progress is sustained. It's lovely when they get the meds right and we can actually start to have good days again!
Rara
Member

Re: May Moonbeams

Team moonbeams all the way in good times and bad
together, whenever, forever.
bonds that will never be broken
one day, we will all be in the car park and cocktails at the bar will become a hazy memory.
love and wishes
xxxx
Dodo14
Member

Re: May Moonbeams

Thanks for all your support - especially what you have said Zuzy. I love you guys you make this all much more bearable. Like Janey said you can't vent like this to your OH and family, they just can't take it. Thanks for all your kind words and cyberhugs all round. xxxxxxx
Zuzy
Member

Re: May Moonbeams

Hi Dodo, just to try and reassure you i spent a night in hospital at the same time in cycle 3, similarly bloods were all fine, had iv and Oral ABs and liquids, my chemo wasn't delayed, in fact it was the first time so far that it just went ahead without any repeat bloods! Look after yourself over the next few days xxxx
marleypop
Member

Re: May Moonbeams

Hi Ladies
Sorry it's been a while yet again.....see everyone is going through the ups and the downs........we will get there, just a bumpy ride for us all.
Had my 3rd Session of FEC-T and now I have the T part in Guildford on 2nd August. I'm having the Distract Nurse out at the moment giving me injections over a period of 5 days to help my immune system because I fell ill on the last dose.
Jo so sorry to hear your news, you poor thing....
Hopefully once I'm on the T, things will feel better.
Welcome Trish too, lovely ladies on here and very helpful x x
Rara
Member

Re: May Moonbeams

Blimey Jo what an awful experience......I am so sorry you were subjected to all of that. Crying is a good relief for such stress. So glad you rang Macmillan And they reassured you.
i hope you get a good sleep to tonight and that tomorrow will be so much bett for you.....I am sending you a big fat enormous cybe hug.

well done Ann on your positivity today! I like it.
love to all
xx
barbara2013
Member

Re: May Moonbeams

Jo- what an alarming morning!! Some doctors can be arrogant b**tards who have a pathetic need to put patients in their place- but thankfully most of them don't and even the b**tards want us to get well. Scary for you particularly as you have actually done really well thus far but it reminds us all of the need for vigilance. I realise that I have got a bit carefree as I'm on 4th cycle, having spent the first cycle hovering anxiously over every symptom. Do hope the abx work quickly. I have got angry about a number of things/people in these past months and always think afterwards it's my anger at cancer. Take care everyone. xx
Penny47
Member

Re: May Moonbeams

Jo: You sound like you have been through the wringer!I'll have to add your A and E comment to my list of crazy remarks they come up with on A and E. My GP gave me a pep talk about the dangers of Chemo but this was ok cos 1) he was encouraging me to go sick at work and 2)his senior partner has BC and did have chemo. Love the picture of an ONC and a reg slugging it out in the car park though! Keep drinking- crying is very dehydrating I find. xxP
Guest user
Not applicable

Re: May Moonbeams

Hello lovely ladies,

FEC 3/6 day 2.
I am beginning to wonder if they put water in and no chemo. I feel great, what is going on ? I was crap on the first cycle and not much better this early after the session on the second one.
Dodo14
Member

Re: May Moonbeams

Just got off phone from Macmillan - just to reassure everyone it is definitely not true! He said if my onc knew that and a and e dr had said this to me he might take him out into the carpark and he would end up an a and e patient himself. I know he was trying to make it clear that delays would be necessary if it meant to protect my health but it came out wrong and left me feeling very vulnerable. Macmillan said that as long as we monitor our health and act in the right way when these things crop up, as I did yesterday, then we will be fine. Sorry if I scared anyone else. x
jayney234
Member

Re: May Moonbeams

Hi Dodo Poor you and what a stupidly tactless thing to say to somebody in such a vulnerable state. We have all had the same fears I am sure. It really is a scarey treatment but they wouldn't do it unless they were in control of the risks. I really feel for you but cancer makes us all feel so vulnerable and out of control and if you are fighting infection then that will make you less resiliant to thoughless remarks. Don't worry I am sure you will feel better once the abx start their job. Chin up jayney xxx
Dodo14
Member

Re: May Moonbeams

FEC T 4/6 day 10 - WARNING UNHAPPY RANT TO FOLLOW!!!!
I hit rock bottom last night/this morning. Ended up in A and E for the first time on this journey due to my throat and temperature reaching 38.2. Was made to wear a filter mask and subjected to lots of tests and more cannula issues. Cue lots of tears and feeling very sorry for myself. They used the affected arm so not sure how that will go down with onc. I was given IV antibiotics, ecg, chest xray the works. Apparently my wbc are bounding (41.3!!!) and I am nowhere near neutropenic (7.85) so the Filigrastin and my bone marrow are working very well so I was finally allowed home at 1am with a course or oral antibiotics. They don't know if the infection is viral (wbc will kick butt), bacterial (antibiotics should sort) or just the cancer itself but are not taking any chances.
Then they told me my next treatment may be delayed as a result and when I commented I hoped not the doctor looked at me very sternly and announced "treatments kill patients more often than cancer itself." Now I am terrified that I am about to die and wondering why I ever started the chemo at all. I am pretty sure this isn't actually true but will be phoning Macmillan to check. I just think he wanted to scare me a bit. Well it worked. I have been sobbing from the bottom of my gut half the morning in between worrying about a numbness in my lips and questioning whether I will collapse of anaphalactic shock to top my happy list of woes. Noone else seems worried about it - maybe it is anxiety?
When did my life become all about veins, bloods and cannulas? Will it ever be any better? Not coping at all right now - lowest point since chemo began by far. 😞
On a brighter note - Loving the look Penny. x
Rara
Member

Re: May Moonbeams

Lexi I do not know how you armanaging to work at all! i am in awe!
Penny I love your wig, you look simply great with that winning smile. Your OH will be keeping you indoors.....!
Love to all and hope side effects are kind to everyone
xx
Penny47
Member

Re: May Moonbeams

My new profile pic is of me and Gaby Wigglin. Those who remember my photo back in early May may be struck by the similarity- they got the texture perfect. The colour is close, very close, could have been a visit to the hairdresser for lowlights…It is a snug fit but it’s lovely to have a fringe again, something you can’t get with a scarf or headdress! (unless I can find one with tassels and work out how to tie it so it shows.) BTW Barbara the box she came in has holes in the top like the shoeboxes I used to take wildlife to school for the Nature Table when I was little. She seems quite happy in there. But will have regular outings I hope.

FEC 3/6 Day 2 In the end when I went for my tx I left my fishnet stockings at home because it was oddly enough so cool here when I got up I decided wisely to wear trousers and then while waiting at ONC unit I was really uncomfortably cold- they must have had a wind machine in there somewhere. It was great to get into a (treatment) room which was a little warmer (and I had a window next to me so I had a Signal!) SE’s: I was sick after tea immediately after taking the Ondansetron. Then I realized I had totally forgotten to put on my wristbands!!! My ED (the Doc) rang up the helpline after we decided it was probably safe to take another Ondansetron but only to check the dosage levels. Meanwhile I took a Metacloprimide just to settle the nausea. The helpline told her I can have up to 24mg max and they only infused 8 so I was well within the limit. Took the tablet at 9. Sat up in bed for an hour and fell asleep and didn’t wake up til 6. What would I have done without ED calmly advising me? The helpline said “tell her not to suffer in silence”. That was v reassuring for an AP. (Anxious Patienty but also Ancient Parent). It was so sweet this morning, our little old lady cat slept with her and was very affectionate, as if to tell her “I love you of old but not your kids!” (This cat is nearly 17 so now almost the same age in human years as ED was when we had her as a kitten.)

Just seen the video of the Baptism of EGD- very informal in the back garden on the hottest day yet with close friends, the church group they belong to and YD all there and the kids having a ball. Felt like I was there so nothing lost.

Gosh Rachel you had quite a trial yesterday slogging up the hill- if it’s the one I think it is it is not very forgiving! Nothing like the virtual hill we are all slogging up. Glad tx not too bad. My job for today is to listen to another one of the compilations my friend sent me. !
Lexi42
Member

Re: May Moonbeams

Yes marmite does beat off that taste for a while, not long enough though. Feeling better today, must be on an upswing now. Going to put in an appearance at work, can always come home again if I don't feel right. Thanks for support ladies. I now have Gloria singing I will survive in my head, wonder where that came from. Have a good day everyone!
nanniereeree
Member

Re: May Moonbeams

Oh no I've got a sore throat I'm hoping its just hay fever not going to worry as I'm in the car park will ring the chemo room tomorrow see what they say on microbiotics at the moment so hope that is ok. As I've finished chemo I don't really know what to do ?
been back to slimming world tonight just to catch up with everyone it was so normal....
also spent 3 hrs in work visiting today . Our dept is moving from one end of the hospital to the furthest end possible away from present site but it is not happening yet will probably be just as I go back.
Then when I get back I've got 7 weeks and 3 days hols to get in before April :-). that will be fun
Hope you are all feeling ok
Marie
barbara2013
Member

Re: May Moonbeams

Thanks Rachel and Jane- will get to work with Bio-oil on lizard-skin. Well done those returning from the bar today, fishnet stockings, leopard-skin hats an'all. Have to confess my wig is yet to escape from box- perhaps if I lift the lid she'll make a break for it- I wonder why I bought it really- seemed part of the process I think but I hate being hot! Not been out today because of heat but am full of admiration for those of you doing so much! Lexi- getting in to work- respect!! Jo- sorry to hear your throat problem continues- do hope ice cream soothes! Rachel- you should feel so proud girl- it's so hard and you are doing so well doing that one by yourself. My friends have been brilliant today- picked up my yesterday's wobble so visits and phonecalls all today- very lucky. Ann, Penny, Theresa- hope you rest well from chemo and to everyone else- easy days.
Rara
Member

Re: May Moonbeams

Hi ladies! FEC T 4/6 Day 1

jo and Lexi I hopie you both improve soon.
well the delivery of T is incredibly easy compared to the Fec delivery. Cannula went in well. No instant side effects although the oncologist came to see me to remind me to take temp before paracetamol as my temp was 37.5 this morning when the chemo nurse took it before putting cannula in, but she thinks this is due to steroids plus walking from the bus station up a hill!
I went on my own today! I didn't cry! I have turned a corner!
Loved reading all the posts especially Janes wise words and Pennys wiggy news!
love to all aand hope
ann and Tereasa and penny's and everyone elese side effects are minimal. Can't spell today, hardly slept a wink with worry last night. Worrying is a waste of a good imagination. .....!!
Love to all xxx
Penny47
Member

Re: May Moonbeams

Jo I forgot about the wig- explains a lot. See what you mean about over-reaction. Great that you were able to see GP. Good GP's are a real blessing. Hope it cools down for you. Really hot here-I've joined the cats in the house and it's nearly teatime! Crazy!

My wiglet comes in a box which says "Gaby" on it so I guess she's Gaby Wigglin. I'll try her on when its cooler and post a pic.
Dodo14
Member

Re: May Moonbeams

Penny I am the opposite to you, my temperature at this point in cycle normally hovers around 37.5 anyway so it isn't that raised. Plus I have seen gp today who found no evidence of bacterial infection and it is warm outside. Also whenever I wear my wig my temperature goes up and I had it on for a while earlier. It has been this high before, I think calling is an over-reaction at this stage but don't want to do the wrong thing.
Penny47
Member

Re: May Moonbeams

Jo if I were you I would be on the blower to my helpline. That's partly cos I am a chilly mortal with normal temp 35.5 but it's worth checking.
Jane just seen your post- they don't always show up either on iPhone or laptop. Thanks for the comforting words and the tip about Vit E oil- it ain't cheap is it? I've got all this to come. First crocs, then lizard skin who knows maybe an alligator purse someday. Thanks again for your comforting words.

I'm going back out in the shade to fight the migraine which is threatening. James Cat is not happy cos we haven't put the parasol up (too much like hard work) and he is overheating, even in his cave. ED on the train as I write, coming down to look after us o/n then home to care for kids, go to sports day, concert etc etc. Brave lady-time here awake will just about equal time in transit. She seems to be enjoying it. OH really pleased she's coming. Sigh.
Guest user
Not applicable

Re: May Moonbeams

Back from the poisoning session, tired from the magic blue pill but ok other wise. Another litre of lactoluse to take, I refuse to suffer constipation again.
Hoping for a peaceful night for all of us. x
Dodo14
Member

Re: May Moonbeams

Temperature is hovering just below 38. Not sure if is just the ambient temperature affecting or if I should be concerned with everything else going on. Feeling a bit panicky at the moment... but I feel fine apart from the throat.
Aly1971
Member

Re: May Moonbeams

Dodo - apparently pineapple expecially in frozen lolly form is excellent for oral thrush - you can get delmonte pineapple lollies at most supermarkets and if not can make them yourself with Juice. Also very relieved you finally got relief 😉
Penny, Anne & Rachel, hope the next few days are kind to you - take it easy, I seem to be on a similar path to my last 2 now so not too awful - the fuzz should hopefully clear in the next 5 days or so but I've managed some shopping today, parents evening tonight and got my ED's sports day in the morning - typicall everything falls this week had to miss the school concert on Tuesday 😞
Trish welcome on board, glad you found us.
Jane - what a lovely post - I agree we are all so glad to have the wonderful support of you fabulous ladies, you've made the journey so much easier in so many ways.
Lexi - be kind on yourself - easier said than done but maybe you just need to put your feet up for the next couple of days and look after yourself.
Love to you all - especially those we haven't heard from for a while - hope everythings ok.
xxxx
Penny47
Member

Re: May Moonbeams

Lexi does marmite on toast really get rid of the taste? I love the stuff. Hope it's not on a no-no list as I can see I will be eating a lot of it over the course of T.

Ahem. FEC-T3/6 Day 1 (back down to single figures!) When I got to the bar this morning they hadn't had a delivery but they strung me up anyhow and started the Dexiwhatsit and the Omiwhatsit. Even with the delay in delivery I was free in 70 minutes, not bad when you consider my vein trouble last time. This time she kept the heat pack on the whole time. I'm glad I asked for it. Nothiing like being assertive from time to time. The opposite of More haste, less speed, I guess. They also fed me while I was there only the man next to me started feeling ill....fortunately it turned out not to be nausea - just eating too fast. Phew that was a close call. For both of us! Well I'm off to the sun lounger to see how long it takes for me to feel sick in the heat. This will be interesting!
Lexi42
Member

Re: May Moonbeams

Hello, FEC 4/6 day 8, I feel totally drained, was able to work Mon, Tues and a bit of Wednesday mornings only, but this morning stayed in bed til 11.00. Worried my OH so phoned clinic to check the extra fatigue was nothing sinister. I'm apparently at the lowest point in cycle and heat not helping, but its so hard to stop myself trying to be normal. I'm probably my own worst enemy. I think I'm getting extra fidgety cos I can see the car park now. Only 2 more feccking FECs to go, rads start on September 9th.
Dodo - can sympathise with you over the oral thrush, I have that too, got medicine though, to go with the mouthwash. I've got through a lot of marmite on toast through this, just to get rid of that taste.
Brains a bit mushy today too, so I'm rambling.
Lexi.
Dodo14
Member

Re: May Moonbeams

Seen GP. No sign of bacterial infection and glands not up. Thinks I may have thrush lower in my throat so has prescribed me something for that. Strawberry, banana ice-cream smoothie for lunch for me so it goes down nice and easy.
Fingers crossed for a quick recovery...
JaneyW
Member

Re: May Moonbeams

All my very best wishes to today's cocktail takers! One more off the list, one nearer the end. Penny, if you do wear the fishnets we must have pictures!!

It's been so good to have the company of wonderful ladies like you through this unexpected phase of my life. It's really made me feel not alone but part of a club. A club with very special membership requirements. We've shared details that probably our closest family don't know, pooled our wisdom, and cheered each other on. We've shared each others' triumphs and encouraged each other in the down times. And the good thing is that we'll continue to do so for as long as it takes. I sometimes feel that I can't mention BC, treatment, side effects, and all my concerns one more time, for fear of making everyone around me say 'enough'! But here, in this group, we can all vent as often and for as long as we need to.

I'm fed up this week as I've got a horrid fungal infection on my tongue, all yellow fur, which makes everything taste foul. Even water feels thick, like motor oil. On treatment, but not fast enough recovery for my liking! But I have a few days away next week, so that will help I'm sure.

Barbara, I second Rachel's suggestion of Bio Oil, and I also found vitamin E oil helpful for lizard skin. Cheapest way to get it is to buy capsules and prick them with a pin. There's a surprising amount of oil in each capsule. It's a great healer for many skin problems - I used it on my scars and my surgeon was amazed at how fast I'd healed. You can also buy it as the oil or in a cream.

Hugs to all Moonbeams, in whichever phase you are.

Jane x
Guest user
Not applicable

Re: May Moonbeams

posted it twice, sorry stressed !
Guest user
Not applicable

Re: May Moonbeams

The dreaded day is here. I have downed a gallon of lactolose is preparation and am now farting like a horse on spring grass. It is a good job I am fat otherwise I would need weighting down. Emend and my little blue happy pill to take at 10am and then 11am is the witching hour.
nanniereeree
Member

Re: May Moonbeams

I keep wondering where our AWOL moonbeams are hope they are o.k
welcome Trish hope you are ok I'm actually in the car park now waiting for rads . I and trying to think when Easter was? I had my mx the 25 th March so a bit ahead of you.
Good luck to those of you at the bar today and Don't forget to drink plenty of water before and after
Marie
Dodo14
Member

Re: May Moonbeams

FEC T 4/6 Day 9 - Welcome Trish - all the best for your first T treatment. Sickness is not meant to be a problem so it is unlikely. Don't forget to paint your nails dark.
Penny - tell him to paint his nails that would be interesting...
Well the constipation is clearing which is a big relief for my stomach. But my throat is so sore it is a struggle to eat anything right now and I can barely speak - which I am sure OH and D are quite happy about. It is getting me down a bit. Have texted the mobile hotline this morning and asked them to call me at 9.30 when my friend will be here to do my injection. Hope that works. Pretty sure it is a se and not an infection but best to talk to them and get advice.
Rara
Member

Re: May Moonbeams

Welcome Trish.
Good luck today Tereasa, I knew there was someone else but brain was unable to compute. Lol
any news from any of our missing friends? Little scoot, cazd, suziwong, namaste etc..... If any of you are reading this thread, please know I havent forgotten you!
thanks Penny, I shall be in the
face everything and rise crew too. . . As long as fatigue isn't too bad but even so I can face everything from the lying down position!

Lots of love to all. Hope Jo and Zuzy doing ok with the T apart from the obvious symptoms.
x
Penny47
Member

Re: May Moonbeams

Trish: While I was posting your post appeared! (my system is like its Administrator- doesn't always get it first time around.()Welcome! Like you the moon is rather new at the moment but it will start shining in a day or two! Just in time for your first T....oddly enough I found myself trying to think of all the things I know about T to share with a friend at church who may be starting soon (he has Prostate Cancer). Must build him a dossier when I am recovering. Wondering what men do about nails. Have to post on another thread about this. Take care for now!
Penny47
Member

Re: May Moonbeams

A good mantra (for me) I picked up off Facebook:
Fear can have two definitions:
Forget Everything And Run. or...
Face Everything And Rise.

Rachel Ann and Teresa- a quick cyberhuddle (((O))) before we go out and give cancer Hell! xP

Jo- I've got Covenia spray but it's not as long lasting as the one in the green lid which my daughter uses for her children when they have tonsillitis. Don't forget not to use it and then have a hot cup of tea- you don't get feedback and can scald your mouth which is not exactly what you want right now!