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May Moonbeams

Zuzy
Member

Re: May Moonbeams

Hi Penny, I had zoladex and tamoxifen before my op to shrink tumour rather than chemo, there was a bit of shrinkage but not a lot, i decided to go for the WLE, surgeon was confident he'd get margins and i was lucky in that both tumours were close together and in an accessible place (about 1 o'clock) I also have quite large boobs (an E cup) so for me you honestly can't tell the difference between my 2 boobs other than the scar which is under my arm so not really obvious. I was home the same day and recovered well from it, was back at work after 2 weeks (and could prob have gone sooner but decided to wait til I'd had my follow up appt) I found recovery from the ANC harder, had drains in for a week and was much sorer, and exercises were much harder to do, but again was back at work after 2 weeks. I was told that would def need rads if had WLE but prob not if a mx. Good luck making your decision xx
Rara
Member

Re: May Moonbeams

Hi moonbeams
Penny, I don't envy you having to choose about surgery but I would opt for mx based on what you have said.
I love the comments from your oh and daughter about chemo being worth it..... Of course it is. Imagine how much worse your tumour would be without it! Bless them for their positivity. I hope you manage to enjoy your holiday and leave all cancer thoughts in a shoebox in your bedroom whilst you are gone!

Ann, yes it's a bit sore but not bad at all, no actual pain and doesn't interfere with sleep, the only difference is I couldn't wear a bra now as the underboob seam would rub on the sore bit!. Hope your first rads went well today . I only have four left now whoopee! Although the staff are so nice there.

Karen is now home. No further details today so far. Her second op on leg wound was done under a local in the end so recovery will be quicker. Her bone scan was clear so bone cancer was not the cause of the break.

Zuzy I think you are remarkable starting a new job, my head is still befuddled at the moment.

Have a lovely weekend everyone and Penny enjoy your well deserved holiday

Xx
Penny47
Member

Re: May Moonbeams

Aly and Barbara thank you so much.  It's great to get the perspective.  Today as I prepare for holiday I remember how I found the lump when getting ready for the last holiday and that is making me miserable, except that I am deeply grateful first that I found it and then that it was palpable to the GP and CS although not very visible on mammogram or US.  I am giving thanks that it has had treatment however middling.  Otherwise I would be walking around unawares....doesn't bear thinking about! ( my mood has not been improved by computer virus removal problems, now sorted! and a dead Mouse.  Not a rodent)

 

My next step I think is to appreciate the size of both the tumour and the breast.  My breasts are so variable- they look different in different bras and garments and also when wearing nothing at all!  They are also a lot bigger now than they were on account of the stone I put on over chemo. (We know what to do about that!) I don't think there will be much difference between WLE and MX for post-op recovery except for the lifting and reaching into top shelves both of which I have to do at work.  And getting used to the Letrazol again!  (which saps my energy levels) My workmates can cope with the lifting and reaching, but can't give me time off for a nap mid-shift.  In fact I am lucky if I get a lunch break.  So no-one minds if I put off coming back until my sick pay runs out. 

barbara2013
Member

Re: May Moonbeams

Aly and I must have been posting at the same time and we've given slightly different perspectives- so I just wanted to add- if it helps- that I also don't mourn my lost breast now (did a bit when first dx but then got angry with it!). x

barbara2013
Member

Re: May Moonbeams

Penny- I do feel for you! The experiences of so called  'choice'  we have had to make recently! In fact I wasn't really given a choice re mx by my surgeon because mine was in and behind nipple and I am small-breasted.  My cancer also was mulitfocal (two separate tumours plus areas of dcis) so no chance of WLE- but others can advise on this. In all matters I have followed the 'steer' of the medics  because it's a simple strategy for getting through this- although  not like me not to question received wisdom!  So if your CS thinks WLE  and they can get clear margins I might be tempted to try for it. In a perfect world with no node involvement that might be all you need?  In terms of work- if you are not having a recon would there be much difference between recovery from WLE or MX? You must have felt very frustrated at this news- none of us know whether we are in the small number who would really benefit from chemo rather than suffer from it- but as you say you also don't know that it has not benefited you. So sorry you have to go through this and if there are any questions I could help with please just ask. Be kind to yourself and enjoy your holiday.

Aly1971
Member

Re: May Moonbeams

Oh Penny this all sounds very frustrating and horrible to have more decisions to make.

 

Firstly on the tumour shrinkage - there have been a few ladies on the younger womens FB page who had very little shrinkage during chemo BUT when the lump has been removed the cancer within it has basically died - not sure if this is something you can see from the MRI or not until its taken out. It must be so disheartening to be told that the chemo wasnt as effective as it can be, but I seem to remember that you said early on that the tumour was growing at quite a rate and if its stopped it in its track and blasted away any other mischevous  cells then its got to have been worth it.

 

Onto the operation - I can only speak from my own personal experience which was an MX & ANC to my right breast as I had 2 lumps in opposite quadrants so they couldn't 'save' the breast. For me I was very glad to have the decision taken out of my hands but on reflection I would have gone for an MX whatever, I don't mourn my breast at all and most of the time forget its not there any more, I also am grateful that I have one less boob to worry about if that makes sense. I  intend to have some kind of reconstruction at some point but that will be in at least a year or so and I don't know for sure that I will. I found the operation very straightforward, I was only in for 1 night and sent home with 2 of my 4 drains still in, and was up and about very quickly, and back at work in a couple of weeks post op. I had my ANC at the same time but think its again pretty straight forward if they do find they need to go back in.

 

I hope this helps with the decision -I HATE decisions!!!

 

Aly xx

 

 

Penny47
Member

Re: May Moonbeams

I saw  CS yesterday.  The results of the MRI are disappointing;  chemo has not appreciably shrunk the tumour- it is still roughly the same size, but it's in islands, which makes CS's job harder, in a way.  However, on the strength of experience which suggests that MRI scans tend to big things up, she is still offering me a WLE.  SO I have to consider whether I want this which may well lead to a Mx, or just go for the mx.  Running parallel to this, as you all know better than me, is the SNB saga; there may well have to be a second op for ANC, so choosing to have Mx to prevent two operations is not a safe option.  I am giving myself some time to decide...not rushing into anything.  But I do have to let them know next week.  When oddly enough we are on holiday and I won't want to be thinking of it at all! 

 

I am trying to visualize the tumour (which can't really be felt- it's also very hard to see on US) and it seems that by the time they take it out with margins I will have very little left anyhow.   Any thoughts anyone?  I know you have all turned the page on this, but any reflections or experience will be valued!  I am not really interested in reconstruction at this stage- I think I need to take it one step at a time and if I get fed up with prostheses then that is the time to have the op.  In the meantime, there is also the question of sick pay- I need to go back to work to build up my Brownie points before going off for yet another op;  I don't pay stamp now I'm over 60 but there iare still rules about how long I can claim. 

 

After I saw CS when I was having my first angry moments, I told OH and each of my DD's I thought chemo had put everyone to a lot of trouble for very little, and I got the unanimous response- "you don't know how much it would have spread if you hadn't had it".   Love'em!

 

Karen- words fail me.  I hope you are taking it slow. 

 

Marie- I'm not back at work til January but I'm almost up to speed over my energy- about the levels I managed to achieve in the third week of the first 3 cycles ie no naps, plenty of walking- must be the effect of the holiday to come!  I fall into bed every night and sleep like a baby...that's work for you!  It does make a difference!  The fresh air helps too. 

 

Good luck to Zuzy and Aly and Ann over Rads.  I am still expecting to join you but the CS suggested I may not need radiotherapy (another example of different practices in different hospitals?) - it all depends on my path reports which I guess means node involvement, or something.  But I am really up for it.  You will all be back at work or sunning yourselves on some beach and I will be doing the daily run to Cheltenham!

 

And good luck to Namaste as an October Optomist.  I wish I felt more optomistic myself!

 

Well must take the suitcases off the bed and put them on the floor!  Bedtime!

 

 

nanniereeree
Member

Re: May Moonbeams

Well that's two weeks back at work next week I'm working three days every week until Christmas it's so nice to be physically tired instead of mentally tired 🙂
Guest user
Not applicable

Re: May Moonbeams

Hi Rachel,  how sore is sore ?  I have first session on Friday and getting revved up.

Ann

Rara
Member

Re: May Moonbeams

Hi ladies
Karen's had wound cleaned and stitched in theatre today and hopes for parole tomorrow or Friday. She has some weird boot thing on her non fractured foot as she also sprained her other ankle in the accident by her back door! She's having trouble using the crutches...... Bless her:-)

My skin is sore under boob too now.... Am off to buy cabbage leaves tomorrow! Not sure if I am over feeling pain at the moment but I am certain my collarbone hurts more then ever! I used to be so proud of having a high pain threshold..... Now I just feel grateful for half an hour in a position that doesn't bring pain !
On a happier note, I had another aromatherapy massage today and can thoroughly recommend it. I asked her not to touch my left collarbone area at all.
I love reading all your updates ladies and Marie, you make me laugh with your witty comments about Karen! Xxx
Zuzy
Member

Re: May Moonbeams

Hi Aly, how was acupuncture? I've had some counselling at the Haven and some shiatsu and hav my review coming up so wondering what to try next, a few people hav recommended acupuncture but I hate needles..... We'll have to try and coordinate apts and hav a coffee!

I start new job on 4 Nov but have been in a few times to meet people and interview for some vacancies in my new team, have to say i am starting to worry that I've been too optimistic thinking I'll be well enough to do it ok.....

Karen, hope 2nd op goes ok and that you get home soon

God luck to everyone having/starting rads, hope you are all ok

Xxxx



Karen, hope you get well soon
nanniereeree
Member

Re: May Moonbeams

Rara send Karen my love tell her to stop being so bloody greedy using up the NHS like that xxx:)
Dodo14
Member

Re: May Moonbeams

Aly - Good to hear from you.  I will be having rads at the same time as you.  Haven't got a start date yet but probably towards the end of the month.  I am having 3 weeks and 3 days worth.

 

Thanks for the update on Karen, Rachel.  I do really feel for her and send my love and lots of positive vibes her way.

 

Thanks for the insurance link Janey.  Very helpful.

 

 

 

 

 

Rara
Member

Re: May Moonbeams

Hi all
Quick update on Karen. She has to have a second op today as fracture wound isn't healing (poss due to chemo breaking down cells)
She is extremely fed up
I passed your good wishes to her and she says thanks v much and sends love to all

Xxx
Aly1971
Member

Re: May Moonbeams

Oh and meant to say good luck for the scans Zuzy, never fun being back in the waiting room but glad they are being thorough otherwise you'd worry  even more. Will be thinking of you. xxx

Aly1971
Member

Re: May Moonbeams

Hi all - feel like its been an age since I've posted -  been having a lovely couple of 'chemo free' weeks, its been such a relief to not have any hospital appointments for a while, and despite not working I've been managing to keep very busy.

 

Namaste - good luck with the next stage of chemo - we will all be thinking of you and look forward to another car park celebration when you're done - once a moonbeam always a moonbeam no matter how long it takes.

 

My thoughts are with Karen constantly so if your managing to log on to the site at all I'm thinking of you - you have had such a rough ride and I wish there was something we could do to help - but just to say you're constantly in my thoughts and I hope your out of hotel NHS and back on your feet again very soon.

 

Radiotherapy starts on Monday for me - 5 weeks which I have to say I'm not looking forward to but once its done its done and I can begin to put all of this behind me, although of course it never goes away does it??

 

I've been spending quite a lot of time at The Haven in London which offer free treatments for women with BC, so far I've had nutrition advise, accupuncture and a counselling session all of which have been of immense help - you get 10 free sessions in total but don't think I'll get there again until rads are over. I've also been going to a 'mindful meditation' session held there which I've really enjoyed. I wish I could find more time during the week to practise as I really do think it helps with stress and quietening the chatter in my head.

 

Of out for my work leaving drinks tomorrow and with friends for a mini post chemo celebration dinner on Saturday so starting to feel like life is getting back on track.

 

Anyway I'm sure I'll be back on next week with lots of Radiotherapy questions is anyone else having Rads at  the same time as me? I think a lot of you have already finished - Rachel you might still have a week to go? - enjoy the LGFB session they are fantastic.

 

Zuzy - have you started your new job now - hope its going well.

 

Oh and how's everyones hair doing - mine is coming back really quickly I've got a good covering  of fluff everywhere that I lost it so now have a very dodgy looking mullet as have the long hair at the back and fringe that didn't come out with the cold cap and then a number 2 at the sides and top where its grown back - think I will be braving an Annie Lennox style crop in the next couple of weeks but so wish I could bleach it blonde.

 

Lots of love to you all even though I haven't been posting- you are never far from my thoughts.

 

Aly xx

 

JaneyW
Member

Re: May Moonbeams

I found the insurance linnk on this site https://forum.breastcancercare.org.uk/t5/Work-finance-and-travel/bd-p/4444

Many pages of it!!

barbara2013
Member

Re: May Moonbeams

Thanks Zuzy!

Zuzy
Member

Re: May Moonbeams

Good luck Namaste, hope all goes well with the rest of your treatment.
Barbara, have sent you a pm about insurance
Xx
Dodo14
Member

Re: May Moonbeams

Good to hear that travel insurance is doable as I was worried I wouldn't be able to go abroad next year because of it.   Now I can start to think about where I would like to go.  Will have to wait until then as still got rads to go and daug in year 6 so can't really take her out of school.

 

All ok for rads - should have planning session next Friday and start a week or so after that, hoping will be done before my birthday in late Nov.

 

Good luck Namaste for your next treatment and to Karen in her recovery. xx

 

 

barbara2013
Member

Re: May Moonbeams

Wishing Namaste all the very best for the next stage of your treatment.

Thanks Jane and Rachel- willmake enquiries-

Rara
Member

Re: May Moonbeams

Hello ladies .
Good to hear from you Namaste .... Sounds like you have a long journey left ahead of you, I hope it's bearable for you .

Re travel insurance, I just sorted mine out today.... I got the number from the Macmillan guide to travel insurance. Don't think I am allowed to name them on here but they are a sub of a big company and they specialise in breast cancer but they did want a lot of detail such as dates of ops and dates of chemo and rads. And current medication blah blah. Surprisingly quick and cheap.
Update on Karen is that she is learning to use her crutches and I think she said she has a Zimmer frame too! She is still in hospital. Her rads have been delayed by two weeks so she's pretty fed up. I think she said her ward is very noisy and preventing decent sleep.
Tomorrow I have a Look Good Feel Good session at the rads hospital! I was so lucky to be offered the last place on it. I am also going to a relaxation class again..... If only I could remember to actually use the tech iques ..... I get so uptight that I forget! Lol
Take care everyone

JaneyW
Member

Re: May Moonbeams

Re travel insurance, I had mine before diagnosis (and the company has still to pay up for 2 cancelled and one postponed flight. Can't name them of course, but they're not quite such fun to deal with as their high profile bearded boss might suggest.)

 

But I think there are some companies who take patients with breast cancer more happily than others. I'm sure I've seen it on this or the McMillan site.

 

Jane

namaste
Member

Re: May Moonbeams

Afternoon all.... I haven't been on for a while and it's taken me a very long time to catch up with you all 🙂 Lot's of 'ups and downs' I see!

 

I'm going to be moving over to the October thread now. I had an op in May then 12 weekly sessions of chemo (starting in May :))then another op last month and now I'm waiting for more chemo. Doesn't seem to end!

 

It's very helpful to see how everyone does manage and get through this... I guess because we all want to come out the other side. I did have a bit of a meltdown last week at the GP's but apart from that I'm coping in my own way as you all are.

 

I will keep up with you all as you come to the end of your treatments and wish you all the very best... especially Karen who seems to have had everything thrown at her and more 

 

Take care and cyber hugs to you  all xxx

barbara2013
Member

Re: May Moonbeams

Yes- good luck Zuzy.  Like Marie I have not had any scans apart from mri of breasts and chest xrays at the begining.  I felt a bit concerned about this because of having cancer in the nodes and I know many hospitals routinely scan if lymph node positive but my oncologist doesn't- arguing that there is no difference in survival rates due to scanning and it can induce further anxiety.  You could also argue, of course, that it can allay anxiety.  It all comes back to the uncertainty of our new world and I know my work now is to really push through with a positive approach to that and make sure I enjoy my life rather than spoil it with worry- this is the challenge.

On that note- travel insurance! Feeling confident I will get this for long haul travel to Japan and to the US is crucial for me.  I think Jane has been to US since treatment- Jane did you take out a new policy?  My BCN said often BC travellers opt for insurance that excludes BC because of he costs- but I worry that somethin like lympodoema or DVT- possible side effects would not be covered. I would be happy to take my chances in Europe but worry about elsewhere.

Off for rads soon- skin feeling sore and new moles have popped up all over- anyone else got this?

 

Dodo14
Member

Re: May Moonbeams

I guess although we all have breast cancer (strike that - had breast cancer) there are lots of different types and variations as well as different opinions of consultants to take into account.  We just need to trust that they are doing the right thing for us and talk through anything we are not happy about.  Good luck Zuzy with your scan and hope the waiting is not too long.  I am seeing onc today re rads.  Have a good week all. x

nanniereeree
Member

Re: May Moonbeams

I've not had any scans at all only before I had op as they just wanted to check chest X-ray as there was something they were not sure about on one of my ribs. It's strange how care differs isn't it 😞
Zuzy
Member

Re: May Moonbeams

Jo, the first time it was because it was in the nodes so standard at my hosp to o the scans, this time it's because of this nausea I'm having, it's not tamoxifen and as i wasn't nauseous at all on chemo it would apparently be odd for it to start after i've finished so they just want to rule out anything more sinister, they did say that if I didn't want the bone scan I didn't have to have it but I think that I may as well have them all if they're offering ! They say it could be something completely unrelated like gall stones, which i guess would also show on the scan? Personally I now think the chemo has just done funny things to my digestive system and I've maybe developed some intolerance to some things, chocolate def doesn't seem to be helping 😞 I guess I should be glad they are being so thorough! Xxx
Rara
Member

Re: May Moonbeams

Hi ladies. Sorry to hear of some suffering going on amongst us...... Like Dodo, I am worried about differences in our care.....if I had my way, I would have a scan every week to check for spread.....Barbara, was your cancer grade 3 like mine? I wish I could stop worrying all the time!
Karen's op was a success and she has plates and pins in her leg. She literally stepped out of her front door and fell.
She is now medicated up to the eyeballs and high as a kite apparently.
I hope everyone tries to enjoy their weekends with friends and families and enjoy a little bit of escapism from the world of breast cancer! I have one of my lovely brothers arriving tomorrow with his little Germanic family! X
Dodo14
Member

Re: May Moonbeams

Zuzy - I only had a CT scan right at the start bit no bone scan and no further CT scans planned.  They seemed confident it hadn't spread after the op showed no lymph nodes affected.  Why do they feel it is necessary for you?  I am concerned by the differences in approach to treatment and monitoring.

 

 

nanniereeree
Member

Re: May Moonbeams

Ladies if your skin breaks and gets sore see if you can get some flamazine I've been using it this week and it has worked wonders ..
I'm per
Ing but it's dry not wet and stops infection 🙂
Zuzy
Member

Re: May Moonbeams

Jo, ct and bone scans to check for spread 😞 had them before so know what to xpect and they are just precautionary, BCN said they wouldn't be doing their job if they didn't check it out, but doesn't stop the worry. Sigh! Hope they sort your cording out soon xx
barbara2013
Member

Re: May Moonbeams

Rachel- please send our love to Karen if you are in touch.

Well done Zuzy on finishing rads.  I had no 10 today after another very long wait- fortunately able to sit on seafront for some of it. Have to say I am in poor shape emotionally at the moment for a number of reasons- mostly cancer of course- but wonder if the tamoxifen has contributed to a sudden dip? I am going to try to see the counsellor at the clinic.  Weather forecast to be better this weekend so hope to get out with friends and family.  Hope you all enjoy your weekends.

 

Dodo14
Member

Re: May Moonbeams

Congrats Zuzy on finishing rads.  What is a staging scan?  Sorry to hear skin not doing well, keep it moisturised. 

 

Great to hear from you Lexi, and that all is well and nearly finished.

 

I am seeing onc on Monday to arrange rads and physio on Weds about cording in armpit. Arm movement is pretty good though despite it.

 

Hope Karen is ok and that we hear from her soon.

Zuzy
Member

Re: May Moonbeams

Rads are finished, just a small yeah as all bit of an anticlimax as unfortunately skin has suddenly given up, collar bone is particularly sore, have got lots of gel to put on it which actually really soothes it but has to be covered with a pad which i cannot completely cover so is really obvious. Also been told need a precautionary staging scan because of the nausea issue, they don't think there wil be anything but still have the stress and worry of waiting for results. Certainly doesn't feel like it's all over yet 😞

Hope you are all ok and have a good weekend

Xxxxx
Rara
Member

Re: May Moonbeams

Hi all! Karen was first on the list for operation this morning but not heard from her yet. I don't even know which bone is fractured but she did say it needs pinning and I think she said that bone is through skin but I am not sure....
Lexi you are remarkable,,,, I think you have done amazingly well throughout all this,,,,, I admire you so much. I am just starting to feel like me again. I think those chemo drugs really affected me..... I had 9th rads today and also saw clinic nurse,,,, she said skin may split on breastbone but was impressed at how well scars are holding up around boob and underarm. She also said I will be fit to fly for 4th November! I decided against the Canary Islands after all as worried about hot flushes and sun, so going to Berlin to spend a week in a lovely holiday apartment next door to my brothers house! He has two young sons so they will keep me entertained. Cannot wait to get away from my house, it's been like a prison but when I get home I will look at it differently I hope!
Love to you all and thank you for praying for Karen
Xx
Penny47
Member

Re: May Moonbeams

If Karen can read this (on her phone?  hopefully?) she should know we're all rooting for her.  You are in my prayers, girl. 

Guest user
Not applicable

Re: May Moonbeams

Very best wishes to Karen, you really are having a rough time.  Get well soon.  xxx

Lexi42
Member

Re: May Moonbeams

Hi Moonbeams, just thought I'd let you know I'm still around. Only two more rads to do, been working 11.30 to 5.00 so i can have a lie in and get some extra rest and radiation appt at 5.30. I know I'm so lucky to live only 10 minutes from the hospital. I really feel for those of you who have to travel for an hour or two each treatment.

Cyber hugs to Karen, hope they fix you up okay.

I'm feeling pretty good now, I look like GI Jane, but my skin feels so much better and so far I've only had a minor skin irritation just below my neck which I'm trying not to scratch. The radiographer said to me yesterday you don't smoke do you because you've got good skin. So at least I've got something right then!

Not sure how its going to feel not having to go to the hospital anymore. But I guess the memories of all this treatment will gradually fade away. I saw a counsellor (American spelling?) the other day and he said that at the moment your life is 75% hospital 25% you, so you have to redress the balance, or something like that - made sense at the time anyway. Still in two weeks time ill be relaxing in Lanzarote for a week, can't wait, just hoping I have a bit more hair by then. JUST WANT TO LOOK NORMAL!! (Sorry got carried away then).

Best wishes to all.

Xx Lexi

Dodo14
Member

Re: May Moonbeams

OMG poor Karen, she is really suffering.  My thoughts and prayers are with you. xxxx

Rara
Member

Re: May Moonbeams

Moonbeams I have bad news, Karen had a fall today which has resulted in a compound fracture and she will have o have an operation tomorrow. I will let you know more as and when I find out more.......
Those of you who believe in the power of prayer, please pray for her .... She has suffered so much recently. The tax chemos have made her life hell and now this,,,,,, xx
Penny47
Member

Re: May Moonbeams

Welcome back Karen (Tah dah!) and have a Pimms with mega Borage from me...it's what we decided back when Jane was let out in the car park and we've been drinking it since.  I think I was a little after you being released into the car park...18 September so one more week and I will be FREE of care.  Just in time for my appt with the CS and booking my op.  Which should be around half term.  They took me into hospital for 4 nights (with neutropenic sepsis) just to show me what it's like so I feel more confident about going.  I don't mind working in hospital, it's just being a patient I can't hack.

 

I went for my MRI scan yesterday (face down, boobs hanging in their special compartments,  a selection of imaginatively chosen Garage/Thrash music bass lines to listen to!) and all was fine until they injected the dye through the cannula.  I began to lose it (remembering chemo) and then managed a nosebleed right on the spot in the machine.  This almost had me in fits of giggles, which is a no-no as you are supposed to lie still!  So when I say I am out of the clearing I am really boasting; clearly I've got issues with cannulas I need to sort out.   One week and I get to find out whether the chemo has actually done the trick.  Too busy getting ready to go away to care. 😉

 

Dodo14
Member

Re: May Moonbeams

Welcome back Karen -congrats on reaching the car park and stating rads soon.  Xxx

nanniereeree
Member

Re: May Moonbeams

Woop woop Karens in the house lol xxx
Guest user
Not applicable

Re: May Moonbeams

100000000 apologies I have finally got back on here, so so sorry. Didn't want to come over as being negative then pc broke and as you saw before posting from my phone was a little funny! I've bought a kindle fire so fingers crossed eh?

Well I have some reading to do to catch up I feel I little behind, my own fault. It sort of ran away from me.

How is everyone, am I about the last to finish? I finished chemo on 17 Sept and start dads 10 October for 20 sessions. I know some of you are back to work, that seems so far away at the min. Yes I'm a proud owner of a picc line, just for the last chemo!! 

Well I promise to get on here more often,just a little Fed up at the minute 😞

Take care ladies

Karen xxx

 

Dodo14
Member

Re: May Moonbeams

Sarah - I have had no SE from herceptin that I have noticed.  That is the easy bit!!  Just got myself a bit worked up last time about the potential damage to your heart, which is very rare, and convinced myself I was getting chest pain.  They just did an ECG and it was all fine. 

 

 

mills1
Member

Re: May Moonbeams

 Thanks Penny for the good wishes, everything is fine so far.  I have been doing brisk walks too, want to lose the weight i have put on . 

JO- how are you finding herceptin, i have that next. 

 

RE coat of arms- i suggest a soldier or knight, something to reperecent a battle/fight

love to all xx

Dodo14
Member

Re: May Moonbeams

Has anyone heard from Karen or others who we haven't heard from recently?  I keep wondering where all the lost Moonbeams are and how they are all doing. 

 

I have been referred to the physio for arm but it isn't too bad.  I am keeping up my exercises ok. 4th Herceptin treatment tomorrow and still waiting for onc appointment re rads.

 

Moonbeams coat of arms sounds fun.  I guess moon/moonbeams should be one quadrant (sounds like boob talk) - so borage, horned onc, moon....ideas for the last section?

 

Love to all. x

Penny47
Member

Re: May Moonbeams

Yep, my garden is still full of Borage.  Practically all that's in flower at the moment!  Fresh out of Pimm's though.  (Saving up for Holiday.) It would be lovely to have it as an official badge.  If it were a coat of arms we could have a horned oncologist in one of the quarters perhaps?

 

 Sarah and Jo- thanks for tips on bras/crop tops.  I have found a post-surgical one which does up the front and each cup comes down like a feeding bra but the support is amazing though not tight-feeling.  With that one and crop-tops from Peacocks I should be sorted.  The proof of the pudding...... Funny- I think of Peacocks as a place for men's and boys' underwear not ladies!  (Creature of habit, me).

 

Trying to walk a  mile a day.  Not easy, but definitely doable.  Going for MRI scan tomorrow early and too much of a wus to drive home on my own- the cannula site from where I was in hospital is playing me up and my hand not quite back to normal after my last cycle- had two insertions and a lot of leaking.  So when I have my cannula tomorrow I will probably over-react.  I found the last MRI very dizzy-making and stressful but then I expected a worse outcome than I had in the end.  This time I am trying to be very positive.  But driving the 15 miles home maybe not the safest option.  At least I have the rest of the day to recover!  Just about to see lovely GP and run biphosphonate by him.

 

Good luck with your radsall of you, especially you Sarah.

barbara2013
Member

Re: May Moonbeams

Ann- the soreness is on my underarm and back (not sure why they fire radio at my back???) but it doesn't stop me doing anything- mind you I am not doing much at the moment!!