Hi Namaste - Good to hear from you after all this time. So glad you have got through your treatment and yes you will get more and more towards a state of normality, although this won't be complete for quite some time for any of us I feel. Keep in touch and let us know how you are getting on.
It is very quiet on here at the moment - is everyone getting on ok? x
Hello all you lovely Moonbeams... I have just spent a couple of hours catching up on all your progress. It's heartening to see you all making such good progress but of course dreadfully sad about Karen. I don't think I'm able to say anything that won't sound trite so I won't.
You may (or may not!) remember that I was a Moonbeam (one very long year ago). I was then scheduled for another chemo regime in October and was going to join their monthly thread. As it happens I just didn't and dropped off the site for a while. On reflection, I should've stayed and got the support I needed..... but we live and learn.
Anyway, I've been struggling physically and emotionally but reading how you're all getting on has helped. It's certainly put things in perspective and made me realise I'm being a bit impatient and a bit hard on myself! I had 11 sessions of paclitaxol starting in May then 4 sessions of AC chemo starting in October... (then 20 RT finishing end Feb) no wonder I'm not back to 'normal' yet 🙂
I'm not back at work yet which I have found frustrating but I have taken on some part time studying to keep the brain going. Patience is what I need I think so I shall be popping back now and then to keep up with you all and remind myself that it WILL be me soon that has some sort of 'normality' back.
I think we all need some proper sunshine. Even in Guernsey they all seem to have been having UV 1 and 2 all week. 😞
Jo and Aly: A suggestion? September 14 is a Sunday. Those of you who can't make 13 Sept could come for a visit and lunch and a laze on the Sunday. Those of us who have both days free could meet up Sat afternoon and have dinner and then stop overnight and then meet up with you on Sunday. Is this too lavish as to time and money I wonder?
Aly was it you who mentioned a place to stay? Please PM us if so.
My GP is so kind. He has called me in for a blood test "because you had Neutropenia last year". Images of tick boxes cross my brain. He will consign me to the waiting room but I have a cunning plan to escape and plant runner beans in my garden!
ps My job is fantastic. Take a line through Puddle Lane those of you who can remember it. Had to make my way past Morris Dancers to get to my car yesterday!
Hi all, gosh I can't quite believe its a year since we all started chemo, funnily enough I'm not even sure what my start date was in the end I know it was late in May.
So my good news is that the Bone Scan was clear - to be honest I was pretty sure it would be as the pain had gone but you cant help but worry, needless to say I still had an hours wait for a 9am appointment to give me enough time to work myself into a ball of stress - I was in and out in 5 mins. Got my year on oncology follow up next week.
14th works for me - if we were to meet in Oxford I could drive or get the train up early on Sunday morning so maybe we could do lunch somewhere? That way if you wanted to all meet up and stay over in a hotel on the Saturday night I could just come up and join you?
Seems a shame to change the date when so many of you can make it - I'm really happy to still contact the hotel / book rooms for everyone?
Let me know what you think?
Sarah - what a complete idiot! I wouldn't have known whether to laugh or cry.
What are we suggesting for 14th September exactly? I wouldn't be able to be anywhere late as would need to go to work in the morning so it really depends what the proposal is.
I have had a tough week, felt a bit grotty. Minor headaches (stress and lack of sleep I think) and general symptoms. Our kitchen work has started and it is no fun at all, plus I think I overdid it at the weekend clearing the stuff out. Also I managed to convince myself I had found a lump at the weekend and got into a right state but ever since I can't feel a thing so I think I must have imagined it! All these high profile cancer deaths are not helping me to feel positive about the future right now.
1 year ago this Thursday was my first FEC and my last day at work, thank you all for helping me through the very worst days. x
Hi ladies, just thought this may make you laugh? Went for follow up appointment yesterday, waited 45 mins to see doc. Doc examines both breast and this was is how it went....
Doc- Hello, do you have any concerns?
Me- Hello, No (thinking...How long have you got?) Doc prods right breast and has a sharp intake of breathe
Doc- Have you had this lump long?
My heart does a flutter as i look down thinking OH GOD, NOT AGAIN!
Me- Yes Thats my port!!! (thought the scar may have given it away lol)
Doc- Oh, you have a port-a-cath
He continues to feel left breast and it hurts so i wince a little
Doc- Sorry, is this the side of your surgery?
YES, THE SIDE WITH THE SCARS GIVES IT AWAY!!!
Well, whem Jim and i came out about 10 mins later we didn't know what to think, would he have found anything anyway? Anyway at least i know my MRI was clear so another one next year and continue with self examination i think.lol
Take care and 14th ok for me xxx
Jo please PM me the product you are thinking of! I've tried most laxatives and (Aly) Movicol is the most effective but I don't want to get addicted. Not what you want when you are across the churchyard from the Kazi at work!
Sorry for the long absence, its taken quite a few days to recover from the Jet Lag and the girls only went back to school yesterday and I had to do a training walk for the Moonwalk - I managed 16 miles - very chuffed with that but boy did I feel it by the end - not sure how I'll manage another 10 on the night.
Thailand was magical - Krabi is stunning and the resort we stayed at was so relaxing - we also had the fun of Songkran which is Thai new year and basically one massive water fight - loads of Thai's in the back of pickup trucks with vats of water chucking it at each other - great fun but not for the feint hearted!
I get my bone scan results tomorrow but not stressing too much as pain has all but gone so think it was a pulled muscle - always worry about what else it might show up though - never quite shift that nag of anxiety. Nothing I can do about it though, what will be will be.
Really annoyingly 13th Sept is the one date I can't do - my eldest daughters theatre school has their first show that day - there's so many of you that can make the date though maybe you should go ahead and then we try and do another one later in the year?
So glad to hear all the good results - Penny, Sarah, Rachel I never tire of the good news it keeps me going. I can't believe that we've already reached our 1 year anniversary - thank you all so much for your amazing support, you have literally been a lifeline in the darkest of times and I think my experience of treatment would have been a very different one without you to help me through it. Here's to finally meeting you all and raising a glass to Karen.
Barbara - so glad you had a great time in Japan and so exciting that you have quite your job - I did the same 6 months ago and it has been such a positive for me, my life is certainly all the better for it, I know just work odd days here and there for the same company for a bit of extra cash and to keep the brain ticking over - which I'd done it years ago.
Penny - constipation is a nightmare - I agree Senna tablets can work and I also took Movicol last year which works wonders but you might not want to go down that road.
Awful constipation. Really painful. I don't think my diet could have any more fibre in it than it does. I eat like a horse (oats and salads) and drink like a fish. Hate having to take laxatives. The pain slows me down and makes it hard to walk as far as I'd like and the pain tablets probably don't do the condition any good either so I feel stuck in a vicious circle. I had this struggle last year before I started chemo and it was a great day when I gave up the calcium for the duration! Thinking of trying syrup of figs but it didn't help much last year. All suggestions will be considered!
Barbara I am really speechless in admiration. We all know how much you were looking forward to your holiday, a trip which seems to have proved challenging and joyful but which would have had me on the floor with exhaustion! And now you have had the courage to work out your priorities and implement them. Brilliant. Good luck with your new life!
My reduced circumstances mean that I am a happy coupon clipper. No week is complete til I have shaved at least 15% off my shopping bill at Tescos or Sainsbury's. However, this is not enough for me. I need a beach to comb!
My job has proved to be utterly absorbing. The week before I started I had those horrible tax-like pains in my hips. I saw my GP who muttered something about secondaries and put me in for x-ray which I dutifully had on the first Thursday I was supposed to hear the results Monday or Tuesday but the week whizzed by and then suddenly it was Easter and I was working hard in both jobs and then collapsing gratefully into a heap in front of the telly. However, I was too tired to turn it on! I was definitely in the waiting room and part of the time I was resigned to possible bad news, but most of the time too preoccupied to care. The prevailing feeling was of unreality. Yesterday I finally rang up and was told the x-ray was normal. Quite a large bit of me thought-of course I'm fine. Still no explanation for the pains, which come and go. I'm back on the calcium tablets and struggling with the side efffects from those.
All through this I've had my induction training and I've been trying to find cheap equipment to replace the stuff we've got that is on its last legs. A bit of a gigantic easter egg hunt!
Yeah 4 weeks would be worth the 24 hour thing. You'll be well over your leg by then! You'll be able to sprint up and down the aisles and leap over the trolleys.
Barbara- your photos on FB were gorgeous. That air journey must have been something!
Aly- your break in Thailand must have been amazing. Glad you got a complete break!
As for me I am recovering from cooking my first joint since.....can't remember! I spent Christmas Day in bed and left the cooking to my daughter and Thanksgiving (November) we sent out for our dinner! The rest of the time it has been casseroles (eat one, freeze 3) and veggie meals (very good for cancer sufferers, I'm told!). Now, for the chocolate...well, I have put my easter eggs in the fridge as I have grandchildren coming to help me find easter eggs. They are either coming tomorrow or Wednesday. Or maybe Tuesday. Whatever! xx all
It's my first anniversary of being a Moonbeam. A nice anniversary to have. Thank you all for your patience and bless you all with another good year. Also it's Easter! Enjoy the rest of the weekend!
It's off my Regime list, chocolate. But if it is made from beans and therefore if it is one of my 5(7) a day then I guess I need to have some at Easter....Happy Easter all of us!
Jo-I'm still using my LGFG goodies and in fact the eye and eyebrow pencils are better than what i owned already! Must try not to drop them this time as the leads break so easily.
Marie-bad luck about Thirsk- did you know they have an Austin Reid outlet there? We bought my OH 5 shirts there and had change from £30 (that was 5 years ago though). But the seaside would get my vote any day. So you ar e trading The White Horse for some White Horses! Hope the sun keeps shining for you.
Rachel, I went yesterday for my LGFB workshop and came away with lots of goodies. My daug told me that I looked a bit over the top though and that she thinks I am more beautiful without the make up - hard tobe cross with that!
It's very quiet on here - hope all of you are well and enjoying life. x
Ha! Jo- the UV in Jersey was between 3-4 (most people burn in 28 minutes with 4) most of the week where as here it struggled up to a 2-3!
Does anyone else find the sunblock irritating on the rad burns? I have mine up to within about a centimeter of my collarbone so I have been slathering it (children's sunbolk SPF 50) on but it really stings.
Sarah - so glad to hear from you, especially with your good news.
I have had a lovely week in Jersey - a sharp contrast to the same week last year. Biopsy on 5th April, cancelled holiday to Edinburgh on 9th, diagnosis on 12th followed by daug breaking her arm on 14th. I really thought this time last year that I wouldn't be here a year later. But I am and am living life to the full! Been on a cake making and decorating course this morning with daug which was lovely and had a bbq with friends this afternoon. Going to a LGFB workshop finally this week too.
Thanks to all of you for holding my hand through this terrible time, lets hope the only hand holding we do from now on is the happy kind! Love to you all. x
Sarah that is such good news...You have 10 months of peace, I guess; forgot when your mammo is. Are you also slaving to a deadline on your course? If so, here's me sending you brainwork vibes. xxP
Hello Moonbeams, sorry i have been quiet on here lately, i have been waiting for results. Have been very down of late but would like to share my good news with you all. I have had results of a recent MRI that say ' nothing of any concern on right side and normal appearance on the left, other than changes from surgery'. Next scan Feb next year. Thankyou ladies for all your support, i have been reading your posts but didn't want to reflect my negative mood. Wishing you all well and 13th good for me too. xxxxxxx